Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Sounds like Allie is doing well! We have Abby's parent/teacher conference at 4:40 today. Pennie Abby's Mom **************AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. (http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://\ searchblog.aol.com/2008/11/04/happy-holidays-from -aol-search/?ncid=emlcntussear00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Congratulations on such a terrific report Debi! " I do not like the letter B. " Too funny! LOL In a message dated 11/6/2008 2:20:18 P.M. Central Standard Time, fightingautism@... writes: I had an IEP meeting yesterday. Allie (9 yrs old, 3rd grade) is now grade-level in reading and probably will be on grade level in math by the end of this year!!!! She still has some holes likely in comprehension, but is doing really well. They are about to start multiplication, and she's writing (by hand!!!) paragraphs of creative writing in response to a question. She's understanding puncuation and capitalization. They were showing me several paragraphs she read & was supposed to answer questions. They said before her teacher could ask her the answer to the question she said, " It's B. " Her teacher told her to circle the B & Allie said, " No, I do not like the letter B. " LOL. Still having some compliance/behavior issues! On the social front, however, they said it is getting better. She has typical peer walk her to sped class and evidently they've had some great communication. Allie is now able to reciprocate, to a degree, conversations. She is also asking for help when she needs it, and is working independently quite a bit. One of the best parts was her sped teacher telling me that she feels Allie is showing just what an intelligent young lady she is and they feel that Allie has the intelligence and ability to be what ever she chooses to be in life, that issues related to her autism will continue to improve and improve. She is a new teacher this year and is amazed as other teachers share how far Allie has come. Debi .. **************AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. (http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://\ searchblog.aol.com/2008/11/04/happy-holidays-from -aol-search/?ncid=emlcntussear00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 This is wonderful. this is the e-mails I love to see and get great encouragement Debi wrote: I had an IEP meeting yesterday. Allie (9 yrs old, 3rd grade) is now grade-level in reading and probably will be on grade level in math by the end of this year!!!! She still has some holes likely in comprehension, but is doing really well. They are about to start multiplication, and she's writing (by hand!!!) paragraphs of creative writing in response to a question. She's understanding puncuation and capitalization. They were showing me several paragraphs she read & was supposed to answer questions. They said before her teacher could ask her the answer to the question she said, " It's B. " Her teacher told her to circle the B & Allie said, " No, I do not like the letter B. " LOL. Still having some compliance/behavior issues! On the social front, however, they said it is getting better. She has typical peer walk her to sped class and evidently they've had some great communication. Allie is now able to reciprocate, to a degree, conversations. She is also asking for help when she needs it, and is working independently quite a bit. One of the best parts was her sped teacher telling me that she feels Allie is showing just what an intelligent young lady she is and they feel that Allie has the intelligence and ability to be what ever she chooses to be in life, that issues related to her autism will continue to improve and improve. She is a new teacher this year and is amazed as other teachers share how far Allie has come. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Debi this is of good to read too. I to have of some questions is of Allie then verbal? if so is the school now beginning to say she is of no longer of need of sped? as this tends to be of a pattern to some who improve and did of this same with some of my own childrens. It isof sad that when the child makes of gains they begin to take supports and services away and if the child does not do good they begin to say the child is not gaining or teachable and then just begin of to ware house of them. it is of the back lash to autism when they might be to start out as classical and then over time emerge to HFA , i to see of this pattern much so and have no ideas as to why two kids with similar presentations of autism and both have of parents working hard to help them and some gain and others do not. I to be of one who gained slowly all of life and still learning in life. I to be of happy to read of her good progress. well I to promised to take of my missy out this night before her therapy group so need to close and get of ready to take of her out. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 This is FANTASTIC. Go Allie! > > Subject: good news at IEP > To: Autism_in_Girls > Date: Thursday, November 6, 2008, 2:18 PM > I had an IEP meeting yesterday. Allie (9 yrs old, 3rd grade) > is now > grade-level in reading and probably will be on grade level > in math by > the end of this year!!!! She still has some holes likely in > comprehension, but is doing really well. They are about to > start > multiplication, and she's writing (by hand!!!) > paragraphs of creative > writing in response to a question. She's understanding > puncuation and > capitalization. > > They were showing me several paragraphs she read & was > supposed to > answer questions. They said before her teacher could ask > her the > answer to the question she said, " It's B. " > Her teacher told her to > circle the B & Allie said, " No, I do not like the > letter B. " LOL. > Still having some compliance/behavior issues! > > On the social front, however, they said it is getting > better. She has > typical peer walk her to sped class and evidently > they've had some > great communication. Allie is now able to reciprocate, to a > degree, > conversations. She is also asking for help when she needs > it, and is > working independently quite a bit. > > One of the best parts was her sped teacher telling me that > she feels > Allie is showing just what an intelligent young lady she is > and they > feel that Allie has the intelligence and ability to be what > ever she > chooses to be in life, that issues related to her autism > will continue > to improve and improve. She is a new teacher this year and > is amazed > as other teachers share how far Allie has come. > > Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 WOW! What great news. How wonderful for you to hear that. Rebekah > > Subject: good news at IEP > To: Autism_in_Girls > Date: Thursday, November 6, 2008, 12:18 PM > I had an IEP meeting yesterday. Allie (9 yrs old, 3rd grade) > is now > grade-level in reading and probably will be on grade level > in math by > the end of this year!!!! She still has some holes likely in > comprehension, but is doing really well. They are about to > start > multiplication, and she's writing (by hand!!!) > paragraphs of creative > writing in response to a question. She's understanding > puncuation and > capitalization. > > They were showing me several paragraphs she read & was > supposed to > answer questions. They said before her teacher could ask > her the > answer to the question she said, " It's B. " > Her teacher told her to > circle the B & Allie said, " No, I do not like the > letter B. " LOL. > Still having some compliance/behavior issues! > > On the social front, however, they said it is getting > better. She has > typical peer walk her to sped class and evidently > they've had some > great communication. Allie is now able to reciprocate, to a > degree, > conversations. She is also asking for help when she needs > it, and is > working independently quite a bit. > > One of the best parts was her sped teacher telling me that > she feels > Allie is showing just what an intelligent young lady she is > and they > feel that Allie has the intelligence and ability to be what > ever she > chooses to be in life, that issues related to her autism > will continue > to improve and improve. She is a new teacher this year and > is amazed > as other teachers share how far Allie has come. > > Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Oh what GREAT news Debi!!! Those are the kinds of IEP meetings I look forward to having in the future! Way to Go Allie and mom!!! > > I had an IEP meeting yesterday. Allie (9 yrs old, 3rd grade) is now > grade-level in reading and probably will be on grade level in math by > the end of this year!!!! She still has some holes likely in > comprehension, but is doing really well. They are about to start > multiplication, and she's writing (by hand!!!) paragraphs of creative > writing in response to a question. She's understanding puncuation and > capitalization. > > They were showing me several paragraphs she read & was supposed to > answer questions. They said before her teacher could ask her the > answer to the question she said, " It's B. " Her teacher told her to > circle the B & Allie said, " No, I do not like the letter B. " LOL. > Still having some compliance/behavior issues! > > On the social front, however, they said it is getting better. She has > typical peer walk her to sped class and evidently they've had some > great communication. Allie is now able to reciprocate, to a degree, > conversations. She is also asking for help when she needs it, and is > working independently quite a bit. > > One of the best parts was her sped teacher telling me that she feels > Allie is showing just what an intelligent young lady she is and they > feel that Allie has the intelligence and ability to be what ever she > chooses to be in life, that issues related to her autism will continue > to improve and improve. She is a new teacher this year and is amazed > as other teachers share how far Allie has come. > > Debi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 I love hearing this! Go Allie! And you too Debi, you get credit too. I hope I can make a report like this about Rosie one day > > > > I had an IEP meeting yesterday. Allie (9 yrs old, 3rd grade) is now > > grade-level in reading and probably will be on grade level in math by > > the end of this year!!!! She still has some holes likely in > > comprehension, but is doing really well. They are about to start > > multiplication, and she's writing (by hand!!!) paragraphs of creative > > writing in response to a question. She's understanding puncuation and > > capitalization. > > > > They were showing me several paragraphs she read & was supposed to > > answer questions. They said before her teacher could ask her the > > answer to the question she said, " It's B. " Her teacher told her to > > circle the B & Allie said, " No, I do not like the letter B. " LOL. > > Still having some compliance/behavior issues! > > > > On the social front, however, they said it is getting better. She has > > typical peer walk her to sped class and evidently they've had some > > great communication. Allie is now able to reciprocate, to a degree, > > conversations. She is also asking for help when she needs it, and is > > working independently quite a bit. > > > > One of the best parts was her sped teacher telling me that she feels > > Allie is showing just what an intelligent young lady she is and they > > feel that Allie has the intelligence and ability to be what ever she > > chooses to be in life, that issues related to her autism will continue > > to improve and improve. She is a new teacher this year and is amazed > > as other teachers share how far Allie has come. > > > > Debi > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 > " I do not like the letter B. " Too funny! LOL I to wonder if she is of like me and feels letters and such and relates to letters movments like of me and thus prefers sharp letters that have straight lines and or angles not the curvy letters and or rounded off ones. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Thanks, everyone. Sondra, no, the school is not trying to remove services. Allie definitely still has autism and has challenges to overcome. She still has time in special ed room throughout the day. Her behaviors are relatively good but does occasionally yell when she's angry and she argues with the teachers. They gave me an example of telling Allie to get out her book work and she said, " Allie does NOT like book work! " But she was getting out her book work as she said it. They told me that they like it not that she's arguing, but that she is using proper verbal skills instead of screaming or crying. At least in the meeting they are telling me they like seeing her use verbal skills. Obviously I always wonder if they're trying to tell me what they think I want to hear or not. Also, regarding removing services. I'm not trying to brag, but I think they are well aware that they would have one heck of a fight on their hands from me if they ever try to de-certify her. Regarding language, Allie was nonverbal, not even babbling, from 10 mos old to 18 mos old, then she said " diddle-iddle-iddle " until 2yrs 5 mos old when she began talking days after starting gfcf. Her language developed quickly regarding labels. She has always had near perfect articulation, but you can see that she's searching for the right words. She has communicated often through movie/tv scripts. She often has conversations with us repeating scripts over & over. I think she's trying to be communicative but doesn't know how to get the right words out. The other thing I'm seeing is that she is more verbal with kids at school and her sisters than me. I don't know why, perhaps she doesn't feel she has to try as much? Maybe i don't shut up long enough to let her speak? I have difficulty saying Allie has high functioning autism. To me, she has full blown autism, but she is functioning relatively high. I guess in some ways I feel I'm trying to gloss over the autism by calling it high functioning and by saying she has plain old autism I'm accepting her fully. I dunno, does that make any sense at all? Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Maybe so. She drew a capital A in a ring around her thigh like a AAAAA so that it made a really cool design. She was laughing as she did it because I was practicing a lung assessment test I had learned in class where you have a person say " eeeeee " as you listen to the back of their lungs. If it sounds like a " a " instead of " e " through the stethoscope then it's a sign there is fluid in the lungs. I was examining Dinah and Craig said all the while he was pointing to her thigh saying " AAAAAA " and that Allie was cracking up. Debi > > > " I do not like the letter B. " Too funny! LOL > I to wonder if she is of like me and feels letters and such and > relates to letters movments like of me and thus prefers sharp letters > that have straight lines and or angles not the curvy letters and or > rounded off ones. > sondra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 Debi happy to hear she is of not being of pushed out of services. I to hate that battle when parents have to fight so hard when that level comes had many of them over the younger ones in various school buildings and the other building even within the district served them well. about the HFA yes I to understand of that. I to refer to it for self I to guess because want of people to think of me as being of smarter than I to use to be and yet even so still have of dx of autism. My therapist shares to me that autism is of autism no matter how involved or mild it is it still is of autism and this makes of sense too. maybe for self should be of to remove of that term for self too. thank you for sharing over her language process. I was of thinking she was of non verbal but must be of thinking of anther list member of it. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2008 Report Share Posted November 6, 2008 > I have difficulty saying Allie has high functioning autism. > To me, she > has full blown autism, but she is functioning relatively > high. I guess > in some ways I feel I'm trying to gloss over the autism > by calling it > high functioning and by saying she has plain old autism > I'm accepting > her fully. I dunno, does that make any sense at all? > > Debi I think this makes complete sense. With what I've read over the years, Allie is a kid with " classic " autism who has worked very hard, and has a team who has worked with her very hard, and because of this at this moment she's dealing very well with her disabilities. She's learned a lot of work arounds, and a lot of skills, and she is still autistic. She's doing great, and that should be celebrated for sure, and..she is autistic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 That is so funny she was doing that... Interesting info about the lung assessment test. Theresa > > Maybe so. She drew a capital A in a ring around her thigh like a AAAAA > so that it made a really cool design. She was laughing as she did it > because I was practicing a lung assessment test I had learned in class > where you have a person say " eeeeee " as you listen to the back of > their lungs. If it sounds like a " a " instead of " e " through the > stethoscope then it's a sign there is fluid in the lungs. I was > examining Dinah and Craig said all the while he was pointing to her > thigh saying " AAAAAA " and that Allie was cracking up. > > Debi > > > > > > > " I do not like the letter B. " Too funny! LOL > > I to wonder if she is of like me and feels letters and such and > > relates to letters movments like of me and thus prefers sharp letters > > that have straight lines and or angles not the curvy letters and or > > rounded off ones. > > sondra > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 I believe Allie's team has worked very hard. But I truly believe what is happening is happening because biomedical interventions has enabled Allie to now receive the full benefit of her team. Allie has made progress every year, but this year seems to be huge. The gains keep coming & coming. I think it's because her mito stuff is finally getting under control through Dr. Geier's treatments. This is the first year she will likely need a IEP revision half-way through, and we made some pretty tough goals. The difference medically that I see is that she's been healthy. Since May she had 1 cold that truly lasted 1 week & a stomach bug that lasted a few days. She got over the illnesses relatively like the health of a normal (medically-speaking) child instead of symptoms lingering for weeks on end. I've said for the last couple of years if we could just get her healthy I think she would make huge progress. That appears to now be happening. Again, in no way dismissing the incredible work of her therapists & teachers over the years. Craig said when I credit biomed it may make them feel as if I don't appreciate them, and that's not the case at all. I think it simply furthers that we cannot expect kids with autism to improve from behavioral therapies alone until they feel good in their bodies. I know when I have a cold or sick to my stomach I cannot perform well, I shouldn't expect her to, either. I think we need to make sure our kids are at maximum health so the teachers and therapists can show how great they are with our kids. As I typed this I just watched Allie get out her homework & do it all by herself (we were busy-busy last night.) I have NEVER seen her do school work by herself without my constant pushing her to complete it. Debi - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 debi yes when one is of healthy they can be of more able to learn and think in clear fashions such as she did to go and get of her homework by her self. it is of good to see the words sharing the progress here of the girls. In the picture of the kids at trick or treat time is of that you home too and the extra kids are of they of you kids friends? it looked like you had of good weather too for that time of trick or treat. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 No, it is the home of a friend of mine. She used to be my neighbor but remarried and moved to another area of town. Her daughter, the raggedy Ann, she is on of 's best friends Lily. I helped take care of Lily a lot because her father died days after Lily turned one year-old. Lily still stays with us some, she loves Allie and Dinah very much, too. The other girl was a neighbor friend of Lily's, and there were two other girls not in the picture who are now Lily's step-sisters, they are also wonderful with Allie and Dinah. We had a really big group of girls from age 14 to 6 that we walked their neighborhood with. Here in Knoxville it is very hilly, including my neighorhood so it's not as fun and we don't have a lot of kids here. My kids love going to visit Lily & they invited us, so we all went over there. Yes, it was a nice evening, sort of cold, I guess around 50 degrees. But when they are in all those costumes it's usually not that fun when it's a warm night. The leaves are just beginning to fall here really good this week, the colors are still beautiful. I love to look up to the sky when it's really blue and see the reds, yellows, and browns contrasted against the blue. It's a very nice feeling inside. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 Did it go well? Debi > > Sounds like Allie is doing well! We have Abby's parent/teacher conference at > 4:40 today. > > Pennie > Abby's Mom > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 Debi when I to drived through you state almost a year ago I to loved it then and can be of to visualize of the leaves on the trees and the blue sky both are very stimmy play for me as well. Our trees have been changing and the leaves falling and such the weather for trick or treat was of warmer. but cant remember of the degrees. I to wondered if you Allie enjoys of trick or treat or is it still a mecahnical function with no real understand of the concepts of the game of knocking and then saying trick or treat. when of my youngest two were of little it took of them a long time to go from mechanical or to attend to the task to finally getting the concept and enjoying it. My missy is of 15 but she still went this year because she developmentally really still enjoys it now. I to remember when they were of little my mikey was only interested in the sewer grates on the streets and not at all understanding of the concept of getting candy. he would get SIB if we tried to redirect of him to the trick or treat. He finally understood it when he was of maybe 3rd grade too. My missy around the same age, she use to say instead of trick or treat she wanted of to know how many bedrooms their house had and wanted to just come in and visit the people's house not so much the people but their house LOL. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 I think Allie's favorite part is getting to dress as someone else. She seems to love that. She will go up to the door & say trick or treat but didn't always remember to hold out her bag. Most of the time she would say thank you. I think she enjoyed the motions of it, but since she doesn't like candy I think that part was rather boring to her of actually receiving candy. That's funny about Missy. I could totally see Allie trying to go in some houses for interesting stuff. We went through that one camping trip at the lake. Every time we turned around she was sneaking off into someone's camper. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 debi that is of funny of her wanting to go to the other campers to visit, so much like of missy. I to actually do not have any real clear memory of trick or treats and not know if ever did do of them but not saying did not but not sure. I to have of memory of one though as a much young child but had no real memory of it excpet we took with us a young man who had of a disease of the lungs that is of fatal hims name was of perry and he died not long after that time but he got of to where he could not breath much and so the mother of me and the neighbor lady ran carrying of hims home. I to think it was of cystic fibrosis. but that is of the only memory of that was the confusion of the boy being of coughing hard, the adults carrying and running with him, the dark the tears. but the actual memory of any trick or treat I to not be of sure of it. that is of why I to asked of it because I to wonder if the concept of it never really registered to me as a child of the reasons behind of the trick or treat of if my anxiety was of too much and so never went to it, simply do not know. I to play to try to visit of the birth mother of me and video record of her being asked of certain questions of things to gain insight to my early development out side of the things I to already know from the birth family. several months back she shared I was of a biter girl and bit kids if they forcefully interacted or tried to pick me up and carry me or they frustrated me. I to lacked knowing that until it was of disclosed to me. she shared she often bit me back hard, but that it never seemed to really register until she bit me hard enough to make my skin bleed when I was to be of a first grader. she then shared I to never bit another person but did still bite of self. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 Sondra, how did you feel when you saw your birth mother? Did you feel sad, mad, happy, excited? Just curious because I know you had a difficult childhood. I've shared before my father dying when I was 11. I think I will always think of him in the mindset of an 11 year-old child. When I visit his grave which isn't often as it's so far away, I often feel like an 11 year-old child. Maybe it's that my emotions never got to mature beyond that point of knowing him, I don't really know. Did you feel that way at all? Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 Debi have not seen of hte mother yet but been of thinking of to be of going soon. have not been to see of her since maybe april. I to not go often and when i to go off and on it can trigger things if she is of in her mood to cause of me harm emotionally, but sometimes she is of okay and will have of words to me. sometimes if her mind is clear she will share thngs to me if I to seek of them of my childhood development when my sister is of there with me. in the last year she has been to apologize to me for a few things but never the sexual things to me. I to have to keep of my distance from her because it causes of me to get of emotionally sick if around her words and thinking too long. the sister in law has been of to see the things the mother had hidden from so much other people towards me but she was of witness to it many times over the last 7 years or so since the mother is of ill and not able to hold back her words always around others to me. many were of unsure of my words in regards to the mother until they too have been of to witness of it. the sister in law is of very strong to words and does tell her things now if she catches of her to say them to me. the brother of me went to the mothers house and took of all of the scary mans pictures down and told her why he was of doing of this and how this makes of me feel and she was of upset but did not put them back up. so over the last 7 years the brother and hims wife both have been of being a voice for me to her. I to not see of her as a mother person but as a person I to know who is of very ill now. I to ahve compassion to her ill and working on closure and forgiveness to her but it is of not an easy journey when it appears at times to be of a one sides work. but someday when I to do of this video things wil be maybe to share of it to some. but for now I to want of it as documentation of my early developmental history in life/I to also plan to bring of some question testing things to her to see how much can be of done by her in regards to me. sondra sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 > I have difficulty saying Allie has high functioning autism. To me, she > has full blown autism, but she is functioning relatively high. I guess > in some ways I feel I'm trying to gloss over the autism by calling it > high functioning and by saying she has plain old autism I'm accepting > her fully. I dunno, does that make any sense at all? > This reminds me of what a lot of autistic self-advocates have said about functioning labels. A few examples: http://ballastexistenz.autistics.org/?p=24 http://ballastexistenz.autistics.org/?p=50 http://tinyurl.com/6ojxa8 http://aspiesforfreedom.org/wiki/index.php?title=Functioning_labels http://tinyurl.com/5nh6d3 (Note: the last one is something I wrote a long time ago.) It seems to me like the difference between high functioning and low funcioning is typically defined by rather superficial differences. I met a 10 year old boy once who was the first person I'd met with body language like mine, who instantly made sense to me in a way no one else has. Yet people would think we're not that similar, because I'm verbal and have mild delays in self-care and he was mostly nonverbal and wore diapers. And while those differences are big in terms of what kind of help we need and such, they aren't that important to who you are as a person, and I felt that we were similar people in the important ways. (Note that this is different from the 'we're all the same on the inside' comments many people make. I am very aware that I'm quite different from most people in ways that are central to my own identity. It's just that this boy was like me in those important ways, much more than he was like me in his functional abilities.) Ettina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 ettina I to think too many want to refer to either HFA or LFA due to the IQ and for me that is of nto a good place to evaluate of ones ability in life. I to refer to LFA and HFA due to the functional ability to care for ones self as far as daily living care things of feeding , dressing, toileting and things of that and if they have any form of functional communication. to me for example the rain man would be of high intellect in some things but LFA due to the fact he cannot take care of any of hims own daily living things or to communicate effectively to obtain help if he needed of it for safe reasons. it is of not a set given for all but this is of how when I to use of the terms i to use of it. I to have of the ability to do some cooking although burn or undercook things too much, but can cook when hungry or know of how ot obtain food for self if not able to cook that day such as walk a local place and pay for already cooked food. I can be of to bathe self, shower and or groom of self in clipping nails and shaving and brushing teeth independently, I to be of able to dress self even if not in the way others might or in a fashion of others but can dress of self. It may also take of me at times longer to to this but can do it. sometimes if I to be of missing a part it takes of me time to process what is of missing t my routine of grooming and dressing. I can be of to drive but it took of me 10 years off and on of trying to learn of it but once I to learned of it I to now have of a drivers license. I can be of to be aware of time and getting self to most appointments by self. I can be of to do banking even though I to make erros much on my numbers which messes things up./ Can use of a phone if need to but usually avoid of them. while I to be of able to do this most days there are days when my being is of so out of sync that cant even begin and I to be of just take that as it is of okay and tomorrow might be of a better day in functioning. If this last for a few days then I to be of have to re learn of some things into a routine again. I can be of to go to a store and buy of a item or do of grocery things by self. none of these things are of easy for me but can do them. I can be of to ride a bike and learned of it a time back but when not on a bike for a few months it is of as if have to relearn of it all again and so when I to get of money and get of a new bike again will try to learn of that again. these are of all important things to have to function some independently in life but did not learn much of these things until after age of 25 but most were of learned most when in my 30's. these were of not things could do well for much of life, I to know the mother of me was of still dressing of me until was in or around the 3rd grade age. she was angry to me much for not being of able to do that and or dress of self at that age. i to tried but could not do it well. could get clothes off but not on very well. sondra Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.