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Hello,

I'm new to this yahoo group and the wild world of ASD. I have a 2 year old

daughter who was recently diagnosed. She was a normal newborn and infant until

12 months when she stopped saying the few words she said. She was almost

completely quiet until after 15 months when she mastered walking. Her eye

contact became worse, she did not and still doesn't waive or point.

We're almost a month into ABA and speech therapy at home. It seems like

therapists are here for almost all of her awake hours. It is so hard to know

what to think or expect because I can see her changing.

My daughter is large, strong and always in motion. She's already half my height

and sometimes it can be hard to restrain her when she is fighting me. I worry

about when I will not be able to pick her up or when she is too big for the

stroller. I have this fantasy about her holding my hand and walking with me.

Do you keep a dresser in your daughter's room? My daughter is pulling the

drawers out and throwing clothes everywhere. She has a knack for doing this

when I'm involved in something. I'm tired of picking up clothes, but the real

issue is I'm afraid she'll hurt herself with the drawers.

I'm also wondering about diapers. We are nowhere near potty training and the

largest diapers I can find- size 6 are getting small. The weight on the package

is meaningless. I'm reluctant to go to pull-ups because everyone tells me they

leak. Any suggestions?

TIA

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Welcome Tia, a/k/a mamafog.  Love the name.  I understand the foggy feeling! 

You've come to a great place for lots of support and information.  Many people

here have been through what you're going through now.  It isn't easy, but you'll

find you have strength and courage you didn't even know you had.  It sounds like

you're hitting the ground running already.  Bravo to you for starting the

therapy early.  The earlier the better. 

 

I've been walking the autism journey for 6 years now (my daughter is 9) and I'm

convinced there are different types of autism, with different causes, and

different interventions and therapies work differently for each child.  You may

have to try many different approaches until you find what's best for your

daughter.  And even when you do find something that seems to be working, you'll

probably have to shift gears as your daughter matures and changes. 

 

We found ABA to be very helpful for our daughter, but you'll find parents here

that had the opposite experience and think it's not the best approach.  Again,

every child is different.  I'd try ABA for awhile but be open to reevaluation

after a period of time.  There may be a better option for your daughter. 

Qualified ABA therapists are key. 

 

Speech therapy has helped our daughter too, but it's taken a long time to really

see the progress we wanted to see.   I've had to learn PATIENCE!!!   One thing

you may want to consider is OT for sensory integration therapy.  Since your

daughter is always on the move - I assume she likes to climp and jump and spin

and swing??? - - I suspect she has a sensory processing disorder that can be

addressed.  A good OT can help you identify ways to help calm your daughter

down.  In the meantime, I'd just the move the dresser out of her room, or

alternatively, turn the drawers toward the wall so she can't have access to the

clothes.  There is no law that says you have to have a dresser in your

daughter's bedroom!

 

I don't have any info on diapers, but I know diapers are made for individuals of

all sizes and ages and that there are available resources on-line.   Lots of

kids with autism aren't toilet trained at the expected age.   Your daughter is

still pretty young, but when you're ready to attemp training, there's lots of

great advice here.  I actually went to a seminar on how to train your child with

autism, and it worked!  She was completely trained within a week - shortly

before her 4th birthday.  One of the proudest moments in my life!!!

 

Again, welcome to this group.  We're glad you're here!

 

Dickson, mom to Madeleine, age 9

 

 Sun, 6/21/09, mamafog wrote:

Subject: Hello from another newbie

To: Autism_in_Girls_and_Women

Date: Sunday, June 21, 2009, 4:01 PM

Hello,

I'm new to this yahoo group and the wild world of ASD. I have a 2 year old

daughter who was recently diagnosed. She was a normal newborn and infant until

12 months when she stopped saying the few words she said. She was almost

completely quiet until after 15 months when she mastered walking. Her eye

contact became worse, she did not and still doesn't waive or point.

We're almost a month into ABA and speech therapy at home. It seems like

therapists are here for almost all of her awake hours. It is so hard to know

what to think or expect because I can see her changing.

My daughter is large, strong and always in motion. She's already half my height

and sometimes it can be hard to restrain her when she is fighting me. I worry

about when I will not be able to pick her up or when she is too big for the

stroller. I have this fantasy about her holding my hand and walking with me.

Do you keep a dresser in your daughter's room? My daughter is pulling the

drawers out and throwing clothes everywhere. She has a knack for doing this when

I'm involved in something. I'm tired of picking up clothes, but the real issue

is I'm afraid she'll hurt herself with the drawers.

I'm also wondering about diapers. We are nowhere near potty training and the

largest diapers I can find- size 6 are getting small. The weight on the package

is meaningless. I'm reluctant to go to pull-ups because everyone tells me they

leak. Any suggestions?

TIA

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Thank you for the welcome and your reply.

So far I'm happy with ABA and speech therapy. We have great therapists and

seems to enjoy them coming over. I'm sure that she has sensory issues.

We have an OT evaluation next month, so we will see what they say.

How wonderful that your daughter is potty trained! It's probably too late for

congratulations. But I hope you are enjoying so many diaper free years.

Again, thanks for your kind words.

Mom to , age 2

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