Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 hi all... I'm aseel bandora from Jordan..i have a 2 years old baby girl her name is besan..besan was born with infantile scoliosis and we know from the first days that something wrong with her back but the doctors there in Jordan find out that she had scoliosis when she was 8 months old and her angle was 30 degrees back then,then the doctors in Jordan told us to wait another 6 months just watching besan and after the 6 months besan's angle was increased to be 68 degrees which comes like a shock for all of us including her Doctor !!!!!!!! so after that they want to start surgeries for besan and it was very hard to accept..after searching on the Internet we found about Shriner's hospital and we came to USA a year ago,besan was lucky to be treated in Shriner's hospital ,Philly,and with her great doctor ,doctor ashgar besan start casting in last January and now she is in her 7Th cast and she is doing great thanks god,besan angle decreasing a lot and now it is 22 degree cast free and like 18 degrees in the cast... but we came to USA in a treatment visa its like you r visiting so we are not allowed to work her and we live now for one year from our saving back in Jordan and with help from our relative that we are living with them in CT..it has been a year now and we almost finish all of the money that we came with and no way to change our status...we need to go back to Jordan ..we can't work here (we r both engineers ) and we almost lost our jobs there in Jordan... i want to ask u all if you know any organisation or any comity can help us afford tickit back and forth from Jordan to USA every 3 months for recasting and doctor ashgar told us that besan will need to be seen every three months at least for 2 coming years which is coming impossible to be working with us...and our relatives is also can't continue helping for this long time please if u know any organisation can help contact me we need it we are in the middle of hard spot between besan treatment and our life...thanks a lot for listening aseel Get your preferred Email name! Now you can @ymail.com and @rocketmail.com. Quote Link to comment Share on other sites More sharing options...
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