Re: Ellen cares about you all!

[Guest guest]

Hi guys! Just wanted to let you know I'm still here and I still care

and love you all. I've had a bit of a rough patch but I seem to be in

a holding pattern at the moment. There are days I can't ask for more,

you know what I mean? Yes, I'm still working but I'm taking a lot of

drugs in order to do it. The Enbrel doesn't seem to be helping as yet

but I've only had three doses so far. I had to stop it for a week

since I've had another tooth extracted (thank you prednisone) so once

again I've had to up the prednisone and take more hydrocodone

(whoopie!)

I'm still smiling, though I think it's the drugs doing that for me and

as I said, I still love you all and miss you desperately! My fingers

are starting to hurt again so I'm going to stop here. I can't wait

for all this to resolve a bit so I can type without having to go back

and retype because my fingers don't like to move.

Take care and be well my darlings.

All my heart and soul,

Ellen

[Guest guest]

 I missed you Ellen happy to hear from you. Im on enbrel shot 4 tomorrow not so

much is going for me other then the fevers and heart palps are not as bad. The

rash has gotten worse. I ended in ER with fluid around my heart so its not doing

a great deal yet.I will keep you informed how its working for me too

Get better dear friend

Love Ann Fultz

[Guest guest]

Ellen

 nice to here from ya we missed ya

 about the tooth and  the prednisone. are ou saying it helped you lose the

tooth?

 I have never been on Enbrel  but was remacade . It only started to work for me

were i could tell it did almost two month into it. but had to stop it at three

months . it made the stills better but not the rest of me LOL just a thought I

know we all want it yesterday and not to wait but some times it may take longer

for on person then another

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

[Guest guest]

It's so good to hear from you Ellen. I've missed you. So sorry to hear you're

still in a flare. I hope you pull out of it soon. The Enbrel helped me for a

little while....but not enough to reduce my prednisone. I sure hope it works

for you. Take care of yourself and hope to see your smilin' self often

again...soon!

in tx

[Guest guest]

Thought something was up when we had not seen you around. We missed

you.

Hope you stay on the mend. I be doing fine since last we talked.

Supposed to go back to work part time for 2 weeks, starting Monday, to

see if I can cut it. Prednisone down to 40mg by then and the Imuran at

75mg. I have been working some in the garden and banging away at my

guitar. May have overdone it a little today. Anybody have any spoons

I can borrow?

hugs to you

Tom (Fuzzy)

>

> Hi guys! Just wanted to let you know I'm still here and I still care

> and love you all. I've had a bit of a rough patch but I seem to be

in

> a holding pattern at the moment.

> Take care and be well my darlings.

>

> All my heart and soul,

> Ellen

>

[Guest guest]

Ellen I love you and al your upbeat posts. You are a great person..Love Liz

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

[Guest guest]

Ann my dear:

I'm sorry to hear about your resort visit but at least it was just a

visit and not a " vacation " . I also wish I could tell you the Enbrel

is working for me but I'm supposedly not going to know that for a few

weeks yet.

I do have to get ready for work though. I'm going to make myself some

breakfast take my pain killers, and take some with me, smile through

the tears and make everyone think I'm the picture of health (LOL).

Don't you just LOVE drugs?

Feel better honey. Take care and be well.

Ellen

[Guest guest]

Marty, my love,

Yes, prednisone seems to be the catalist to my tooth loss. It doesn't

happen to everyone but this is my 7th tooth! Oddly enough the rest of

my bones seem to be fine. As a matter of fact my last scan showed a

20% increase in bone mass. The doctor was pleasantly surprised by

that. Honestly, I think it had to do with my going to the

chiropractor. He doesn't " crack " me, he stretches my back.

I have to get ready for work. Yes, I'm still working. If it weren't

for the " happy " pills I don't think I could keep working; they cover

up everything just enough that no one knows I'm in pain. Don't you

just love it!

So tell me, how's the family? Take care and be well darling.

All my love,

Ellen

[Guest guest]

Hi Libby!

Honey, I've been on prednisone for 13 years now. More like a roller

coaster, really, up and down on the dosage, even getting off of it

completely for a time a few years ago. Yes, it's actually possible.

And of course, I know, as I'm sure almost everyone else does that it's

not the best drug to be on due to the side effects but it seems to be

the most effective for a lot of people.

As for the Enbrel, it's biologic " medicine " . At least that's the way

it was explained to me. I'll be honest, I'm not quite clear as to

what that means but I'm not having a bad reaction to it so I'm going

to continue using it until we know it's not the right one for me or

the blood work comes back not showing improvement. I did try

methotrexate or MTX and had an extremely bad reaction to it. Sweats,

heart palpitations, fast breathing, shakes and some disorientation.

Not fun.

There are so many " new " things out that we, as a collective, can use

if not try but just as this dragon is different with all of us so are

the meds.

Now if you'll excuse me, we're having a nasty storm here so I'm going

to shut down the computer in a few minutes before the storm does it

again. All ready had one quick outage, and the dogs are now

surrounding me, I'd expect the next one will make the dogs try to

crawl inside my body.

By the way, it's a good day; I woke up this morning. Take care and be

well.

Ellen

[Guest guest]

Thank you Liz. I'm hoping to be back more often. Email me when you

have a chance.

Take care and be well.

Ellen

[Guest guest]

Ellen

 I was asking because i have had bad teeth for some time ( thanks dad) any hoot

after getting stills I have now lost all of my upper teeth but two. for a time

it was 3 to 4 every year, they would break crack things like that. I know some

was from a bad family tooth doc but most of it all happened about tow years

after i started on the roids . it stop 4 years after i stopped taking them . now

i  am like you the bones well there strong . I did ask the dentist about it and

he told me the only way to loose them is not to take care of them. well I have

not gone back to him as he showed me his ignorance saying that . heck i was only

10 when they pulled 11 teeth ( baby) and they found out i was missing 6 grown up

teeth. at 12 i had braces and for one reason only so later in life i could wear

choppers and that is why they fixed my bit . they said i would most likely wear

them by 25 well it happened at 48 so I did better then any one thought well that

is

but the one dentist ,

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

If you find yourself in a hole, the first thing to do is stop diggin'.

 

In the old days a man who saved money was a miser; nowadays he's a wonder. 

~Author Unknown

 

[Guest guest]

Thanks Ellen for that info. Im on Methotrexate for the last 9 or 10

weeks and so far so good. No real bad side effects as yet, just a bit

of nausea and my hair is going real dry but hey, I can handle that. I

am actually feeling a lot better today, and am hoping that it is

starting to kick in and will be the drug to work for me (My dose went

up last night by 5mg, now on 25mg). I want to come off the prendisone

in July (I'm on 20mg daily), so here's hoping. I know it has to be

slowly taken down, so it could be a month or more I suppose. Anyway,

I'm feeling real positive today! I'm gonna get better and come off

all my drugs - YEA! Hope your storm passed by without too much

damage - I HATE storms, I turn everything off in my house when we

have one - computer, tv's, no phones, etc etc!! Well, I hope Enbrel

helps you and is the drug to put you in remission. Good luck and stay

well. Libby :-)

>

> Hi Libby!

>

> Honey, I've been on prednisone for 13 years now. More like a

roller

> coaster, really, up and down on the dosage, even getting off of it

> completely for a time a few years ago. >