Re: Mental obsession > venting

[Guest guest]

I guess everyone deals with their pain differently, Yes I hurt everyday, knowing

that when I put my feet on the floor its going to hurt. I have just accepted it

and go on with my day, some days are better than others, I have been told that I

have a chronic form of Still's, not an acute form of Still's where some people

have one flare and it goes away.

Stress makes this dragon worse, this is just my thoughts and opinions, don't

want to offend anyone. But, you just can't obsess about it, I think if you  do

then there will be a day that you give up and let the dragon take over, I refuse

to let that happen.

I have a 18yr old son that keeps me going, I have to be here for him no

matter how I am feeling that day, he understands when I tell him I just can't do

it.

I guess what I am trying to say is everyone is different in how they view their

lives, deal with their pain, and just getting on with life.

As far as your days go, is there any skill that you have that might help someone

else that you could do and you are not pressured to get it done. I am a P.A, and

had helped people fill out patient assistant forms to get their meds free or at

a reduced cost. So, now I have offered those services to anybody who may need my

help. I can do it from home and do it when I feel like it. And it gives me

something to do, I also do research for my partners from my medical practice.

I know I have rambled on, I hope some part may have helped.

Take care, hope you can get things worked out,

R.

 

________________________________

To: Stillsdisease

Sent: Thursday, February 19, 2009 10:25:27 AM

Subject: Mental obsession > venting

Hi everyone,

I've been reading the posts for almost 2 months now and I'm amazed

and bewildered at how many people don't mention the pain as much as I

seem to. I'm starting to think that I'm just a whiner. My joint aches

have been daily now for close to a year and I didn't think it could

get any worse until this week. New symptom:sharp pain from wrist

joint up into hands. No relief in any position. Mostly at night when

I lay down. Is it that I haven't come to the reality yet that I'm

going to have to go through this on a daily basis? I still keep

hoping it will be gone or not so bad every day I wake up. My aching

used to come and go with the weather, it seemed, but now 24/7. I'm

totally obsessed from morning to morning with every pain and ache.

It's starting to really get to me. I can't focus on anything else.

I'm starting to miss bill payments. I can't remember the smallest

things. I'm getting so angry about it all lately. Everywhere I go, I

watch people and think, " I wonder if her knees hurt " , " does he wake

up and feel like I do " , " does she take care of all those kids while

in pain " , " does it hurt when she sits down " , " how does he go to work

everyday and take care of a household if he feels like me " ,....over

and over everywhere I go. I've forgotten what it's like to just open

my eyes in the morning, stretch, get out of bed, make a cup of

coffee, pet the cats and wonder what I'll do for the day. I so want

that back. Did the rest of you go through the same thing mentally?

How are you able to cope with every day through the pain and everyone

around you looks happy and healthy? I'm only 46 and I'm afraid of

what the next year will bring. How am I going to survive like this?

How do you people do it? I'm normally very mentally strong and

persistant until I get something accomplished. Now, I can't focus on

anything but this. It's drained me.

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[Guest guest]

Thank you for your words, . I know, I need to just quit being

so selfish. Do something for others, and mentally get a grip. You have

helped give me something to think about.

[Guest guest]

,

I hope it was of some help, sometimes my brain fog kicks in and I cannot express

my thoughts the way I want to. Hang in there, vent all you want believe me it

does you good.

I had some of the same trouble when I first got diagnosed, my Rheumy said all

you can do is take one day at a time. Eventually you will find your limits and

know how to deal with daily acitivites.

Take Care,

((((HUGS))))

R.

________________________________

To: Stillsdisease

Sent: Thursday, February 19, 2009 12:02:30 PM

Subject: Re: Mental obsession > venting

Thank you for your words, . I know, I need to just quit being

so selfish. Do something for others, and mentally get a grip. You have

helped give me something to think about.

[Guest guest]

That's what I needed to hear....you went through similar thoughts. You

sound like a very strong willed woman. Hugs back at ya. .

[Guest guest]

I don't know if is a strong will or stubborness. I am pretty hard headed.

You take care and take one day at a time!!

R.

________________________________

To: Stillsdisease

Sent: Thursday, February 19, 2009 12:15:14 PM

Subject: Re: Mental obsession > venting

That's what I needed to hear....you went through similar thoughts. You

sound like a very strong willed woman. Hugs back at ya. .

[Guest guest]

Mustachelvr

 First off this is the place to vent. So that is a good thing being I find it

better to vent here then to my family at times when it comes to stills. my wife

and step kids try to understand my illness way better then my own blood family

dose and in fact they do a better job of it most of the time and my wife is

almost better at it then even my self .Yes I am blessed with that and I know it

especially when I think back to what I believed I had before and there looking

out for my best interest because now I know that was a joke!

 As for pain I for one do not talk about it much at all and part of that is I

have over time gotten to a point were a cretin amount of pain I do not even

notice any more. Again my wife can tell if I am hurting just by my mood or way I

am acting or doing things or not doing things she is very good at it now days to

dang good if you ask me because I can not hide my pain from her any more for the

most part. See that is what I have been doing for a long time hiding it from

every one including my self. Now when it breaks threw there is no hiding it now

working threw it as it just flat out hurts and I can not do almost any thing but

the day in day out pain well I over the years found a way mentally to just shut

it off not the pain mind you but the acknowledging it . I can say it dose ware a

person down over time and this is my wife see's it in me and I refuse to. Yes I

refuse to! See it is a mental game for me if I do not talk about it and such

then it is

not there. Well it is and it dose effect me. yes my meds do help in it some

even thou there for other things like depression and muscles tremors but they

all also help with the daily pain I deal with and in fact that is why I was put

on anti depressants to start with it was for my fibo pain! now some day are so

much worse then others that the better days to me are good days but by the end

of the day the wife being gone all day at school or her internship can come home

and with in about 5 mints know what kind of day I have had with out me saying a

word . Funny how a loving observant person can do that. so yes some like me do

not talk about it but if we are honest we deal with it some ever day some most

days and some well just when there stills is acting up so thanks for not winning

but forcing me at lest to be honest with my self and then here for others to

know like you that there not complainers but normal or is it were both crazy and

not normal o

boy now a new set of ponderings but hey I like the thought of being crazy it

makes every one wonder what you may be up to or do next that could be a good

thing LOL

Hugs

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 To learn about Stills Disease  http://www.stillsdisease.org/stills_info

For conservitive minded people  http://www.americac2c.org " If  we ever forget

that we're one nation under God, then we will be a nation gone  under. " ~

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~Author Unknown

 

 

A nation can survive its fools and even the ambitious. But it cannot survive

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[Guest guest]

Is it ?

As Missy and Marty have said we try not to dwell on the pain as in the future of

tomorrows and the years ahead because it is simply too overwhelming. We just try

and get through the day and sometimes just the moments at hand. Medications help

tremendously and are almost a must with this disease for me over the years but

cannot and do not take away all the pain so a lot of mind control is learned as

Marty and Missy have said. I hope this helps in any small way. Welcome to the

group we hope you enjoy being with us.

Mental obsession > venting

Hi everyone,

I've been reading the posts for almost 2 months now and I'm amazed

and bewildered at how many people don't mention the pain as much as I

seem to.

____________________________________________________________

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[Guest guest]

One thing I've found that helps with the nagging stabbing shooting pain is

Lidocaine Infusions...which usually last about 3 weeks then need to be repeated.

They don't work for everyone and they aren't available in all areas, but my Pain

Clinic is great. - Jeff Mollitor

Sent via BlackBerry by AT & T

Re: Mental obsession > venting

Is it ?

As Missy and Marty have said we try not to dwell on the pain as in the future of

tomorrows and the years ahead because it is simply too overwhelming. We just try

and get through the day and sometimes just the moments at hand. Medications help

tremendously and are almost a must with this disease for me over the years but

cannot and do not take away all the pain so a lot of mind control is learned as

Marty and Missy have said. I hope this helps in any small way. Welcome to the

group we hope you enjoy being with us.

Mental obsession > venting

Hi everyone,

I've been reading the posts for almost 2 months now and I'm amazed

and bewildered at how many people don't mention the pain as much as I

seem to.

____________________________________________________________

Click now to find great remedies for hangovers!

http://thirdpartyoffers.netzero.net/TGL2241/fc/BLSrjpYX6cPmRE510IbGuniumI78gicAK\

jPP3DPGh2bp0kcPyYhSYaaCklq/

[Guest guest]

Everyone,

I only hope I can be as strong as all of you one day! I'm hoping for a break

through on that from reading every ones posts. You've all been uplifting.

I'll keep you in my thoughts.

**************Need a job? Find an employment agency near you.

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[Guest guest]

Marty,

I don't know what I'd do without your words of wisdom.

[Guest guest]

>

> One thing I've found that helps with the nagging stabbing shooting

pain is Lidocaine Infusions.../

>

>

> Jeff, I'm keeping notes on all the medication tips for my next Drs.

visit. Last one I mentioned Kenelog to her and she felt it was too

risky being that I'm so young. We'll see what she says about Lidocaine.

Interesting, it works on numbing tooth roots, why not other nerve

endings.......hmmmmmm.

>

>

[Guest guest]

Yep, sure does! It works real good too. During my last infusion, I was gaving

muscle spasms all over my body, and by the time the infusion was done, the

spasms were gone! The only bad part is the first infusion you receive little if

any results from..its the second and subsequent infusions that " numb " the

muscles and nerves. It is really fascinating because the body metabolizes the

Lidocaine very rapidly (within a few hours) but the effects of the lidocaine

last 3 weeks. For sure ask about it!

- Jeff Mollitor

Sent via BlackBerry by AT & T

Re: Mental obsession > venting

>

> One thing I've found that helps with the nagging stabbing shooting

pain is Lidocaine Infusions.../

>

>

> Jeff, I'm keeping notes on all the medication tips for my next Drs.

visit. Last one I mentioned Kenelog to her and she felt it was too

risky being that I'm so young. We'll see what she says about Lidocaine.

Interesting, it works on numbing tooth roots, why not other nerve

endings.......hmmmmmm.

>

>