Re: MCcarthy - new TACA spokesperson upcoming TV appearances

[Guest guest]

I apologize if I got a little carried away with that,

it just sometimes get me about celebrities doing so

many things for autism that do not directly help us .

But yes even so the word is out there, the millions

and fnsraising only go to them even so they are

already privilige.

--- " A.V. " wrote:

> I am happy that Autism is staying in the media and

> that people are hearing about it. When I take my son

> places and he talks loud or flaps and others look

> on, I simply say (when I feel like it) 'he has

> autism' and what I have noticed is I immediately get

> reactions of 'my cousin has autism, or my ex wife

> son has it, etc'. Alot more people these days have

> heard about autism than 5 years ago when my son was

> first diagnosed and we were treated like he had the

> plague when were out places.

>

> What angers me are millionaires like Travolta

> who keep their autistic children hidden. His teenage

> son Jet has autism, however in interviews he nor his

> wife never mention his son, ever. He dotes on

> his daughter Ella Blue - her birthdays, movie

> appearances, red carpet appearances, etc but I guess

> due to being Scientologists Jet is either in a

> boarding institution or simply no longer exists. If

> you want to be angry at a millionaire, pick Travolta

> - I have.

>

>

>

>

>

> ---------------------------------

> Moody friends. Drama queens. Your life? Nope! -

> their life, your story.

> Play Sims Stories at Yahoo! Games.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

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[Guest guest]

I agree with 's post that I appreciate any celebrity being

willing to talk openly about their child with autism. While I am

disappointed by Travoltas if they know their child has autism and do

not admit it, I know they also believe their son's condition is a

result of exposure to household toxins (a specific incident with

carpet cleaner) causing a disease called Kawasaki Syndrome which

symptoms are similar to autism in many ways. I also know they are

getting treatment from a renowned autism specialist in Florida for

their son and he certainly does still " exist " to them. has

been very active in seeking healthy alternatives to household

cleaners and has not swept their experience or concerns under the

rug: http://www.checnet.org/prodres_myroof.asp.

I understand the stigma autism brings with it as we have experienced

this in many ways. I can understand avoiding a label - especially if

doctors have told the Travoltas his condition is something else. But

I also recognize the importance of raising awareness to minimize the

stigma. Sadly, with so many now affected, understanding and

acceptance is growing naturally since so many know people directly

who are on the spectrum. For me, it will always come down to what is

in the best interest of my child. I can only hope that is the

Travolta's priority as well. I can't imagine the frustration of

having so much money, private jets, and endless resources yet you

cannot help your son. It must torture them. Just proves that

celebrity does not give complete advantages over the sheer will and

determination of the regular guys like us. In fact, if I had to

choose, I'd rather have the latter. The Travolta's story helps me

realize this.

>

> > I am happy that Autism is staying in the media and

> > that people are hearing about it. When I take my son

> > places and he talks loud or flaps and others look

> > on, I simply say (when I feel like it) 'he has

> > autism' and what I have noticed is I immediately get

> > reactions of 'my cousin has autism, or my ex wife

> > son has it, etc'. Alot more people these days have

> > heard about autism than 5 years ago when my son was

> > first diagnosed and we were treated like he had the

> > plague when were out places.

> >

> > What angers me are millionaires like Travolta

> > who keep their autistic children hidden. His teenage

> > son Jet has autism, however in interviews he nor his

> > wife never mention his son, ever. He dotes on

> > his daughter Ella Blue - her birthdays, movie

> > appearances, red carpet appearances, etc but I guess

> > due to being Scientologists Jet is either in a

> > boarding institution or simply no longer exists. If

> > you want to be angry at a millionaire, pick Travolta

> > - I have.

> >

> >

> >

> >

> >

> > ---------------------------------

> > Moody friends. Drama queens. Your life? Nope! -

> > their life, your story.

> > Play Sims Stories at Yahoo! Games.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

>

_____________________________________________________________________

_______________

> Choose the right car based on your needs. Check out Yahoo! Autos

new Car Finder tool.

> http://autos.yahoo.com/carfinder/

>

[Guest guest]

I'm not sure if my link worked, so here is another. You may need to

cut and paste.

http://www.checnet.org/healthehouse/education/articles-detail.asp?

Main_ID=443

> >

> > > I am happy that Autism is staying in the media and

> > > that people are hearing about it. When I take my son

> > > places and he talks loud or flaps and others look

> > > on, I simply say (when I feel like it) 'he has

> > > autism' and what I have noticed is I immediately get

> > > reactions of 'my cousin has autism, or my ex wife

> > > son has it, etc'. Alot more people these days have

> > > heard about autism than 5 years ago when my son was

> > > first diagnosed and we were treated like he had the

> > > plague when were out places.

> > >

> > > What angers me are millionaires like Travolta

> > > who keep their autistic children hidden. His teenage

> > > son Jet has autism, however in interviews he nor his

> > > wife never mention his son, ever. He dotes on

> > > his daughter Ella Blue - her birthdays, movie

> > > appearances, red carpet appearances, etc but I guess

> > > due to being Scientologists Jet is either in a

> > > boarding institution or simply no longer exists. If

> > > you want to be angry at a millionaire, pick Travolta

> > > - I have.

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Moody friends. Drama queens. Your life? Nope! -

> > > their life, your story.

> > > Play Sims Stories at Yahoo! Games.

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> >

> >

> >

>

_____________________________________________________________________

> _______________

> > Choose the right car based on your needs. Check out Yahoo!

Autos

> new Car Finder tool.

> > http://autos.yahoo.com/carfinder/

> >

>

[Guest guest]

I agree 100% about Travolta. About a month ago he was featured on the

Sunday Houston Chronicle Parade section, and the family photograph features only

, his wife and daughter! It is such a tragedy that Travolta acts as his son

doesn't exist.

I have no respect for Travolta after seeing how they hide away Jet.

I am ignorant about Sciencetology- why would that influence Travolta to

pretend he does not have an autistic son?

Thanks,

aimee

What angers me are millionaires like Travolta who keep their autistic

children hidden. His teenage son Jet has autism, however in interviews he nor

his wife never mention his son, ever. He dotes on his daughter Ella Blue -

her birthdays, movie appearances, red carpet appearances, etc but I guess due to

being Scientologists Jet is either in a boarding institution or simply no longer

exists. If you want to be angry at a millionaire, pick Travolta - I have.

---------------------------------

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lay it on us.

[Guest guest]

Maybe they are trying to shield him from the media spotlight to

spare him harsh criticism from those who would judge him without

knowing or understanding anything about what he suffers from. Can't

really say I blame him for that. That would be a tough decision for

a parent - to either subject your child to public ridicule on a

massive scale or to be accused of forgetting him altogether. They

could probably do better at finding a balance, but who knows? The

papparazzi and tabloids are relentless these days.

Maybe scientology is playing a role - they don't really believe in

illnesses like autism from what I understand - they think everything

can be cured with vitamins and lifestyle choices. They definitely

don't believe in chemical imbalances and mental illnesses, which may

explain why they would avoid an autism dx and prefer to stick with

the Kawasaki syndrome, since autism is still commonly mistaken as a

mental illness. I'm just glad to know that regardless of their

religious beliefs, they are seeking treatment for their son. I don't

think making him a poster child for autism is a requirement for

celebrity, but it's a great choice some other celebrities have made.

>

> I agree 100% about Travolta. About a month ago he was

featured on the Sunday Houston Chronicle Parade section, and the

family photograph features only , his wife and daughter! It is

such a tragedy that Travolta acts as his son doesn't exist.

> I have no respect for Travolta after seeing how they hide away

Jet.

>

> I am ignorant about Sciencetology- why would that influence

Travolta to pretend he does not have an autistic son?

>

> Thanks,

> aimee

>

>

> What angers me are millionaires like Travolta who keep

their autistic children hidden. His teenage son Jet has autism,

however in interviews he nor his wife never mention his son,

ever. He dotes on his daughter Ella Blue - her birthdays, movie

appearances, red carpet appearances, etc but I guess due to being

Scientologists Jet is either in a boarding institution or simply no

longer exists. If you want to be angry at a millionaire, pick

Travolta - I have.

>

>

>

>

> ---------------------------------

> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s

user panel and lay it on us.

>

>

[Guest guest]

In my experience, the media and famous people has ever

done nothing but cause more

questioning, about why did I kept having babies, also,

sentenced to death by everyone to

never

have more children , because of the possibility,

comments like " I watched the show the other night with

children with autism ( you are crazy if you even

think about more kids " ,

Friends and family telling me :

The boy's remind me of little animals, or monkey's

people starring in many places, having

to explain

the usual old lady " and teacher's they are not

misbehaving they are autistic( cause in my

case when one throws a tantrum, the other 2 also do, )

, having to tell the therapist , I dont

want to give him aderall, having to explain he is not

Adhd he is autistic, Teach your kids

some manner's he eats like that cause he is autistic,

having to

explain everything every where I go. And this is the

worse one , oh man I got so mad when

they said this to me ... " you are carrying a very

heavey cross for the rest of your life..... I

cried when they told me that.

having comments " like you must be miserable, I watch

that show the other night, your life

must be a nightmare. Oh I am so educated, because I

watch that show, so freinds and

family think they can cure them now, autism means

having a spoiled child, another

comment, having to hear many times, " you are not

teaching them how to talk "

And and unlimited long list, that noone but me. the

kids and my husband had being aible

to deal with.

Not to include all the people opposing in to helping

us, and important people to want us

to donate money to their organizations.

I also do not admire them, just like noone thinks I

am mother teresa myself or perhaps

me and my daughter.

Why can celebrities go and adopt children in other

countries, instead of helping our

children here, so many little children are abused and

left here , why not to help them?

I can write many books, but I am little bit busy.

I am not envious of rich or famous people, but i know

for a fact that they are not helping

my family with getting the word out, I onces cross the

border and the officer ask the boy's

their place of birth, they couldn't answer and he got

mad " I said they are autistic and he

said what do you mean? artistic, I said autistic and

I ghad to explain him their condition,

and he told me to carry a doctor note, explaining

about their condition when I cross the

border nex time so that I can educate the rest of the

immigration department, by this time

the boy's were already crying in the car.

Our life is not miserable, I have found humor out of

many things, we love our children and

I will never dare to look at my children as a heavy

cross but more as a challenge to their

independence someday, and yes my boy's have the

stomach issues , steem. temper

tanrums and everything that come with the ilness, our

kids are not a little less autistic

than the rest of the parents in this forum.

I always get heat from expressing myself, , but I

think that is why this forums are positive.

Just like many children suffer of many other fatal

illness, and that goes to rich , famous,

middle class or poor.

Is call life, we all humans go trough many things.

I will never use pitty to make money, base in my

childrens disabilities

And I think Travolta is trying to help his son,

and also protecting him from the media.

I think that has a lot more sincere wish than Autism

speaks itself.

--- jackie chalons wrote:

> I apologize if I got a little carried away with

> that,

> it just sometimes get me about celebrities doing so

> many things for autism that do not directly help us

> .

> But yes even so the word is out there, the millions

> and fnsraising only go to them even so they are

> already privilige.

>

> --- " A.V. " wrote:

>

> > I am happy that Autism is staying in the media and

> > that people are hearing about it. When I take my

> son

> > places and he talks loud or flaps and others look

> > on, I simply say (when I feel like it) 'he has

> > autism' and what I have noticed is I immediately

> get

> > reactions of 'my cousin has autism, or my ex wife

> > son has it, etc'. Alot more people these days have

> > heard about autism than 5 years ago when my son

> was

> > first diagnosed and we were treated like he had

> the

> > plague when were out places.

> >

> > What angers me are millionaires like Travolta

> > who keep their autistic children hidden. His

> teenage

> > son Jet has autism, however in interviews he nor

> his

> > wife never mention his son, ever. He dotes

> on

> > his daughter Ella Blue - her birthdays, movie

> > appearances, red carpet appearances, etc but I

> guess

> > due to being Scientologists Jet is either in a

> > boarding institution or simply no longer exists.

> If

> > you want to be angry at a millionaire, pick

> Travolta

> > - I have.

> >

> >

> >

> >

> >

> > ---------------------------------

> > Moody friends. Drama queens. Your life? Nope! -

> > their life, your story.

> > Play Sims Stories at Yahoo! Games.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

>

________________________________________________________________________________\

____

> Choose the right car based on your needs. Check out

> Yahoo! Autos new Car Finder tool.

> http://autos.yahoo.com/carfinder/

>

________________________________________________________________________________\

____

Need a vacation? Get great deals

to amazing places on Yahoo! Travel.

http://travel.yahoo.com/

[Guest guest]

Does the phrase, " don't judge a book by it's cover " ring a bell with any of you

who are against Travolta?

Why does anyone get to tell the Travoltas how, when or where to 'display'

their son?

They may simply want their privacy where their son is concerned. Perhaps he

isn't capable of deciding whether or not he wants to be in the public eye so

they have made the choice for him - better to err on the side of caution, don't

you think? Or - what if their son is capable and has decided not to be

mentioned?

Just because their son isn't on the cover of a paper or magazine doesn't mean

they think he doesn't exist.

Just because they have money does not mean they have to live up to everyone

else's expectations. They have to live with themselves and the decisions they

make for their family, not for yours.

ps - i'm not a travolta fan. also don't believe in scientology. but if i was

rich and famous, i don't think my son would be accessible to the public. i

wouldn't think twice about spending scads of money on him for therapy and

wouldn't feel guilty about it either.

" Sacks, A " wrote:

I agree 100% about Travolta. About a month ago he was featured on

the Sunday Houston Chronicle Parade section, and the family photograph features

only , his wife and daughter! It is such a tragedy that Travolta acts as his

son doesn't exist.

I have no respect for Travolta after seeing how they hide away Jet.

I am ignorant about Sciencetology- why would that influence Travolta to pretend

he does not have an autistic son?

Thanks,

aimee

What angers me are millionaires like Travolta who keep their autistic

children hidden. His teenage son Jet has autism, however in interviews he nor

his wife never mention his son, ever. He dotes on his daughter Ella Blue -

her birthdays, movie appearances, red carpet appearances, etc but I guess due to

being Scientologists Jet is either in a boarding institution or simply no longer

exists. If you want to be angry at a millionaire, pick Travolta - I have.

---------------------------------

Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and

lay it on us.

[Guest guest]

It might also be for safety reasons. I'm sure as high profile as the

Travolta family is there would be a big risk of kidnapping. Their son may

be severe enough to easily go with a stranger. If there are no public

pictures, etc. he would be less of a target.

Tonya

From: Texas-Autism-Advocacy On Behalf Of Hill

Maybe they are trying to shield him from the media spotlight to

spare him harsh criticism from those who would judge him without

knowing or understanding anything about what he suffers from.