Guest guest Posted December 30, 2010 Report Share Posted December 30, 2010 Its kinda complicated and evolves regularly, needs quite a bit of cash, HHI have refused to work with Caudwell in the past.we had to stop in stage 2 as could not afford the testing required. Still keep to many of the principles, happy to share Sam' results and GAR if that would be helpful to see Mandi x Please Share your experiences about Dr. Amy yasko. We are thinking of doing her protocol for our son. We would really appreciate your inputs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 Hi Tahira, For us the testing was very useful. We had plateaued on DAN! and couldn't move forward. When we got the gene results back (and when we began to work out what they meant which takes a bit of time) we learnt that we had over-methylation rather than under-methylation (which is what DAN! assumes). So all the methyl donors weren't helping - things like mb12 (rather than other forms) and DMG and TMG. It was a little bit like tuning DAN! to suit better. It was hard work but for us it made the difference between recovery and autism (albeit very much improved on DAN!). Mind there were a few things we did that weren't Yasko (like oregano oil which was hugely effective) and there were a few things we chose not to do. Best wishes, Sandy > > hi sandy, can i ask you about the yasko protocol i have been intersted in > the genetic testing they do or snips  do you feel that this is helpful > if one is undergoing the biomed already, i mean can it add to any > information. Also any ideas of the next planned tst in the north? thanks > tahira > > > > > ________________________________ > > To: Autism-Biomedical-Europe > Sent: Tue, 4 January, 2011 11:44:14 > Subject: Re: Dr Amy yasko > >  > Dear Dilshad, > > We also had success with Yasko and our son has recovered (though we did other > things also). It wasn't easy but for us it was worthwhile. Our son was also an > overmethylator. He had a need for b12 but not methylb12. > Best wishes, Sandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2011 Report Share Posted January 31, 2011 Hi Mandi, Sandy, Pam, I've never understood what is different between Yasko genetic testing and the NHS genetic tests, is anyone able to explain please. And would the genetic results from the NHS be of any use at all if one wanted to do the Yasko testing or is it an entirelydifferent method? thanks, emily > > > > hi sandy, can i ask you about the yasko protocol i have been > intersted in > > the genetic testing they do or snips  do you feel that > this is helpful > > if one is undergoing the biomed already, i mean can it add to > any > > information. Also any ideas of the next planned tst in the > north? thanks > > tahira > > > > > > > > > > ________________________________ > > From: Sandy and Tim sandyandtim@ > > To: _Autism-Biomedical-Europe _ > (mailto:Autism-Biomedical-Europe ) > > Sent: Tue, 4 January, 2011 11:44:14 > > Subject: Re: Dr Amy yasko > > > >  > > Dear Dilshad, > > > > We also had success with Yasko and our son has recovered (though we did > other > > things also). It wasn't easy but for us it was worthwhile. Our son was > also an > > overmethylator. He had a need for b12 but not methylb12. > > Best wishes, Sandy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 Thanks Mandi, that's helpful. emily x > > > > > > hi sandy, can i ask you about the yasko > protocol i have been > > intersted in > > > the genetic testing they do or snips >  do you feel that > > this is helpful > > > if one is undergoing the biomed already, i > mean can it add to > > any > > > information. Also any ideas of the next > planned tst in the > > north? thanks > > > tahira > > > > > > > > > > > > > > > ________________________________ > > > From: Sandy and Tim sandyandtim@ > > > To: __Autism-Biomedical-Europe _ > (mailto:_Autism-Biomedical-Europe ) _ > > (mailto:_Autism-Biomedical-Europe _ > (mailto:Autism-Biomedical-Europe ) ) > > > Sent: Tue, 4 January, 2011 11:44:14 > > > Subject: Re: Dr Amy yasko > > > > > >  > > > Dear Dilshad, > > > > > > We also had success with Yasko and our son has recovered (though we > did > > other > > > things also). It wasn't easy but for us it was worthwhile. Our son > was > > also an > > > overmethylator. He had a need for b12 but not methylb12. > > > Best wishes, Sandy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Thanks for explaining Pam, I understand it better. The NHS testing we've had only looks at what genes are affected (deleted and duplicated). So doing the Yasko genetic tests would be useful for ds, something to consider in the near future if we are able to. emily x > > > > > > hi sandy, can i ask you about the yasko > protocol i have been > > intersted in > > > the genetic testing they do or snips >  do you feel that > > this is helpful > > > if one is undergoing the biomed already, i > mean can it add to > > any > > > information. Also any ideas of the next > planned tst in the > > north? thanks > > > tahira > > > > > > > > > > > > > > > ________________________________ > > > From: Sandy and Tim sandyandtim@ > > > To: _Autism-Biomedical-Europe _ > > (mailto:Autism-Biomedical-Europe ) > > > Sent: Tue, 4 January, 2011 11:44:14 > > > Subject: Re: Dr Amy yasko > > > > > >  > > > Dear Dilshad, > > > > > > We also had success with Yasko and our son has recovered (though we > did > > other > > > things also). It wasn't easy but for us it was worthwhile. Our son > was > > also an > > > overmethylator. He had a need for b12 but not methylb12. > > > Best wishes, Sandy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 hi pam, I was very interested in reading the post on yasko protocol. once you get results from the snips can you use the information to continue on with the DAN protocol ? I have just started in nov 2010 the biomed and feel that it may be too early to switch over to a new protocol since i am only at the methylation stage now. However since my son has seizures and i am wary that i do everything to further exarcerbate them then i need to know something more to fine tune. Do you think there is a right stage to do this at? thanks for your help. tahira To: autism-biomedical-europe Sent: Sat, 1 January, 2011 20:08:47Subject: RE: Dr Amy yasko Hi Dilshad Our experience of Yasko has been very good for our son. We found out through the Yasko SNP’s testing that he was an overmethylator which explained why the methyl B12 we had been injecting for the past 2 years did nothing except make him hyper. On switching to the hydroxy and cyano B12 he went straight into detox and started excreting metals and we have seen some nice gains. His gut has also finally improved a lot. Detox is quite hard going for him so we have to take it very slow. You can get Dr Amy to review your test results – this does cost more but we do think it is worth doing if possible. We do a CSA, MAP and UAA twice a year. When in detox we try to check the metal excretion on a UTM every 2-3 weeks and a UEE to keep an eye on minerals every 2 months. We also work with Dr Mullan who helps to guide us with the feedback we get from Dr Amy on the tests. The parent forum at www.ch3nutrigenomics.com is an excellent resource for learning about the protocol and for posting questions. The parents on there are very helpful and will guide you as much as you need. You can email me directly if you need more info. I hope this helps Pam To: Autism-Biomedical-Europe From: dilshad_s22@...Date: Wed, 29 Dec 2010 22:18:38 +0000Subject: Dr Amy yasko Dear AllPlease Share your experiences about Dr. Amy yasko. We are thinking of doing her protocol for our son. We would really appreciate your inputsThanks in advanceregardsDilshad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2011 Report Share Posted February 4, 2011 Tahira - I have replied to you on your personal email. Pam To: Autism-Biomedical-Europe From: tahirasufi@...Date: Thu, 3 Feb 2011 11:13:51 +0000Subject: Re: Dr Amy yasko hi pam, I was very interested in reading the post on yasko protocol. once you get results from the snips can you use the information to continue on with the DAN protocol ? I have just started in nov 2010 the biomed and feel that it may be too early to switch over to a new protocol since i am only at the methylation stage now. However since my son has seizures and i am wary that i do everything to further exarcerbate them then i need to know something more to fine tune. Do you think there is a right stage to do this at? thanks for your help. tahira To: autism-biomedical-europe Sent: Sat, 1 January, 2011 20:08:47Subject: RE: Dr Amy yasko Hi Dilshad Our experience of Yasko has been very good for our son. We found out through the Yasko SNP’s testing that he was an overmethylator which explained why the methyl B12 we had been injecting for the past 2 years did nothing except make him hyper. On switching to the hydroxy and cyano B12 he went straight into detox and started excreting metals and we have seen some nice gains. His gut has also finally improved a lot. Detox is quite hard going for him so we have to take it very slow. You can get Dr Amy to review your test results – this does cost more but we do think it is worth doing if possible. We do a CSA, MAP and UAA twice a year. When in detox we try to check the metal excretion on a UTM every 2-3 weeks and a UEE to keep an eye on minerals every 2 months. We also work with Dr Mullan who helps to guide us with the feedback we get from Dr Amy on the tests. The parent forum at www.ch3nutrigenomics.com is an excellent resource for learning about the protocol and for posting questions. The parents on there are very helpful and will guide you as much as you need. You can email me directly if you need more info. I hope this helps Pam To: Autism-Biomedical-Europe From: dilshad_s22@...Date: Wed, 29 Dec 2010 22:18:38 +0000Subject: Dr Amy yasko Dear AllPlease Share your experiences about Dr. Amy yasko. We are thinking of doing her protocol for our son. We would really appreciate your inputsThanks in advanceregardsDilshad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2011 Report Share Posted February 4, 2011 hi thanks pam for that i guess i need to get from the DAN protocol what i can, i am at the methylation prt now so will wait to see how it goes, my sons problems are complicated due to the seizures but looking into doing muscle testing for the supps he is on to see what suits and of course the yasko option is there to try when i feel things not going forward. do parents go out there for yasko or is it done otherwise. i have been told the DAN and yasko are mutually exclusive protocals but i know some aprents try bits of both? my son is unfortunately not nearly recovered so guess patience is needed. thanks for the help. tahira To: autism-biomedical-europe Sent: Fri, 4 February, 2011 18:53:32Subject: RE: Dr Amy yasko Tahira - I have replied to you on your personal email.Pam To: Autism-Biomedical-Europe From: tahirasufi@...Date: Thu, 3 Feb 2011 11:13:51 +0000Subject: Re: Dr Amy yasko hi pam, I was very interested in reading the post on yasko protocol. once you get results from the snips can you use the information to continue on with the DAN protocol ? I have just started in nov 2010 the biomed and feel that it may be too early to switch over to a new protocol since i am only at the methylation stage now. However since my son has seizures and i am wary that i do everything to further exarcerbate them then i need to know something more to fine tune. Do you think there is a right stage to do this at? thanks for your help. tahira To: autism-biomedical-europe Sent: Sat, 1 January, 2011 20:08:47Subject: RE: Dr Amy yasko Hi Dilshad Our experience of Yasko has been very good for our son. We found out through the Yasko SNP’s testing that he was an overmethylator which explained why the methyl B12 we had been injecting for the past 2 years did nothing except make him hyper. On switching to the hydroxy and cyano B12 he went straight into detox and started excreting metals and we have seen some nice gains. His gut has also finally improved a lot. Detox is quite hard going for him so we have to take it very slow. You can get Dr Amy to review your test results – this does cost more but we do think it is worth doing if possible. We do a CSA, MAP and UAA twice a year. When in detox we try to check the metal excretion on a UTM every 2-3 weeks and a UEE to keep an eye on minerals every 2 months. We also work with Dr Mullan who helps to guide us with the feedback we get from Dr Amy on the tests. The parent forum at www.ch3nutrigenomics.com is an excellent resource for learning about the protocol and for posting questions. The parents on there are very helpful and will guide you as much as you need. You can email me directly if you need more info. I hope this helps Pam To: Autism-Biomedical-Europe From: dilshad_s22@...Date: Wed, 29 Dec 2010 22:18:38 +0000Subject: Dr Amy yasko Dear AllPlease Share your experiences about Dr. Amy yasko. We are thinking of doing her protocol for our son. We would really appreciate your inputsThanks in advanceregardsDilshad Quote Link to comment Share on other sites More sharing options...
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