Hello

July 11, 2001

Uggh, speaking of brownies I made some of those the other day (smores

brownies even), and a banana desert, and coookies.... Let's say I

did a lot of baking and cooking on my mini-vacation and it wasn't ALL

ate by my husband

Darcy who is glad to get back on track this week

> In a message dated 7/4/01 6:00:58 PM Pacific Daylight Time,

> taeboEMT@h... writes:

>

> > Brigitte-who just loves Rice Dream ice cream!!! Happy 4th!!!!

> >

>

> Oh YUM, me tooooooooo. It's a good thing I dont have any of that

right now

> either. LOL. Although I did make banana " ice cream " . Frozen bananas

and rice

> milk in my Vitamix. YUM!

>

> Moeser

> Halfway to Crazy, the Journal of My Life

> http://www.ericmoeser.com

>

July 11, 2001

But, not always does the weight loss slow down!! Everyone is

different

Darcy who lost her weight quite rapidly and at a very steady pace..

> " I have now started eating fresh salads and vegetables, fresh

meat

> and fish, limiting my dairy intake and cutting out processed

foods

> and starchy foods. I have been doing this for a week now and have

lost

> around 6lbs already leaving me with 30 to go.

>

> Cairo "

>

> I think what is important is that you find what works for you,

and find something you can stick to. Bottom line :-) Usually the

weight loss the first week is mainly due to water loss (from water

retention). After the first week, the weight loss usually slows down.

>

> Janick

>

September 18, 2004

Hi Jan A and welcome to the group. On our website we have lots of

information you may want to read in the files section.

hang in there.

Courage

Hello

>Thank you! My husband was diagnosed with LBD with parkinsonism this year.

Any helpful comments, information, or things to do will be greatly

appreciated. The last letter I wrote and thought I had sent did not go.

Hopefully this one will Jan A.

>

September 27, 2004

Jan A

Hello and welcome to the greatest group you can join. Sorry you had to find

us but I think you will be glad you did under the circumstances. No question

to small or to big. We discuss anything and everything to do with LBD. If

you have a question no one seems to have the answer to they can tell you where

to go to get it.

If any of us can be of help, just ask. We are here to assist in anyway we

can. You can feel free to vent, scream, cry, and laugh with this group. Yes,

there are times when we find something funny to tell about this disease. Maybe

something we have done that is silly and we share.

Good Luck and Hugs to you and your loved one,

Jacqui

September 28, 2004

Jan A,

Welcome to the caregiver support group. ( THere is also a spouse

group.) Your email did come through and as we say to most who come,

welcome and I am sorry you have to be here.

I am not sure what kind of info you are looking for about your husband.

There are lots of caregivers. My Mom died 2 years ago and she was with

me for 3 and lived in a nh for a year.

Let us know your questions and I am sure someone can relate. You also

have the option of going into Yahoo and reading messages that go on and

on that we have been typing for years.

Hope to hear from you again.

Donna R

September 28, 2004

At 02:07 AM 9/28/2004, you wrote:

>Thank you! My husband was diagnosed with LBD with parkinsonism this

>year. Any helpful comments, information, or things to do will be greatly

>appreciated. The last letter I wrote and thought I had sent did not

>go. Hopefully this one will Jan A.

Hi Jan, and welcome. I'm relatively new here myself, but I can

tell you that the folks here are unfailingly kind and helpful. They have

answered all my questions, offered helpful suggestions and have been

wonderfully supportive. You couldn't find a better group with which to

share this particular sorrow.

In my own case, it's my mother who has LBD. I don't know how long

she's had it, but I do know that her memory loss dates back as far as 11

years ago, when I first began having to take care of her after a back

injury. My father's short-term memory is just shot, but so far their new

doctor doesn't think he has any sort of dementia. She puts it down to

depression. They'll be 80 and 90 respectively, next month, so I guess we

have to expect some problems, right?

Good luck

dargie

September 28, 2004

At 03:49 AM 9/28/2004, you wrote:

>Yes,

>there are times when we find something funny to tell about this

>disease. Maybe

>something we have done that is silly and we share.

This reminded me of supper a few nights ago. Mom, is legally

blind as well as having LBD, and while we insist she feed herself as long

as she can, we often put the food on her spoon for her. She was asking

over and over if we would put some food on her spoon. My dad, who was a

salesman all his life, simply couldn't find the right word to tell my

mother that there already was, said: " The merchandise is on your

spoon! " And while it gave me a big laugh, it seemed to satisfy Mom who

picked up the spoon and ate.

I told my dad that he was really selling the meal.

dargie

September 28, 2004

Dargie's story:

> This reminded me of supper a few nights ago. Mom, is legally

> blind as well as having LBD, and while we insist she feed herself as

long

> as she can, we often put the food on her spoon for her. She was

asking

> over and over if we would put some food on her spoon. My dad, who

was a

> salesman all his life, simply couldn't find the right word to tell my

> mother that there already was, said: " The merchandise is on your

> spoon! " And while it gave me a big laugh, it seemed to satisfy Mom who

> picked up the spoon and ate.

> I told my dad that he was really selling the meal.

> dargie

Too funny, Dargie! Thanks for the laugh.

September 28, 2004

Thanks for the smile.

Jacqui

September 29, 2004

Thank you for the welcome! I have read all the letters tonight--will try the

files section latter. Jan

Hello

>Thank you! My husband was diagnosed with LBD with parkinsonism this year.

Any helpful comments, information, or things to do will be greatly

appreciated. The last letter I wrote and thought I had sent did not go.

Hopefully this one will Jan A.

>

June 21, 2008

Hi Tina, welcome to the group. I am Marta, and founded the group with

Elle who is very busy with kids these days!

You must have questions, so fire away!

Marta

>

> Hello,

>

> My name is Tina, and I am having my surgery Monday the 23rd at

Delano.

June 21, 2008

Hi Tina! Welcome to our family.

August 2, 2008

Hi , It's Ellen. I answered your post on the discussion board

(the other site). Just wanted to welcome you again to the family and

I'm sorry you have to be here.

In all honesty, you've found a fabulous group here. Very supportive

and informative as well as fun.

Just so you know, I was diagnosed 13 years ago - won't go into the

details - however, we had to move from New York to Florida in order

for me to feel better. I will tell you that summer is killer,

especially down here with the rain every day and the hurricanes.

Anyway, I'm going to keep this short (unusual for me) and say once

again, welcome, grab a seat and relax and jump right in just don't

forget your guidelines.

Take care and be well.

Ellen

December 13, 2008

Another thing to think about is if you can rent or if they have a recliner

in the room, as that is what most people sleep in for quite some time after

surgery. I was lucky to go to my brothers and they brought my recliner from my

house. I slept in it for a long time. So I would add that to my

checklist also.

I just had my four year anniversary, so I know what it is like to go through

the holidays with a new lease on life. You will do great.

Pearl

In a message dated 12/13/2008 3:13:43 P.M. Pacific Standard Time,

moobabies@... writes:

Welcome to the group !

I think having surgery in January is about as good as it gets because

by the time the holidays roll around in 2009 you will be all healed

and able to eat a decent amount of food. You will be thinner and

ready for a new wardrobe for Xmas gifts and you will have more get up

and go to to see you through all the extra demands the holiday season

brings.

Plus for ever more you will always remember that you start each new

year with labs and your follow-up dr. appointments to keep you

healthy and " on track " . YEA and CONGRATS!

I don't really have an answer on the motel situation, since I'm from

Bakersfield and I don't " stay " in local motels. Keep in mind that

you could always stay in Bakersfield. It's only about 30 min. south

of Delano and offers a much wider variety of hotels, places to eat

and shop.... This may be more important for who comes as your

support person.

Think about what may be important to you while recovering as you

research motels. If the motel has multiple levels are there

elevators? Indoor or outdoor hallways (you will want to take your

exercise walks and it is winter time). Do they offer a breakfast,

especially any egg dish..that will help with expenses. Is there a

fridge or microwave in the room? Being able to heat up some

leftovers can be very helpful as you won't eat much at a time. A

handicap room can be nice as it offers a larger bathroom and usually

have helpful grab bars to help you get up and down after surgery.

These are a few things to consider..lol.These are a few things to

Hopefully some folks who have recently stayed in the motels can give

some some insight.

Hugs

Jo

**************Make your life easier with all your friends, email, and

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December 13, 2008

Welcome to the group !

I think having surgery in January is about as good as it gets because

by the time the holidays roll around in 2009 you will be all healed

and able to eat a decent amount of food. You will be thinner and

ready for a new wardrobe for Xmas gifts and you will have more get up

and go to to see you through all the extra demands the holiday season

brings.

Plus for ever more you will always remember that you start each new

year with labs and your follow-up dr. appointments to keep you

healthy and " on track " . YEA and CONGRATS!

I don't really have an answer on the motel situation, since I'm from

Bakersfield and I don't " stay " in local motels. Keep in mind that

you could always stay in Bakersfield. It's only about 30 min. south

of Delano and offers a much wider variety of hotels, places to eat

and shop.... This may be more important for who comes as your

support person.

Think about what may be important to you while recovering as you

research motels. If the motel has multiple levels are there

elevators? Indoor or outdoor hallways (you will want to take your

exercise walks and it is winter time). Do they offer a breakfast,

especially any egg dish..that will help with expenses. Is there a

fridge or microwave in the room? Being able to heat up some

leftovers can be very helpful as you won't eat much at a time. A

handicap room can be nice as it offers a larger bathroom and usually

have helpful grab bars to help you get up and down after surgery.

These are a few things to consider..lol...or confuse you more!

Hopefully some folks who have recently stayed in the motels can give

some some insight.

Hugs

Jo

December 13, 2008

Hello and welcome!

I am having my surgery in January also - January 6th. I am coming from out of

town also. I am coming from about 400 miles away. When I went to Delano for my

consultation appointment I stayed at the Holiday Inn and the rates (even with

the Dr. K discount) are a little steep if you are staying for at 10-14 days. I

did a lot of checking around and I have made my reservations at Best Western.

The rate is about $72.00 a night, they have a continental breakfast, the

hallways are inside, they have internet access and they have an indoor heated

pool and spa (for your support person)..

But, as Jo stated - Bakersfield is only 30 mins away and probably has a lot more

to offer.

Good luck to you.

Terrie

Subject: Hello

To: DS_Friends_Keshishian

Date: Friday, December 12, 2008, 8:27 PM

Hello,

My name is . I am going to be having the ds surgery w/ Dr. K. in

January. I was wondering if anyone could reccomend a good motel to stay

at during recovery?

Thanks

December 13, 2008

,

Just one more point - and maybe Jo knows the anser to this one - but I am not

sure if there are hotels in Bakersfield that offer the reduced rates based on

you being a patient of Dr. K's.

Terrie

Subject: Hello

To: DS_Friends_Keshishian

Date: Friday, December 12, 2008, 8:27 PM

Hello,

My name is . I am going to be having the ds surgery w/ Dr. K. in

January. I was wondering if anyone could reccomend a good motel to stay

at during recovery?

Thanks

December 14, 2008

Welcome to the group !

I think having surgery in January is about as good as it gets because

by the time the holidays roll around in 2009 you will be all healed

and able to eat a decent amount of food. You will be thinner and

ready for a new wardrobe for Xmas gifts and you will have more get up

and go to to see you through all the extra demands the holiday season

brings.

Plus for ever more you will always remember that you start each new

year with labs and your follow-up dr. appointments to keep you

healthy and " on track " . YEA and CONGRATS!

I don't really have an answer on the motel situation, since I'm from

Bakersfield and I don't " stay " in local motels. Keep in mind that

you could always stay in Bakersfield. It's only about 30 min. south

of Delano and offers a much wider variety of hotels, places to eat

and shop.... This may be more important for who comes as your

support person.

Think about what may be important to you while recovering as you

research motels. If the motel has multiple levels are there

elevators? Indoor or outdoor hallways (you will want to take your

exercise walks and it is winter time). Do they offer a breakfast,

especially any egg dish..that will help with expenses. Is there a

fridge or microwave in the room? Being able to heat up some

leftovers can be very helpful as you won't eat much at a time. A

handicap room can be nice as it offers a larger bathroom and usually

have helpful grab bars to help you get up and down after surgery.

These are a few things to consider..lol...or confuse you more!

Hopefully some folks who have recently stayed in the motels can give

some some insight.

Hugs

Jo

December 14, 2008

There are no hotels that offer a Keshishian Discount in Bakersfield

that I know about.

Thanks Terrie for supplying some current info about Delano motels.

See...you are already being a VALUED member of this list with

something to offer. We need everyone here...as we are all at

different points in our journey and we learn from each other. Even

when someone simply asks a question...other learn right along with

them. So thanks for speaking up and being helpful with the Delano

motel question.

Isn't is fun getting to know a January switchsister!

Hugs

Jo

========================

>

> Just one more point - and maybe Jo knows the anser to this one -

but I am not sure if there are hotels in Bakersfield that offer the

reduced rates based on you being a patient of Dr. K's.

December 14, 2008

Hello,

Good point January is a really good time to have the surgery. Ill be making my

Christmas dinner a special one this year. Thanks for all your info. I will

definitly take all these things into consideration while picking the motel I

will be staying at. I think Ill go ahead and just stay in Deleno because my mom

knows the area better and will already know her way around. My mom and Uncle

both had the surgery in Delano so she knows what to expect. But the hotels Ive

tried just arent going to work. Me and my brother will both be having the

surgery together the same day. So finding a hotel/motel that can be flexable

with both of us should be a challange but were up for it. We will both be having

the surgery on Jan 20th. My mom wants us to share a room just so it will be

easier on her to care for us both but we might have to have seperate. Anyways

thanks for replying. I just love the support.

Jo wrote:

Welcome to the group !

I think having surgery in January is about as good as it gets because

by the time the holidays roll around in 2009 you will be all healed

and able to eat a decent amount of food. You will be thinner and

ready for a new wardrobe for Xmas gifts and you will have more get up

and go to to see you through all the extra demands the holiday season

brings.

Plus for ever more you will always remember that you start each new

year with labs and your follow-up dr. appointments to keep you

healthy and " on track " . YEA and CONGRATS!

I don't really have an answer on the motel situation, since I'm from

Bakersfield and I don't " stay " in local motels. Keep in mind that

you could always stay in Bakersfield. It's only about 30 min. south

of Delano and offers a much wider variety of hotels, places to eat

and shop.... This may be more important for who comes as your

support person.

Think about what may be important to you while recovering as you

research motels. If the motel has multiple levels are there

elevators? Indoor or outdoor hallways (you will want to take your

exercise walks and it is winter time). Do they offer a breakfast,

especially any egg dish..that will help with expenses. Is there a

fridge or microwave in the room? Being able to heat up some

leftovers can be very helpful as you won't eat much at a time. A

handicap room can be nice as it offers a larger bathroom and usually

have helpful grab bars to help you get up and down after surgery.

These are a few things to consider..lol...or confuse you more!

Hopefully some folks who have recently stayed in the motels can give

some some insight.

Hugs

Jo

December 14, 2008

What a great way to start the new year! How incredible that you and your

brother will both be there together. You will both be in my prayers. One word

of caution... Stay away from people with colds or the flu. My surgery was

postponed for 3 weeks because I caught a cold. Major disappointment, but you

certainly don't want to be coughing after this surgery!! Best of luck on your

new adventure.

Bonnie

________________________________

To: DS_Friends_Keshishian

Sent: Sunday, December 14, 2008 12:26:01 PM

Subject: Re: Re: Hello