Re: Question about Recovery

September 28, 2007

please look into Body Ecology Diet. One reason GFCF doesn't work for

everyone is that it still doesn't address fungal infections. Much of the GFCF

is not healthy. At first I found that my son was still limiting and addicted to

these new GFCF foods. He still wanted chx nuggets, baked goods etc....food

still was a nightmare. Like living with an addict and he was still very

autisitic. It wasn't until we learned of cultured foods etc...that he started

to get well and we started to turn this thing around.

Now my son eats kale, parsely, garlic, carrots, squash, cultured vegetables,

lots of variety. We dealt with this on two levels. We used ABA to teach us

how to do this dietary intervention but also as we got better foods in and the

junk out...his body changed and the battle was over. He began to want the good

foods. He drinks green drink and fermented coconut water before school. I

send dulse (ocean vegetable) and carrots to school. I can write him a note

that tells him what to eat and in what order and he does this at only 4.

Best to you.

oliverlulu wrote:

Hi There!

With all this talk about children that are recovered, I am wondering

if all of them have been on the special diets or if any of you have

had kids recover without the diet. I ask because I had my son on the

gfcf diet for close to a year and he did well on it, but we were

constantly fighting to keep his hands off of " forbidden " food. After

so many times of him getting something in his mouth he wasn't supposed

to have, we finally started letting him have regular food (except for

dairy) and he seemed to do ok with it behaviour-wise, but he is still

very far from being recovered, but still making progress. I have

thought about putting him back on the diet just because I don't want

to miss that piece of the puzzle if that is something that is the

common factor for recovered kids. I would appreciate any info you can

give me on this.

: )

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September 28, 2007

Wow! Thanks for sharing that. Well, I'm definately going to take a deeper

look

BEDiet, because my son still self limits on the GFCF--in fact for a year and

a half

all he would eat is pancakes!!! I'm talking b-fast, lunch, and dinner.

Re: Question about Recovery

please look into Body Ecology Diet. One reason GFCF doesn't work

for everyone is that it still doesn't address fungal infections. Much of the

GFCF is not healthy. At first I found that my son was still limiting and

addicted to these new GFCF foods.

.

September 28, 2007

Everyone,

Thanks for the information on Body Ecology Diet, I looked the website

as well. My 4-yr-old eats everything (fruit, vegetable, meat, cake) actually,

but has to be very small sized, because he still doesn't chew on food. Anyone

has the same situation? Maybe he sticks on babyfood too long till like 1 and

half y/o. The OT therapist in school's working on biting and chewing, mouth

moving with him everyday, hopefully he'll start to chew food.

Vivien

Chatmom wrote:

Wow! Thanks for sharing that. Well, I'm definately going to take a

deeper

look

BEDiet, because my son still self limits on the GFCF--in fact for a year and

a half

all he would eat is pancakes!!! I'm talking b-fast, lunch, and dinner.

Re: Question about Recovery

please look into Body Ecology Diet. One reason GFCF doesn't work

for everyone is that it still doesn't address fungal infections. Much of the

GFCF is not healthy. At first I found that my son was still limiting and

addicted to these new GFCF foods.

..

September 28, 2007

I believe the pancake comment. We lived it. It's not bad parenting, no ABA in

the world can turn this around. It's got to be a combined approach. You've got

to get the route case of what is going on to cause these terrible cravings.

Things are constantly getting better for parents. I know that I am lucky to

have more information than parents did 5 years ago. What I wish is that we can

share approaches and combine therapies to get our kids well.

Many diet folks are against ABA, and many ABA folks think it is hogwash.

We're not understanding Autism. We've got something wrong in the body

affecting brain development. There is a gut/brain connection. When we heal the

gut we heal the brain. Now in the meantime we've got a kid with atypical

development who NEEDS intense therapy to guide him in the right direction while

healing. And to get the right foods into these kids requires professional help.

If we'd work together we could generate more data. I'd personally like to see

clinics where the child is fed with a tube for a few days to detox and start

repairing the gut. This may happen in the future. These kids are sick and a

gluten free chicken nugget isn't going to do it.

Since we are all piecing info together and trying to figure out what works, I

suggest we keep hearing what Moms are saying whose children are getting better.

Let's not fight about recovery and wording. We are all in pain and all here to

try to get our children well.

McCarthy's story is just one story....but what can we learn from her

voice? Yeah I can get mad that she clearly has RESOURCES to help blah blah,

but what can I learn from this women. Rather than waste energy dreaming of my

being a celeb and getting the best treatments.......I choose to use my energy to

do what I can. Parents are saying their kids got ill after vaccines.

Parents are saying diet can work. Let's listen and stop arguing. Leave no

stone unturned. If you try diet and it doesn't work, find out why. Maybe the

GFCF wasn't done correctly, or maybe there are still foods bothering your kid.

Or maybe we don't understand what to look for to assess that the diet is

working. It's no different than a parent telling an ABA therapist that her kid

still keeps hitting and she's done all the right things. The therapist is

going to have to do a functional analysis to determine what's going on. But

with diet people take milk away for a few weeks

and then say it didn't work. IT IS MUCH MUCH more than this. Don't

follow the herd. Follow your gut, and find other parents finding answers.

Chatmom wrote:

Wow! Thanks for sharing that. Well, I'm definately going to take a

deeper

look

BEDiet, because my son still self limits on the GFCF--in fact for a year and

a half

all he would eat is pancakes!!! I'm talking b-fast, lunch, and dinner.

Re: Question about Recovery

please look into Body Ecology Diet. One reason GFCF doesn't work

for everyone is that it still doesn't address fungal infections. Much of the

GFCF is not healthy. At first I found that my son was still limiting and

addicted to these new GFCF foods.

..

September 28, 2007

>When my son was 3 I put him on the gfcf diet. Within a few weeks

his severe eczema on his face was gone. He started to feel things

like pain. Before the diet he would run into things or fall down

and appear to not be hurt. After the diet he certainly noticed if

he was injured. He also stopped having chronic ear infections. His

speech was slowly coming back and by the time he was 4 he was

talking in phrases and some sentences. I continued this diet

until he was 7 and at that time I tried SCD. He finally was

completely potty trained because the diahrrea stopped with this

diet. He was not constantly hungry and looking for food. He also

did not have a seizure for the entire time he was on the diet 1

year. He is on a modified SCD now and enzymes. He is very verbal

however he still has behaviors like aggression at times. I believe

the gfcf and scd helped him to regain his speech and be a part of

our world. He still has yeast and metals and I am looking into anti

yeast diets and antifungals. I would certainly try gfcfsf diet it

can't hurt your child and it may help.

> Hi There!

> With all this talk about children that are recovered, I am

wondering

> if all of them have been on the special diets or if any of you

have

> had kids recover without the diet. I ask because I had my son on

the

> gfcf diet for close to a year and he did well on it, but we were

> constantly fighting to keep his hands off of " forbidden " food.

After

> so many times of him getting something in his mouth he wasn't

supposed

> to have, we finally started letting him have regular food (except

for

> dairy) and he seemed to do ok with it behaviour-wise, but he is

still

> very far from being recovered, but still making progress. I have

> thought about putting him back on the diet just because I don't

want

> to miss that piece of the puzzle if that is something that is the

> common factor for recovered kids. I would appreciate any info you

can

> give me on this.

> : )

>

September 28, 2007

, you've worked so hard! Check out body ecology, this may be a final

healing place for your child. I think you will take all your hard work to the

next level of cleansing. You may really benefit from cultured foods.

My son too would run into a brick wall and not feel a thing. Many things

like this started to happen with diet. Tiny little things indicating that his

central nervous system was regulating. It takes time, and we have much work to

do.

Ruhe

michelle hurtado wrote: