Re: ((()))- Friend frustrations

March 16, 2009

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I know it is so frustrating. Don't they think that if you could and felt up to

it you would be there. That is what makes me so upset, do they think we

like being sick? It sucks and yes we miss out on alot. Give us a break. We

aren't doing this to them, we physically can't do it.

That is why this group is so awesome. We all understand. One or more of us have

been there and know how it feels.

You should give them the website and have them read up on Stills. Or print out

the info and give it to them. I've had to do that, it seemed to help.

Know that we are here for you. Hang in there and try to surround yourself with

positive people. Take care of yourself!!!!

Love and Support,

Keri in CA

________________________________

To: stillsdisease <Stillsdisease >

Sent: Sunday, March 15, 2009 6:54:39 AM

Subject: Friend frustrations

I know the saying, " But you don't *look* sick, " and yet I never thought I'd

be living it each and every day. I love my friends dearly, some I've known

for half of my life, and yet I keep finding myself surprised and frustrated

over and over again at their attitudes and assumptions.

Again, I love my friends dearly, but I'm getting so tired of reminding them that

I can't easily brush off and ignore my health and go partying for several days.

a very frustrated

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