Re: What to do? Long answer

October 4, 2007

honey:

Wait, I have to wipe my eyes, give me a moment please.

OK, Yes, I really was crying because I remember it so well, the

limbo, the 'I'm getting better but OH NO, I'm not getting better',

the 'is anything going to work for me', or even the 'why do I fall

into the cracks?' Any of this sound familiar?

Not everyone responds in the same way to the same drug. You know

that. Especially us! So, you've had to up your prednisone, and yes,

it sucks, and yes, you hate it, and yes you're worried...believe it

or not you'd be much worse off it weren't for prednisone. My first

few years were spent playing with pred until I found a comfortable

dose that worked for me. I'd stay there for a little while and would

work myself off of it until I needed it again.

During that time I was diagnosed with secondary fibromyalgia (not

unusual at all). I also found out I'm not a candidate for the

injectable drugs (that was disturbing) and all I could do was

prednisone, ibuprofen 800 and vicodin(hydrocodone).

My biggest problem (still is to this day) is learning how to relax,

how to stop, how to REST! You're wanting to keep your life as it was

is fantastic but at the moment, not an easy task. Sit down, let

someone else do something for you. One day without doing laundry,

dishes, cleaning, ironing, cooking, maintainance won't kill you!

I'll be darned, let someone else take over for just one day!

Now, deep breath. Good job! Speaking of job, I understand you not

wanting to seem like you're taking advantage of them, not wanting to

lose anything over this illness but if it's truly the wonderful group

of people you say they are, then you're job will still be there when

you're ready to go back. Now, tell me, in the scheme of things, how

important is your job versus your good health? Something I know

you've thought about but haven't quite answered as yet, right? I

don't need to know the answer but you do.

Take care and be well.

Ellen

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