Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 , Thank you not only for supporting , but for the kind words you have for all of us in the group. Brett Support Requested Hi all, We all have experienced a sense of confusion and loss that Still's creates. Also, many here were diagnosed as children back when information and support was nearly non-existant. One of our group, has a passion for developing better information to help children cope with such experiences. As a result, a tri-fold brochure is being designed to help parents navigate Still's Disease. I would like to ask everyone to support this endeavor. Please communicate techniques that might help parents communicate with physicians, or things you feel will aid parents in communicating with thier child about the experiences they will encounter. I can not think of a group better equipped to voice the needs of this special segment of our population. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 some way stress how imported it is to keep a diary of daily life how there child says there feeling or were there hurting. I know it is some thing we all should be doing and I know I for one do not do it like i should and as my doc is asking me to . I believe being it is for there child it would be more likely kept and for the docs and the parents it is one of the best tools for taking with docs . in it pain levels and temps besides any thing that may be causing stress such as emotional of weather as in heat or cold dry or humidor just my two cents from what my doc is asking for to help her help me the redneck Marty The whole of that Bill [of Rights] is a declaration of the right of the people at large or considered as individuals...t establishes some rights of the individual as unalienable and which consequently, no majority has a right to deprive them of. ---Albert Gallatin to , Oct 7, 1789 The great object is that every man be armed " and " everyone who is able may have a gun. " ( Henry, in the Virginia Convention on the ratification of the Constitution. No freeman shall ever be debarred the use of arms. --- Jefferson: 1776 " Waiting periods are only a step. Registration is only a step. The prohibition of private firearms is the goal. " Janet Reno " as United Statesattorney general in the Clintonwhite house (now do we really want Hillary there to?) so what is the truth? what the founding fathers ment, or what people today try to twist it to ? Give up one right and the others will soon fallow Stills ; An illness I know to well! To learn about Stills http://www.stillsdisease.org/stills_info Quote Link to comment Share on other sites More sharing options...
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