Re: Lyme Question for Val

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Hi Dr. Grim;Am on zero meds/zero OTC . . . just DASHing. Although in the past 2 weeks have not been able to eat well.CBC and CMP from 7/19/2011 have come in. K is at 4.0 (3.5-5.3 ref range) done without tourniquet. CBC: platelets at 92 (140-400) and ferritin at 245 (10-232). All other results cbc tests in normal ranges. CMP: globulin at 2.1 (2.2-3.9) and bili at 2.1 (0.2-1.2). All other cmp tests in normal ranges. Aldo/renin and 24hr urine results from this week are still pending. Here is my 24 hr urine history this past year for na and k (view in rich text to see chart): 24 Hour Urine Testing 4/5/2011 3/2/2011 12/3/2010 11/30/2010 7/2/2010 Total Volume 3032 mL/24h H 3566 mL/24h H 4288 mL/24 h H 3920 mL/ 24h H 2062 mL/24h H Reference Range 800 - 1800 mL/ 24 h 800 - 1800 mL/ 24 h 800 - 1800 mL/ 24 h 800 - 1800 mL/ 24 h 800 - 1800 mL/ 24 h Sodium, Urine 24 L 25 L 22 L Reference Range 28-272 mmol/ L 28-272 mmol/ L 28-272 mmol/ L Potassium, Urine/ 24 HR n/a 309 H 263 H Reference Range 20-100 mmol/ g creat 20-100 mmol/ g creat 20-100 mmol/ g creat50 y/o wf, labile bp, suspected PA, previous nocturia 5x greatly subsided, 3x 24 hr urine volume, low platelets, elevated billi, elevated hhv-6 antibodies, successfully DASHing. Currently on zero medications and OTC at this time. > > > >> > > > Yes, it makes perfect sense. Lyme is an interesting bacteria. > > After the> > > > initial infection, it bores into tissues, including particularly > > the> > > heart,> > > > joints and brain. If it senses an antibiotic attack, it comes > > out to> > > defend> > > > its territory (your body). Taking antibiotics prior to testing > > gives you> > > > the best chance of catching an antibody response. Western Blot > > and ELISA> > > > positives are rarely incorrect, but often return false positive > > results.> > > > ELISA, in particular, misses at least 50% of those who have > > Lyme. I don't> > > > know what the false positive rates are for Western Blot. As I'm > > sure you> > > > know, a Western Blot from LabCorp or Quest is not worth the > > paper it's> > > > printed on because they omit important Lyme bands.> > > >> > > > I did IgeneX Western Blot testing w/o any abx and my results were> > > > indeterminate. I then took three weeks of doxycycline and > > results were> > > only> > > > slightly more positive. Then I did five days of heavy duty abx, > > including> > > > injected bicillin, and the urine results (days 2, 4, 6) were all > > strongly> > > > positive for Lyme. That was a Lyme antigen test instead of an > > antibody> > > > test. The problem with Western Blot is that it measures antibody> > > > response. If your body is no longer making Lyme antibodies in > > sufficient> > > > quantity, then any test (including ELISA) will not return a > > positive, even> > > > if you have Lyme.> > > >> > > > You have a good doctor. Hang onto him/her. I would be well today > > if my> > > > doctor in 1985, who casually mentioned Lyme, had just given me > > three weeks> > > > of doxycycline instead of years and years of NSAIDS for a form of> > > arthritis> > > > I never had.> > > >> > > > I'm finding the Lyme cases on this board quite interesting.> > > >> > > > Val> > > >> > > > From: hyperaldosteronism > > > <mailto:hyperaldosteronism%40yahoogroups.com>> > > > [mailto:hyperaldosteronism > > > <mailto:hyperaldosteronism%40yahoogroups.com> ] On Behalf Of > > dsmemory> > > >> > > >> > >> >> >>

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Excellent on the high K intake. I am still not certain if the Sodium results are in mM per day or mM/per liter. Please clarify. Keep up the good work and see how the urine can tell if you are doing a good job.Encourage others to have their Drs check if they are DASHing.CE Grim MD Hi Dr. Grim;Am on zero meds/zero OTC . . . just DASHing. Although in the past 2 weeks have not been able to eat well.CBC and CMP from 7/19/2011 have come in. K is at 4.0 (3.5-5.3 ref range) done without tourniquet. CBC: platelets at 92 (140-400) and ferritin at 245 (10-232). All other results cbc tests in normal ranges. CMP: globulin at 2.1 (2.2-3.9) and bili at 2.1 (0.2-1.2). All other cmp tests in normal ranges. Aldo/renin and 24hr urine results from this week are still pending. Here is my 24 hr urine history this past year for na and k (view in rich text to see chart): 24 Hour Urine Testing 4/5/2011 3/2/2011 12/3/2010 11/30/2010 7/2/2010 Total Volume 3032 mL/24h H 3566 mL/24h H 4288 mL/24 h H 3920 mL/ 24h H 2062 mL/24h H Reference Range 800 - 1800 mL/ 24 h 800 - 1800 mL/ 24 h 800 - 1800 mL/ 24 h 800 - 1800 mL/ 24 h 800 - 1800 mL/ 24 h Sodium, Urine 24 L 25 L 22 L Reference Range 28-272 mmol/ L 28-272 mmol/ L 28-272 mmol/ L Potassium, Urine/ 24 HR n/a 309 H 263 H Reference Range 20-100 mmol/ g creat 20-100 mmol/ g creat 20-100 mmol/ g creat50 y/o wf, labile bp, suspected PA, previous nocturia 5x greatly subsided, 3x 24 hr urine volume, low platelets, elevated billi, elevated hhv-6 antibodies, successfully DASHing. Currently on zero medications and OTC at this time. > > > >> > > > Yes, it makes perfect sense. Lyme is an interesting bacteria. > > After the> > > > initial infection, it bores into tissues, including particularly > > the> > > heart,> > > > joints and brain. If it senses an antibiotic attack, it comes > > out to> > > defend> > > > its territory (your body). Taking antibiotics prior to testing > > gives you> > > > the best chance of catching an antibody response. Western Blot > > and ELISA> > > > positives are rarely incorrect, but often return false positive > > results.> > > > ELISA, in particular, misses at least 50% of those who have > > Lyme. I don't> > > > know what the false positive rates are for Western Blot. As I'm > > sure you> > > > know, a Western Blot from LabCorp or Quest is not worth the > > paper it's> > > > printed on because they omit important Lyme bands.> > > >> > > > I did IgeneX Western Blot testing w/o any abx and my results were> > > > indeterminate. I then took three weeks of doxycycline and > > results were> > > only> > > > slightly more positive. Then I did five days of heavy duty abx, > > including> > > > injected bicillin, and the urine results (days 2, 4, 6) were all > > strongly> > > > positive for Lyme. That was a Lyme antigen test instead of an > > antibody> > > > test. The problem with Western Blot is that it measures antibody> > > > response. If your body is no longer making Lyme antibodies in > > sufficient> > > > quantity, then any test (including ELISA) will not return a > > positive, even> > > > if you have Lyme.> > > >> > > > You have a good doctor. Hang onto him/her. I would be well today > > if my> > > > doctor in 1985, who casually mentioned Lyme, had just given me > > three weeks> > > > of doxycycline instead of years and years of NSAIDS for a form of> > > arthritis> > > > I never had.> > > >> > > > I'm finding the Lyme cases on this board quite interesting.> > > >> > > > Val> > > >> > > > From: hyperaldosteronism > > > <mailto:hyperaldosteronism%40yahoogroups.com>> > > > [mailto:hyperaldosteronism > > > <mailto:hyperaldosteronism%40yahoogroups.com> ] On Behalf Of > > dsmemory> > > >> > > >> > >> >> >>

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>

> Again the science of Chronic Lyme disease is still considered shaky

> from what I can read and in discussing with my ID colleagues.

>

> CE Grim MD

>

Ask your ID friends the consequences of Lyme Disease that goes undiagnosed and

untreated for years. Even the CDC states it can cause permanent damage and is

difficult to treat once at the Late Disseminated Stage...studies are being done

at Columbia University, Stoney Brook and other places that are being ignored by

the IDSA just like most docs ignore the science behind Hyperaldosteronism...it

took me years to get that diagnosed even with a BP unresponsive to treatment and

a low potassium. My provider at the time told me a DASH diet was a crazy diet

and that I was probably bullemic and causing the low serum K because I always do

those " crazy diets " .

Science in medicine is never " settled " it evolves over time, many providers seem

to dismiss that