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Re: Hi everyone

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Hi and welcome back! I remember you since I am from Iowa, but now

live in Missouri. It sounds like some positive things are happening

in your life. Good luck with your BFL challenge.

Andy

>

> Hi everyone,

>

> I am new to this list, again. I have been on this list before and

done body for life before but never stuck with it. I have since quit

my job and started college, gaining around 20lbs in the process.

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  • 6 years later...

Welcome ...you are going to find plenty of information and

friendship here. I am sorry you are sick. I have had this since 1972...it went

into

remission 3 times...for 9 years each...when I was sick tho, it lasted about 8

or 9 months.

Now I have a whole list of rheumatological stuff, not exactly stills, but I

am here cause I try to cheer everyone and when I have a bad day I know I can

vent.

OK I am looking for your posts....hum...don't remember where you live, I

will read it again.

I lived for 37 years in Bayside Queens( Long Island.. New York City) Now I

am 6 or 7 miles outside of Philadelphia in stown New Jersey...been here

for 15 years...now you know how old I am.. Had my kids late, they are 13 and

8.

Welcome again ...and get well!

Liz

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Hey ,

Welcome to the group, you will find friendship, compassion, a great source of

information and that all of us are great listener's.. So if you need to vent,

cry , whatever, we are here for you. I have not been a member long myself, but

these guys are a great group of people. Again welcome to the group.

Take care,

R

Arkansas

________________________________

To: Stillsdisease

Sent: Sunday, February 1, 2009 3:32:51 AM

Subject: Hi everyone

Hi,

My name is and I am new :) I am still waiting for the yes or

no as to whether I have Still's, but my rheumy seems to 'think so'.

A little background on me- I'm married to the greatest man on the

planet, he has really been there for me since I became sick. We've

been together for 10 years, the last almost 3 years of it with me

being sick. We have 4 kids combined, my two are 19 and 25 and his two

are 13 and 18. We see them as ours, not his and mine, I don't know

why I wrote it that way, lol. We have 5 grandkids and at the moment

ALL 5 ARE STAYING WITH US!!! My son has 3 kids and they are in

between houses at the moment (long story there) and my daughter who is

19 has 2 kids and lives with us. Hubby and I are raising one of our

granddaugters who will be 3 in a few days. She is developmentally

delayed, special needs and the absolute joy in my heart. She is my

pain pill for sure. I've never met a kinder soul in my life :)

I worked as a medical assistant until I became really sick in 2006.

It's been a long hard road with all kinds of misdiagnoses. I was

finally told to see a rheumy in 2007 after my doc finally did some

investigative bloodwork. Until then he told me I had chronic daily

headache with fibromyalgia and I believed him because he was a

doctor... I am no longer that naive. I have the best rheumy now and a

great neuro too. So far I am diagnosed with RA, small fiber

neuropathy, chronic pain syndrome, depression (duh, lol) and possible

dermatomyositis.

The possible Still's came into play because I told my rheumy of the

rashes that I get when I get fevers. I had hubby take a pic of it and

showed it to him just out of curiosity to see if he had any thoughts

on this. I never connected it with my autoimmune issues, and was

never asked about rashes like this. Rheumy took a look and said,

" Still's " . I'm embarrassed to say I'd never heard of Still's disease.

I should sign off now as I could probably blabber on foreverrrrr and I

don't want to bore anyone to sleep. Unless you are dealing with some

insomnia, let me know and i can keep on writing-LOL!

I look forward to getting to know some great people :)

Take care and be well,

C.

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Hey C.

Welcome! As we all generally say, sorry for the reason you are here, but glad

you found us....I have been battling The Dragon for four years....have been

involved with this group for nearly as long...no need to be embarrassed because

you had never heard of Stills....i had not either until my diagnosis...it is a

very rare autoimmune disease....I too work (when possible) in the medical field

as a Physical Therapist Assistant....my first wife was a medical

assistant....most of the folks in the medical field have never heard of Stills

(at least the ones i deal with)....you will find here a group of folks that are

just the best on the planet...for me, they are closer than my own family....you

will find compassion, understanding, acceptance and love....you can ask

questions, vent, cry, laugh.....just be you....i hope you continue to stay with

us....i am so happy you have a great support structure at home...that will make

a tremendous difference as you

continue to " Fight the Dragon " .........like Charlie s once wrote: " It's

a long road and a little wheel; it takes alot of turns to get there.... "

Take Care and God Bless!

Larry B. from NC

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Welcome C,

Good thing you signed your initial because we're getting a few 's on the

group. My nickname here is and my diagnoses goes back 31 years but I am in

remission today. There always is hope for remission free from drugs. We look

forward to getting to know you and being friends.

Good day.

____________________________________________________________

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