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Hi everyone! I'm bev jackson and I live in Louisiana. I was diagnosed with

Conn's Syndrome 7 years ago(June 2004)at the age of 50. I had been having

uncontrollable hypertension for a number of years, but I figured it was

uncontrollable because of the dysfunction with family members. Plus I had

teenagers... LOL! The drs. started worrying about my heart and in '98 I had my

first angiogram. Everything was fine, the dr. just recommended I lose weight. I

had a second angiogram done in '04 and that is when an observant nurse realized

my K was 2.8. They gave me a couple of K tablets and did the angiogram, with the

same results. Healthy heart. They wouldn't let me go home though and I stayed in

the hospital for 4 days while they ran tests, calling in a nephrologist. My K

dropped to 2.5 and I was forced to wear a holter. One night it malfunctioned and

the nurses come in bringing a crash cart... I was fine, until they woke me up!!

LOL!!

All in all, I've done well on Aldactone twice daily. If I sweat too much, (who

doesn't, living in Louisiana?), or have excessive urination or diarrhea. Then

I'm about as useless as can be. It takes me a couple of days to " catch " up. I

find that drinking Gatorade or foods with high potassium content help. But I'm

not sure that this is the healthy way to do this.

I am being seen by a wonderful endocrinologist now that has come to town just

since I was diagnosed. Still, I don't know enough about Conn's to truly

understand it.

When first diagnosed an MRI was done and they found no tumors so I was told it

was hyperplasia(I think that's the correct word). Within the past year I had an

abdominal ct scan that revealed a small nodule on my left adrenal. Another ct

scan in March showed it had not grown. So we're just watching it now. I'll have

another one done in the very near future.

Right now my greatest problem I am having healthwise is my nerves are absolutely

shot and I shake and tremble a lot. I've gone back on antidepressants and am

taking up to 3 .25 mg of Xanax daily. If I don't take the Xanax, I am a mess. I

don't know if any of you can shed any light on this or not... do any of you have

similar problems? I've not shown any signs of going thru menopause yet, so I am

thinking it could be that. It could just be life in general... it's been a

hectic 2.5 years(I'd rather not get into the gory details). Or could it be the

nodule that has shown up that is affecting my adrenal gland? I do have an appt.

in the near future with all 3 of my drs. My p.c., gyn. and endo.

Thanks for taking the time to listen and also for any comments you can throw my

way...

bevAnnie