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Dana,

Just curious because I'm from PA too...

Did you go the Childrens hospital in Pgh ?

~Jill

----- Original Message -----

From: Dana Mascaro <bnbpugs@...>

<Plagiocephalyonelist>

Sent: Wednesday, March 22, 2000 10:00 AM

Subject: news

> From: " Dana Mascaro " <bnbpugs@...>

>

> My son just received his helmet on Monday, so far so good. When

> we were there, there were three other babies with helmets. I had to

> go out yesterday to a meeting and I took him with me with his helmet

> on. I could see the woman I was talking to looking at him so I said

> that I was so glad his was good because he is just getting used to

> his helmet. I told her that nothing was wrong with him and I

> explained to her about plagiocephaly. She had no idea and was glad

> when I told her because she thought he had epilepsy. I had no idea

> what went through other people's minds. Just some info, I was told

> to wash 's head every day and to wash the helmet with a mixture

> of 1 qrt of water to 2 tbls of baby shampoo in a squirt bottle. Just

> spray the inside and wipe dry. I really want to try to stay on top

> of it so the smell doesn't get too bad. Belinda, I would be

> interested in hearing what type of response you received from the

> people you contacted. I also feel that if someone would have

> mentioned it to me I would have switched 's position. I do know

> that around November one of the news programs did a huge broadcast on

> plagiocephaly. This just happened to be the day I went to the doctor

> and he to me to start repositioning . I am sorry I do not

> remember which channel it was. If you would like to know the date to

> pursue it any further I would be happy to call me ped. to find out

> when it was. Let me know if I can be of any help with anything.

> Dana (Pennsylvania)

>

>

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dana where are you in pa? i am just starting this and closest cranial tech.

that i can find is charlotte n.c 10 hours from here please let me know where

you went?

christi

-----Original Message-----

From: Dana Mascaro <bnbpugs@...>

Plagiocephalyonelist <Plagiocephalyonelist>

Date: Wednesday, March 22, 2000 7:01 AM

Subject: news

>From: " Dana Mascaro " <bnbpugs@...>

>

>My son just received his helmet on Monday, so far so good. When

>we were there, there were three other babies with helmets. I had to

>go out yesterday to a meeting and I took him with me with his helmet

>on. I could see the woman I was talking to looking at him so I said

>that I was so glad his was good because he is just getting used to

>his helmet. I told her that nothing was wrong with him and I

>explained to her about plagiocephaly. She had no idea and was glad

>when I told her because she thought he had epilepsy. I had no idea

>what went through other people's minds. Just some info, I was told

>to wash 's head every day and to wash the helmet with a mixture

>of 1 qrt of water to 2 tbls of baby shampoo in a squirt bottle. Just

>spray the inside and wipe dry. I really want to try to stay on top

>of it so the smell doesn't get too bad. Belinda, I would be

>interested in hearing what type of response you received from the

>people you contacted. I also feel that if someone would have

>mentioned it to me I would have switched 's position. I do know

>that around November one of the news programs did a huge broadcast on

>plagiocephaly. This just happened to be the day I went to the doctor

>and he to me to start repositioning . I am sorry I do not

>remember which channel it was. If you would like to know the date to

>pursue it any further I would be happy to call me ped. to find out

>when it was. Let me know if I can be of any help with anything.

>Dana (Pennsylvania)

>

>

>------------------------------------------------------------------------

>MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE!

>Get a NextCard Visa, in 30 seconds! Get rates as low as

>0.0% Intro or 9.9% Fixed APR and no hidden fees.

>Apply NOW!

>1/2122/3/_/689409/_/953737250/

>------------------------------------------------------------------------

>

>

>

>

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oh btw way doc band helmet lol.. same thing i just want to find my girl some

help!!!!!1

christi

-----Original Message-----

From: christik99@... <christik99@...>

Plagiocephalyonelist <Plagiocephalyonelist>

Date: Wednesday, March 22, 2000 12:53 PM

Subject: Re: news

>From: christik99@...

>

>dana where are you in pa? i am just starting this and closest cranial tech.

>that i can find is charlotte n.c 10 hours from here please let me know

where

>you went?

> christi

>-----Original Message-----

>From: Dana Mascaro <bnbpugs@...>

>Plagiocephalyonelist <Plagiocephalyonelist>

>Date: Wednesday, March 22, 2000 7:01 AM

>Subject: news

>

>

>>From: " Dana Mascaro " <bnbpugs@...>

>>

>>My son just received his helmet on Monday, so far so good. When

>>we were there, there were three other babies with helmets. I had to

>>go out yesterday to a meeting and I took him with me with his helmet

>>on. I could see the woman I was talking to looking at him so I said

>>that I was so glad his was good because he is just getting used to

>>his helmet. I told her that nothing was wrong with him and I

>>explained to her about plagiocephaly. She had no idea and was glad

>>when I told her because she thought he had epilepsy. I had no idea

>>what went through other people's minds. Just some info, I was told

>>to wash 's head every day and to wash the helmet with a mixture

>>of 1 qrt of water to 2 tbls of baby shampoo in a squirt bottle. Just

>>spray the inside and wipe dry. I really want to try to stay on top

>>of it so the smell doesn't get too bad. Belinda, I would be

>>interested in hearing what type of response you received from the

>>people you contacted. I also feel that if someone would have

>>mentioned it to me I would have switched 's position. I do know

>>that around November one of the news programs did a huge broadcast on

>>plagiocephaly. This just happened to be the day I went to the doctor

>>and he to me to start repositioning . I am sorry I do not

>>remember which channel it was. If you would like to know the date to

>>pursue it any further I would be happy to call me ped. to find out

>>when it was. Let me know if I can be of any help with anything.

>>Dana (Pennsylvania)

>>

>>

>>------------------------------------------------------------------------

>>MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE!

>>Get a NextCard Visa, in 30 seconds! Get rates as low as

>>0.0% Intro or 9.9% Fixed APR and no hidden fees.

>>Apply NOW!

>>1/2122/3/_/689409/_/953737250/

>>------------------------------------------------------------------------

>>

>>

>>

>>

>

>

>------------------------------------------------------------------------

>DON'T HATE YOUR RATE!

>Get a NextCard Visa, in 30 seconds! Get rates as low as

>0.0% Intro or 9.9% Fixed APR and no hidden fees.

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>1/2120/3/_/689409/_/953758378/

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pat i would love if you could ask them if they have any dr.s closer to make

the adjustments? im in central ,pa . i dont really mind making that 1` trip

for the casting but really dont want to make the trip every 2 weeks lol..

thank you

christi kirk

-----Original Message-----

From: PatMacD@... <PatMacD@...>

Plagiocephalyonelist <Plagiocephalyonelist>

Date: Wednesday, March 22, 2000 1:06 PM

Subject: Re: news

>From: PatMacD@...

>

>Christi - I'm in Charlotte if you need anything from down here - I'll be

>going to Cranial Tech with tomm or Friday! Patty

>

>------------------------------------------------------------------------

>GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0%

>Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

>1/937/3/_/689409/_/953759198/

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>

>

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I don't know how many of you out here have ever gone to Dr. Greene.com -- it's a very informative website by a physician, and is cross referenced for all kinds of topics. I originally went there because of a link to craniosynostosis. Just before I found information on the DOC band and this site, (when Quinn was about 7 weeks old), I wrote my own "question" explaining Quinn's problem, and finally, asking for resources.

Since I have found out so much about plagiocephaly, I wrote this site again, explaining what I've found out so far, and suggesting he go to the Plagiocephaly.org site to read the articles, and perhaps drop in on the parent's board/list to see what our concerns are. I told him about the lack of information, as well as the "dismissal" of the problem that many of us have run into. I told him about some of the studies that link plagiocephaly with increased ear infections, eating problems, and TMJ.... and suggested that if nothing else, he talk about "tummy time" along with the "back to the back campaign."

I also told him about the lack of information about helmets on the web, and how many parents would just like to be better informed in order to make a choice that is good for their child.

....anyway I wanted to let you know that one day later, a representative has responded, and she is forwarding the information to Dr. Greene, so perhaps sometime in the near future he will do an in-depth (and all of his answers are in-depth!) response about some of these things.

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