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G-d bless you and Carole for 49 years together - how incredibly wonderful.

And you two sound just like newlyweds.

Congratulations and many more happy anniversaries to you both!

Carole from Hollywood FL

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

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Dear ln,

It is so good to see you posting, I was a little more than worried after

some of your other posts. You know, I've had folks tell me they think I'm

brave...and I just laugh. Brave??? I just do what I have to do to get by. Brave

is

not a word I've ever used to describe myself, but I guess getting to be 55

and still alive, well I suppose I was a bit brave just waking up each of these

very many days!

hit the head on the nail (so to speak - haha it's a pun with the other

thing - haha). Accepting a chronic disease is a daily challenge. Whenever I

felt sick in the past, I knew there were steps to get all better. Get some

exercise, get some sleep, lose some weight, let the cold run its course, and so

on. On a daily basis I still get those thoughts of , " when I get better,

Ill....... " and then I get really pissed off when I remember I have stills.

Remember we're always here for you!

Carole in Hollywood FL

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

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Well Wylinda, I always was a true " HeadBanger " (True heavy metal, not

the radio light-weight versions) in a sense and now it has progressed a step

or two further! Don't feel as if you're alone or that others are worse off

or better off.....we're all in the same damn boat whether were in 1st class

or washing dishes to pay for the trip!

By the way, If you smash your head hard enough you will (at least

temporarily) not care about most of your other pains, but I find that each

Dr. I've encountered STRONGLY opposes this practice!

Later, Kirk.

2008/6/7 Welynda :

>

>

>

--

Everything in life sucks except things that should!

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Damn it Kirk, now you tell me! I just went and am still going through a

severe flare and have felt like more than banging my head against a wall but

Carole has handcuffed me to my computer, lol! I spent all day yesterday

undergoing tests at the resort and I'm home because I told them I wasn't

staying regardless. Mainly because yesterday was Carole and I's 49th wedding

anniversary and I swore and be damned if I was going to spend it with them!

I did take her out to dinner. Take care guys. Have Doc appointments Mon,

Tues, Wed and Fri. Love Ya'll. Maybe I'll get something done?

" WE WILL WIN "

Love Ya'll!

Mom & Dad

Carole & Bob

" Never Fight Fair "

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make Tax Deductible Donations to the all

volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel Ave.

Panama City, FL 32404. Thanks!

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HAPPY ANNIVERSARY!!!!!

Diane..42

Re: Just Need to Post

Damn it Kirk, now you tell me! I just went and am still going through a

severe flare and have felt like more than banging my head against a wall but

Carole has handcuffed me to my computer, lol! I spent all day yesterday

undergoing tests at the resort and I'm home because I told them I wasn't

staying regardless. Mainly because yesterday was Carole and I's 49th wedding

anniversary and I swore and be damned if I was going to spend it with them!

I did take her out to dinner. Take care guys. Have Doc appointments Mon,

Tues, Wed and Fri. Love Ya'll. Maybe I'll get something done?

" WE WILL WIN "

Love Ya'll!

Mom & Dad

Carole & Bob

" Never Fight Fair "

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make Tax Deductible Donations to the all

volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel Ave.

Panama City, FL 32404. Thanks!

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Guess We all here know what you mean about the 'gragon " EVEN when it's just

sleeping you can fell it

BREATHING inside our paranoid bodies wondering when it'd decide to dosed us

with it's flames. Don't feel

guilty just enjoy what ever time you get to be better.

VIVI

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

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Bob and Carole

 how wonderfull and congats to you both 49 years wowo and your both still alive

and no one killed each other your ither both very very ill and to weak or in

love LOL again congrats

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

Re: Just Need to Post

Congratulations BOB & CAROLE!! 49 years....wow! And to think you never

managed to kill each other LOL! Glad you were able to spend your day on your

own terms Bob, that had to make it that much better!

Kirk.

2008/6/7 Bob Himes <oldgoat378knology (DOT) net>:

> Damn it Kirk, now you tell me! I just went and am still going through a

> severe flare and have felt like more than banging my head against a wall

> but

> Carole has handcuffed me to my computer, lol! I spent all day yesterday

> undergoing tests at the resort and I'm home because I told them I wasn't

> staying regardless. Mainly because yesterday was Carole and I's 49th

> wedding

> anniversary and I swore and be damned if I was going to spend it with them!

> I did take her out to dinner. Take care guys. Have Doc appointments Mon,

> Tues, Wed and Fri. Love Ya'll. Maybe I'll get something done?

>

>

>

> " WE WILL WIN "

> Love Ya'll!

> Mom & Dad

> Carole & Bob

> " Never Fight Fair "

> Panama City, FL 32404

> Please visit the International Stills Disease Foundation Inc. Web Site at

> www.stillsdisease. org . Please make Tax Deductible Donations to the all

> volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel

> Ave. Panama City, FL 32404. Thanks!

>

>

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Thanks Marty & :

We have had our ups and downs but

have always talked them out so when you get right down to it is is just two

people who have found the right partner and lots and lots of LOVE!

" WE WILL WIN "

Love Ya'll!

Mom & Dad

Carole & Bob

" Never Fight Fair "

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make Tax Deductible Donations to the all

volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel Ave.

Panama City, FL 32404. Thanks!

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We agree fully and that is what we each never had before but could never put a

finger on it . we call it the willingness to work on us not the me how i feel

what in it for me or it is what I want but the we ours and such but i bet you

two and many more out here know that hard part is when you try to make your self

believe it is there when it is not so only one works on it and the other cares

about me not us ! glad your both here by the way as I needed a new mom and dad .

so can the wife and I come and live at home again tell we get on our feet should

not take to long as we could move out when we have say a million or two saved up

LOL

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

Re: Just Need to Post

Thanks Marty & :

We have had our ups and downs but

have always talked them out so when you get right down to it is is just two

people who have found the right partner and lots and lots of LOVE!

" WE WILL WIN "

Love Ya'll!

Mom & Dad

Carole & Bob

" Never Fight Fair "

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease. org . Please make Tax Deductible Donations to the all

volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel Ave.

Panama City, FL 32404. Thanks!

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