Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 you do not be of to post often but when you come here and share words like of that even though they are of not towards me they validate my existance/ it makes me not feel as if I to be of a negative image that has no value in this life but that in this life I to have of gifts and net friends and this makes me feel okay, I to love of this list much so, because I to have of much special friends here too. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Thank you for your beautiful and wise words. We too felt as if our world had been shattered when we learned about our daughter's diagnosis. And we've had many difficult days, fears and feelings of dispair. But my daughter has enriched my life in so many ways, and she brings me joy every day. She's my gift and I'm so grateful for her life. I appreciate you sharing your thoughts. ________________________________ To: Autism_in_girls_and_women Sent: Wednesday, July 29, 2009 1:39:58 AM Subject: What now? I will always remember the first time a psychiatrist told me my duaghterwas autistic. It felt like the wind was knocked out of me. I will also remember the day when her public school told us she could no longer go to their school because she was unmanagable. But I will also always remember the times she has hugged me as a gift from God. Tonight, she was clearly over the limit, and when we decided she needed to go o bed with mom, and when I listened to her voice in that room, I was so impressed by its similarity to her mother's voice. She is more than autistic, she is my gift. When I hear others talk about how it feels when psychitrists tell them their child's first diagnosis, all I can do is tell them to hug them tightly and remember their child is a unique gift to this world. When I hear others say how much work their children are, I can sympathise, but I must tell them work is something you don't like. Your child is not work. They are a blessing. they were given to you for a reason. Appreciate their strengths and help them overcome their weaknesses. It is the same job evry other parent is given, its just a little bit harder. good luck to all of you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Beautiful words ! You always have great things to say to the group and I am certain that they hit home for everyone when they read them. I can't say that I ever had that world shattering or earth moving moment when the dr. confirmed my daughter's diagnosis as mild to moderate Autism, instead for us it was almost as if it helped put our world back together. I know this can be odd for many to read, that instead of having the wind knocked out of me, or crying over the 'loss' of all we had hoped for her, I was actually able to catch my breath and was almost relieved. Autism is not something I would have ever hoped for one of my children to have, but my world had already been shattered when at just 6mo. old my tiny baby who was doing everything earlier than 'typical' for the age, had her first seizure. I can still remember the sheer terror I felt. Then we had some relief when the dr's said that after all the pokes to her little body, she just had an ear infection and she'd be fine, and we'd never see another seizure again. But weeks later when she had another one, that not only looked worse but lasted longer (a LOT longer) we knew not to trust these dr's. After all the specialists we'd seen, the answers we got were " I don't know " and " she is a puzzle " etc. For years now we've not had anyone able to tell us why she has seizures, and why instead of just plain simple seizures, she has Absence Seizures, Partial Seizures and Grand Mal Seizures... She has had nearly every variation of seizures that I've read about... and could have others that we don't know about still! And yet, every test they run, shows nothing that could be causing the seizures. When I started to research the seizures to find my own ideas and questions to ask the doctors, is when I found out more about Autism... like so many others, before that I had a pretty vauge (and inaccurate) knowledge of Autism... pretty much all the sterotypes so many think of is what I took to be true. The more I read about it, the more I was certain that was the answer... maybe the answer didn't have a pill to take to make it all better, but I at least had an answer. And with that answer was a huge relief. I still worry about what the future holds for , but I did before the diagnosis as well. Do I wish she was 'typical'? Yes... But not because I don't love and treasure her dearly just as she is... but because I am so very afraid that one day, one of her seizures is going to take her life... And I just wish she didn't have the health problems that she has. She can't go outside and run and play with other kids her age, she can't effectively communicate with them either... For these reasons I do wish she was a typical child and didn't have to carry these burdens... If God himself came to me today and said I can fix your daughter's Autism or her Seizures, but not both... I'd welcome the Autism with open arms! It doesn't matter how minor the seizures are, each and everytime I'm scared for her. We've come close to loosing her several times due to the seizures... and she's only 6 Anyway, thanks for your kind words... With as many problems as we have, I am reminded daily just how much of a blessing she is, and that our concerns over her health could be a whole lot worse! Many parent's are. Theresa > > > > I will always remember the first time a psychiatrist told me my duaghterwas > autistic. It felt like the wind was knocked out of me. > > I will also remember the day when her public school told us she could no > longer go to their school because she was unmanagable. > > But I will also always remember the times she has hugged me as a gift from > God. > > Tonight, she was clearly over the limit, and when we decided she needed to > go o bed with mom, and when I listened to her voice in that room, I was so > impressed by its similarity to her mother's voice. > > She is more than autistic, she is my gift. > > When I hear others talk about how it feels when psychitrists tell them > their child's first diagnosis, all I can do is tell them to hug them tightly > and remember their child is a unique gift to this world. > > When I hear others say how much work their children are, I can sympathise, > but I must tell them work is something you don't like. Your child is not > work. They are a blessing. > > they were given to you for a reason. Appreciate their strengths and help > them overcome their weaknesses. It is the same job evry other parent is > given, its just a little bit harder. > > good luck to all of you. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 Thank you my friend Subject: Re: What now? To: Autism_in_Girls_and_Women Date: Wednesday, July 29, 2009, 9:08 AM you do not be of to post often but when you come here and share words like of that even though they are of not towards me they validate my existance/ it makes me not feel as if I to be of a negative image that has no value in this life but that in this life I to have of gifts and net friends and this makes me feel okay, I to love of this list much so, because I to have of much special friends here too. sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 , nice positive thinking & uplifting. There are many positives living a life with autism & just hope to be able to help Kim live life to the fullest & without any harm. Marei On Tue, Jul 28, 2009 at 11:39 PM, Belcher wrote: > I will always remember the first time a psychiatrist told me my duaghterwas > autistic. It felt like the wind was knocked out of me. > > I will also remember the day when her public school told us she could no > longer go to their school because she was unmanagable. > > But I will also always remember the times she has hugged me as a gift from > God. > > Tonight, she was clearly over the limit, and when we decided she needed to > go o bed with mom, and when I listened to her voice in that room, I was so > impressed by its similarity to her mother's voice. > > She is more than autistic, she is my gift. > > When I hear others talk about how it feels when psychitrists tell them > their child's first diagnosis, all I can do is tell them to hug them tightly > and remember their child is a unique gift to this world. > > When I hear others say how much work their children are, I can sympathise, > but I must tell them work is something you don't like. Your child is not > work. They are a blessing. > > they were given to you for a reason. Appreciate their strengths and help > them overcome their weaknesses. It is the same job evry other parent is > given, its just a little bit harder. > > good luck to all of you. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2009 Report Share Posted July 30, 2009 , that was beautifully said. Thank you for sharing Pat Subject: What now? To: Autism_in_girls_and_women Date: Tuesday, July 28, 2009, 11:39 PM I will always remember the first time a psychiatrist told me my duaghterwas autistic. It felt like the wind was knocked out of me. I will also remember the day when her public school told us she could no longer go to their school because she was unmanagable. But I will also always remember the times she has hugged me as a gift from God. Tonight, she was clearly over the limit, and when we decided she needed to go o bed with mom, and when I listened to her voice in that room, I was so impressed by its similarity to her mother's voice. She is more than autistic, she is my gift. When I hear others talk about how it feels when psychitrists tell them their child's first diagnosis, all I can do is tell them to hug them tightly and remember their child is a unique gift to this world. When I hear others say how much work their children are, I can sympathise, but I must tell them work is something you don't like. Your child is not work. They are a blessing. they were given to you for a reason. Appreciate their strengths and help them overcome their weaknesses. It is the same job evry other parent is given, its just a little bit harder. good luck to all of you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2009 Report Share Posted July 31, 2009 I have always liked to work. I do not consider our children " work " . I do consider helping them navigate their challenges challenging. My challenges enlighten me to the struggles of humanity. ~~~Aggy Mother of 22 yr old Katy Diagnosed with PDD(nos) Grandmother to Katy's daughter Isabella Gail Subject: What now? To: Autism_in_girls_and_women Date: Wednesday, July 29, 2009, 2:39 AM I will always remember the first time a psychiatrist told me my duaghterwas autistic. It felt like the wind was knocked out of me. I will also remember the day when her public school told us she could no longer go to their school because she was unmanagable. But I will also always remember the times she has hugged me as a gift from God. Tonight, she was clearly over the limit, and when we decided she needed to go o bed with mom, and when I listened to her voice in that room, I was so impressed by its similarity to her mother's voice. She is more than autistic, she is my gift. When I hear others talk about how it feels when psychitrists tell them their child's first diagnosis, all I can do is tell them to hug them tightly and remember their child is a unique gift to this world. When I hear others say how much work their children are, I can sympathise, but I must tell them work is something you don't like. Your child is not work. They are a blessing. they were given to you for a reason. Appreciate their strengths and help them overcome their weaknesses. It is the same job evry other parent is given, its just a little bit harder. good luck to all of you. Quote Link to comment Share on other sites More sharing options...
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