Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Look up work of Kane, its a while back but she was hot on this supp, PhD not a medic as I recall Mx hi allcan anyone tell me the theraputic dosing of this supplementI find its helping my son a lotat present we are doing 1 cap twice dailymany thanksIsobel x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 hi all can anyone tell me the theraputic dosing of this supplement I find its helping my son a lot at present we are doing 1 cap twice daily many thanks Isobel x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 hi mandi I looked again as I had asked this question before, someone mentioned I think catherine, 2700mg daily, this is quite a lot, I will check out this work of patricia Kane, thanks Isobel x > > Look up work of Kane, its a while back but she was hot on this > supp, PhD not a medic as I recall > > Mx > > > In a message dated 23/02/2011 20:05:12 GMT Standard Time, > isobelwizza@... writes: > > > > > hi all > can anyone tell me the theraputic dosing of this supplement > I find its helping my son a lot > at present we are doing 1 cap twice daily > > many thanks > Isobel x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Isobel - Perhaps it depends on the type: I think on Recovery from Autism they reckoned 2,700mg Phoschol for a therapeutic dose. We are now trying GPC Insta Gel (Crayhon Research) 1200mg from Breakspear which costs a fortune(£90 per 30 vials) which you give every other day so I'm a bit confused really. I think GPC might come in dry form - may be cheaper??? Is that what you use if so where do you get it? It says don't give within 3 hours of bedtime, best taken early in the day. Subject: Re: phosphatidylcholine [alpha-gpc] 400mg hi mandi I looked again as I had asked this question before, someone mentioned I think catherine, 2700mg daily, this is quite a lot, I will check out this work of patricia Kane, thanks Isobel x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 hi catherine ys we give gpc in the day time no where near bedtime but divided into doses throughout the day we have seen good results on higher doses recently, Yes it is a capsule but i would like to get the brekaspeare one as seems easier to take, Isobel > > Isobel - Perhaps it depends on the type: I think on Recovery from Autism they > reckoned 2,700mg Phoschol for a therapeutic dose. We are now trying GPC Insta > Gel (Crayhon Research) 1200mg from Breakspear which costs a fortune > (£90 per 30 vials) which you give every other day so I'm a bit confused really. > I think GPC might come in dry form - may be cheaper??? Is that what you use if > so where do you get it? It says don't give within 3 hours of bedtime, best taken > early in the day. > > > ________________________________ > > Subject: Re: phosphatidylcholine [alpha-gpc] 400mg > > > hi mandi I looked again as I had asked this question before, someone mentioned > I think catherine, 2700mg daily, this is quite a lot, I will check out this work > of patricia Kane, thanks Isobel x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 hi catherine ys we give gpc in the day time no where near bedtime but divided into doses throughout the day we have seen good results on higher doses recently, Yes it is a capsule but i would like to get the brekaspeare one as seems easier to take, Isobel > > Isobel - Perhaps it depends on the type: I think on Recovery from Autism they > reckoned 2,700mg Phoschol for a therapeutic dose. We are now trying GPC Insta > Gel (Crayhon Research) 1200mg from Breakspear which costs a fortune > (£90 per 30 vials) which you give every other day so I'm a bit confused really. > I think GPC might come in dry form - may be cheaper??? Is that what you use if > so where do you get it? It says don't give within 3 hours of bedtime, best taken > early in the day. > > > ________________________________ > > Subject: Re: phosphatidylcholine [alpha-gpc] 400mg > > > hi mandi I looked again as I had asked this question before, someone mentioned > I think catherine, 2700mg daily, this is quite a lot, I will check out this work > of patricia Kane, thanks Isobel x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 Isobel we are on it too. Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. Like it though because its easy to give and has a nice taste. Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 Out of interest, we have been supplied GPC (Glycerol Phosphatidylcholine) Insta-Gel by Breakspeare medical centre 1200mg daily which are supplied in gel tubes which squirt under the tongue Dr Goyal rates these Best wishes > To: Autism-Biomedical-Europe > Date: Thu, 3 Mar 2011 06:51:32 +0000> Subject: Re: phosphatidylcholine [alpha-gpc] 400mg> > Isobel we are on it too.> > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go.> > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to "rev up" the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out.> > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price.> > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > Like it though because its easy to give and has a nice taste.> > Eileen> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 Hello! My son was also given this.We used it a few days, it made him very agitated,tapping his mouths a lot..so, I stopped it but I would like to use it in future..In the mean time, he is OK with eggs so,he may get it cholin via food, isn't he? I will give a good feeling about his recent supplements by Dr Kees.He is on two new stuff starting last month.Quino Mit) and Biocarn (levocarnitin) My son surprises me everyday in terms of improvement his memory, expressive language, spontaneous language and gross motor movements.He has been on carnitine from Breakspear for ages..Pure the company they dominantly use but I have never seen any improvement,possibly he wasn't absorbing, now he is.I can't count this because he is having seizures as he is having more than a year! This is new and exciting..I am glad that at least I could say a few positive things about us.. Dear , Do you mind telling the recommendation from dr Julu and Dr Goyal about the outcome of the test which you had for your daughter at the Breakspear? I am waiting for a response from the dr at Great Ormond St Hos.whether or not they thinkDrJulu's test will be helpful to bring some light on my son's condition. I would really appreciate your view about this observation. Thanks nevin > > > Out of interest, we have been supplied GPC (Glycerol Phosphatidylcholine) Insta-Gel by Breakspeare medical centre 1200mg daily which are supplied in gel tubes which squirt under the tongue > > Dr Goyal rates these > > Best wishes > > > > > > To: Autism-Biomedical-Europe > > From: biomed@... > > Date: Thu, 3 Mar 2011 06:51:32 +0000 > > Subject: Re: phosphatidylcholine [alpha-gpc] 400mg > > > > Isobel we are on it too. > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > Like it though because its easy to give and has a nice taste. > > > > Eileen > > > > > > > > ------------------------------------ > > > > DISCLAIMER > > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 HI Nevin if you give me your email address I will send you a summary offline > To: Autism-Biomedical-Europe > Date: Thu, 3 Mar 2011 09:21:43 +0000> Subject: Re: phosphatidylcholine [alpha-gpc] 400mg> > Hello!> > My son was also given this.We used it a few days, it made him very agitated,tapping his mouths a lot..so, I stopped it but I would like to use it in future..In the mean time, he is OK with eggs so,he may get it cholin via food, isn't he?> I will give a good feeling about his recent supplements by Dr Kees.He is on two new stuff starting last month.Quino Mit) and Biocarn (levocarnitin)> > My son surprises me everyday in terms of improvement his memory, expressive language, spontaneous language and gross motor movements.He has been on carnitine from Breakspear for ages..Pure the company they dominantly use but I have never seen any improvement,possibly he wasn't absorbing, now he is.I can't count this because he is having seizures as he is having more than a year! This is new and exciting..I am glad that at least I could say a few positive things about us..> Dear ,> > Do you mind telling the recommendation from dr Julu and Dr Goyal about the outcome of the test which you had for your daughter at the Breakspear? I am waiting for a response from the dr at Great Ormond St Hos.whether or not they thinkDrJulu's test will be helpful to bring some light on my son's condition.> I would really appreciate your view about this observation.> > Thanks> nevin> > > >> > > > Out of interest, we have been supplied GPC (Glycerol Phosphatidylcholine) Insta-Gel by Breakspeare medical centre 1200mg daily which are supplied in gel tubes which squirt under the tongue> > > > Dr Goyal rates these> > > > Best wishes> > > > > > > > > > > To: Autism-Biomedical-Europe > > > > > Date: Thu, 3 Mar 2011 06:51:32 +0000> > > Subject: Re: phosphatidylcholine [alpha-gpc] 400mg> > > > > > Isobel we are on it too.> > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go.> > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to "rev up" the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out.> > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price.> > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > Like it though because its easy to give and has a nice taste.> > > > > > Eileen> > > > > > > > > > > > ------------------------------------> > > > > > DISCLAIMER> > > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 hi eileeen yes we are doing 2000mg at present throughout the day last one 4pm I dont know where I am going to get it in capsule form after this runs out any ideas as the gel one is heaven on earth to get him to take it[the only thing he wont have] he such a good taker of supps.. any ideas where to buy it from ?Isobel xx > > Isobel we are on it too. > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > Like it though because its easy to give and has a nice taste. > > Eileen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 Hello , My e-mail is; nevin.penny@... Thanks nevin > > > > > > > > > Out of interest, we have been supplied GPC (Glycerol Phosphatidylcholine) Insta-Gel by Breakspeare medical centre 1200mg daily which are supplied in gel tubes which squirt under the tongue > > > > > > Dr Goyal rates these > > > > > > Best wishes > > > > > > > > > > > > > > > > To: Autism-Biomedical-Europe > > > > From: biomed@ > > > > Date: Thu, 3 Mar 2011 06:51:32 +0000 > > > > Subject: Re: phosphatidylcholine [alpha-gpc] 400mg > > > > > > > > Isobel we are on it too. > > > > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > > > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > > > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > > > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > > > Like it though because its easy to give and has a nice taste. > > > > > > > > Eileen > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > DISCLAIMER > > > > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 PC and GPC aren't exactly the same thing. You'd want to be using the GPC if what you want to specifically target are effects on the brain. The research on GPC is pretty amazing--not specifically for autism, but for stroke victims and alzheimers. This is a powder form http://www.iherb.com/Source-Naturals-Alpha-GPC-300-mg-60-Capsules/1025?at=0 that we used. I found it easy to dose (as ds takes many supps mixed in with his CLO). It's only 300 mgs but from what I've read, I wouldn't dose the GPC at 2000 mgs, or at least not do that for more than a month anyhow. Anita > > > > Isobel we are on it too. > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > Like it though because its easy to give and has a nice taste. > > > > Eileen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 hi, i am wondering if anyone knows a place like a bed and breakfast near advance which is reasonable and cheap. thanks tahira i have tried for cheap rms at premier inn which have gone. To: Autism-Biomedical-Europe Sent: Thu, 3 March, 2011 11:38:49Subject: Re: phosphatidylcholine [alpha-gpc] 400mg Hello ,My e-mail is; nevin.penny@...Thanksnevin> > >> > > > > > Out of interest, we have been supplied GPC (Glycerol Phosphatidylcholine) Insta-Gel by Breakspeare medical centre 1200mg daily which are supplied in gel tubes which squirt under the tongue> > > > > > Dr Goyal rates these> > > > > > Best wishes> > > > > > > > > > > > > > > > To: Autism-Biomedical-Europe > > > > From: biomed@> > > > Date: Thu, 3 Mar 2011 06:51:32 +0000> > > > Subject: Re: phosphatidylcholine [alpha-gpc] 400mg> > > > > > > > Isobel we are on it too.> > > > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go.> > > > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to "rev up" the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out.> > > > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price.> > > > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > > > Like it though because its easy to give and has a nice taste.> > > > > > > > Eileen> > > > > > > > > > > > > > > > ------------------------------------> > > > > > > > DISCLAIMER> > > > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 hi Anita you are a mind of information thank you for this information Isobel x > > > > > > Isobel we are on it too. > > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > Like it though because its easy to give and has a nice taste. > > > > > > Eileen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 Yep I agree with Anita - that's why I only frontloaded it and went to 1 a day and then will taper to one every other day for a while. Five weeks in. Evidence I have not had, to date, of other supps. Development of Episodic Memory. Jay has started referring back to events in his day. Tonight I saw in his book an incident where a boy hit him in a queue, so he tried to hit him back and the teacher told J he mustn't do it. I asked J who had hit him and waited, usually it takes him a while to process. A long while. He came straight back at me with the boys name. Then he volunteered (unprompted) that " was fed up today because x and y got the scooters and would not let me have a go and that is not fair " . (I think longest question ever) I said (trying not to leap up in the air screaming for joy) " What do you mean, not fair?) J replied, I mean they SHOULD have let me have my turn. Sweet! Added to that - at school his acquisition rate has rocketed since he's been on it and they keep data. So this one's staying in for a while even if I sell my body to pay for it. Which won't pay for it. Damn have to think of something else. Eileen > > > > > > > > Isobel we are on it too. > > > > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > > > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > > > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > > > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > > > Like it though because its easy to give and has a nice taste. > > > > > > > > Eileen > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 I notice this is derived from soy - is this not a problem?Alison R Yep I agree with Anita - that's why I only frontloaded it and went to 1 a day and then will taper to one every other day for a while. Five weeks in. Evidence I have not had, to date, of other supps. Development of Episodic Memory. Jay has started referring back to events in his day. Tonight I saw in his book an incident where a boy hit him in a queue, so he tried to hit him back and the teacher told J he mustn't do it. I asked J who had hit him and waited, usually it takes him a while to process. A long while. He came straight back at me with the boys name. Then he volunteered (unprompted) that " was fed up today because x and y got the scooters and would not let me have a go and that is not fair " . (I think longest question ever) I said (trying not to leap up in the air screaming for joy) " What do you mean, not fair?) J replied, I mean they SHOULD have let me have my turn. Sweet! Added to that - at school his acquisition rate has rocketed since he's been on it and they keep data. So this one's staying in for a while even if I sell my body to pay for it. Which won't pay for it. Damn have to think of something else. Eileen > > > > > > > > Isobel we are on it too. > > > > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > > > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > > > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > > > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > > > Like it though because its easy to give and has a nice taste. > > > > > > > > Eileen > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 Where can we get this in the UK? has a below zero working memory! Vicky Re: Re: phosphatidylcholine [alpha-gpc] 400mg I notice this is derived from soy - is this not a problem? Alison R Yep I agree with Anita - that's why I only frontloaded it and went to 1 a day and then will taper to one every other day for a while. Five weeks in. Evidence I have not had, to date, of other supps. Development of Episodic Memory. Jay has started referring back to events in his day. Tonight I saw in his book an incident where a boy hit him in a queue, so he tried to hit him back and the teacher told J he mustn't do it. I asked J who had hit him and waited, usually it takes him a while to process. A long while. He came straight back at me with the boys name. Then he volunteered (unprompted) that " was fed up today because x and y got the scooters and would not let me have a go and that is not fair". (I think longest question ever) I said (trying not to leap up in the air screaming for joy) "What do you mean, not fair?) J replied, I mean they SHOULD have let me have my turn. Sweet! Added to that - at school his acquisition rate has rocketed since he's been on it and they keep data. So this one's staying in for a while even if I sell my body to pay for it. Which won't pay for it. Damn have to think of something else. Eileen > > > > > > > > Isobel we are on it too. > > > > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > > > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to "rev up" the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > > > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > > > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > > > Like it though because its easy to give and has a nice taste. > > > > > > > > Eileen > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2011 Report Share Posted March 3, 2011 Awesome!!!! Mx Tonight I saw in his book an incident where a boy hit him in a queue, so he tried to hit him back and the teacher told J he mustn't do it.I asked J who had hit him and waited, usually it takes him a while to process. A long while. He came straight back at me with the boys name.Then he volunteered (unprompted) that " was fed up today because x and y got the scooters and would not let me have a go and that is not fair". (I think longest question ever)I said (trying not to leap up in the air screaming for joy) "What do you mean, not fair?)J replied, I mean they SHOULD have let me have my turn.Sweet! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 Hi Vicky, from dr goyal he can prescribe it at breakespeare and Anita told me in an earlier thread from www.iherb.com their charge to post from the states is £6.00 so quite cheap Isobel x > > > > > > > > > > Isobel we are on it too. > > > > > > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > > > > > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > > > > > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > > > > > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > > > > > Like it though because its easy to give and has a nice taste. > > > > > > > > > > Eileen > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 Wow Eileen, how fantastic, this bought tears of joy to my eyes, this is SO wonderful! x To: Autism-Biomedical-Europe From: biomed@...Date: Thu, 3 Mar 2011 21:30:36 +0000Subject: Re: phosphatidylcholine [alpha-gpc] 400mg Yep I agree with Anita - that's why I only frontloaded it and went to 1 a day and then will taper to one every other day for a while.Five weeks in. Evidence I have not had, to date, of other supps.Development of Episodic Memory. Jay has started referring back to events in his day.Tonight I saw in his book an incident where a boy hit him in a queue, so he tried to hit him back and the teacher told J he mustn't do it.I asked J who had hit him and waited, usually it takes him a while to process. A long while. He came straight back at me with the boys name.Then he volunteered (unprompted) that " was fed up today because x and y got the scooters and would not let me have a go and that is not fair". (I think longest question ever)I said (trying not to leap up in the air screaming for joy) "What do you mean, not fair?)J replied, I mean they SHOULD have let me have my turn.Sweet!Added to that - at school his acquisition rate has rocketed since he's been on it and they keep data.So this one's staying in for a while even if I sell my body to pay for it. Which won't pay for it. Damn have to think of something else.Eileen > > > >> > > > Isobel we are on it too.> > > > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go.> > > > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to "rev up" the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out.> > > > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price.> > > > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > > > Like it though because its easy to give and has a nice taste.> > > > > > > > Eileen> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 I suspect it might be a problem for really sensitive kids--much like CLO with E in it is a problem for a very few kids. I've not heard of it being a problem, but don't know many kids who've been on it either. Anita > > > > > > > > > > > > Isobel we are on it too. > > > > > > > > > > > > Good results. Very expensive. Box says don't give at night because > > its a wake me up before you go go. > > > > > > > > > > > > My feeling is, like most supplements with our son anyway, the > > effect will eventually level out. It has taken a month to really see the > > benefits. I front loaded it for one month but then went to one dose a day , > > because I didn't know how much it was going to " rev up " the brain. I intend > > to do another couple of months at two a day soon, then tail off to one every > > other day. Otherwise I will be flat broke and unable to put in anything else > > to balance things out. > > > > > > > > > > > > The therapeutic dose in the research was two a day for adults with > > dementia and they found positive improvements. Tried to get it cheaper > > elsewhere but the mark up must be standard because everyone's selling it at > > roughly the same price. > > > > > > > > > > > > Maybe the therapeutic dose was so high because the gel goes under > > the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > > > > > > > Like it though because its easy to give and has a nice taste. > > > > > > > > > > > > Eileen > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 I also see it is at Cenaverde, and the brand they carry is a great one. TA members get a discount there, so might be worth checking out their price too. Can someone give me the exact name of what Dr Goyal is prescribing please? I may try to get it on prescription here. Anita > > > > > > > > > > > > Isobel we are on it too. > > > > > > > > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > > > > > > > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > > > > > > > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > > > > > > > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > > > > > > > Like it though because its easy to give and has a nice taste. > > > > > > > > > > > > Eileen > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 I also see it is at Cenaverde, and the brand they carry is a great one. TA members get a discount there, so might be worth checking out their price too. Can someone give me the exact name of what Dr Goyal is prescribing please? I may try to get it on prescription here. Anita > > > > > > > > > > > > Isobel we are on it too. > > > > > > > > > > > > Good results. Very expensive. Box says don't give at night because its a wake me up before you go go. > > > > > > > > > > > > My feeling is, like most supplements with our son anyway, the effect will eventually level out. It has taken a month to really see the benefits. I front loaded it for one month but then went to one dose a day , because I didn't know how much it was going to " rev up " the brain. I intend to do another couple of months at two a day soon, then tail off to one every other day. Otherwise I will be flat broke and unable to put in anything else to balance things out. > > > > > > > > > > > > The therapeutic dose in the research was two a day for adults with dementia and they found positive improvements. Tried to get it cheaper elsewhere but the mark up must be standard because everyone's selling it at roughly the same price. > > > > > > > > > > > > Maybe the therapeutic dose was so high because the gel goes under the tongue and I suspect whatever I do my son swallows a fair bit of it. > > > > > > > > > > > > Like it though because its easy to give and has a nice taste. > > > > > > > > > > > > Eileen > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 Cheers and Mandi, its certainly kicking in this supp now, a thing of great beauty, you just keep on doing what you are doing which I know you will because Harry is looking good to me. Harder to see when you're the child's Mum but I saw him as the comeback kid. Great xx PS I need those recipes all the Mummies I saw in the hols have spoilt my kid who is used to my crap cooking. Have to get better at the food here. xxx Like the Insta GPC as you may have gathered but eek I'd pay anything for my kid to get well, its worth it but wish it was cheaper. Come on Crayton Research, give us a clinical trial for autism. Just thirty of us for six months that'll do it! Going to email them. No harm in asking. > > Awesome!!!! > > Mx > > > In a message dated 03/03/2011 21:30:41 GMT Standard Time, > biomed@... writes: > > Tonight I saw in his book an incident where a boy hit him in a queue, so > he tried to hit him back and the teacher told J he mustn't do it. > > I asked J who had hit him and waited, usually it takes him a while to > process. A long while. He came straight back at me with the boys name. > > Then he volunteered (unprompted) that " was fed up today because x > and y got the scooters and would not let me have a go and that is not fair " . > (I think longest question ever) > > I said (trying not to leap up in the air screaming for joy) " What do you > mean, not fair?) > > J replied, I mean they SHOULD have let me have my turn. > > Sweet! > Quote Link to comment Share on other sites More sharing options...
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