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Re: Re: post-AVS report

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Excellent we may want to put this site on our list of good places for AVS?The singnature was in case they needed to do general anesthesia as an emergency I might guess.With HH the chance of regurgitating is greater and if that happened they might need to intubate.But all worked out well. CE Grim MD Pretty sure I wasn't intubated; at least if I was they didn't mention it. All I know is I had to sign a general anesthesia consent form and that an anesthesiologist put me out. Ordinarily it's a nurse who does some sort of light sedation, but because I have a hiatal hernia they thought this was better. They used Cosyntropin - the IR made a big deal of making sure I had a dedicated IV line for it. > > > I had my second AVS yesterday and it went much like the first - no > > pain, no problems, other than my K crashing and having to have one > > of those awful infusions. Not much else to tell as I don't remember > > much of anything, because like the first time, they had me under > > general anesthesia (propofol, fentanyl and versed). After reading > > others' accounts of pain and discomfort during the procedure, it > > makes me wonder why this isn't standard protocol. > > > > This time around they expect to have results back and interpreted > > within two weeks - well see about that. Originally my nephro wanted > > me to start eplerenone today, but we came to an agreement to wait > > until the results come back because if it's inconclusive again, I'll > > be repeating the procedure ASAP. Here's hoping it doesn't come to > > that though :) Because of the imaging obtained the first time > > around, the IR team thinks that chances of accuracy were improved > > the second time. > > > > --msmith1928 > > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, > > hyperinsulinemia, hereditary fructose intolerance, lactose > > intolerance, probable gluten intolerance. Current meds are K 20 MEQ > > 4x/day, singulair 10mg, norethindrone .35mg to regulate > > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine > > 180mg as needed. Low sodium, fructose- and grain-free diet. Known > > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal > > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not > > taking supplements); spiro caused gynecomastia and polymenorrhea > > > > >

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msmith, I've learned that the perception of pain is a very personal thing, what one person considers to be tolerable pain-wise, another person may percieve as unbearable. Every day I work I ask people if they're having any pain and if they are, have them rate it on a scale of 1 to 10, with 10 being the worst pain they can imagine. More often than you'd believe I have a person rate their pain 9-10 while they appear very comfortable and are having a very relaxed appearing conversation with me. For me personally to identify pain as 9-10 I would have to be screaming or crying and not be able to carry on a conversation with anyone. Labor was a definite 10+ for me and AVS was a 1, but that's my personal perception. I had 1 mg versed and 50 mcg

of Fentanyl, was awake but very mellow during my AVS. I probably could have done it with no meds but would definitely have had a higher anxiety level during it. I've also read other peoples' accounts of their AVS in which they describe it as excrutiatingly painful. Unless something went wrong, like a perforated adrenal gland that they're not mentioning, I'd have to guess they just have a very low tolerance for pain or their perception of pain is very different from ours.

Conscious sedation can be given by an RN who has taken special classes. Most often it consists of IV versed and/or fentanyl. Patient is sedated but is able to respond to verbal commands and maintains protective reflexes and a patent airway on his own. Depending on amount of versed given, patient may think they were totally asleep due to amnesiac effect of the drug.

MAC (Monitored Anesthesia Care) is usually given by an MDA or CRNA but in a few states RNs who have been credentialed in propofol administration can give. Usually consists of IV propofol alone or one or more of versed /fentanyl/ketamine and can be given in conjunction with a local or block, such as during a C-section or some cosmetic surgeries. The patient is usually asleep but should respond to painful stimulus and maintains a patent airway. MAC should wear off fairly fast and is usually quite safe but there are different levels of MAC. Propofol is Juice and requires continuous monitoring, as his cardiologist found out. When someone in our unit stays sedated for a longer period than usual after a procedure, we say he's had a Big MAC ;-)

General Anesthesia is given by an MDA in conjunction with a CRNA and causes a total loss of consciousness, loss of pain sensation and can cause loss of protective reflexes. Induction is usually via an IV anesthetic and maintained by an inhaled gas via endotracheal tube.

If you're having any kind of sedation/anesthesia you will be required to sign a general anesthesia consent form, just in case, since anything can happen. I have a great respect for any kind of anesthetic agent and have always said I fear anesthesia more than I fear a surgical procedure.

To: hyperaldosteronism Sent: Saturday, August 20, 2011 2:33 PMSubject: Re: Re: post-AVS report

Excellent we may want to put this site on our list of good places for AVS?

The singnature was in case they needed to do general anesthesia as an emergency I might guess.

With HH the chance of regurgitating is greater and if that happened they might need to intubate.

But all worked out well.

CE Grim MD

Pretty sure I wasn't intubated; at least if I was they didn't mention it. All I know is I had to sign a general anesthesia consent form and that an anesthesiologist put me out. Ordinarily it's a nurse who does some sort of light sedation, but because I have a hiatal hernia they thought this was better.They used Cosyntropin - the IR made a big deal of making sure I had a dedicated IV line for it. > > > I had my second AVS yesterday and it went much like the first - no > > pain, no problems, other than my K crashing and having to have one > > of those awful infusions. Not much else to tell as I don't remember > > much of anything, because like the first time, they had me under > > general anesthesia (propofol, fentanyl and versed). After reading > > others' accounts of pain and discomfort during the procedure, it > > makes me wonder why this isn't standard protocol.> >> > This time around they expect to have results back and interpreted > > within two weeks - well see about that. Originally my nephro wanted > > me to start eplerenone today, but we came to an agreement to wait > > until the results come back because if it's inconclusive again, I'll > > be

repeating the procedure ASAP. Here's hoping it doesn't come to > > that though :) Because of the imaging obtained the first time > > around, the IR team thinks that chances of accuracy were improved > > the second time.> >> > --msmith1928> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, > > hyperinsulinemia, hereditary fructose intolerance, lactose > > intolerance, probable gluten intolerance. Current meds are K 20 MEQ > > 4x/day, singulair 10mg, norethindrone .35mg to regulate > > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine > > 180mg as needed. Low sodium, fructose- and grain-free diet. Known > > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal > > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not > > taking supplements); spiro caused gynecomastia

and polymenorrhea> >> >>

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Glad to hear you got through AVS again without any complications. Hopefully this time they will not botch the results. Makes me less nervous about having one someday. Although, I am not sure they ever will. I still have no visable tumor after 3 years between CTs.

I am very tough to get blood out of. I end up getting alot of needles inthe hand. I remember at Mayo when I had my DEX suppresion test, they had to draw it out of the top of my hand cause they couldnt find a vein. That is something I didnt find to painful...which is good becuase I get alot of hand sticking.

 

 

a, thanks for the explanation. From your description, it sounds like it was Monitored Anesthesia Care that I was under. What I do remember is hearing the medical team discussing getting an anesthesiologist at the last minute, which of course made me worry that they wouldn't be able to and I'd get sent home! I got the impression that ordinarily they do the procedure under conscious sedation with an RN, and that's what they had scheduled; after reviewing my file the doctor changed her mind and called in the anesthesiologist. There was also some debate about whether or not to intubate but I think they said they could do it during the procedure if there was a need. For all I know I imagined all or part of this, by then I was really out of it!

I was surprised at how much pain the potassium drip caused when they tried to put it in through the IV in the back of my hand (as opposed to higher up the arm). I'm fortunate that I still can't say I've ever experienced pain that was a " 10 " but that was probably an 8, and definitely the worst part of the day.

> >>

> >> > I had my second AVS yesterday and it went much like the first - no

> >> > pain, no problems, other than my K crashing and having to have one

> >> > of those awful infusions. Not much else to tell as I don't remember

> >> > much of anything, because like the first time, they had me under

> >> > general anesthesia (propofol, fentanyl and versed). After reading

> >> > others' accounts of pain and discomfort during the procedure, it

> >> > makes me wonder why this isn't standard protocol.

> >> >

> >> > This time around they expect to have results back and interpreted

> >> > within two weeks - well see about that. Originally my nephro wanted

> >> > me to start eplerenone today, but we came to an agreement to wait

> >> > until the results come back because if it's inconclusive again, I'll

> >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> >> > that though :) Because of the imaging obtained the first time

> >> > around, the IR team thinks that chances of accuracy were improved

> >> > the second time.

> >> >

> >> > --msmith1928

> >> > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea,

> >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ

> >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not

> >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> >> >

> >> >

> >>

> >

> >

>

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

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This means that your K values are likely falsely high. Has ur K ever been low?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Glad to hear you got through AVS again without any complications. Hopefully this time they will not botch the results. Makes me less nervous about having one someday. Although, I am not sure they ever will. I still have no visable tumor after 3 years between CTs.

I am very tough to get blood out of. I end up getting alot of needles inthe hand. I remember at Mayo when I had my DEX suppresion test, they had to draw it out of the top of my hand cause they couldnt find a vein. That is something I didnt find to painful...which is good becuase I get alot of hand sticking.

a, thanks for the explanation. From your description, it sounds like it was Monitored Anesthesia Care that I was under. What I do remember is hearing the medical team discussing getting an anesthesiologist at the last minute, which of course made me worry that they wouldn't be able to and I'd get sent home! I got the impression that ordinarily they do the procedure under conscious sedation with an RN, and that's what they had scheduled; after reviewing my file the doctor changed her mind and called in the anesthesiologist. There was also some debate about whether or not to intubate but I think they said they could do it during the procedure if there was a need. For all I know I imagined all or part of this, by then I was really out of it!

I was surprised at how much pain the potassium drip caused when they tried to put it in through the IV in the back of my hand (as opposed to higher up the arm). I'm fortunate that I still can't say I've ever experienced pain that was a "10" but that was probably an 8, and definitely the worst part of the day.

> >>

> >> > I had my second AVS yesterday and it went much like the first - no

> >> > pain, no problems, other than my K crashing and having to have one

> >> > of those awful infusions. Not much else to tell as I don't remember

> >> > much of anything, because like the first time, they had me under

> >> > general anesthesia (propofol, fentanyl and versed). After reading

> >> > others' accounts of pain and discomfort during the procedure, it

> >> > makes me wonder why this isn't standard protocol.

> >> >

> >> > This time around they expect to have results back and interpreted

> >> > within two weeks - well see about that. Originally my nephro wanted

> >> > me to start eplerenone today, but we came to an agreement to wait

> >> > until the results come back because if it's inconclusive again, I'll

> >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> >> > that though :) Because of the imaging obtained the first time

> >> > around, the IR team thinks that chances of accuracy were improved

> >> > the second time.

> >> >

> >> > --msmith1928

> >> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea,

> >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ

> >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not

> >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> >> >

> >> >

> >>

> >

> >

>

-- ============================================================================45-Male-Caucasian, 5'9"- 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started "sort of" DASHing 5/3/2011

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If you were asking me, yes...my K has always been low normal or below normal test range since it has been getting regularly tested for the last 4-5 years.. I would have thought that doubling the Spiro and cutting the HCTZ would have solved that. Based on my physical symtoms, that is not the case. It almost seems like some symptoms are worse since I stopped the HCTZ. Cutting the salt back hasnt seems to change much, except the right flank pain is less noticable and my vocal cords are better. Maybe I need to up the spiro or potassium even more?

 

 

This means that your K values are likely falsely high. Has ur K ever been low?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MD

Specializing in DifficultHypertension

 

Glad to hear you got through AVS again without any complications. Hopefully this time they will not botch the results. Makes me less nervous about having one someday. Although, I am not sure they ever will. I still have no visable tumor after 3 years between CTs.

I am very tough to get blood out of. I end up getting alot of needles inthe hand. I remember at Mayo when I had my DEX suppresion test, they had to draw it out of the top of my hand cause they couldnt find a vein. That is something I didnt find to painful...which is good becuase I get alot of hand sticking.

 

 

a, thanks for the explanation. From your description, it sounds like it was Monitored Anesthesia Care that I was under. What I do remember is hearing the medical team discussing getting an anesthesiologist at the last minute, which of course made me worry that they wouldn't be able to and I'd get sent home! I got the impression that ordinarily they do the procedure under conscious sedation with an RN, and that's what they had scheduled; after reviewing my file the doctor changed her mind and called in the anesthesiologist. There was also some debate about whether or not to intubate but I think they said they could do it during the procedure if there was a need. For all I know I imagined all or part of this, by then I was really out of it!

I was surprised at how much pain the potassium drip caused when they tried to put it in through the IV in the back of my hand (as opposed to higher up the arm). I'm fortunate that I still can't say I've ever experienced pain that was a " 10 " but that was probably an 8, and definitely the worst part of the day.

> >>

> >> > I had my second AVS yesterday and it went much like the first - no

> >> > pain, no problems, other than my K crashing and having to have one

> >> > of those awful infusions. Not much else to tell as I don't remember

> >> > much of anything, because like the first time, they had me under

> >> > general anesthesia (propofol, fentanyl and versed). After reading

> >> > others' accounts of pain and discomfort during the procedure, it

> >> > makes me wonder why this isn't standard protocol.

> >> >

> >> > This time around they expect to have results back and interpreted

> >> > within two weeks - well see about that. Originally my nephro wanted

> >> > me to start eplerenone today, but we came to an agreement to wait

> >> > until the results come back because if it's inconclusive again, I'll

> >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> >> > that though :) Because of the imaging obtained the first time

> >> > around, the IR team thinks that chances of accuracy were improved

> >> > the second time.

> >> >

> >> > --msmith1928

> >> > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea,

> >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ

> >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not

> >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> >> >

> >> >

> >>

> >

> >

>

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

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Fent is great stuff. Most of the pains people have experienced are after the procedure when a vein was punctured.I have sat in and observerd on perhaps 25 AVS studies as well as over 40 renal vein renin studies and angioplasties. But that was several years ago. All I can say is it looks very easy when it goes well. And some can do it well and others cannot.CE Grim MD Here's the interventional radiologist's info:Dr. Antoinette Gomes Reagan UCLA Medical CenterLos Angeles, CAAs for the anesthesia, whatever it is called, I just wonder why so many here have had to endure pain during this procedure when clearly it's possible for the patient to be completely sedated while it's being done - this is the second time I've had it and each time, I remember nothing beyond "I'm giving you some fentanyl to relax you" and then waking up to find that it was over. > > >> > > > I had my second AVS yesterday and it went much like the first - no> > > > pain, no problems, other than my K crashing and having to have one> > > > of those awful infusions. Not much else to tell as I don't > > remember> > > > much of anything, because like the first time, they had me under> > > > general anesthesia (propofol, fentanyl and versed). After reading> > > > others' accounts of pain and discomfort during the procedure, it> > > > makes me wonder why this isn't standard protocol.> > > >> > > > This time around they expect to have results back and interpreted> > > > within two weeks - well see about that. Originally my nephro > > wanted> > > > me to start eplerenone today, but we came to an agreement to wait> > > > until the results come back because if it's inconclusive again, > > I'll> > > > be repeating the procedure ASAP. Here's hoping it doesn't come to> > > > that though :) Because of the imaging obtained the first time> > > > around, the IR team thinks that chances of accuracy were improved> > > > the second time.> > > >> > > > --msmith1928> > > > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea,> > > > hyperinsulinemia, hereditary fructose intolerance, lactose> > > > intolerance, probable gluten intolerance. Current meds are K 20 > > MEQ> > > > 4x/day, singulair 10mg, norethindrone .35mg to regulate> > > > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine> > > > 180mg as needed. Low sodium, fructose- and grain-free diet. Known> > > > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal> > > > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when > > not> > > > taking supplements); spiro caused gynecomastia and polymenorrhea> > > >> > > >> > >> >> >>

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Your urine should be a good guide.How much K and spiro are you on and what is your BP and nocturia. How well are you DASHing.Doing Low sodium V-8?CE Grim MD If you were asking me, yes...my K has always been low normal or below normal test range since it has been getting regularly tested for the last 4-5 years.. I would have thought that doubling the Spiro and cutting the HCTZ would have solved that. Based on my physical symtoms, that is not the case. It almost seems like some symptoms are worse since I stopped the HCTZ. Cutting the salt back hasnt seems to change much, except the right flank pain is less noticable and my vocal cords are better. Maybe I need to up the spiro or potassium even more? This means that your K values are likely falsely high. Has ur K ever been low?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MD Specializing in DifficultHypertension Glad to hear you got through AVS again without any complications. Hopefully this time they will not botch the results. Makes me less nervous about having one someday. Although, I am not sure they ever will. I still have no visable tumor after 3 years between CTs. I am very tough to get blood out of. I end up getting alot of needles inthe hand. I remember at Mayo when I had my DEX suppresion test, they had to draw it out of the top of my hand cause they couldnt find a vein. That is something I didnt find to painful...which is good becuase I get alot of hand sticking. a, thanks for the explanation. From your description, it sounds like it was Monitored Anesthesia Care that I was under. What I do remember is hearing the medical team discussing getting an anesthesiologist at the last minute, which of course made me worry that they wouldn't be able to and I'd get sent home! I got the impression that ordinarily they do the procedure under conscious sedation with an RN, and that's what they had scheduled; after reviewing my file the doctor changed her mind and called in the anesthesiologist. There was also some debate about whether or not to intubate but I think they said they could do it during the procedure if there was a need. For all I know I imagined all or part of this, by then I was really out of it! I was surprised at how much pain the potassium drip caused when they tried to put it in through the IV in the back of my hand (as opposed to higher up the arm). I'm fortunate that I still can't say I've ever experienced pain that was a "10" but that was probably an 8, and definitely the worst part of the day. > >> > >> > I had my second AVS yesterday and it went much like the first - no > >> > pain, no problems, other than my K crashing and having to have one > >> > of those awful infusions. Not much else to tell as I don't remember > >> > much of anything, because like the first time, they had me under > >> > general anesthesia (propofol, fentanyl and versed). After reading > >> > others' accounts of pain and discomfort during the procedure, it > >> > makes me wonder why this isn't standard protocol. > >> > > >> > This time around they expect to have results back and interpreted > >> > within two weeks - well see about that. Originally my nephro wanted > >> > me to start eplerenone today, but we came to an agreement to wait > >> > until the results come back because if it's inconclusive again, I'll > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to > >> > that though :) Because of the imaging obtained the first time > >> > around, the IR team thinks that chances of accuracy were improved > >> > the second time. > >> > > >> > --msmith1928 > >> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, > >> > hyperinsulinemia, hereditary fructose intolerance, lactose > >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not > >> > taking supplements); spiro caused gynecomastia and polymenorrhea > >> > > >> > > >> > > > > > -- ============================================================================45-Male-Caucasian, 5'9"- 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain DASH: Started "sort of" DASHing 5/3/2011 -- ============================================================================45-Male-Caucasian, 5'9"- 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain DASH: Started "sort of" DASHing 5/3/2011

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K is very vasospastic and can cause pain if it is too concentrated esp.CE Grim MD a, thanks for the explanation. From your description, it sounds like it was Monitored Anesthesia Care that I was under. What I do remember is hearing the medical team discussing getting an anesthesiologist at the last minute, which of course made me worry that they wouldn't be able to and I'd get sent home! I got the impression that ordinarily they do the procedure under conscious sedation with an RN, and that's what they had scheduled; after reviewing my file the doctor changed her mind and called in the anesthesiologist. There was also some debate about whether or not to intubate but I think they said they could do it during the procedure if there was a need. For all I know I imagined all or part of this, by then I was really out of it! I was surprised at how much pain the potassium drip caused when they tried to put it in through the IV in the back of my hand (as opposed to higher up the arm). I'm fortunate that I still can't say I've ever experienced pain that was a "10" but that was probably an 8, and definitely the worst part of the day. > >> > >> > I had my second AVS yesterday and it went much like the first - no > >> > pain, no problems, other than my K crashing and having to have one > >> > of those awful infusions. Not much else to tell as I don't remember > >> > much of anything, because like the first time, they had me under > >> > general anesthesia (propofol, fentanyl and versed). After reading > >> > others' accounts of pain and discomfort during the procedure, it > >> > makes me wonder why this isn't standard protocol. > >> > > >> > This time around they expect to have results back and interpreted > >> > within two weeks - well see about that. Originally my nephro wanted > >> > me to start eplerenone today, but we came to an agreement to wait > >> > until the results come back because if it's inconclusive again, I'll > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to > >> > that though :) Because of the imaging obtained the first time > >> > around, the IR team thinks that chances of accuracy were improved > >> > the second time. > >> > > >> > --msmith1928 > >> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, > >> > hyperinsulinemia, hereditary fructose intolerance, lactose > >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not > >> > taking supplements); spiro caused gynecomastia and polymenorrhea > >> > > >> > > >> > > > > >

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100mg Spiro day, 40meq potassium and avg at least 12 oz of low Sodium V8 per day. I usually get up only once during the night. My BP tends to hover around 120/80 or less with a heart rate between 85-95.

 

Your urine should be a good guide.How much K and spiro are you on and what is your BP and nocturia. How well are you DASHing.Doing Low sodium V-8?

CE Grim MD  

If you were asking me, yes...my K has always been low normal or below normal test range since it has been getting regularly tested for the last 4-5 years.. I would have thought that doubling the Spiro and cutting the HCTZ would have solved that. Based on my physical symtoms, that is not the case. It almost seems like some symptoms are worse since I stopped the HCTZ. Cutting the salt back hasnt seems to change much, except the right flank pain is less noticable and my vocal cords are better. Maybe I need to up the spiro or potassium even more?

 

  This means that your K values are likely falsely high. Has ur K ever been low?Tiped sad Send form mi

iPhone ;-)May your pressure be low!CE Grim MD Specializing in DifficultHypertension

  Glad to hear you got through AVS again without any complications. Hopefully this time they will not botch the results. Makes me less nervous about having one someday. Although, I am not sure they ever will. I still have no visable tumor after 3 years between CTs.

I am very tough to get blood out of. I end up getting alot of needles inthe hand. I remember at Mayo when I had my DEX suppresion test, they had to draw it out of the top of my hand cause they couldnt find a vein. That is something I didnt find to painful...which is good becuase I get alot of hand sticking.

 

 

a, thanks for the explanation. From your description, it sounds like it was Monitored Anesthesia Care that I was under. What I do remember is hearing the medical team discussing getting an anesthesiologist at the last minute, which of course made me worry that they wouldn't be able to and I'd get sent home! I got the impression that ordinarily they do the procedure under conscious sedation with an RN, and that's what they had scheduled; after reviewing my file the doctor changed her mind and called in the anesthesiologist. There was also some debate about whether or not to intubate but I think they said they could do it during the procedure if there was a need. For all I know I imagined all or part of this, by then I was really out of it!

I was surprised at how much pain the potassium drip caused when they tried to put it in through the IV in the back of my hand (as opposed to higher up the arm). I'm fortunate that I still can't say I've ever experienced pain that was a " 10 " but that was probably an 8, and definitely the worst part of the day.

> >> > >> > I had my second AVS yesterday and it went much like the first - no > >> > pain, no problems, other than my K crashing and having to have one > >> > of those awful infusions. Not much else to tell as I don't remember

> >> > much of anything, because like the first time, they had me under > >> > general anesthesia (propofol, fentanyl and versed). After reading > >> > others' accounts of pain and discomfort during the procedure, it

> >> > makes me wonder why this isn't standard protocol. > >> > > >> > This time around they expect to have results back and interpreted > >> > within two weeks - well see about that. Originally my nephro wanted

> >> > me to start eplerenone today, but we came to an agreement to wait > >> > until the results come back because if it's inconclusive again, I'll > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> >> > that though :) Because of the imaging obtained the first time > >> > around, the IR team thinks that chances of accuracy were improved > >> > the second time. > >> >

> >> > --msmith1928 > >> > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, > >> > hyperinsulinemia, hereditary fructose intolerance, lactose > >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ

> >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not > >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> >> > > >> > > >> > > > > >

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

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thanks . It has taken a while to get things under control. I was actually pretty stable on my previous regimen, but I wanted to get off the HCTZ becuase I didnt like what it was doing to my singing ability...and the logic/research of Dr. Grim makes sense. Hoever, semi-Dash and just Spiro/K has been a big change for me...particularly when I was low carbing alot before. I always liked the higher carb foods, fruit, pasta, etc, but they were a disaster for my weight. I have already gained about 10 lbs since i started sorta dashing, so I still obviously have issues controlling my hunger. I have gone days on very low salt and it doesnt really seem to make a great deal of differnece for me. One thing i did add in that has helped my lift my mood is a B complex suppliment. I just feel better mentally when taking it...less foggy and a bit more upbeat.

 I dont crave salt anymore, but now i crave apples and other fruit. Perhaps the only way I can get my hunger under control is going to be to go back to low carbing. That will make dash a little harder, but still possible to go all low sodium.

 Probalby the biggest thing I dont like about Spiro (other than gyno) is the way it makes me so emotional. OMG I tear up over stupid stuff and get mad alot easier than ever before. My wife laughs at me when I ask her when are we getting our next period...cause I seem to be in sync with her. lol I see my endo in a few weeks and i just might talk about trying Inspra to see if it changes things at all. I am okay with getting in touch with my feminine side, but it is getting a little our of control for me. I think I would rather be a caveman again and raging with usable testosterone.

 

, I don't know if upping the Spiro will do anything for your PA but from my experience it might have more effect on your stomach inflammation! You sound like your SX is similar to mine and you may be a year or so earlier with your DX than I was. (In that year I added 80-90 lbs, oxygen, went from prediabetic to full fledged diabetic and my flank pain involved my testis!)

Spiro had my BP controlled but that was it. The key appears to have been getting my NA low enough! Dr. Grim uses Urine NA to ensure your diet is in compliance. I personaly use blood (plasma) NA which appears to need to be less than the midpoint for my body to get the full effect of the Spiro. There was NO gradual change, the difference appeared overnight - just like turnning a light switch off! (Actually that was my perception, as I keep reviewing my records there may have been subtle changes occuring earlier.)

I would look at NA (both types) to determine where you are in the process. (And ofcourse always follow the direction of your healthcare provider even if s/he knows nothing about your disease! Couldn't resist that one since I see they have been at it for 4 years!) Good Luck

- 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank & testicle pain. I have decided against an adrenalectomy at this time since Meds. are working so well. Current BP(last week ave): 123/69

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2. and PTSD.

Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> >>> > >>

> >>> > >> > I had my second AVS yesterday and it went much like the first - no

> >>>

> >>> > >> > pain, no problems, other than my K crashing and having to have one

> >>>

> >>> > >> > of those awful infusions. Not much else to tell as I don't

> >>> remember

> >>> > >> > much of anything, because like the first time, they had me under

> >>> > >> > general anesthesia (propofol, fentanyl and versed). After reading

> >>> > >> > others' accounts of pain and discomfort during the procedure, it

> >>> > >> > makes me wonder why this isn't standard protocol.

> >>> > >> >

> >>> > >> > This time around they expect to have results back and interpreted

> >>> > >> > within two weeks - well see about that. Originally my nephro

> >>> wanted

> >>> > >> > me to start eplerenone today, but we came to an agreement to wait

> >>> > >> > until the results come back because if it's inconclusive again,

> >>> I'll

> >>> > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> >>> > >> > that though :) Because of the imaging obtained the first time

> >>> > >> > around, the IR team thinks that chances of accuracy were improved

> >>> > >> > the second time.

> >>> > >> >

> >>> > >> > --msmith1928

> >>> > >> > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea,

> >>> > >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> >>> > >> > intolerance, probable gluten intolerance. Current meds are K 20

> >>> MEQ

> >>> > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> >>> > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> >>> > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> >>> > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> >>> > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when

> >>> not

> >>> > >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> >>> > >> >

> >>> > >> >

> >>> > >>

> >>> > >

> >>> > >

> >>> >

> >>>

> >>>

> >>>

> >>>

> >>

> >>

> >> --

> >>

> >>

> >> ============================================================================

> >> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> >> Hyperplasia-No tumors on CT - No AVS.

> >> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> >> (weekly), 20mg Omeprazole

> >> *Side effects: *Gynecomastia, stomach inflammation

> >> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> >> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> >> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> >> Right Kidney Lower Pole, Right Flank Pain

> >>

> >> *DASH: Started " sort of " DASHing 5/3/2011*

> >>

> >>

> >>

> >>

> >>

> >

> >

> > --

> >

> >

> > ============================================================================

> > *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> > Hyperplasia-No tumors on CT - No AVS.

> > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> > (weekly), 20mg Omeprazole

> > *Side effects: *Gynecomastia, stomach inflammation

> > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> > Right Kidney Lower Pole, Right Flank Pain

> >

> > *DASH: Started " sort of " DASHing 5/3/2011*

> >

> >

> >

> >

> >

>

>

>

> --

>

> ============================================================================

> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> Hyperplasia-No tumors on CT - No AVS.

> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> (weekly), 20mg Omeprazole

> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain

>

> *DASH: Started " sort of " DASHing 5/3/2011*

>

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

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It is most likely a K problem. Sorta DASHIing does not work for most. It is not possible to giGain weight on DASH if u are doing the 14 day trial. Please clarify. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

thanks . It has taken a while to get things under control. I was actually pretty stable on my previous regimen, but I wanted to get off the HCTZ becuase I didnt like what it was doing to my singing ability...and the logic/research of Dr. Grim makes sense. Hoever, semi-Dash and just Spiro/K has been a big change for me...particularly when I was low carbing alot before. I always liked the higher carb foods, fruit, pasta, etc, but they were a disaster for my weight. I have already gained about 10 lbs since i started sorta dashing, so I still obviously have issues controlling my hunger. I have gone days on very low salt and it doesnt really seem to make a great deal of differnece for me. One thing i did add in that has helped my lift my mood is a B complex suppliment. I just feel better mentally when taking it...less foggy and a bit more upbeat.

I dont crave salt anymore, but now i crave apples and other fruit. Perhaps the only way I can get my hunger under control is going to be to go back to low carbing. That will make dash a little harder, but still possible to go all low sodium.

Probalby the biggest thing I dont like about Spiro (other than gyno) is the way it makes me so emotional. OMG I tear up over stupid stuff and get mad alot easier than ever before. My wife laughs at me when I ask her when are we getting our next period...cause I seem to be in sync with her. lol I see my endo in a few weeks and i just might talk about trying Inspra to see if it changes things at all. I am okay with getting in touch with my feminine side, but it is getting a little our of control for me. I think I would rather be a caveman again and raging with usable testosterone.

, I don't know if upping the Spiro will do anything for your PA but from my experience it might have more effect on your stomach inflammation! You sound like your SX is similar to mine and you may be a year or so earlier with your DX than I was. (In that year I added 80-90 lbs, oxygen, went from prediabetic to full fledged diabetic and my flank pain involved my testis!)

Spiro had my BP controlled but that was it. The key appears to have been getting my NA low enough! Dr. Grim uses Urine NA to ensure your diet is in compliance. I personaly use blood (plasma) NA which appears to need to be less than the midpoint for my body to get the full effect of the Spiro. There was NO gradual change, the difference appeared overnight - just like turnning a light switch off! (Actually that was my perception, as I keep reviewing my records there may have been subtle changes occuring earlier.)

I would look at NA (both types) to determine where you are in the process. (And ofcourse always follow the direction of your healthcare provider even if s/he knows nothing about your disease! Couldn't resist that one since I see they have been at it for 4 years!) Good Luck

- 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank & testicle pain. I have decided against an adrenalectomy at this time since Meds. are working so well. Current BP(last week ave): 123/69

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2. and PTSD.

Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> >>> > >>

> >>> > >> > I had my second AVS yesterday and it went much like the first - no

> >>>

> >>> > >> > pain, no problems, other than my K crashing and having to have one

> >>>

> >>> > >> > of those awful infusions. Not much else to tell as I don't

> >>> remember

> >>> > >> > much of anything, because like the first time, they had me under

> >>> > >> > general anesthesia (propofol, fentanyl and versed). After reading

> >>> > >> > others' accounts of pain and discomfort during the procedure, it

> >>> > >> > makes me wonder why this isn't standard protocol.

> >>> > >> >

> >>> > >> > This time around they expect to have results back and interpreted

> >>> > >> > within two weeks - well see about that. Originally my nephro

> >>> wanted

> >>> > >> > me to start eplerenone today, but we came to an agreement to wait

> >>> > >> > until the results come back because if it's inconclusive again,

> >>> I'll

> >>> > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> >>> > >> > that though :) Because of the imaging obtained the first time

> >>> > >> > around, the IR team thinks that chances of accuracy were improved

> >>> > >> > the second time.

> >>> > >> >

> >>> > >> > --msmith1928

> >>> > >> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea,

> >>> > >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> >>> > >> > intolerance, probable gluten intolerance. Current meds are K 20

> >>> MEQ

> >>> > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> >>> > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> >>> > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> >>> > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> >>> > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when

> >>> not

> >>> > >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> >>> > >> >

> >>> > >> >

> >>> > >>

> >>> > >

> >>> > >

> >>> >

> >>>

> >>>

> >>>

> >>>

> >>

> >>

> >> --

> >>

> >>

> >> ============================================================================

> >> *45-Male-Caucasian*, 5'9"- 234lbs, PA Diagnosed 2007 Suspected

> >> Hyperplasia-No tumors on CT - No AVS.

> >> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> >> (weekly), 20mg Omeprazole

> >> *Side effects: *Gynecomastia, stomach inflammation

> >> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> >> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> >> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> >> Right Kidney Lower Pole, Right Flank Pain

> >>

> >> *DASH: Started "sort of" DASHing 5/3/2011*

> >>

> >>

> >>

> >>

> >>

> >

> >

> > --

> >

> >

> > ============================================================================

> > *45-Male-Caucasian*, 5'9"- 234lbs, PA Diagnosed 2007 Suspected

> > Hyperplasia-No tumors on CT - No AVS.

> > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> > (weekly), 20mg Omeprazole

> > *Side effects: *Gynecomastia, stomach inflammation

> > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> > Right Kidney Lower Pole, Right Flank Pain

> >

> > *DASH: Started "sort of" DASHing 5/3/2011*

> >

> >

> >

> >

> >

>

>

>

> --

>

> ============================================================================

> *45-Male-Caucasian*, 5'9"- 234lbs, PA Diagnosed 2007 Suspected

> Hyperplasia-No tumors on CT - No AVS.

> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> (weekly), 20mg Omeprazole

> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain

>

> *DASH: Started "sort of" DASHing 5/3/2011*

>

-- ============================================================================45-Male-Caucasian, 5'9"- 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started "sort of" DASHing 5/3/2011

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I am not sticking to a DASH portion allocation or food group to the letter. By Sorta, I mean I am not adding any salt to anything, and avoiding salt loaded foods. My problem is i am still just eating too much. I dont blame dash, but on low carb, I can eat alot and still not add weight if the carbs are low enough.

 

Here is what I had today, but last night I had pizza and garlic cheesebread at a party.

 

Breakfast & Snacks - 2 scrambeled eggs with 8 ounce grilled steak and 1 slice whole wheat toast with Strawberry jam. All with just MRS Dash and unsalted butter.

Glass of Silk Soy Milk

Couple cans of diet soda

Some low sodium V8 juice (12oz glass)

Coffee with cream and splenda

Granny smith appleSome black table grapes

Handful of Unsalted corn chips with homemade salsa ( no salt)

 

Lunch and snacks

Grilled low sodium chicken breast with fresh lemon juice and mrs dash. Small amount of bbq sauce basted on at the end

of grilling

Steamed Asparegus with melted unsalted butter (just a little) and greek seasoning (nosalt kind)

ANother granny smith apple and a few more grapes

few more diet sodas

 

Dinner

12 oz Tenderloin Steak Grilled (not sure what was on it)

Baked potato - salted butter and pepper

Mixed fruit - pineapple, grapes, melon, blueberries

Cheesecake (no idea on the sodium)

 

So not really a dash day, and prob too many calories. I dont have steak 2 times a day as a general rule, just happened to work out that as we were invited to the inlaws for dinner

 

 

 

 

It is most likely a K problem.  Sorta DASHI

ing does not work for most. It is not possible to gi

Gain weight on DASH if u are doing the 14 day trial. Please clarify. 

Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

 

thanks . It has taken a while to get things under control. I was actually pretty stable on my previous regimen, but I wanted to get off the HCTZ becuase I didnt like what it was doing to my singing ability...and the logic/research of Dr. Grim makes sense. Hoever, semi-Dash and just Spiro/K has been a big change for me...particularly when I was low carbing alot before. I always liked the higher carb foods, fruit, pasta, etc, but they were a disaster for my weight. I have already gained about 10 lbs since i started sorta dashing, so I still obviously have issues controlling my hunger. I have gone days on very low salt and it doesnt really seem to make a great deal of differnece for me. One thing i did add in that has helped my lift my mood is a B complex suppliment. I just feel better mentally when taking it...less foggy and a bit more upbeat.

 

I dont crave salt anymore, but now i crave apples and other fruit. Perhaps the only way I can get my hunger under control is going to be to go back to low carbing. That will make dash a little harder, but still possible to go all low sodium.

 

Probalby the biggest thing I dont like about Spiro (other than gyno) is the way it makes me so emotional. OMG I tear up over stupid stuff and get mad alot easier than ever before. My wife laughs at me when I ask her when are we getting our next period...cause I seem to be in sync with her. lol I see my endo in a few weeks and i just might talk about trying Inspra to see if it changes things at all. I am okay with getting in touch with my feminine side, but it is getting a little our of control for me. I think I would rather be a caveman again and raging with usable testosterone.

 

, I don't know if upping the Spiro will do anything for your PA but from my experience it might have more effect on your stomach inflammation! You sound like your SX is similar to mine and you may be a year or so earlier with your DX than I was. (In that year I added 80-90 lbs, oxygen, went from prediabetic to full fledged diabetic and my flank pain involved my testis!)

Spiro had my BP controlled but that was it. The key appears to have been getting my NA low enough! Dr. Grim uses Urine NA to ensure your diet is in compliance. I personaly use blood (plasma) NA which appears to need to be less than the midpoint for my body to get the full effect of the Spiro. There was NO gradual change, the difference appeared overnight - just like turnning a light switch off! (Actually that was my perception, as I keep reviewing my records there may have been subtle changes occuring earlier.)

I would look at NA (both types) to determine where you are in the process. (And ofcourse always follow the direction of your healthcare provider even if s/he knows nothing about your disease! Couldn't resist that one since I see they have been at it for 4 years!) Good Luck

- 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank & testicle pain. I have decided against an adrenalectomy at this time since Meds. are working so well. Current BP(last week ave): 123/69

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2. and PTSD.Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> >>> > >>> >>> > >> > I had my second AVS yesterday and it went much like the first - no

> >>>> >>> > >> > pain, no problems, other than my K crashing and having to have one> >>>> >>> > >> > of those awful infusions. Not much else to tell as I don't

> >>> remember> >>> > >> > much of anything, because like the first time, they had me under> >>> > >> > general anesthesia (propofol, fentanyl and versed). After reading

> >>> > >> > others' accounts of pain and discomfort during the procedure, it> >>> > >> > makes me wonder why this isn't standard protocol.> >>> > >> >

> >>> > >> > This time around they expect to have results back and interpreted> >>> > >> > within two weeks - well see about that. Originally my nephro> >>> wanted

> >>> > >> > me to start eplerenone today, but we came to an agreement to wait> >>> > >> > until the results come back because if it's inconclusive again,> >>> I'll

> >>> > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to> >>> > >> > that though :) Because of the imaging obtained the first time> >>> > >> > around, the IR team thinks that chances of accuracy were improved

> >>> > >> > the second time.> >>> > >> >> >>> > >> > --msmith1928> >>> > >> > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea,

> >>> > >> > hyperinsulinemia, hereditary fructose intolerance, lactose> >>> > >> > intolerance, probable gluten intolerance. Current meds are K 20> >>> MEQ

> >>> > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate> >>> > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine> >>> > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> >>> > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal> >>> > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when> >>> not

> >>> > >> > taking supplements); spiro caused gynecomastia and polymenorrhea> >>> > >> >> >>> > >> >> >>> > >>> >>> > >

> >>> > >> >>> >> >>>> >>>> >>>> >>>> >>> >>> >> --> >>> >>

> >> ============================================================================> >> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected> >> Hyperplasia-No tumors on CT - No AVS.

> >> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D> >> (weekly), 20mg Omeprazole> >> *Side effects: *Gynecomastia, stomach inflammation> >> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> >> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in> >> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on> >> Right Kidney Lower Pole, Right Flank Pain

> >>> >> *DASH: Started " sort of " DASHing 5/3/2011*> >>> >>> >>> >>> >>> >> >> > --> >

> >> > ============================================================================> > *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected> > Hyperplasia-No tumors on CT - No AVS.

> > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D> > (weekly), 20mg Omeprazole> > *Side effects: *Gynecomastia, stomach inflammation> > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in> > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on> > Right Kidney Lower Pole, Right Flank Pain

> >> > *DASH: Started " sort of " DASHing 5/3/2011*> >> >> >> > > >> > > > -- > > ============================================================================

> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected > Hyperplasia-No tumors on CT - No AVS.> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D> (weekly), 20mg Omeprazole> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain> > *DASH: Started " sort of " DASHing 5/3/2011*>

--

============================================================================ 45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg Omeprazole

Side effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

--

============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

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Mayo told me that my case was to mild to risk AVS. That was 3 years ago. Said treat with meds until it either shows up on CT or cant be controlled with meds. Not exact words, but the basic jist of it.

 

Just because CT doesn't show tumor dosen't mean both sides are making to much Aldo. Just means tumor is to small for CT to show it. 19% of the time AVS shows tumor that is on one side that CT missed.

> > > >>

> > > >> > I had my second AVS yesterday and it went much like the first - no

> > > >> > pain, no problems, other than my K crashing and having to have one

> > > >> > of those awful infusions. Not much else to tell as I don't remember

> > > >> > much of anything, because like the first time, they had me under

> > > >> > general anesthesia (propofol, fentanyl and versed). After reading

> > > >> > others' accounts of pain and discomfort during the procedure, it

> > > >> > makes me wonder why this isn't standard protocol.

> > > >> >

> > > >> > This time around they expect to have results back and interpreted

> > > >> > within two weeks - well see about that. Originally my nephro wanted

> > > >> > me to start eplerenone today, but we came to an agreement to wait

> > > >> > until the results come back because if it's inconclusive again, I'll

> >

> > > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> > > >> > that though :) Because of the imaging obtained the first time

> > > >> > around, the IR team thinks that chances of accuracy were improved

> > > >> > the second time.

> > > >> >

> > > >> > --msmith1928

> > > >> > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea,

> > > >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> > > >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ

> > > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> > > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> > > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> > > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> > > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not

> > > >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> > > >> >

> > > >> >

> > > >>

> > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

>

> ============================================================================

> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> Hyperplasia-No tumors on CT - No AVS.

> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> (weekly), 20mg Omeprazole

> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain

>

> *DASH: Started " sort of " DASHing 5/3/2011*

>

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

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You will note that DASH is not a low carb plan. Indeed it tends to limit meat to a piece the size of a deck of cards (not a Canasta deck). So you clearly not DASHing. The DASH died was the synthesis of the best science suggested what combo of eating would be most likely to lower BP. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Just because CT doesn't show tumor dosen't mean both sides are making to much Aldo. Just means tumor is to small for CT to show it. 19% of the time AVS shows tumor that is on one side that CT missed.

> > > >>

> > > >> > I had my second AVS yesterday and it went much like the first - no

> > > >> > pain, no problems, other than my K crashing and having to have one

> > > >> > of those awful infusions. Not much else to tell as I don't remember

> > > >> > much of anything, because like the first time, they had me under

> > > >> > general anesthesia (propofol, fentanyl and versed). After reading

> > > >> > others' accounts of pain and discomfort during the procedure, it

> > > >> > makes me wonder why this isn't standard protocol.

> > > >> >

> > > >> > This time around they expect to have results back and interpreted

> > > >> > within two weeks - well see about that. Originally my nephro wanted

> > > >> > me to start eplerenone today, but we came to an agreement to wait

> > > >> > until the results come back because if it's inconclusive again, I'll

> >

> > > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> > > >> > that though :) Because of the imaging obtained the first time

> > > >> > around, the IR team thinks that chances of accuracy were improved

> > > >> > the second time.

> > > >> >

> > > >> > --msmith1928

> > > >> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea,

> > > >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> > > >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ

> > > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> > > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> > > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> > > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> > > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not

> > > >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> > > >> >

> > > >> >

> > > >>

> > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

>

> ============================================================================

> *45-Male-Caucasian*, 5'9"- 234lbs, PA Diagnosed 2007 Suspected

> Hyperplasia-No tumors on CT - No AVS.

> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> (weekly), 20mg Omeprazole

> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain

>

> *DASH: Started "sort of" DASHing 5/3/2011*

>

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Share on other sites

Again as long as you are doing well don't rock the boAt. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Mayo told me that my case was to mild to risk AVS. That was 3 years ago. Said treat with meds until it either shows up on CT or cant be controlled with meds. Not exact words, but the basic jist of it.

Just because CT doesn't show tumor dosen't mean both sides are making to much Aldo. Just means tumor is to small for CT to show it. 19% of the time AVS shows tumor that is on one side that CT missed.

> > > >>

> > > >> > I had my second AVS yesterday and it went much like the first - no

> > > >> > pain, no problems, other than my K crashing and having to have one

> > > >> > of those awful infusions. Not much else to tell as I don't remember

> > > >> > much of anything, because like the first time, they had me under

> > > >> > general anesthesia (propofol, fentanyl and versed). After reading

> > > >> > others' accounts of pain and discomfort during the procedure, it

> > > >> > makes me wonder why this isn't standard protocol.

> > > >> >

> > > >> > This time around they expect to have results back and interpreted

> > > >> > within two weeks - well see about that. Originally my nephro wanted

> > > >> > me to start eplerenone today, but we came to an agreement to wait

> > > >> > until the results come back because if it's inconclusive again, I'll

> >

> > > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> > > >> > that though :) Because of the imaging obtained the first time

> > > >> > around, the IR team thinks that chances of accuracy were improved

> > > >> > the second time.

> > > >> >

> > > >> > --msmith1928

> > > >> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea,

> > > >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> > > >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ

> > > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> > > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> > > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> > > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> > > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not

> > > >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> > > >> >

> > > >> >

> > > >>

> > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

>

> ============================================================================

> *45-Male-Caucasian*, 5'9"- 234lbs, PA Diagnosed 2007 Suspected

> Hyperplasia-No tumors on CT - No AVS.

> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> (weekly), 20mg Omeprazole

> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain

>

> *DASH: Started "sort of" DASHing 5/3/2011*

>

-- ============================================================================45-Male-Caucasian, 5'9"- 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started "sort of" DASHing 5/3/2011

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Share on other sites

Again as long as you are doing well don't rock the boAt. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Mayo told me that my case was to mild to risk AVS. That was 3 years ago. Said treat with meds until it either shows up on CT or cant be controlled with meds. Not exact words, but the basic jist of it.

Just because CT doesn't show tumor dosen't mean both sides are making to much Aldo. Just means tumor is to small for CT to show it. 19% of the time AVS shows tumor that is on one side that CT missed.

> > > >>

> > > >> > I had my second AVS yesterday and it went much like the first - no

> > > >> > pain, no problems, other than my K crashing and having to have one

> > > >> > of those awful infusions. Not much else to tell as I don't remember

> > > >> > much of anything, because like the first time, they had me under

> > > >> > general anesthesia (propofol, fentanyl and versed). After reading

> > > >> > others' accounts of pain and discomfort during the procedure, it

> > > >> > makes me wonder why this isn't standard protocol.

> > > >> >

> > > >> > This time around they expect to have results back and interpreted

> > > >> > within two weeks - well see about that. Originally my nephro wanted

> > > >> > me to start eplerenone today, but we came to an agreement to wait

> > > >> > until the results come back because if it's inconclusive again, I'll

> >

> > > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> > > >> > that though :) Because of the imaging obtained the first time

> > > >> > around, the IR team thinks that chances of accuracy were improved

> > > >> > the second time.

> > > >> >

> > > >> > --msmith1928

> > > >> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea,

> > > >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> > > >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ

> > > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> > > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> > > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> > > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> > > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not

> > > >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> > > >> >

> > > >> >

> > > >>

> > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

>

> ============================================================================

> *45-Male-Caucasian*, 5'9"- 234lbs, PA Diagnosed 2007 Suspected

> Hyperplasia-No tumors on CT - No AVS.

> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> (weekly), 20mg Omeprazole

> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain

>

> *DASH: Started "sort of" DASHing 5/3/2011*

>

-- ============================================================================45-Male-Caucasian, 5'9"- 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started "sort of" DASHing 5/3/2011

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Share on other sites

I have found it very hard to get disability for HTN UNTIL one has had a stroke. But maybe rThings have changed. I would mention HFI as limiting diet control but then again if they think diet will help disabilities issues may be not be good. Exact what side effects are u having on Spiro? It can take a bit of adjusting to get it right. Timing of dose sometimes helps for gut issues. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Thanks Kellie :) After feeling so lousy on spiro, I'm really hesitant to try eplerenone until I know whether or not adrenalectomy is going to happen. I think I came pretty close to putting my job in danger while I was on spiro, thanks to a combination of the side effects it caused, and the depression that the side effects caused - and I really need to hang on to my health insurance right now, which means doing whatever I can to protect my job.

If I end up with a bilateral diagnosis after the AVS results are in, I plan to go on short term disability while I adjust to the meds. But I'm still hoping it doesn't come to that...

> >

> > I had my second AVS yesterday and it went much like the first - no pain,

> > no problems, other than my K crashing and having to have one of those

> > awful infusions. Not much else to tell as I don't remember much of

> > anything, because like the first time, they had me under general

> > anesthesia (propofol, fentanyl and versed). After reading others'

> > accounts of pain and discomfort during the procedure, it makes me wonder

> > why this isn't standard protocol.

> >

> > This time around they expect to have results back and interpreted within

> > two weeks - well see about that. Originally my nephro wanted me to start

> > eplerenone today, but we came to an agreement to wait until the results

> > come back because if it's inconclusive again, I'll be repeating the

> > procedure ASAP. Here's hoping it doesn't come to that though :) Because

> > of the imaging obtained the first time around, the IR team thinks that

> > chances of accuracy were improved the second time.

> >

> > --msmith1928

> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea,

> > hyperinsulinemia, hereditary fructose intolerance, lactose intolerance,

> > probable gluten intolerance. Current meds are K 20 MEQ 4x/day,

> > singulair 10mg, norethindrone .35mg to regulate polymenorrhea,

> > cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low

> > sodium, fructose- and grain-free diet. Known drug allergies include

> > PCN, sulfa, tetracycline. 1cm left adrenal nodule, supine aldosterone

> > 28.5/renin 0.2, potassium <2.9 (when not taking supplements); spiro

> > caused gynecomastia and polymenorrhea

> >

>

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Share on other sites

I have found it very hard to get disability for HTN UNTIL one has had a stroke. But maybe rThings have changed. I would mention HFI as limiting diet control but then again if they think diet will help disabilities issues may be not be good. Exact what side effects are u having on Spiro? It can take a bit of adjusting to get it right. Timing of dose sometimes helps for gut issues. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Thanks Kellie :) After feeling so lousy on spiro, I'm really hesitant to try eplerenone until I know whether or not adrenalectomy is going to happen. I think I came pretty close to putting my job in danger while I was on spiro, thanks to a combination of the side effects it caused, and the depression that the side effects caused - and I really need to hang on to my health insurance right now, which means doing whatever I can to protect my job.

If I end up with a bilateral diagnosis after the AVS results are in, I plan to go on short term disability while I adjust to the meds. But I'm still hoping it doesn't come to that...

> >

> > I had my second AVS yesterday and it went much like the first - no pain,

> > no problems, other than my K crashing and having to have one of those

> > awful infusions. Not much else to tell as I don't remember much of

> > anything, because like the first time, they had me under general

> > anesthesia (propofol, fentanyl and versed). After reading others'

> > accounts of pain and discomfort during the procedure, it makes me wonder

> > why this isn't standard protocol.

> >

> > This time around they expect to have results back and interpreted within

> > two weeks - well see about that. Originally my nephro wanted me to start

> > eplerenone today, but we came to an agreement to wait until the results

> > come back because if it's inconclusive again, I'll be repeating the

> > procedure ASAP. Here's hoping it doesn't come to that though :) Because

> > of the imaging obtained the first time around, the IR team thinks that

> > chances of accuracy were improved the second time.

> >

> > --msmith1928

> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea,

> > hyperinsulinemia, hereditary fructose intolerance, lactose intolerance,

> > probable gluten intolerance. Current meds are K 20 MEQ 4x/day,

> > singulair 10mg, norethindrone .35mg to regulate polymenorrhea,

> > cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low

> > sodium, fructose- and grain-free diet. Known drug allergies include

> > PCN, sulfa, tetracycline. 1cm left adrenal nodule, supine aldosterone

> > 28.5/renin 0.2, potassium <2.9 (when not taking supplements); spiro

> > caused gynecomastia and polymenorrhea

> >

>

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I know I am not Dashing...I am low salting..aka Kinda Dashing.  But, still eating too much so I end up with alot of salt anyway, but still more potassium than salt in my urine. My list was not complete...just off the top of my head. Thanks for the kick in the pants...I know I need to improve on the Dash thingy to be sure. that is Why I keep trying to get Dr. Grim to give me another option.v:)

 

, , , If you are not sticking to portion, food groups or number of servings of items like red meat, I hate to be the one to break the news but you missed the DASH Boat! If I remember right the meat portion should be 3-4 oz. of lean meat and you should use a deck of cards as a reference point (I learned this before DASH in diabetes education!) Looks like your red meat was 5 portions and chicken probably 2 and maybe 3, can I assume skinless? (The nurse that taught my DM2 training gave us a real eyeopener the day she explained that the large position on 3position styrofoam plates was for vegatables and not the meat!)

Fruit looks pretty good but did you forget to list the vegies? No, cheezecake is not a Vegetable! And your fluid intake looks like it is out of control, especially if you are no longer on a diuretic. The Neprologist that DXed my PA put me on a loop diuretic and recommended I consume no more than 1 1/2 liters of fluid/day! (I had already switched from diet soda to water. When I was driving, after my computer days, I found caffine relaxed me to a point of sleepiness and sips of water kept me alert, especially on some of those late night trips!)

I hope you take this in the light it is intended and will listen to the 290lb man (who has lost 10% of his body weight) who is trying to make the adjustments! A couple of suggestions that have worked for me:

Have you tried using a smaller plate? I seldom use a dinner plate and sometimes use a sandwich plate depending on the menu. I've also been known to use smaller utensils that we keep around for grandchildren - It keeps the elbow limbered up and the longer you take gives the brain time to catch up with the stomach! BTW setting the fork down between bites helps also!

You said you liked pasta, have you tried pasta sauce on summer squash and/or zucchini? That with a slice of whole wheat bread, unsalted butter and 8oz glass of skim milk was a meatless dinner one night! Meatless has been one of the hard adjustments for us. My wife was raised on a farm and her dad raised all the meat and sold fresh vegetables to pay the taxes. My dad didn't think we had dinner unless it included meat and potatoes!

Hope this helps.

- 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank & testicle pain. I have decided against an adrenalectomy at this time since Meds. are working so well. Current BP(last week ave): 123/69

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2. and PTSD.

Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> >> > >>> > >>

> >> > >>> > >> > I had my second AVS yesterday and it went much like the first

> >> - no

> >> > >>>

> >> > >>> > >> > pain, no problems, other than my K crashing and having to

> >> have one

> >> > >>>

> >> > >>> > >> > of those awful infusions. Not much else to tell as I don't

> >> > >>> remember

> >> > >>> > >> > much of anything, because like the first time, they had me

> >> under

> >> > >>> > >> > general anesthesia (propofol, fentanyl and versed). After

> >> reading

> >> > >>> > >> > others' accounts of pain and discomfort during the procedure,

> >> it

> >> > >>> > >> > makes me wonder why this isn't standard protocol.

> >> > >>> > >> >

> >> > >>> > >> > This time around they expect to have results back and

> >> interpreted

> >> > >>> > >> > within two weeks - well see about that. Originally my nephro

> >> > >>> wanted

> >> > >>> > >> > me to start eplerenone today, but we came to an agreement to

> >> wait

> >> > >>> > >> > until the results come back because if it's inconclusive

> >> again,

> >> > >>> I'll

> >> > >>> > >> > be repeating the procedure ASAP. Here's hoping it doesn't

> >> come to

> >> > >>> > >> > that though :) Because of the imaging obtained the first time

> >> > >>> > >> > around, the IR team thinks that chances of accuracy were

> >> improved

> >> > >>> > >> > the second time.

> >> > >>> > >> >

> >> > >>> > >> > --msmith1928

> >> > >>> > >> > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea,

> >> > >>> > >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> >> > >>> > >> > intolerance, probable gluten intolerance. Current meds are K

> >> 20

> >> > >>> MEQ

> >> > >>> > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> >> > >>> > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed,

> >> fexofenadine

> >> > >>> > >> > 180mg as needed. Low sodium, fructose- and grain-free diet.

> >> Known

> >> > >>> > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left

> >> adrenal

> >> > >>> > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9

> >> (when

> >> > >>> not

> >> > >>> > >> > taking supplements); spiro caused gynecomastia and

> >> polymenorrhea

> >> > >>> > >> >

> >> > >>> > >> >

> >> > >>> > >>

> >> > >>> > >

> >> > >>> > >

> >> > >>> >

> >> > >>>

> >> > >>>

> >> > >>>

> >> > >>>

> >> > >>

> >> > >>

> >> > >> --

> >> > >>

> >> > >>

> >> > >>

> >> ============================================================================

> >> > >> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> >> > >> Hyperplasia-No tumors on CT - No AVS.

> >> > >> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit

> >> D

> >> > >> (weekly), 20mg Omeprazole

> >> > >> *Side effects: *Gynecomastia, stomach inflammation

> >> > >> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> >> > >> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct

> >> in

> >> > >> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia,

> >> Scarring on

> >> > >> Right Kidney Lower Pole, Right Flank Pain

> >> > >>

> >> > >> *DASH: Started " sort of " DASHing 5/3/2011*

> >> > >>

> >> > >>

> >> > >>

> >> > >>

> >> > >>

> >> > >

> >> > >

> >> > > --

> >> > >

> >> > >

> >> > >

> >> ============================================================================

> >> > > *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> >> > > Hyperplasia-No tumors on CT - No AVS.

> >> > > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> >> > > (weekly), 20mg Omeprazole

> >> > > *Side effects: *Gynecomastia, stomach inflammation

> >> > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> >> > > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct

> >> in

> >> > > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia,

> >> Scarring on

> >> > > Right Kidney Lower Pole, Right Flank Pain

> >> > >

> >> > > *DASH: Started " sort of " DASHing 5/3/2011*

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> >

> >> >

> >> >

> >> > --

> >> >

> >> >

> >> ============================================================================

> >> > *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> >>

> >> > Hyperplasia-No tumors on CT - No AVS.

> >> > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> >> > (weekly), 20mg Omeprazole

> >> > *Side effects: *Gynecomastia, stomach inflammation

> >> > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> >> > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> >> > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia,

> >> Scarring on

> >> > Right Kidney Lower Pole, Right Flank Pain

> >> >

> >> > *DASH: Started " sort of " DASHing 5/3/2011*

> >> >

> >>

> >>

> >

> >

> > --

> >

> > ============================================================================

> >

> >

> > *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> > Hyperplasia-No tumors on CT - No AVS.

> > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> > (weekly), 20mg Omeprazole

> > *Side effects: *Gynecomastia, stomach inflammation

> > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> > Right Kidney Lower Pole, Right Flank Pain

> >

> > *DASH: Started " sort of " DASHing 5/3/2011*

> >

> >

> >

>

>

>

> --

>

> ============================================================================

> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> Hyperplasia-No tumors on CT - No AVS.

> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> (weekly), 20mg Omeprazole

> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain

>

> *DASH: Started " sort of " DASHing 5/3/2011*

>

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

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Share on other sites

I know I am not Dashing...I am low salting..aka Kinda Dashing.  But, still eating too much so I end up with alot of salt anyway, but still more potassium than salt in my urine. My list was not complete...just off the top of my head. Thanks for the kick in the pants...I know I need to improve on the Dash thingy to be sure. that is Why I keep trying to get Dr. Grim to give me another option.v:)

 

, , , If you are not sticking to portion, food groups or number of servings of items like red meat, I hate to be the one to break the news but you missed the DASH Boat! If I remember right the meat portion should be 3-4 oz. of lean meat and you should use a deck of cards as a reference point (I learned this before DASH in diabetes education!) Looks like your red meat was 5 portions and chicken probably 2 and maybe 3, can I assume skinless? (The nurse that taught my DM2 training gave us a real eyeopener the day she explained that the large position on 3position styrofoam plates was for vegatables and not the meat!)

Fruit looks pretty good but did you forget to list the vegies? No, cheezecake is not a Vegetable! And your fluid intake looks like it is out of control, especially if you are no longer on a diuretic. The Neprologist that DXed my PA put me on a loop diuretic and recommended I consume no more than 1 1/2 liters of fluid/day! (I had already switched from diet soda to water. When I was driving, after my computer days, I found caffine relaxed me to a point of sleepiness and sips of water kept me alert, especially on some of those late night trips!)

I hope you take this in the light it is intended and will listen to the 290lb man (who has lost 10% of his body weight) who is trying to make the adjustments! A couple of suggestions that have worked for me:

Have you tried using a smaller plate? I seldom use a dinner plate and sometimes use a sandwich plate depending on the menu. I've also been known to use smaller utensils that we keep around for grandchildren - It keeps the elbow limbered up and the longer you take gives the brain time to catch up with the stomach! BTW setting the fork down between bites helps also!

You said you liked pasta, have you tried pasta sauce on summer squash and/or zucchini? That with a slice of whole wheat bread, unsalted butter and 8oz glass of skim milk was a meatless dinner one night! Meatless has been one of the hard adjustments for us. My wife was raised on a farm and her dad raised all the meat and sold fresh vegetables to pay the taxes. My dad didn't think we had dinner unless it included meat and potatoes!

Hope this helps.

- 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank & testicle pain. I have decided against an adrenalectomy at this time since Meds. are working so well. Current BP(last week ave): 123/69

Other Issues/Opportunities: OSA w Bi-Pap settings 13/19, DM2. and PTSD.

Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 50 MG.

> >> > >>> > >>

> >> > >>> > >> > I had my second AVS yesterday and it went much like the first

> >> - no

> >> > >>>

> >> > >>> > >> > pain, no problems, other than my K crashing and having to

> >> have one

> >> > >>>

> >> > >>> > >> > of those awful infusions. Not much else to tell as I don't

> >> > >>> remember

> >> > >>> > >> > much of anything, because like the first time, they had me

> >> under

> >> > >>> > >> > general anesthesia (propofol, fentanyl and versed). After

> >> reading

> >> > >>> > >> > others' accounts of pain and discomfort during the procedure,

> >> it

> >> > >>> > >> > makes me wonder why this isn't standard protocol.

> >> > >>> > >> >

> >> > >>> > >> > This time around they expect to have results back and

> >> interpreted

> >> > >>> > >> > within two weeks - well see about that. Originally my nephro

> >> > >>> wanted

> >> > >>> > >> > me to start eplerenone today, but we came to an agreement to

> >> wait

> >> > >>> > >> > until the results come back because if it's inconclusive

> >> again,

> >> > >>> I'll

> >> > >>> > >> > be repeating the procedure ASAP. Here's hoping it doesn't

> >> come to

> >> > >>> > >> > that though :) Because of the imaging obtained the first time

> >> > >>> > >> > around, the IR team thinks that chances of accuracy were

> >> improved

> >> > >>> > >> > the second time.

> >> > >>> > >> >

> >> > >>> > >> > --msmith1928

> >> > >>> > >> > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea,

> >> > >>> > >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> >> > >>> > >> > intolerance, probable gluten intolerance. Current meds are K

> >> 20

> >> > >>> MEQ

> >> > >>> > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> >> > >>> > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed,

> >> fexofenadine

> >> > >>> > >> > 180mg as needed. Low sodium, fructose- and grain-free diet.

> >> Known

> >> > >>> > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left

> >> adrenal

> >> > >>> > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9

> >> (when

> >> > >>> not

> >> > >>> > >> > taking supplements); spiro caused gynecomastia and

> >> polymenorrhea

> >> > >>> > >> >

> >> > >>> > >> >

> >> > >>> > >>

> >> > >>> > >

> >> > >>> > >

> >> > >>> >

> >> > >>>

> >> > >>>

> >> > >>>

> >> > >>>

> >> > >>

> >> > >>

> >> > >> --

> >> > >>

> >> > >>

> >> > >>

> >> ============================================================================

> >> > >> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> >> > >> Hyperplasia-No tumors on CT - No AVS.

> >> > >> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit

> >> D

> >> > >> (weekly), 20mg Omeprazole

> >> > >> *Side effects: *Gynecomastia, stomach inflammation

> >> > >> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> >> > >> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct

> >> in

> >> > >> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia,

> >> Scarring on

> >> > >> Right Kidney Lower Pole, Right Flank Pain

> >> > >>

> >> > >> *DASH: Started " sort of " DASHing 5/3/2011*

> >> > >>

> >> > >>

> >> > >>

> >> > >>

> >> > >>

> >> > >

> >> > >

> >> > > --

> >> > >

> >> > >

> >> > >

> >> ============================================================================

> >> > > *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> >> > > Hyperplasia-No tumors on CT - No AVS.

> >> > > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> >> > > (weekly), 20mg Omeprazole

> >> > > *Side effects: *Gynecomastia, stomach inflammation

> >> > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> >> > > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct

> >> in

> >> > > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia,

> >> Scarring on

> >> > > Right Kidney Lower Pole, Right Flank Pain

> >> > >

> >> > > *DASH: Started " sort of " DASHing 5/3/2011*

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> >

> >> >

> >> >

> >> > --

> >> >

> >> >

> >> ============================================================================

> >> > *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> >>

> >> > Hyperplasia-No tumors on CT - No AVS.

> >> > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> >> > (weekly), 20mg Omeprazole

> >> > *Side effects: *Gynecomastia, stomach inflammation

> >> > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> >> > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> >> > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia,

> >> Scarring on

> >> > Right Kidney Lower Pole, Right Flank Pain

> >> >

> >> > *DASH: Started " sort of " DASHing 5/3/2011*

> >> >

> >>

> >>

> >

> >

> > --

> >

> > ============================================================================

> >

> >

> > *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> > Hyperplasia-No tumors on CT - No AVS.

> > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> > (weekly), 20mg Omeprazole

> > *Side effects: *Gynecomastia, stomach inflammation

> > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> > Right Kidney Lower Pole, Right Flank Pain

> >

> > *DASH: Started " sort of " DASHing 5/3/2011*

> >

> >

> >

>

>

>

> --

>

> ============================================================================

> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> Hyperplasia-No tumors on CT - No AVS.

> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> (weekly), 20mg Omeprazole

> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain

>

> *DASH: Started " sort of " DASHing 5/3/2011*

>

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

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Share on other sites

All though out my PA experience, I have not had very high BP. By high BP I mean it was rarely over 140/90. My whole journey to a PA diag on this was the muscle twitching and widespread pain. An endo stumbed onto possible PA when he used a scatter gun appraoch and ordered a ton of blood work. My Aldo came back jsut above the normal range and Renin was low normal. I was always coming in with lownormal or just below normal K levels. As you pointed out, probably false higher  readings becuase I am a bugger to get blood out of. They put me on HCTZ to plug the renal calcium leak and get the PTH to come down...so I wouldnt pee out my bones as the doc described it. As I now learned by even sorta dashing...the calcium leak went away when the sodium level was dropped. that first test with HCTZ sent my K level down to 2.9 (with 3.5 beling the lowest number of the normal test range). It was at that point when PA was pretty much assumed and we started treating me with Spiro/HCTZ combo and added K to suppliment. I costed along on that fairly good until I wanted to try what we were doing here with DASH and Spiro/K only. It has worked better in some ways but not so much in others. However, since I am not properly doing DASH, I cant really say that it doesnt work better. I am happy with my breathing and vocal cords, but still suffering from the muscle pain and some twitching now and then. tolerable, but sure dont feel ike my old self.

 I guess I will have to make a stronger effort to live a full on DASH lifestyle, but it sure seems difficult for me to transition too all the time. I wish I could get my family to be a bit more supportive and stop buying all the stuff I shouldnt eat. I realize it comes down to my own commitment, but it is really had to walk away from my favorite foods when they are right in my face all the time.

 

You will note that DASH is not a low carb plan. Indeed it tends to limit meat to a piece the size of a deck of cards (not a Canasta deck). So you clearly not DASHing. The DASH died was  the synthesis of the best science suggested what combo of eating would be most likely to lower BP. 

Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

 

Just because CT doesn't show tumor dosen't mean both sides are making to much Aldo. Just means tumor is to small for CT to show it. 19% of the time AVS shows tumor that is on one side that CT missed.

> > > >>

> > > >> > I had my second AVS yesterday and it went much like the first - no

> > > >> > pain, no problems, other than my K crashing and having to have one

> > > >> > of those awful infusions. Not much else to tell as I don't remember

> > > >> > much of anything, because like the first time, they had me under

> > > >> > general anesthesia (propofol, fentanyl and versed). After reading

> > > >> > others' accounts of pain and discomfort during the procedure, it

> > > >> > makes me wonder why this isn't standard protocol.

> > > >> >

> > > >> > This time around they expect to have results back and interpreted

> > > >> > within two weeks - well see about that. Originally my nephro wanted

> > > >> > me to start eplerenone today, but we came to an agreement to wait

> > > >> > until the results come back because if it's inconclusive again, I'll

> >

> > > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> > > >> > that though :) Because of the imaging obtained the first time

> > > >> > around, the IR team thinks that chances of accuracy were improved

> > > >> > the second time.

> > > >> >

> > > >> > --msmith1928

> > > >> > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea,

> > > >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> > > >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ

> > > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> > > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> > > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> > > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> > > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not

> > > >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> > > >> >

> > > >> >

> > > >>

> > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

>

> ============================================================================

> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> Hyperplasia-No tumors on CT - No AVS.

> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> (weekly), 20mg Omeprazole

> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain

>

> *DASH: Started " sort of " DASHing 5/3/2011*

>

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

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All though out my PA experience, I have not had very high BP. By high BP I mean it was rarely over 140/90. My whole journey to a PA diag on this was the muscle twitching and widespread pain. An endo stumbed onto possible PA when he used a scatter gun appraoch and ordered a ton of blood work. My Aldo came back jsut above the normal range and Renin was low normal. I was always coming in with lownormal or just below normal K levels. As you pointed out, probably false higher  readings becuase I am a bugger to get blood out of. They put me on HCTZ to plug the renal calcium leak and get the PTH to come down...so I wouldnt pee out my bones as the doc described it. As I now learned by even sorta dashing...the calcium leak went away when the sodium level was dropped. that first test with HCTZ sent my K level down to 2.9 (with 3.5 beling the lowest number of the normal test range). It was at that point when PA was pretty much assumed and we started treating me with Spiro/HCTZ combo and added K to suppliment. I costed along on that fairly good until I wanted to try what we were doing here with DASH and Spiro/K only. It has worked better in some ways but not so much in others. However, since I am not properly doing DASH, I cant really say that it doesnt work better. I am happy with my breathing and vocal cords, but still suffering from the muscle pain and some twitching now and then. tolerable, but sure dont feel ike my old self.

 I guess I will have to make a stronger effort to live a full on DASH lifestyle, but it sure seems difficult for me to transition too all the time. I wish I could get my family to be a bit more supportive and stop buying all the stuff I shouldnt eat. I realize it comes down to my own commitment, but it is really had to walk away from my favorite foods when they are right in my face all the time.

 

You will note that DASH is not a low carb plan. Indeed it tends to limit meat to a piece the size of a deck of cards (not a Canasta deck). So you clearly not DASHing. The DASH died was  the synthesis of the best science suggested what combo of eating would be most likely to lower BP. 

Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

 

Just because CT doesn't show tumor dosen't mean both sides are making to much Aldo. Just means tumor is to small for CT to show it. 19% of the time AVS shows tumor that is on one side that CT missed.

> > > >>

> > > >> > I had my second AVS yesterday and it went much like the first - no

> > > >> > pain, no problems, other than my K crashing and having to have one

> > > >> > of those awful infusions. Not much else to tell as I don't remember

> > > >> > much of anything, because like the first time, they had me under

> > > >> > general anesthesia (propofol, fentanyl and versed). After reading

> > > >> > others' accounts of pain and discomfort during the procedure, it

> > > >> > makes me wonder why this isn't standard protocol.

> > > >> >

> > > >> > This time around they expect to have results back and interpreted

> > > >> > within two weeks - well see about that. Originally my nephro wanted

> > > >> > me to start eplerenone today, but we came to an agreement to wait

> > > >> > until the results come back because if it's inconclusive again, I'll

> >

> > > >> > be repeating the procedure ASAP. Here's hoping it doesn't come to

> > > >> > that though :) Because of the imaging obtained the first time

> > > >> > around, the IR team thinks that chances of accuracy were improved

> > > >> > the second time.

> > > >> >

> > > >> > --msmith1928

> > > >> > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea,

> > > >> > hyperinsulinemia, hereditary fructose intolerance, lactose

> > > >> > intolerance, probable gluten intolerance. Current meds are K 20 MEQ

> > > >> > 4x/day, singulair 10mg, norethindrone .35mg to regulate

> > > >> > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine

> > > >> > 180mg as needed. Low sodium, fructose- and grain-free diet. Known

> > > >> > drug allergies include PCN, sulfa, tetracycline. 1cm left adrenal

> > > >> > nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not

> > > >> > taking supplements); spiro caused gynecomastia and polymenorrhea

> > > >> >

> > > >> >

> > > >>

> > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

>

> ============================================================================

> *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected

> Hyperplasia-No tumors on CT - No AVS.

> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D

> (weekly), 20mg Omeprazole

> *Side effects: *Gynecomastia, stomach inflammation

> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,

> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in

> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on

> Right Kidney Lower Pole, Right Flank Pain

>

> *DASH: Started " sort of " DASHing 5/3/2011*

>

-- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.

Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain

DASH: Started " sort of " DASHing 5/3/2011

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