Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Hi all, We all have experienced a sense of confusion and loss that Still's creates. Also, many here were diagnosed as children back when information and support was nearly non-existant. One of our group, has a passion for developing better information to help children cope with such experiences. As a result, a tri-fold brochure is being designed to help parents navigate Still's Disease. I would like to ask everyone to support this endeavor. Please communicate techniques that might help parents communicate with physicians, or things you feel will aid parents in communicating with thier child about the experiences they will encounter. I can not think of a group better equipped to voice the needs of this special segment of our population. Quote Link to comment Share on other sites More sharing options...
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