Jump to content
RemedySpot.com

Re: New here, just diagnosed after 8 years

Rate this topic


Guest guest

Recommended Posts

Hi ! I'm pretty new here too. I was actually diagnosed with Conn's 7 years ago, but at that time I couldn't find a lot online about it... over the years there's been more and more to be found. I, too, had a lot of "trash" go on in my life, both growing up and before my current marriage. Needless to say, a lot of baggage carried over into this marriage and I have often wondered since my diagnosis if all of the "fight or flight" times in my life attributed to this disease. I'm eager to see what the others say about that. I deal with a lot of anxiety yet. Unfortunately not all of my kids are my pride and joy. I've been trying to deal with their outcome wasn't because of me, it's a lifestyle they have chosen. It's hard to learn to stop blaming yourself for everything that goes wrong in life.

I'm sure you will find a lot of help here. I had to start a folder for my emails from this group because I want to keep the info handy and not lost in my other emails... good luck on finding the help you need!!

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Friday, August 12, 2011, 3:39 PM

I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.I was just placed on spirolactolone 25mg per day, and also on toprol 50.My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.I have felt no difference since the addition of the Spiro. I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina, and general malaise, really.I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any

unexpected stimulus.Also, I am whiny. I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??

Link to comment
Share on other sites

We have been here for nearly 10 years.Spread the word to you and your health care team.CE Grim MD Hi ! I'm pretty new here too. I was actually diagnosed with Conn's 7 years ago, but at that time I couldn't find a lot online about it... over the years there's been more and more to be found. I, too, had a lot of "trash" go on in my life, both growing up and before my current marriage. Needless to say, a lot of baggage carried over into this marriage and I have often wondered since my diagnosis if all of the "fight or flight" times in my life attributed to this disease. I'm eager to see what the others say about that. I deal with a lot of anxiety yet. Unfortunately not all of my kids are my pride and joy. I've been trying to deal with their outcome wasn't because of me, it's a lifestyle they have chosen. It's hard to learn to stop blaming yourself for everything that goes wrong in life. I'm sure you will find a lot of help here. I had to start a folder for my emails from this group because I want to keep the info handy and not lost in my other emails... good luck on finding the help you need!! bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website: http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html http://www.angelfire.com/tn/shepherdsrest/porch.html--- Subject: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Friday, August 12, 2011, 3:39 PM I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.I was just placed on spirolactolone 25mg per day, and also on toprol 50.My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.I have felt no difference since the addition of the Spiro. I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina, and general malaise, really.I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any unexpected stimulus.Also, I am whiny. I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??

Link to comment
Share on other sites

We have been here for nearly 10 years.Spread the word to you and your health care team.CE Grim MD Hi ! I'm pretty new here too. I was actually diagnosed with Conn's 7 years ago, but at that time I couldn't find a lot online about it... over the years there's been more and more to be found. I, too, had a lot of "trash" go on in my life, both growing up and before my current marriage. Needless to say, a lot of baggage carried over into this marriage and I have often wondered since my diagnosis if all of the "fight or flight" times in my life attributed to this disease. I'm eager to see what the others say about that. I deal with a lot of anxiety yet. Unfortunately not all of my kids are my pride and joy. I've been trying to deal with their outcome wasn't because of me, it's a lifestyle they have chosen. It's hard to learn to stop blaming yourself for everything that goes wrong in life. I'm sure you will find a lot of help here. I had to start a folder for my emails from this group because I want to keep the info handy and not lost in my other emails... good luck on finding the help you need!! bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website: http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html http://www.angelfire.com/tn/shepherdsrest/porch.html--- Subject: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Friday, August 12, 2011, 3:39 PM I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.I was just placed on spirolactolone 25mg per day, and also on toprol 50.My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.I have felt no difference since the addition of the Spiro. I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina, and general malaise, really.I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any unexpected stimulus.Also, I am whiny. I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??

Link to comment
Share on other sites

You will also note that I recommend that you have any device validated as accurate on you by your health care team but most do not really know how o do this Wrist devices are very sensitive to where u hold your arm. Tell us exactly how you do your pressure. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I did not know you had been here that long!! I searched for a group on yahoo years ago and never found you then... I did join one for a while, I think it was for Cushings. Were/Are you a member of it, Dr. Grim? Your name sounded familiar when I first saw it here... whatever group it was that I was on recommended the DASH diet also, and that's when I actually purchased the book.

Also, while looking at some bp monitors online yesterday, I saw recommendations by a Clarence Grim. Would that be you? I'm not sure the site, but I think it was the Omron wrist monitors... I have one but only the good Lord knows where the manual is at the moment and I was trying to find out what a symbol meant that was flashing on my monitor. It's a heart with the zig zaggy heart rate running through it. My BP was 128/86 and pulse was 76. The day before I had ate out at Olive Garden and my NA intake ended up being about 5000 for the day. I did take a bp pill(which I've backed off for now) and it did come back down. This morning it was 101/71. heart rate 79 and no little zig zaggy hearts... <grin>

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Saturday, August 13, 2011, 1:07 AM

We have been here for nearly 10 years.

Spread the word to you and your health care team.

CE Grim MD

Hi ! I'm pretty new here too. I was actually diagnosed with Conn's 7 years ago, but at that time I couldn't find a lot online about it... over the years there's been more and more to be found. I, too, had a lot of "trash" go on in my life, both growing up and before my current marriage. Needless to say, a lot of baggage carried over into this marriage and I have often wondered since my diagnosis if all of the "fight or flight" times in my life attributed to this disease. I'm eager to see what the others say about that. I deal with a lot of anxiety yet. Unfortunately not all of my kids are my pride and joy. I've been trying to deal with their outcome wasn't because of me, it's a lifestyle they have chosen. It's hard to learn to stop blaming yourself for everything that goes wrong in life.

I'm sure you will find a lot of help here. I had to start a folder for my emails from this group because I want to keep the info handy and not lost in my other emails... good luck on finding the help you need!!

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Friday, August 12, 2011, 3:39 PM

I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.I was just placed on spirolactolone 25mg per day, and also on toprol 50.My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.I have felt no difference since the addition of the Spiro. I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina, and general malaise, really.I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any

unexpected stimulus.Also, I am whiny. I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??

Link to comment
Share on other sites

You will also note that I recommend that you have any device validated as accurate on you by your health care team but most do not really know how o do this Wrist devices are very sensitive to where u hold your arm. Tell us exactly how you do your pressure. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I did not know you had been here that long!! I searched for a group on yahoo years ago and never found you then... I did join one for a while, I think it was for Cushings. Were/Are you a member of it, Dr. Grim? Your name sounded familiar when I first saw it here... whatever group it was that I was on recommended the DASH diet also, and that's when I actually purchased the book.

Also, while looking at some bp monitors online yesterday, I saw recommendations by a Clarence Grim. Would that be you? I'm not sure the site, but I think it was the Omron wrist monitors... I have one but only the good Lord knows where the manual is at the moment and I was trying to find out what a symbol meant that was flashing on my monitor. It's a heart with the zig zaggy heart rate running through it. My BP was 128/86 and pulse was 76. The day before I had ate out at Olive Garden and my NA intake ended up being about 5000 for the day. I did take a bp pill(which I've backed off for now) and it did come back down. This morning it was 101/71. heart rate 79 and no little zig zaggy hearts... <grin>

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Saturday, August 13, 2011, 1:07 AM

We have been here for nearly 10 years.

Spread the word to you and your health care team.

CE Grim MD

Hi ! I'm pretty new here too. I was actually diagnosed with Conn's 7 years ago, but at that time I couldn't find a lot online about it... over the years there's been more and more to be found. I, too, had a lot of "trash" go on in my life, both growing up and before my current marriage. Needless to say, a lot of baggage carried over into this marriage and I have often wondered since my diagnosis if all of the "fight or flight" times in my life attributed to this disease. I'm eager to see what the others say about that. I deal with a lot of anxiety yet. Unfortunately not all of my kids are my pride and joy. I've been trying to deal with their outcome wasn't because of me, it's a lifestyle they have chosen. It's hard to learn to stop blaming yourself for everything that goes wrong in life.

I'm sure you will find a lot of help here. I had to start a folder for my emails from this group because I want to keep the info handy and not lost in my other emails... good luck on finding the help you need!!

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Friday, August 12, 2011, 3:39 PM

I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.I was just placed on spirolactolone 25mg per day, and also on toprol 50.My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.I have felt no difference since the addition of the Spiro. I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina, and general malaise, really.I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any

unexpected stimulus.Also, I am whiny. I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??

Link to comment
Share on other sites

Or u moved. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I think the irregular heart rate is indicated by a heart with several hearts behind it, displayed like playing cards if you were playing a game of cards... could be wrong tho. guess I'd better find my manual.

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Saturday, August 13, 2011, 8:51 AM

Believe the zig zaggy heart indicates irregular heart rate. > > > > Subject: New here, just diagnosed after 8 years> To: hyperaldosteronism > Date: Friday, August 12, 2011, 3:39 PM> > > Â > > I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.> > I was just placed on spirolactolone 25mg per day, and also on toprol 50.> > My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.> > I have felt no difference since the addition of the Spiro. > > I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina,

and general malaise, really.> > I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any unexpected stimulus.> > Also, I am whiny. > > I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.> > Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??> > >

Link to comment
Share on other sites

Or u moved. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I think the irregular heart rate is indicated by a heart with several hearts behind it, displayed like playing cards if you were playing a game of cards... could be wrong tho. guess I'd better find my manual.

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Saturday, August 13, 2011, 8:51 AM

Believe the zig zaggy heart indicates irregular heart rate. > > > > Subject: New here, just diagnosed after 8 years> To: hyperaldosteronism > Date: Friday, August 12, 2011, 3:39 PM> > > Â > > I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.> > I was just placed on spirolactolone 25mg per day, and also on toprol 50.> > My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.> > I have felt no difference since the addition of the Spiro. > > I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina,

and general malaise, really.> > I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any unexpected stimulus.> > Also, I am whiny. > > I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.> > Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??> > >

Link to comment
Share on other sites

Tell me exactly where you hold it. This is no trivial matter. If it is off by 5 mm Hg you may be either over or under treated. The first is expensive and the second deadly. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Mine has a 'alarm' of sorts that has a certain tone when it is placed in the right area. It will not inflate until you get the right spot. I think I have checked it out with the drs. office before, but will take it on my return visit.

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: "hyperaldosteronism " <hyperaldosteronism >Date: Saturday, August 13, 2011, 10:13 PM

You will also note that I recommend that you have any device validated as accurate on you by your health care team but most do not really know how o do this Wrist devices are very sensitive to where u hold your arm. Tell us exactly how you do your pressure. Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

I did not know you had been here that long!! I searched for a group on yahoo years ago and never found you then... I did join one for a while, I think it was for Cushings. Were/Are you a member of it, Dr. Grim? Your name sounded familiar when I first saw it here... whatever group it was that I was on recommended the DASH diet also, and that's when I actually purchased the book.

Also, while looking at some bp monitors online yesterday, I saw recommendations by a Clarence Grim. Would that be you? I'm not sure the site, but I think it was the Omron wrist monitors... I have one but only the good Lord knows where the manual is at the moment and I was trying to find out what a symbol meant that was flashing on my monitor. It's a heart with the zig zaggy heart rate running through it. My BP was 128/86 and pulse was 76. The day before I had ate out at Olive Garden and my NA intake ended up being about 5000 for the day. I did take a bp pill(which I've backed off for now) and it did come back down. This morning it was 101/71. heart rate 79 and no little zig zaggy hearts... <grin>

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Saturday, August 13, 2011, 1:07 AM

We have been here for nearly 10 years.

Spread the word to you and your health care team.

CE Grim MD

Hi ! I'm pretty new here too. I was actually diagnosed with Conn's 7 years ago, but at that time I couldn't find a lot online about it... over the years there's been more and more to be found. I, too, had a lot of "trash" go on in my life, both growing up and before my current marriage. Needless to say, a lot of baggage carried over into this marriage and I have often wondered since my diagnosis if all of the "fight or flight" times in my life attributed to this disease. I'm eager to see what the others say about that. I deal with a lot of anxiety yet. Unfortunately not all of my kids are my pride and joy. I've been trying to deal with their outcome wasn't because of me, it's a lifestyle they have chosen. It's hard to learn to stop blaming yourself for everything that goes wrong in life.

I'm sure you will find a lot of help here. I had to start a folder for my emails from this group because I want to keep the info handy and not lost in my other emails... good luck on finding the help you need!!

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Friday, August 12, 2011, 3:39 PM

I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.I was just placed on spirolactolone 25mg per day, and also on toprol 50.My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.I have felt no difference since the addition of the Spiro. I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina, and general malaise, really.I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any

unexpected stimulus.Also, I am whiny. I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??

Link to comment
Share on other sites

Tell me exactly where you hold it. This is no trivial matter. If it is off by 5 mm Hg you may be either over or under treated. The first is expensive and the second deadly. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Mine has a 'alarm' of sorts that has a certain tone when it is placed in the right area. It will not inflate until you get the right spot. I think I have checked it out with the drs. office before, but will take it on my return visit.

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: "hyperaldosteronism " <hyperaldosteronism >Date: Saturday, August 13, 2011, 10:13 PM

You will also note that I recommend that you have any device validated as accurate on you by your health care team but most do not really know how o do this Wrist devices are very sensitive to where u hold your arm. Tell us exactly how you do your pressure. Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

I did not know you had been here that long!! I searched for a group on yahoo years ago and never found you then... I did join one for a while, I think it was for Cushings. Were/Are you a member of it, Dr. Grim? Your name sounded familiar when I first saw it here... whatever group it was that I was on recommended the DASH diet also, and that's when I actually purchased the book.

Also, while looking at some bp monitors online yesterday, I saw recommendations by a Clarence Grim. Would that be you? I'm not sure the site, but I think it was the Omron wrist monitors... I have one but only the good Lord knows where the manual is at the moment and I was trying to find out what a symbol meant that was flashing on my monitor. It's a heart with the zig zaggy heart rate running through it. My BP was 128/86 and pulse was 76. The day before I had ate out at Olive Garden and my NA intake ended up being about 5000 for the day. I did take a bp pill(which I've backed off for now) and it did come back down. This morning it was 101/71. heart rate 79 and no little zig zaggy hearts... <grin>

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Saturday, August 13, 2011, 1:07 AM

We have been here for nearly 10 years.

Spread the word to you and your health care team.

CE Grim MD

Hi ! I'm pretty new here too. I was actually diagnosed with Conn's 7 years ago, but at that time I couldn't find a lot online about it... over the years there's been more and more to be found. I, too, had a lot of "trash" go on in my life, both growing up and before my current marriage. Needless to say, a lot of baggage carried over into this marriage and I have often wondered since my diagnosis if all of the "fight or flight" times in my life attributed to this disease. I'm eager to see what the others say about that. I deal with a lot of anxiety yet. Unfortunately not all of my kids are my pride and joy. I've been trying to deal with their outcome wasn't because of me, it's a lifestyle they have chosen. It's hard to learn to stop blaming yourself for everything that goes wrong in life.

I'm sure you will find a lot of help here. I had to start a folder for my emails from this group because I want to keep the info handy and not lost in my other emails... good luck on finding the help you need!!

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Friday, August 12, 2011, 3:39 PM

I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.I was just placed on spirolactolone 25mg per day, and also on toprol 50.My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.I have felt no difference since the addition of the Spiro. I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina, and general malaise, really.I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any

unexpected stimulus.Also, I am whiny. I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??

Link to comment
Share on other sites

Or maybe your wife.

> >>>

> >>>

> >>> Subject: New here, just diagnosed after 8 years

> >>> To: hyperaldosteronism

> >>> Date: Friday, August 12, 2011, 3:39 PM

> >>>

> >>>

> >>> I am writing to introduce myself, I am a middle aged woman suffering from

HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I

guess it is this syndrome.

> >>>

> >>> I was just placed on spirolactolone 25mg per day, and also on toprol 50.

> >>>

> >>> My dr has never had a Conns' patient, and she will do some research and

make recommendations next month. I will find out what my aldosterone and renin

numbers were/ are.

> >>>

> >>> I have felt no difference since the addition of the Spiro.

> >>>

> >>> I have been c/o headaches, foggy brain, and sleeplessness, sweating,

weakness, dizziness, lack of stamina, and general malaise, really.

> >>>

> >>> I was in a a thirty yr marriage and found out things about my spouse that

frightened me, then he scared my physically for years when I said I might expose

him, we thought I had PTSD, could I have given this to myself? By being scared,

overusing my adrenals? Just a thought. I still am jumpy and overreact to any

unexpected stimulus.

> >>>

> >>> Also, I am whiny.

> >>>

> >>> I have been worried about alzheimers, I guess this is better, cannot wait

to feel sharp again.

> >>>

> >>> Funny way to introduce myself by listing complaints, so I will balance

that out with also stating my five kids are my pride, I am happy with most

aspects of my life, but some stamina and explanations would be helpful. Thanks

for being here....what does PA stand for??

> >>>

> >>>

> >>>

> >>

> >

> >

>

Link to comment
Share on other sites

Or maybe your wife.

> >>>

> >>>

> >>> Subject: New here, just diagnosed after 8 years

> >>> To: hyperaldosteronism

> >>> Date: Friday, August 12, 2011, 3:39 PM

> >>>

> >>>

> >>> I am writing to introduce myself, I am a middle aged woman suffering from

HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I

guess it is this syndrome.

> >>>

> >>> I was just placed on spirolactolone 25mg per day, and also on toprol 50.

> >>>

> >>> My dr has never had a Conns' patient, and she will do some research and

make recommendations next month. I will find out what my aldosterone and renin

numbers were/ are.

> >>>

> >>> I have felt no difference since the addition of the Spiro.

> >>>

> >>> I have been c/o headaches, foggy brain, and sleeplessness, sweating,

weakness, dizziness, lack of stamina, and general malaise, really.

> >>>

> >>> I was in a a thirty yr marriage and found out things about my spouse that

frightened me, then he scared my physically for years when I said I might expose

him, we thought I had PTSD, could I have given this to myself? By being scared,

overusing my adrenals? Just a thought. I still am jumpy and overreact to any

unexpected stimulus.

> >>>

> >>> Also, I am whiny.

> >>>

> >>> I have been worried about alzheimers, I guess this is better, cannot wait

to feel sharp again.

> >>>

> >>> Funny way to introduce myself by listing complaints, so I will balance

that out with also stating my five kids are my pride, I am happy with most

aspects of my life, but some stamina and explanations would be helpful. Thanks

for being here....what does PA stand for??

> >>>

> >>>

> >>>

> >>

> >

> >

>

Link to comment
Share on other sites

My left wrist, just slightly above my hand. my hand is almost closed, but not tightly. My finger tips come about to the right "line" in my palm(the lines that make the M shape), but again, not clenched tightly. There's 1/2 to 3/4" between my fingertips and the padding that goes to my thumb. That space is placed directly over the center of my chest, so the thumb padding is slightly to the left and the fingertips is slightly to the right of the center. If I don't place it there, the cuff will not inflate, just sits there beeping. Hope this makes it more clear for you. Is this the correct position? Also, I keep my feet flat on the floor and am in a sitting position.

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: "hyperaldosteronism " <hyperaldosteronism >Date: Sunday, August 14, 2011, 12:28 AM

Tell me exactly where you hold it. This is no trivial matter. If it is off by 5 mm Hg you may be either over or under treated. The first is expensive and the second deadly. Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Mine has a 'alarm' of sorts that has a certain tone when it is placed in the right area. It will not inflate until you get the right spot. I think I have checked it out with the drs. office before, but will take it on my return visit.

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: "hyperaldosteronism " <hyperaldosteronism >Date: Saturday, August 13, 2011, 10:13 PM

You will also note that I recommend that you have any device validated as accurate on you by your health care team but most do not really know how o do this Wrist devices are very sensitive to where u hold your arm. Tell us exactly how you do your pressure. Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

I did not know you had been here that long!! I searched for a group on yahoo years ago and never found you then... I did join one for a while, I think it was for Cushings. Were/Are you a member of it, Dr. Grim? Your name sounded familiar when I first saw it here... whatever group it was that I was on recommended the DASH diet also, and that's when I actually purchased the book.

Also, while looking at some bp monitors online yesterday, I saw recommendations by a Clarence Grim. Would that be you? I'm not sure the site, but I think it was the Omron wrist monitors... I have one but only the good Lord knows where the manual is at the moment and I was trying to find out what a symbol meant that was flashing on my monitor. It's a heart with the zig zaggy heart rate running through it. My BP was 128/86 and pulse was 76. The day before I had ate out at Olive Garden and my NA intake ended up being about 5000 for the day. I did take a bp pill(which I've backed off for now) and it did come back down. This morning it was 101/71. heart rate 79 and no little zig zaggy hearts... <grin>

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Saturday, August 13, 2011, 1:07 AM

We have been here for nearly 10 years.

Spread the word to you and your health care team.

CE Grim MD

Hi ! I'm pretty new here too. I was actually diagnosed with Conn's 7 years ago, but at that time I couldn't find a lot online about it... over the years there's been more and more to be found. I, too, had a lot of "trash" go on in my life, both growing up and before my current marriage. Needless to say, a lot of baggage carried over into this marriage and I have often wondered since my diagnosis if all of the "fight or flight" times in my life attributed to this disease. I'm eager to see what the others say about that. I deal with a lot of anxiety yet. Unfortunately not all of my kids are my pride and joy. I've been trying to deal with their outcome wasn't because of me, it's a lifestyle they have chosen. It's hard to learn to stop blaming yourself for everything that goes wrong in life.

I'm sure you will find a lot of help here. I had to start a folder for my emails from this group because I want to keep the info handy and not lost in my other emails... good luck on finding the help you need!!

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Friday, August 12, 2011, 3:39 PM

I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.I was just placed on spirolactolone 25mg per day, and also on toprol 50.My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.I have felt no difference since the addition of the Spiro. I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina, and general malaise, really.I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any

unexpected stimulus.Also, I am whiny. I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??

Link to comment
Share on other sites

not sure, now, come to think of it... but it was Carlene.

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: "hyperaldosteronism " <hyperaldosteronism >Date: Sunday, August 14, 2011, 12:29 AM

Grimm or Grim? We are often confused with each other. Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Thought it might be you... there was another person by the name of Grim also...

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: "hyperaldosteronism " <hyperaldosteronism >Date: Saturday, August 13, 2011, 10:08 PM

It is I. Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

I did not know you had been here that long!! I searched for a group on yahoo years ago and never found you then... I did join one for a while, I think it was for Cushings. Were/Are you a member of it, Dr. Grim? Your name sounded familiar when I first saw it here... whatever group it was that I was on recommended the DASH diet also, and that's when I actually purchased the book.

Also, while looking at some bp monitors online yesterday, I saw recommendations by a Clarence Grim. Would that be you? I'm not sure the site, but I think it was the Omron wrist monitors... I have one but only the good Lord knows where the manual is at the moment and I was trying to find out what a symbol meant that was flashing on my monitor. It's a heart with the zig zaggy heart rate running through it. My BP was 128/86 and pulse was 76. The day before I had ate out at Olive Garden and my NA intake ended up being about 5000 for the day. I did take a bp pill(which I've backed off for now) and it did come back down. This morning it was 101/71. heart rate 79 and no little zig zaggy hearts... <grin>

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: Re: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Saturday, August 13, 2011, 1:07 AM

We have been here for nearly 10 years.

Spread the word to you and your health care team.

CE Grim MD

Hi ! I'm pretty new here too. I was actually diagnosed with Conn's 7 years ago, but at that time I couldn't find a lot online about it... over the years there's been more and more to be found. I, too, had a lot of "trash" go on in my life, both growing up and before my current marriage. Needless to say, a lot of baggage carried over into this marriage and I have often wondered since my diagnosis if all of the "fight or flight" times in my life attributed to this disease. I'm eager to see what the others say about that. I deal with a lot of anxiety yet. Unfortunately not all of my kids are my pride and joy. I've been trying to deal with their outcome wasn't because of me, it's a lifestyle they have chosen. It's hard to learn to stop blaming yourself for everything that goes wrong in life.

I'm sure you will find a lot of help here. I had to start a folder for my emails from this group because I want to keep the info handy and not lost in my other emails... good luck on finding the help you need!!

bevAnnieRomans 8:28 And we know that all things work together for good to them that love God, to them who are the called according to his purpose.check out my website:

http://www.angelfire.com/tn/shepherdsrest/MorningGlory.html

http://www.angelfire.com/tn/shepherdsrest/porch.html---

Subject: New here, just diagnosed after 8 yearsTo: hyperaldosteronism Date: Friday, August 12, 2011, 3:39 PM

I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.I was just placed on spirolactolone 25mg per day, and also on toprol 50.My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.I have felt no difference since the addition of the Spiro. I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina, and general malaise, really.I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any

unexpected stimulus.Also, I am whiny. I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??

Link to comment
Share on other sites

Did find this about Dr Grim. Believe it is you.

http://academic.research.microsoft.com/author/23304591?form=BA

> > >>>

> > >>> From: lesliecapuano <lesliecapuano@>

> > >>> Subject: New here, just diagnosed after 8 years

> > >>> To: hyperaldosteronism

> > >>> Date: Friday, August 12, 2011, 3:39 PM

> > >>>

> > >>>

> > >>> I am writing to introduce myself, I am a middle aged woman suffering

from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but

I guess it is this syndrome.

> > >>>

> > >>> I was just placed on spirolactolone 25mg per day, and also on toprol 50.

> > >>>

> > >>> My dr has never had a Conns' patient, and she will do some research and

make recommendations next month. I will find out what my aldosterone and renin

numbers were/ are.

> > >>>

> > >>> I have felt no difference since the addition of the Spiro.

> > >>>

> > >>> I have been c/o headaches, foggy brain, and sleeplessness, sweating,

weakness, dizziness, lack of stamina, and general malaise, really.

> > >>>

> > >>> I was in a a thirty yr marriage and found out things about my spouse

that frightened me, then he scared my physically for years when I said I might

expose him, we thought I had PTSD, could I have given this to myself? By being

scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to

any unexpected stimulus.

> > >>>

> > >>> Also, I am whiny.

> > >>>

> > >>> I have been worried about alzheimers, I guess this is better, cannot

wait to feel sharp again.

> > >>>

> > >>> Funny way to introduce myself by listing complaints, so I will balance

that out with also stating my five kids are my pride, I am happy with most

aspects of my life, but some stamina and explanations would be helpful. Thanks

for being here....what does PA stand for??

> > >>>

> > >>>

> > >>>

> > >>

> > >

> > >

> >

>

Link to comment
Share on other sites

This link lists 86 publications of Dr Grim's. Also gives information what

Journal they can be found. Evolution of diagnostic criteria for primary

aldosteronism can be found in Current Hypertension Reports Publications: 973

http://academic.research.microsoft.com/Detail?entitytype=2 & searchtype=2 & id=23304\

591

> > > >>>

> > > >>> From: lesliecapuano <lesliecapuano@>

> > > >>> Subject: New here, just diagnosed after 8 years

> > > >>> To: hyperaldosteronism

> > > >>> Date: Friday, August 12, 2011, 3:39 PM

> > > >>>

> > > >>>

> > > >>> I am writing to introduce myself, I am a middle aged woman suffering

from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but

I guess it is this syndrome.

> > > >>>

> > > >>> I was just placed on spirolactolone 25mg per day, and also on toprol

50.

> > > >>>

> > > >>> My dr has never had a Conns' patient, and she will do some research

and make recommendations next month. I will find out what my aldosterone and

renin numbers were/ are.

> > > >>>

> > > >>> I have felt no difference since the addition of the Spiro.

> > > >>>

> > > >>> I have been c/o headaches, foggy brain, and sleeplessness, sweating,

weakness, dizziness, lack of stamina, and general malaise, really.

> > > >>>

> > > >>> I was in a a thirty yr marriage and found out things about my spouse

that frightened me, then he scared my physically for years when I said I might

expose him, we thought I had PTSD, could I have given this to myself? By being

scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to

any unexpected stimulus.

> > > >>>

> > > >>> Also, I am whiny.

> > > >>>

> > > >>> I have been worried about alzheimers, I guess this is better, cannot

wait to feel sharp again.

> > > >>>

> > > >>> Funny way to introduce myself by listing complaints, so I will balance

that out with also stating my five kids are my pride, I am happy with most

aspects of my life, but some stamina and explanations would be helpful. Thanks

for being here....what does PA stand for??

> > > >>>

> > > >>>

> > > >>>

> > > >>

> > > >

> > > >

> > >

> >

>

Link to comment
Share on other sites

Copy in our files as wellTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

This link lists 86 publications of Dr Grim's. Also gives information what Journal they can be found. Evolution of diagnostic criteria for primary aldosteronism can be found in Current Hypertension Reports Publications: 973

http://academic.research.microsoft.com/Detail?entitytype=2 & searchtype=2 & id=23304591

> > > >>>

> > > >>> From: lesliecapuano <lesliecapuano@>

> > > >>> Subject: New here, just diagnosed after 8 years

> > > >>> To: hyperaldosteronism

> > > >>> Date: Friday, August 12, 2011, 3:39 PM

> > > >>>

> > > >>>

> > > >>> I am writing to introduce myself, I am a middle aged woman suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but I guess it is this syndrome.

> > > >>>

> > > >>> I was just placed on spirolactolone 25mg per day, and also on toprol 50.

> > > >>>

> > > >>> My dr has never had a Conns' patient, and she will do some research and make recommendations next month. I will find out what my aldosterone and renin numbers were/ are.

> > > >>>

> > > >>> I have felt no difference since the addition of the Spiro.

> > > >>>

> > > >>> I have been c/o headaches, foggy brain, and sleeplessness, sweating, weakness, dizziness, lack of stamina, and general malaise, really.

> > > >>>

> > > >>> I was in a a thirty yr marriage and found out things about my spouse that frightened me, then he scared my physically for years when I said I might expose him, we thought I had PTSD, could I have given this to myself? By being scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to any unexpected stimulus.

> > > >>>

> > > >>> Also, I am whiny.

> > > >>>

> > > >>> I have been worried about alzheimers, I guess this is better, cannot wait to feel sharp again.

> > > >>>

> > > >>> Funny way to introduce myself by listing complaints, so I will balance that out with also stating my five kids are my pride, I am happy with most aspects of my life, but some stamina and explanations would be helpful. Thanks for being here....what does PA stand for??

> > > >>>

> > > >>>

> > > >>>

> > > >>

> > > >

> > > >

> > >

> >

>

Link to comment
Share on other sites

Hope that list includes Chapter C103 - BLOOD PRESSURE MEASUREMENT in the

Hypertension Primer that he and his wife authored!

- 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank &

testicle pain. I have decided against an adrenalectomy at this time since

Meds. are working so well. Current BP(last week ave): 124/61

Other Issues/Opportunities: COPD w/ft Oxygen, OSA w Bi-Pap settings 13/19, DM2.

and PTSD

Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG,

81mg asprin, Metformin 2000MG and Spironolactone 75 MG.

> > > > >>>

> > > > >>> From: lesliecapuano <lesliecapuano@>

> > > > >>> Subject: New here, just diagnosed after 8 years

> > > > >>> To: hyperaldosteronism

> > > > >>> Date: Friday, August 12, 2011, 3:39 PM

> > > > >>>

> > > > >>>

> > > > >>> I am writing to introduce myself, I am a middle aged woman suffering

from HBP, so tired of being foggy, too. I kept thinking it was the BP meds, but

I guess it is this syndrome.

> > > > >>>

> > > > >>> I was just placed on spirolactolone 25mg per day, and also on toprol

50.

> > > > >>>

> > > > >>> My dr has never had a Conns' patient, and she will do some research

and make recommendations next month. I will find out what my aldosterone and

renin numbers were/ are.

> > > > >>>

> > > > >>> I have felt no difference since the addition of the Spiro.

> > > > >>>

> > > > >>> I have been c/o headaches, foggy brain, and sleeplessness, sweating,

weakness, dizziness, lack of stamina, and general malaise, really.

> > > > >>>

> > > > >>> I was in a a thirty yr marriage and found out things about my spouse

that frightened me, then he scared my physically for years when I said I might

expose him, we thought I had PTSD, could I have given this to myself? By being

scared, overusing my adrenals? Just a thought. I still am jumpy and overreact to

any unexpected stimulus.

> > > > >>>

> > > > >>> Also, I am whiny.

> > > > >>>

> > > > >>> I have been worried about alzheimers, I guess this is better, cannot

wait to feel sharp again.

> > > > >>>

> > > > >>> Funny way to introduce myself by listing complaints, so I will

balance that out with also stating my five kids are my pride, I am happy with

most aspects of my life, but some stamina and explanations would be helpful.

Thanks for being here....what does PA stand for??

> > > > >>>

> > > > >>>

> > > > >>>

> > > > >>

> > > > >

> > > > >

> > > >

> > >

> >

>

Link to comment
Share on other sites

Maybe if one can find a copy the Journal where this published would have more

chance that there Dr would read it.

> > > > > >>>

> > > > > >>> From: lesliecapuano <lesliecapuano@>

> > > > > >>> Subject: New here, just diagnosed after 8

years

> > > > > >>> To: hyperaldosteronism

> > > > > >>> Date: Friday, August 12, 2011, 3:39 PM

> > > > > >>>

> > > > > >>>

> > > > > >>> I am writing to introduce myself, I am a middle aged woman

suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP

meds, but I guess it is this syndrome.

> > > > > >>>

> > > > > >>> I was just placed on spirolactolone 25mg per day, and also on

toprol 50.

> > > > > >>>

> > > > > >>> My dr has never had a Conns' patient, and she will do some

research and make recommendations next month. I will find out what my

aldosterone and renin numbers were/ are.

> > > > > >>>

> > > > > >>> I have felt no difference since the addition of the Spiro.

> > > > > >>>

> > > > > >>> I have been c/o headaches, foggy brain, and sleeplessness,

sweating, weakness, dizziness, lack of stamina, and general malaise, really.

> > > > > >>>

> > > > > >>> I was in a a thirty yr marriage and found out things about my

spouse that frightened me, then he scared my physically for years when I said I

might expose him, we thought I had PTSD, could I have given this to myself? By

being scared, overusing my adrenals? Just a thought. I still am jumpy and

overreact to any unexpected stimulus.

> > > > > >>>

> > > > > >>> Also, I am whiny.

> > > > > >>>

> > > > > >>> I have been worried about alzheimers, I guess this is better,

cannot wait to feel sharp again.

> > > > > >>>

> > > > > >>> Funny way to introduce myself by listing complaints, so I will

balance that out with also stating my five kids are my pride, I am happy with

most aspects of my life, but some stamina and explanations would be helpful.

Thanks for being here....what does PA stand for??

> > > > > >>>

> > > > > >>>

> > > > > >>>

> > > > > >>

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

>

Link to comment
Share on other sites

Not all Dr use the internet or will accept something downloaded from a web site.

If I am going to get my VA Dr to read something about PA need a good sorce. Most

likey it is in the VA system like other things I have seem them look up.

> > > > > > > >>>

> > > > > > > >>> From: lesliecapuano <lesliecapuano@>

> > > > > > > >>> Subject: New here, just diagnosed after 8

years

> > > > > > > >>> To: hyperaldosteronism

> > > > > > > >>> Date: Friday, August 12, 2011, 3:39 PM

> > > > > > > >>>

> > > > > > > >>>

> > > > > > > >>> I am writing to introduce myself, I am a middle aged woman

suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP

meds, but I guess it is this syndrome.

> > > > > > > >>>

> > > > > > > >>> I was just placed on spirolactolone 25mg per day, and also on

toprol 50.

> > > > > > > >>>

> > > > > > > >>> My dr has never had a Conns' patient, and she will do some

research and make recommendations next month. I will find out what my

aldosterone and renin numbers were/ are.

> > > > > > > >>>

> > > > > > > >>> I have felt no difference since the addition of the Spiro.

> > > > > > > >>>

> > > > > > > >>> I have been c/o headaches, foggy brain, and sleeplessness,

sweating, weakness, dizziness, lack of stamina, and general malaise, really.

> > > > > > > >>>

> > > > > > > >>> I was in a a thirty yr marriage and found out things about my

spouse that frightened me, then he scared my physically for years when I said I

might expose him, we thought I had PTSD, could I have given this to myself? By

being scared, overusing my adrenals? Just a thought. I still am jumpy and

overreact to any unexpected stimulus.

> > > > > > > >>>

> > > > > > > >>> Also, I am whiny.

> > > > > > > >>>

> > > > > > > >>> I have been worried about alzheimers, I guess this is better,

cannot wait to feel sharp again.

> > > > > > > >>>

> > > > > > > >>> Funny way to introduce myself by listing complaints, so I will

balance that out with also stating my five kids are my pride, I am happy with

most aspects of my life, but some stamina and explanations would be helpful.

Thanks for being here....what does PA stand for??

> > > > > > > >>>

> > > > > > > >>>

> > > > > > > >>>

> > > > > > > >>

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

> > Reply to sender | Reply to group | Reply via web post | Start a New Topic

> > Messages in this topic (21)

> > RECENT ACTIVITY: New Members 4

>

Link to comment
Share on other sites

Not all Dr use the internet or will accept something downloaded from a web site.

If I am going to get my VA Dr to read something about PA need a good sorce. Most

likey it is in the VA system like other things I have seem them look up.

> > > > > > > >>>

> > > > > > > >>> From: lesliecapuano <lesliecapuano@>

> > > > > > > >>> Subject: New here, just diagnosed after 8

years

> > > > > > > >>> To: hyperaldosteronism

> > > > > > > >>> Date: Friday, August 12, 2011, 3:39 PM

> > > > > > > >>>

> > > > > > > >>>

> > > > > > > >>> I am writing to introduce myself, I am a middle aged woman

suffering from HBP, so tired of being foggy, too. I kept thinking it was the BP

meds, but I guess it is this syndrome.

> > > > > > > >>>

> > > > > > > >>> I was just placed on spirolactolone 25mg per day, and also on

toprol 50.

> > > > > > > >>>

> > > > > > > >>> My dr has never had a Conns' patient, and she will do some

research and make recommendations next month. I will find out what my

aldosterone and renin numbers were/ are.

> > > > > > > >>>

> > > > > > > >>> I have felt no difference since the addition of the Spiro.

> > > > > > > >>>

> > > > > > > >>> I have been c/o headaches, foggy brain, and sleeplessness,

sweating, weakness, dizziness, lack of stamina, and general malaise, really.

> > > > > > > >>>

> > > > > > > >>> I was in a a thirty yr marriage and found out things about my

spouse that frightened me, then he scared my physically for years when I said I

might expose him, we thought I had PTSD, could I have given this to myself? By

being scared, overusing my adrenals? Just a thought. I still am jumpy and

overreact to any unexpected stimulus.

> > > > > > > >>>

> > > > > > > >>> Also, I am whiny.

> > > > > > > >>>

> > > > > > > >>> I have been worried about alzheimers, I guess this is better,

cannot wait to feel sharp again.

> > > > > > > >>>

> > > > > > > >>> Funny way to introduce myself by listing complaints, so I will

balance that out with also stating my five kids are my pride, I am happy with

most aspects of my life, but some stamina and explanations would be helpful.

Thanks for being here....what does PA stand for??

> > > > > > > >>>

> > > > > > > >>>

> > > > > > > >>>

> > > > > > > >>

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

> > Reply to sender | Reply to group | Reply via web post | Start a New Topic

> > Messages in this topic (21)

> > RECENT ACTIVITY: New Members 4

>

Link to comment
Share on other sites

My doctors have always blamed my debilitating fatigue on my LVH and

reduced EF.

I always knew different.

Phyllis

Any doc is wise enough in this day and age to

navigate the internet and to know when something

is valid. If they see it anyway. If one just

"tells" them something they read, then yes, they

likely will not accept it, but reasons vary.

One, we patients have a tendency to focus on the

complaint that bothers us most but may not be

that serious in a critical sense (weight gain

and fatigue are the most common I would say) so

we focus on those when say it's actually an MI

could be the cause of our fatigue. So that makes

sense in some way - and from the patient view

we've all just about established getting someone

listening is one of the biggest fatal flaws in

our course of care for PA. But something given

to them - even from the net - takes about 1

second to know if it's valid.

TWO - It's the ego that doesn't want to be

told what to do and things like getting

something off the net that "upset" the 10 minute

visit rule throw things off and get their ire

up. Sad, but they want to set the course of the

conversation, and not you. But not trusting

something given to them? That's not it, it might

be the excuse. Not wanting to hear it no matter

what? THAT'S it.....most likely just due to the

"no one's gonna tell me what to do!" syndrome in

my opinion.

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...