CT scans

[Guest guest]

Hi ,

A CT scan is used in kids who have chest deformities and congenital issues that

may affect the growth of the chest. A CT scan helps them determine the

structure of the chest, the size/shape of the lungs, the position/rotation of

the spine, etc. It is also a good tool for seeing a more 3-dimensional view of

the spine and chest.

About MRIs and not being read correctly by radiologist - this happens more often

than we realize. I never intend to lecture anyone. I only want the very best

for new families beginning this scoliosis journey. Braydon's MRI was misread

the first time too (I already mentioned that) and because of that, I don't want

anyone to have to have that experience again. With the rarity of scoliosis in

infants/small children, it is very important to be treated by specialists who

have experience. Many do not. Hopefully every family knows to get at least 2

opinions on treatment options. I can't stress how important this is. An MRI

should be done in most, if not all, infants/young children with any type of

curve of the spine. You need to know if there is a hidden underlying cause.

Peace of mind means a whole bunch in this case. I'm glad Ian is doing well.

Carmell

Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 17, GERD, and

Braydon 12, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient

#137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies,

missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96,

1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, valgus

deformity, GERD, Gastroparesis, SUA, etc.

http://carmellb-ivil.tripod.com/myfamily/

Congenital scoliosis support group

http://health.groups.yahoo.com/group/CongenitalScoliosisSupport/

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