Re: self-help, sensory stuff, and a question/update on us

[Guest guest]

Our daughter also has self help issues (and she does also have

hypotonia). The small amount of private OT we have previously been

able to obtain (both school and insurance have managed previously to

avoid paying for OT for her but now she has diagnoses that are making

them pay attention, finally) did help some with the issues. One

interesyting thing also has been that finally at age seven she is

somewhat able to tell me *why* some things are difficult. She told me

washing hair inside the bath is " scary " (showers are out) so now we do

it over the bath with a cup with her standing up. that really helps.

Is your daughter able to tell you anything about why some of these

things are hard?

Now on an all about us note: I have *finally* this week gotten

assurance that she is getting services through the school and have

been trying to figure out what I should ask for at the IEP. I know she

needs a lot of OT, both for school and for home stuff. Is it

appropriate to ask for self-help OT at school and if so how do I frame

it, what goals, etc? Any advice appreciated.

[Guest guest]

I would frame any self-help requests as to how it will impact school.

Like if it's hand-washing, point out that she needs goals that will

enable her to have hygiene at school to protect herself & others. If

it's eating, she needs to have access to proper, age-appropriate

feedings. Also for all of that are the social isolations of not being

age-appropriate.

Congrats on the good news.

Debi

[Guest guest]

Thanks Debi!

Yeah I think I can do that and I think the OT (who has always been an

advocate for Rose)will help. She has already told me she has a plan to

get her tying shoes... which I hadn't even considered daring to

attempt. I'm more concered about like using her fork and wiping her

rear

>

> I would frame any self-help requests as to how it will impact school.

> Like if it's hand-washing, point out that she needs goals that will

> enable her to have hygiene at school to protect herself & others. If

> it's eating, she needs to have access to proper, age-appropriate

> feedings. Also for all of that are the social isolations of not being

> age-appropriate.

>

> Congrats on the good news.

>

> Debi

>

[Guest guest]

Amen! Allie is 9, I haven't even considered trying to get her to tie

her shoes. She still wears a 12 size shoe, we just keep buying the

velcro. I reckon when the velcro runs out I may start trying then.

Debi