Re: The diagnosis is secondary Parathryoid, no PA

[Guest guest]

Pam, is the number you are quoting for kidney your eGFR? If it is that is great

news! Another 10 points and you are looking at the stage2 cutoff point!

Also sounds like you found a doc that may know what he's doing! Congrats!!

- 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank &

testicle pain. I have decided against an adrenalectomy at this time since

Meds. are working so well. Current BP(last week ave): 123/71

Other Issues/Opportunities: COPD w/ft Oxygen, OSA w Bi-Pap settings 13/19, DM2.

and PTSD

Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG,

81mg asprin, Metformin 2000MG and Spironolactone 75 MG.

>

> After having two tests which showed my PTH high, Vitamin D low, urine calcium

low, serum calicum, low end of normal and LOTS of other symptoms which go with

parathryoid issues, I saw a surgeon at the suggestion of three of my doctors.

>

> This is the only Endrocine surgeon in the Greenville SC and he is wonderful

Last week he requested another set of labs for aldosterone and renin.

>

> First thing he mentioned was that my aldosterone, granted a bit high and my

renin were within normal limits. My kidney function was holding at a bit over

50 percent which is a great improvement from last week this time when it was

slightly less than 25 percent and my nephrologist was considering sending me to

dialysis.

>

> He said that I did NOT have primary aldosterism and perhaps we consider

cutting back on the spiro unless it really is necessary to keep my blood

pressure under control.

>

> Now to the parathryoid. I have secondary parathryoid issues which is to be

kept an eye on since I have hasimoto's thryoid. He also recommended that

instead of taking the 50K units of Vitamin D and the vitamin D cream each week,

to change me over to Vitamin D3 with high doses initially to see if it helps my

issues.

>

> I am to be retested at the end of the month to see if there are any changes a

let him know if this change makes my problems/issues better, worse or no change.

>

> Pam

> 56 yo old female

>

[Guest guest]

Did he mention that most of these can be caused by PA. See our files on PTH like issues caused by PA. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Pam, is the number you are quoting for kidney your eGFR? If it is that is great news! Another 10 points and you are looking at the stage2 cutoff point!

Also sounds like you found a doc that may know what he's doing! Congrats!!

- 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank & testicle pain. I have decided against an adrenalectomy at this time since Meds. are working so well. Current BP(last week ave): 123/71

Other Issues/Opportunities: COPD w/ft Oxygen, OSA w Bi-Pap settings 13/19, DM2. and PTSD

Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 75 MG.

>

> After having two tests which showed my PTH high, Vitamin D low, urine calcium low, serum calicum, low end of normal and LOTS of other symptoms which go with parathryoid issues, I saw a surgeon at the suggestion of three of my doctors.

>

> This is the only Endrocine surgeon in the Greenville SC and he is wonderful Last week he requested another set of labs for aldosterone and renin.

>

> First thing he mentioned was that my aldosterone, granted a bit high and my renin were within normal limits. My kidney function was holding at a bit over 50 percent which is a great improvement from last week this time when it was slightly less than 25 percent and my nephrologist was considering sending me to dialysis.

>

> He said that I did NOT have primary aldosterism and perhaps we consider cutting back on the spiro unless it really is necessary to keep my blood pressure under control.

>

> Now to the parathryoid. I have secondary parathryoid issues which is to be kept an eye on since I have hasimoto's thryoid. He also recommended that instead of taking the 50K units of Vitamin D and the vitamin D cream each week, to change me over to Vitamin D3 with high doses initially to see if it helps my issues.

>

> I am to be retested at the end of the month to see if there are any changes a let him know if this change makes my problems/issues better, worse or no change.

>

> Pam

> 56 yo old female

>

[Guest guest]

yes it is for the GFR.  This doctor is good and personable.   Actually told me there is not one doctor within 100 miles of us that performs AVS.  So I am grateful he did not have to do onePam

 

Pam, is the number you are quoting for kidney your eGFR? If it is that is great news! Another 10 points and you are looking at the stage2 cutoff point!

Also sounds like you found a doc that may know what he's doing! Congrats!!

- 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank & testicle pain. I have decided against an adrenalectomy at this time since Meds. are working so well. Current BP(last week ave): 123/71

Other Issues/Opportunities: COPD w/ft Oxygen, OSA w Bi-Pap settings 13/19, DM2. and PTSD

Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG, 81mg asprin, Metformin 2000MG and Spironolactone 75 MG.

>

> After having two tests which showed my PTH high, Vitamin D low, urine calcium low, serum calicum, low end of normal and LOTS of other symptoms which go with parathryoid issues, I saw a surgeon at the suggestion of three of my doctors.

>

> This is the only Endrocine surgeon in the Greenville SC and he is wonderful Last week he requested another set of labs for aldosterone and renin.

>

> First thing he mentioned was that my aldosterone, granted a bit high and my renin were within normal limits. My kidney function was holding at a bit over 50 percent which is a great improvement from last week this time when it was slightly less than 25 percent and my nephrologist was considering sending me to dialysis.

>

> He said that I did NOT have primary aldosterism and perhaps we consider cutting back on the spiro unless it really is necessary to keep my blood pressure under control.

>

> Now to the parathryoid. I have secondary parathryoid issues which is to be kept an eye on since I have hasimoto's thryoid. He also recommended that instead of taking the 50K units of Vitamin D and the vitamin D cream each week, to change me over to Vitamin D3 with high doses initially to see if it helps my issues.

>

> I am to be retested at the end of the month to see if there are any changes a let him know if this change makes my problems/issues better, worse or no change.

>

> Pam

> 56 yo old female

>

[Guest guest]

Hmm? Why was your Aldo helping so much. Need exact details on whAt u were taking and eating when renin and Aldo were tested? ESP the 24 BR urine for Na and K when the renin and Aldo were done. Without that one cannot interpret renin and Aldo. Perhaps your dr can Devine that but I cannot Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

After having two tests which showed my PTH high, Vitamin D low, urine calcium low, serum calicum, low end of normal and LOTS of other symptoms which go with parathryoid issues, I saw a surgeon at the suggestion of three of my doctors.

This is the only Endrocine surgeon in the Greenville SC and he is wonderful Last week he requested another set of labs for aldosterone and renin.

First thing he mentioned was that my aldosterone, granted a bit high and my renin were within normal limits. My kidney function was holding at a bit over 50 percent which is a great improvement from last week this time when it was slightly less than 25 percent and my nephrologist was considering sending me to dialysis.

He said that I did NOT have primary aldosterism and perhaps we consider cutting back on the spiro unless it really is necessary to keep my blood pressure under control.

Now to the parathryoid. I have secondary parathryoid issues which is to be kept an eye on since I have hasimoto's thryoid. He also recommended that instead of taking the 50K units of Vitamin D and the vitamin D cream each week, to change me over to Vitamin D3 with high doses initially to see if it helps my issues.

I am to be retested at the end of the month to see if there are any changes a let him know if this change makes my problems/issues better, worse or no change.

Pam

56 yo old female

[Guest guest]

Don't forget surgeons are trained to cut not DX. BUT yours may de different. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

After having two tests which showed my PTH high, Vitamin D low, urine calcium low, serum calicum, low end of normal and LOTS of other symptoms which go with parathryoid issues, I saw a surgeon at the suggestion of three of my doctors.

This is the only Endrocine surgeon in the Greenville SC and he is wonderful Last week he requested another set of labs for aldosterone and renin.

First thing he mentioned was that my aldosterone, granted a bit high and my renin were within normal limits. My kidney function was holding at a bit over 50 percent which is a great improvement from last week this time when it was slightly less than 25 percent and my nephrologist was considering sending me to dialysis.

He said that I did NOT have primary aldosterism and perhaps we consider cutting back on the spiro unless it really is necessary to keep my blood pressure under control.

Now to the parathryoid. I have secondary parathryoid issues which is to be kept an eye on since I have hasimoto's thryoid. He also recommended that instead of taking the 50K units of Vitamin D and the vitamin D cream each week, to change me over to Vitamin D3 with high doses initially to see if it helps my issues.

I am to be retested at the end of the month to see if there are any changes a let him know if this change makes my problems/issues better, worse or no change.

Pam

56 yo old female

[Guest guest]

I have sent them to you so many times.  I am the one you referred to as a cybercondriac.  Can not find the article on PTH which you refer to in the filesPam

 

Hmm? Why was your Aldo helping so much. Need exact details on whAt u were taking and eating when renin and Aldo were tested?  ESP the 24 BR urine for Na and K when the renin and Aldo were done. Without that one cannot interpret renin and Aldo. Perhaps your dr can Devine that but I cannot     

Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

 

After having two tests which showed my PTH high, Vitamin D low, urine calcium low, serum calicum, low end of normal and LOTS of other symptoms which go with parathryoid issues, I saw a surgeon at the suggestion of three of my doctors.

This is the only Endrocine surgeon in the Greenville SC and he is wonderful Last week he requested another set of labs for aldosterone and renin.

First thing he mentioned was that my aldosterone, granted a bit high and my renin were within normal limits. My kidney function was holding at a bit over 50 percent which is a great improvement from last week this time when it was slightly less than 25 percent and my nephrologist was considering sending me to dialysis.

He said that I did NOT have primary aldosterism and perhaps we consider cutting back on the spiro unless it really is necessary to keep my blood pressure under control.

Now to the parathryoid. I have secondary parathryoid issues which is to be kept an eye on since I have hasimoto's thryoid. He also recommended that instead of taking the 50K units of Vitamin D and the vitamin D cream each week, to change me over to Vitamin D3 with high doses initially to see if it helps my issues.

I am to be retested at the end of the month to see if there are any changes a let him know if this change makes my problems/issues better, worse or no change.

Pam

56 yo old female

[Guest guest]

On any meds when they checked the aldosterone?

After having two tests which showed my PTH high, Vitamin D low, urine calcium low, serum calicum, low end of normal and LOTS of other symptoms which go with parathryoid issues, I saw a surgeon at the suggestion of three of my doctors.This is the only Endrocine surgeon in the Greenville SC and he is wonderful Last week he requested another set of labs for aldosterone and renin. First thing he mentioned was that my aldosterone, granted a bit high and my renin were within normal limits. My kidney function was holding at a bit over 50 percent which is a great improvement from last week this time when it was slightly less than 25 percent and my nephrologist was considering sending me to dialysis.He said that I did NOT have primary aldosterism and perhaps we consider cutting back on the spiro unless it really is necessary to keep my blood pressure under control.Now to the parathryoid. I have secondary parathryoid issues

which is to be kept an eye on since I have hasimoto's thryoid. He also recommended that instead of taking the 50K units of Vitamin D and the vitamin D cream each week, to change me over to Vitamin D3 with high doses initially to see if it helps my issues.I am to be retested at the end of the month to see if there are any changes a let him know if this change makes my problems/issues better, worse or no change.Pam56 yo old female

[Guest guest]

 

sprio 100 mg, liptior, armour thryoid, levorxthryoxine. 

[Guest guest]

Of course aldo was low when tested on spiro - they did the same thing to me and I just went ahead and did it 'cause he was getting mad that I questioned him - so like I do when my wife tells me I should have "turned there" when I actually know where I am going I go back and "turn there" and let her figure it out...eventually

sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

[Guest guest]

so how long are you supposed to be off befor you are tested.  I take mine at 8 in the evening and my labs were done at 10 am.  Most of the time when it is tested I comes back between 30 and 60 which a range of 12-20.  this was a different lab with a completely different range

Pam

 

Of course aldo was low when tested on spiro - they did the same thing to me and I just went ahead and did it 'cause he was getting mad that I questioned him  - so like I do when my wife tells me I should have " turned there " when I actually know where I am going I go back and " turn there " and let her figure it out...eventually 

  sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

 

[Guest guest]

Then it is impossible to interpret your numbers unless you team has normals on spiro.Can you send the numbers again? Along with the 24 hr urine done on the same day/Thanks CE Grim MD sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

[Guest guest]

Then why are you on spiro?CE Grim MD sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

[Guest guest]

A low aldo on spiro must mean you must be eating a ton of Na or have Liddle's syndrome or are eating licorice or the lab was wrong.CE Grim MD Of course aldo was low when tested on spiro - they did the same thing to me and I just went ahead and did it 'cause he was getting mad that I questioned him - so like I do when my wife tells me I should have "turned there" when I actually know where I am going I go back and "turn there" and let her figure it out...eventually sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

[Guest guest]

What comes back 30 and 60 and range is 12-20?Spiro takes weeks to get out of your system.What was the renin? CE Grim MD so how long are you supposed to be off befor you are tested. I take mine at 8 in the evening and my labs were done at 10 am. Most of the time when it is tested I comes back between 30 and 60 which a range of 12-20. this was a different lab with a completely different range Pam Of course aldo was low when tested on spiro - they did the same thing to me and I just went ahead and did it 'cause he was getting mad that I questioned him - so like I do when my wife tells me I should have "turned there" when I actually know where I am going I go back and "turn there" and let her figure it out...eventually sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

[Guest guest]

Then it is impossible to interpret your numbers unless you team has normals on spiro.Can you send the numbers again? Along with the 24 hr urine done on the same day/Thanks CE Grim MD sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

[Guest guest]

Because with the labs I showed you on here last year, you suggested spiro ..

 

Then why are you on spiro?CE Grim MD

 

  sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

 

[Guest guest]

And DASHing.And did spiro help anything?If so then you would appear to have PA.Can you dig those numbers up again?Or are they in Pam's story?CE Grim MD' Because with the labs I showed you on here last year, you suggested spiro .. Then why are you on spiro?CE Grim MD sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

[Guest guest]

I dont eat these days so there is little to no dashing. 

All the sprio did was to help heal my kidney from the triamenterze HCTZ and lowered my blood presure, sometimes so long I get dizzy and sick

I just sent you the spreadsheet with all my labs for the last 2 yearsPam

 

And DASHing.

And did spiro help anything?

If so then you would appear to have PA.

Can you dig those numbers up again?

Or are they in Pam's story?

CE Grim MD

'

 

Because with the labs I showed you on here last year, you suggested spiro ..

 

Then why are you on spiro?

CE Grim MD

 

  sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

 

[Guest guest]

Hmm. I would not consider that "AS ALL" it did. You may be on too much Spiro how much are u on?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I dont eat these days so there is little to no dashing.

All the sprio did was to help heal my kidney from the triamenterze HCTZ and lowered my blood presure, sometimes so long I get dizzy and sick

I just sent you the spreadsheet with all my labs for the last 2 yearsPam

And DASHing.

And did spiro help anything?

If so then you would appear to have PA.

Can you dig those numbers up again?

Or are they in Pam's story?

CE Grim MD

'

Because with the labs I showed you on here last year, you suggested spiro ..

Then why are you on spiro?

CE Grim MD

sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

[Guest guest]

100 mg it was on that sheet I sent youPam

 

Hmm.  I would not consider that " AS ALL " it did. You may be on too much Spiro how much are u on?Tiped sad Send form miiPhone ;-)May your pressure be low!

CE Grim MDSpecializing in DifficultHypertension

 

I dont eat these days so there is little to no dashing. 

All the sprio did was to help heal my kidney from the triamenterze HCTZ and lowered my blood presure, sometimes so long I get dizzy and sick

I just sent you the spreadsheet with all my labs for the last 2 yearsPam

 

And DASHing.

And did spiro help anything?

If so then you would appear to have PA.

Can you dig those numbers up again?

Or are they in Pam's story?

CE Grim MD

'

 

Because with the labs I showed you on here last year, you suggested spiro ..

 

Then why are you on spiro?

CE Grim MD

 

  sprio 100 mg, liptior, armour thryoid, levorxthryoxine.

 

[Guest guest]

Recommend you work with team to taper it down esp if BP low and you are DASHing.If you look at Bravo's article there is one pt who lowered spiro from 600/d to 12.5 by going on very low salt intake.I do not have time to go thru a lot of lab work unless I have been hired as a consultant. I will try to look at it over the next few days or weeks tho.CE Grim MD 100 mg it was on that sheet I sent youPam Hmm. I would not consider that "AS ALL" it did. You may be on too much Spiro how much are u on?Tiped sad Send form miiPhone ;-)May your pressure be low! CE Grim MDSpecializing in DifficultHypertension I dont eat these days so there is little to no dashing. All the sprio did was to help heal my kidney from the triamenterze HCTZ and lowered my blood presure, sometimes so long I get dizzy and sick I just sent you the spreadsheet with all my labs for the last 2 yearsPam And DASHing. And did spiro help anything? If so then you would appear to have PA. Can you dig those numbers up again? Or are they in Pam's story? CE Grim MD ' Because with the labs I showed you on here last year, you suggested spiro .. Then why are you on spiro? CE Grim MD sprio 100 mg, liptior, armour thryoid, levorxthryoxine.