Re: DAN doctor

[Guest guest]

Wow, Kotsanis is still around? It's been about 10 years but back when Secretin was the thing to do he wanted to charge us $10,000 and sign a contract for injections. We saw Dr. Rao right when he started as a DAN doctor. He overcharged us and took both our payment and our insurance and it took a long time to get our money back. We did, it was just a pain. He also at the time (now remember this was about 7 years ago) had us try lots of different supplements with no testing to see what was really needed. In fact he recommended Nystatin even though my sons Yeast levels were in the normal range. He did a basic level of tests but I did not get the feeling he really knew how to read the results. I switched to Dr. Kartzinel in Florida. Dr. Kartzinel was good he did more testing but he also charged $1 a minute to even look our chart to refill a prescription. His phone call consults were $300 an hour not covered by insurance. These are just a few, we have seen 7 different doctors over the years and I've had 5 different pediatricians. Finding a doctor who knows more than I do (I've spent countless hours researching) and takes my insurance and not bleed me dry has been a challenge. I like Dr. a lot and he listens to me. Finding a doctor YOU like is what is important they are all working hard to help our kids but everyone is human and if you are unhappy you do have options. These were just my experiences chances are you'll have your own opinions.

Trina

DAN doctor

Does anyone recommend a DAN doctor in the Ft. Worth area or neighboring mid-cities? I've seen an ad for Dr. Kotsanis in Grapevine, and he is a board-certified physician. I met a another mother who recommended I drive to Austin instead of searching for help in this area. Advice? Certainly don't wish to do more harm to my child.EP

[Guest guest]

I'd recommend Dr. Rao in Plano.  We went to Dr. Kotsanis several years ago.  Our son was doing great.  He wasn't stimming at all anymore.  His speech/attention was the only area that still needed help.  Dr. Kotsanis demanded we go on " his " supplements.  On his supplements, our  son regressed immediately.  Our son began stimming again, and has been stimming ever since.  As it turns out, there was COPPER  in Dr. Kotsanis' suplements!  My son cannot regulate copper.  We, of course, immediately took our son off this supplement and stopped seeing Dr. Kotsanis.   In our minds, if someone doesn't understnd that a lot of children with autism have problems with copper, then you don't know enough.

 

I believe Dr. Rao to be more knowledgeable.

 

Hope this helps.  We are down in Austin now.  We believe the nutritionist gave us insight into some further dietary issues for our son.  Only time will tell as we implement the new interventions, but as with all things autism, it won't be easy. 

 

 

[Guest guest]

I took my son to Dr. kotsanis when he was younger, 15 yrs ago. He was one of

the first doctors to help, and do labs that lead us in the right direction to

imporve his leaky gut.

Dr. Kotsanis is expensive and he does not file insurance, but we found him

helpful and knowledeageble.

Nagla

PS I saw him at the DAN conference in October, so he is keeping up with the

science.

>

> Does anyone recommend a DAN doctor in the Ft. Worth area or neighboring

mid-cities? I've seen an ad for Dr. Kotsanis in Grapevine, and he is a

board-certified physician. I met a another mother who recommended I drive to

Austin instead of searching for help in this area. Advice? Certainly don't

wish to do more harm to my child.

>

> EP

>

[Guest guest]

- I admire your persistence in helping your son. Our favorite is Dr. Jepson too.

Re: DAN doctor

Trina,

You had this problem with Dr. Rao, too? I have suspected that he takes the insurance and the money. We are being hit with bills from 2007 and 2008 that should have been paid by insurance. Every time I called, I was hit with a different amount. The amount kept rising. I have been demanding detailed bills, but I am going to call our old insurance company and investigate this.

The last time we were there, I got admonished for not bringing my son in enough (every week). Then we were there for four hours, and when he finally came in, he would start to give us information, and then he would keep coming in and going out and say he'd "be right back." We were there for a very long time (2:30 -6:30) but only saw him intermittently for about thirty minutes.

He wanted to put my son on psychotropics for stimming! I told him at the very beginning that we were not interested in doping our son.

I still would choose him over Dr. Kotsanis, but I don't feel we've received anything different than we were told by Amy Holmes years ago. We were very satisfied with what we received at their clinic in Baton Rouge. If Dr. Holmes had not retired, we probably would have stayed under her care. If our son hadn't developed an allergy to sulfa, we would have continued this under Dr. Rao. We felt more comfortable when was there, and also Sunny, sho always made our son happy and relaxed. was excellent at getting the IV started. Our son has deep veins, and it is not an easy deal to get blood or start IV's.

I hear Dr. takes medicaid. Is this true? If so, he would be the first trying to help these kids while understanding the financial burden the families are under! I'm trying to make a decision as to which doctor really wants to help, but also need one who understands the financial burden --especially after doing biomeds for many years. We are going to try a low oxalate diet next. Is there anyone who has done this and seen improvements in their child?Also, is there anyone out there who allows their child the fish on the safe list once in a while? It seems every time we go to a doc, they just keep taking more and more food away. It is hard to know the right thing to do without getting feedback from other parents.

[Guest guest]

...thank you for the kinds words. I think we are all here to help our children any way we can and we won't have it any other way...

We just started seeing Dr. (i dont consider him a DAN dr.) and it has been a month since we started the treatment but can not pass a verdict yet. However, we don't have any bad news to report yet.

Re: DAN doctor

Trina,

You had this problem with Dr. Rao, too? I have suspected that he takes the insurance and the money. We are being hit with bills from 2007 and 2008 that should have been paid by insurance. Every time I called, I was hit with a different amount. The amount kept rising. I have been demanding detailed bills, but I am going to call our old insurance company and investigate this.

The last time we were there, I got admonished for not bringing my son in enough (every week). Then we were there for four hours, and when he finally came in, he would start to give us information, and then he would keep coming in and going out and say he'd "be right back." We were there for a very long time (2:30 -6:30) but only saw him intermittently for about thirty minutes.

He wanted to put my son on psychotropics for stimming! I told him at the very beginning that we were not interested in doping our son.

I still would choose him over Dr. Kotsanis, but I don't feel we've received anything different than we were told by Amy Holmes years ago. We were very satisfied with what we received at their clinic in Baton Rouge. If Dr. Holmes had not retired, we probably would have stayed under her care. If our son hadn't developed an allergy to sulfa, we would have continued this under Dr. Rao. We felt more comfortable when was there, and also Sunny, sho always made our son happy and relaxed. was excellent at getting the IV started. Our son has deep veins, and it is not an easy deal to get blood or start IV's.

I hear Dr. takes medicaid. Is this true? If so, he would be the first trying to help these kids while understanding the financial burden the families are under! I'm trying to make a decision as to which doctor really wants to help, but also need one who understands the financial burden --especially after doing biomeds for many years. We are going to try a low oxalate diet next. Is there anyone who has done this and seen improvements in their child?Also, is there anyone out there who allows their child the fish on the safe list once in a while? It seems every time we go to a doc, they just keep taking more and more food away. It is hard to know the right thing to do without getting feedback from other parents.

[Guest guest]

Yep- is really missed at Dr Rao's office -she was really great with my son doing the IV's

Re: DAN doctor

Trina,

You had this problem with Dr. Rao, too? I have suspected that he takes the insurance and the money. We are being hit with bills from 2007 and 2008 that should have been paid by insurance. Every time I called, I was hit with a different amount. The amount kept rising. I have been demanding detailed bills, but I am going to call our old insurance company and investigate this.

The last time we were there, I got admonished for not bringing my son in enough (every week). Then we were there for four hours, and when he finally came in, he would start to give us information, and then he would keep coming in and going out and say he'd "be right back." We were there for a very long time (2:30 -6:30) but only saw him intermittently for about thirty minutes.

He wanted to put my son on psychotropics for stimming! I told him at the very beginning that we were not interested in doping our son.

I still would choose him over Dr. Kotsanis, but I don't feel we've received anything different than we were told by Amy Holmes years ago. We were very satisfied with what we received at their clinic in Baton Rouge. If Dr. Holmes had not retired, we probably would have stayed under her care. If our son hadn't developed an allergy to sulfa, we would have continued this under Dr. Rao. We felt more comfortable when was there, and also Sunny, sho always made our son happy and relaxed. was excellent at getting the IV started. Our son has deep veins, and it is not an easy deal to get blood or start IV's.

I hear Dr. takes medicaid. Is this true? If so, he would be the first trying to help these kids while understanding the financial burden the families are under! I'm trying to make a decision as to which doctor really wants to help, but also need one who understands the financial burden --especially after doing biomeds for many years. We are going to try a low oxalate diet next. Is there anyone who has done this and seen improvements in their child?Also, is there anyone out there who allows their child the fish on the safe list once in a while? It seems every time we go to a doc, they just keep taking more and more food away. It is hard to know the right thing to do without getting feedback from other parents.

[Guest guest]

Yes, at Dr. Rao's could get the needle in painlessly on the first or second try.  She was so good at putting my son at Ease.  Sunny was always bright and cheerful at the front.  My son would play a money game with her, and she never once put him off or lost her patience with him.  We really miss them both.  But the billing office is where we had the most trouble.  I know they have a new person now, but the last person kept telling me differrent amounts we owed and it took forever to get the dates of service and the codes etc...