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I would recommend you team think about stoping amolodipine as BP is so low. I always stop all BP meds day of surgery but then I have only been doing this for 45 years.CE Grim MDI did want to add this to my update. 1 week after surgey I am still getting up 3 times a night to pee. It could be that I am drinking a ton of water etc . My BP is good around 117/72 but my resting heart rate is still averaging around 95-99. No spiro, amlodopine the same at 10 mgs 1x day and no K supplimments. I will have a blood draw for K tomorrow and will be calling doc about some issues.

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I did wonder about taking the amlodopine but there have been so many things I

question. Dr. Grim , if I had the $500 I would be hiring you as part of my team

in a heartbeat. I feel almost as though I am stranded. The doctors I have dealt

with definetly do not have the knowledge of Dr. Grim so I am doing the best I

can in the situation I have. I also have a plan to put together a " packette " if

you will of information from this group to present to the two docs I am working

with now. I have given the endocrinologist Dr. Grim's article but am not sure

that she read it. I will be presenting that again along with other information.

I have had such a bad and potentially dangerous journey since December of last

year that if I can prevent 1 person from going through what I have then I want

to do that. Like Dr. Grim has said, Conn's is not that rare. It is about time

the medical world gets a clue!!!

>

> > I did want to add this to my update. 1 week after surgey I am still

> > getting up 3 times a night to pee. It could be that I am drinking a

> > ton of water etc . My BP is good around 117/72 but my resting heart

> > rate is still averaging around 95-99. No spiro, amlodopine the same

> > at 10 mgs 1x day and no K supplimments. I will have a blood draw for

> > K tomorrow and will be calling doc about some issues.

> >

> >

> >

>

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Can file a complaint against all Dr that miss DX you.

> >

> > > I did want to add this to my update. 1 week after surgey I am still

> > > getting up 3 times a night to pee. It could be that I am drinking a

> > > ton of water etc . My BP is good around 117/72 but my resting heart

> > > rate is still averaging around 95-99. No spiro, amlodopine the same

> > > at 10 mgs 1x day and no K supplimments. I will have a blood draw for

> > > K tomorrow and will be calling doc about some issues.

> > >

> > >

> > >

> >

>

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I'm sure I could file complaints and plan on doing so for the episode that

happened at Dartmouth but it is only to prevent others from having to go through

something like that. I am still in the process of healing from the sugery and

wonder if I am recieving proper care. All I truley want is to feel good. I want

to get back to my exercising and dancing and playing with the grandchildren. I

want to get back to my photography. I have been unable to do a lot of this

because i have felt so bad over this past year and a half. Longer but not as

bad. Anyway, blah, blah. Up until December i had never even heard of PA. I just

dealt with how lousy I felt on a day to day basis.

Lettie 49yo w/ PA ton Me

> > >

> > > > I did want to add this to my update. 1 week after surgey I am still

> > > > getting up 3 times a night to pee. It could be that I am drinking a

> > > > ton of water etc . My BP is good around 117/72 but my resting heart

> > > > rate is still averaging around 95-99. No spiro, amlodopine the same

> > > > at 10 mgs 1x day and no K supplimments. I will have a blood draw for

> > > > K tomorrow and will be calling doc about some issues.

> > > >

> > > >

> > > >

> > >

> >

>

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Wow, thank you for that post, Dianne. I will do all of those things!! Awesome.

You sound so confident. Good for you. Amazing.

Lettie

>

> >

>

> > > I did want to add this to my update. 1 week after surgey I am still

>

> > > getting up 3 times a night to pee. It could be that I am drinking a

>

> > > ton of water etc . My BP is good around 117/72 but my resting heart

>

> > > rate is still averaging around 95-99. No spiro, amlodopine the same

>

> > > at 10 mgs 1x day and no K supplimments. I will have a blood draw for

>

> > > K tomorrow and will be calling doc about some issues.

>

> > >

>

> > >

>

> > >

>

> >

>

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Having problems with attention span is most likely due to PA. Many of us call it

brain fog. Not a term Dr are likely to understand.

What tests have you had done? What has your potassium been? Have they checked

aldosterone and renin?

> >

> > Remember, doctors are not Gods (perhaps Dr. Grim excepted!?), even

> > though many of them think they are. It is very hard to stand up for

> > yourself when you are so ill, but you are the only one who can do it.

> >

>

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