Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Welcome new members. I’m aka De aka WWD, 50, single in Georgia, geno 1, stage 1, grade 2, did treatment in 2004 and have been clear ever since. I just wanted to welcome the new members and maybe some of you have been around a while but haven’t jumped in yet. We have people here at all stages in the hcv progression from just diagnosed to ESLD to pre & post-transplant. Many are on treatment (tx) right now. Some people like to sit back and read and learn that way, and that’s OK if that’s your style. We encourage you to jump in on topics or start your own. Ask questions, we know you have ‘em. Someone here will have the answer or will know where to find it. Chances are good that someone has been exactly where you are, so don’t feel like you’re alone. We don’t care how, when or where you got hcv, although we talk about it sometimes for the heck of it. It only matters that you’ve got it and you’re living with it or trying to tame it now. If you’re shy or have something more private, the moderators are always available on private email. Many of the members are happy to talk privately also. We are a loving bunch & we can love you better if we know you better, so go ahead an introduce yourselves if you don’t mind. There are mini-bios on the web page if you want to read about the moderators or some of the members. (still kickin’ dragon ass & takin’ names) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Thank you for your post. I'm one of those people that you are talking about. I'm kinda shy and have allowed myself to sit back and read other posts and learn from everyone else. But you're right, there are topics I would like to bring up but I figured because they are questions about peripheral issues (specifically, going through the Social Security Disability process) I guess I figured since it doesn't exactly relate to tx and the medical aspect of hep C perhaps it would be considered irrelevant. But the stress of going through this system is hurting me and I'm sure other people too. I was diagnosed in '92, been through 3 treatments and I am coming to grips with the reality of being a non-responder. But this horrible process for Social Security Disability is inhumane. If I told you how I was treated by the judge...well, I can't tell you how nasty and rude he was. I am going to get the opportunity to appeal but until it's over I'm on pins and needles. Many thanks to you and your intuitive post.-- - In HepatitisCSupportGroupForDummies , " Motley " wrote: > > Welcome new members. I'm aka De aka WWD, 50, single in Georgia, geno > 1, stage 1, grade 2, did treatment in 2004 and have been clear ever since. > I just wanted to welcome the new members and maybe some of you have been > around a while but haven't jumped in yet. We have people here at all stages > in the hcv progression from just diagnosed to ESLD to pre & post- transplant. > Many are on treatment (tx) right now. Some people like to sit back and read > and learn that way, and that's OK if that's your style. We encourage you to > jump in on topics or start your own. Ask questions, we know you have 'em. > Someone here will have the answer or will know where to find it. Chances > are good that someone has been exactly where you are, so don't feel like > you're alone. We don't care how, when or where you got hcv, although we > talk about it sometimes for the heck of it. It only matters that you've got > it and you're living with it or trying to tame it now. > > > > If you're shy or have something more private, the moderators are always > available on private email. Many of the members are happy to talk privately > also. We are a loving bunch & we can love you better if we know you better, > so go ahead an introduce yourselves if you don't mind. There are mini-bios > on the web page if you want to read about the moderators or some of the > members. > > > > (still kickin' dragon ass & takin' names) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 We talk about the life issues surrounding our disease, too – disability, patient assistance with meds, quality of life – the direct stuff and the peripherals, too. I’m sure people here can talk with you about disability. Re: Welcome new members Thank you for your post. I'm one of those people that you are talking about. I'm kinda shy and have allowed myself to sit back and read other posts and learn from everyone else. But you're right, there are topics I would like to bring up but I figured because they are questions about peripheral issues (specifically, going through the Social Security Disability process) I guess I figured since it doesn't exactly relate to tx and the medical aspect of hep C perhaps it would be considered irrelevant. But the stress of going through this system is hurting me and I'm sure other people too. I was diagnosed in '92, been through 3 treatments and I am coming to grips with the reality of being a non-responder. But this horrible process for Social Security Disability is inhumane. If I told you how I was treated by the judge...well, I can't tell you how nasty and rude he was. I am going to get the opportunity to appeal but until it's over I'm on pins and needles. Many thanks to you and your intuitive post.-- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Hi my peeps. I've been so busy and am having a very hard time reading the emails as my vision seems to be deteriorating by the day. Soon I will get real glasses. What is the question about disability? Maybe I can help. I have over 11000 emails to sift through, so I'm gonna have to just focus on the past hundred to even know what page we are on. I am sorry. My sister had a stroke and broke three ribs at Walmart falling, and I had to help with her "kids" as she is also raising her grandkids, THREE of them poor lamb. Also I am doing my angel stockpile starting tomorrow, as the expo is in three weeks. Please dont think I dont care, as I do, and muchly. Today is my sisters birthday and I asked her what do you want for your birthday. She replied quickly, "Just one more year, can you arrange that?" Its been bothering me so much I burst into tears at the drop of a pin. It appears her neuropathy is so bad she literallycannot feel her feet, which explains the fall. Shes my favorite sister out of my ten siblings, and shes 13 months older than me, so could you fine people please say a prayer or two for her? Her name is Sheehan. Also could you please pray for my friend Suzie to have all the strength she needs to hurdle this new obstacle, sorry Suzie my ethics could use a polishing. I love you guys very much and will help in any way I can. Thankfully Serena enjoys watching and helping with angels, and actually sat and pretended to crochet last week, what a DOLLIE i got blessed with. a very adorable, astute TENACIOUS dollie but a dollie none the less. I just wanted to say I am very thankful that Hep C has brought me so many wonderful lifetime friends, and tell you I am grateful to have you all as friends, and proud to know you. What a hard core die hard group of survivors we have become, no? Love you. Connie the lurker McClain Motley wrote: We talk about the life issues surrounding our disease, too – disability, patient assistance with meds, quality of life – the direct stuff and the peripherals, too. I’m sure people here can talk with you about disability. -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of lilygreywhitefeetSent: Wednesday, October 31, 2007 5:33 PMTo: HepatitisCSupportGroupForDummies Subject: Re: Welcome new members Thank you for your post. I'm one of those people that you are talking about. I'm kinda shy and have allowed myself to sit back and read other posts and learn from everyone else. But you're right, there are topics I would like to bring up but I figured because they are questions about peripheral issues (specifically, going through the Social Security Disability process) I guess I figured since it doesn't exactly relate to tx and the medical aspect of hep C perhaps it would be considered irrelevant. But the stress of going through this system is hurting me and I'm sure other people too. I was diagnosed in '92, been through 3 treatments and I am coming to grips with the reality of being a non-responder. But this horrible process for Social Security Disability is inhumane. If I told you how I was treated by the judge...well, I can't tell you how nasty and rude he was. I am going to get the opportunity to appeal but until it's over I'm on pins and needles. Many thanks to you and your intuitive post.-- The light at the end of the tunnel may be you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Connie I will pray for mary and suzie. Take care connie mcclain wrote: Hi my peeps. I've been so busy and am having a very hard time reading the emails as my vision seems to be deteriorating by the day. Soon I will get real glasses. What is the question about disability? Maybe I can help. I have over 11000 emails to sift through, so I'm gonna have to just focus on the past hundred to even know what page we are on. I am sorry. My sister had a stroke and broke three ribs at Walmart falling, and I had to help with her "kids" as she is also raising her grandkids, THREE of them poor lamb. Also I am doing my angel stockpile starting tomorrow, as the expo is in three weeks. Please dont think I dont care, as I do, and muchly. Today is my sisters birthday and I asked her what do you want for your birthday. She replied quickly, "Just one more year, can you arrange that?" Its been bothering me so much I burst into tears at the drop of a pin. It appears her neuropathy is so bad she literallycannot feel her feet, which explains the fall. Shes my favorite sister out of my ten siblings, and shes 13 months older than me, so could you fine people please say a prayer or two for her? Her name is Sheehan. Also could you please pray for my friend Suzie to have all the strength she needs to hurdle this new obstacle, sorry Suzie my ethics could use a polishing. I love you guys very much and will help in any way I can. Thankfully Serena enjoys watching and helping with angels, and actually sat and pretended to crochet last week, what a DOLLIE i got blessed with. a very adorable, astute TENACIOUS dollie but a dollie none the less. I just wanted to say I am very thankful that Hep C has brought me so many wonderful lifetime friends, and tell you I am grateful to have you all as friends, and proud to know you. What a hard core die hard group of survivors we have become, no? Love you. Connie the lurker McClain Motley <dmotleybellsouth (DOT) net> wrote: We talk about the life issues surrounding our disease, too – disability, patient assistance with meds, quality of life – the direct stuff and the peripherals, too. I’m sure people here can talk with you about disability. -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of lilygreywhitefeetSent: Wednesday, October 31, 2007 5:33 PMTo: HepatitisCSupportGroupForDummies Subject: Re: Welcome new members Thank you for your post. I'm one of those people that you are talking about. I'm kinda shy and have allowed myself to sit back and read other posts and learn from everyone else. But you're right, there are topics I would like to bring up but I figured because they are questions about peripheral issues (specifically, going through the Social Security Disability process) I guess I figured since it doesn't exactly relate to tx and the medical aspect of hep C perhaps it would be considered irrelevant. But the stress of going through this system is hurting me and I'm sure other people too. I was diagnosed in '92, been through 3 treatments and I am coming to grips with the reality of being a non-responder. But this horrible process for Social Security Disability is inhumane. If I told you how I was treated by the judge...well, I can't tell you how nasty and rude he was. I am going to get the opportunity to appeal but until it's over I'm on pins and needles. Many thanks to you and your intuitive post.-- The light at the end of the tunnel may be you __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.