Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 > Kind of funny. I dont really "ask" my endo, I tell him that is what "I" want to have doneI think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors.> The question isnt just what you are eating, but what your body is doing with it.But if there is nothing humanly possibly that can change after seeing the results, what's the point? All I need is a good answer to this question and I'm sure he'll order the test. Trouble is, "I just want to see the results of the science experiment known as my body" isn't a good enough answer.Personally I think he should be running every possible related test known to humankind and documenting everything. I mean, how often will a doctor come across a patient with both PA and fructose intolerance in their practice? I'm certain that there is something to be learned from my conditions that will help others. And maybe something to be learned about me that will help *me*.But it seems as if all the doctors care about is the numbers. Prescribe a pill, lower the BP, raise the K, and to hell with everything else.-msmith1928Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, probable gluten intolerance. Current meds are spiro 25 mg/dday, potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline.1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements), in the past 25mg spiro caused gynecomastia and polymenorrhea. AVS showed right adrenal overproduces aldo; unable to sample left; proceeding as if my hyperaldosteronism is bilateral. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 I think you onto something with the "female" thing. (I wouldn't personally know about the small or young looking thing.) My husband went in with me to see a new endo and he ordered all the right tests and took me very seriously. I wondered if it was because my husband was there agreeing with everything I said. Maybe you could take a male in with you to repeat--She's right about that.--over and over as you talk. PeggySubject: Re: ordering testsTo: hyperaldosteronism Date: Friday, July 8, 2011, 10:12 AM > Kind of funny. I dont really "ask" my endo, I tell him that is what "I" want to have doneI think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors.> The question isnt just what you are eating, but what your body is doing with it.But if there is nothing humanly possibly that can change after seeing the results, what's the point? All I need is a good answer to this question and I'm sure he'll order the test. Trouble is, "I just want to see the results of the science experiment known as my body" isn't a good enough answer.Personally I think he should be running every possible related test known to humankind and documenting everything. I mean, how often will a doctor come across a patient with both PA and fructose intolerance in their practice? I'm certain that there is something to be learned from my conditions that will help others. And maybe something to be learned about me that will help *me*.But it seems as if all the doctors care about is the numbers. Prescribe a pill, lower the BP, raise the K, and to hell with everything else.-msmith1928Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, probable gluten intolerance. Current meds are spiro 25 mg/dday, potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline.1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements), in the past 25mg spiro caused gynecomastia and polymenorrhea. AVS showed right adrenal overproduces aldo; unable to sample left; proceeding as if my hyperaldosteronism is bilateral. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 I think you onto something with the "female" thing. (I wouldn't personally know about the small or young looking thing.) My husband went in with me to see a new endo and he ordered all the right tests and took me very seriously. I wondered if it was because my husband was there agreeing with everything I said. Maybe you could take a male in with you to repeat--She's right about that.--over and over as you talk. PeggySubject: Re: ordering testsTo: hyperaldosteronism Date: Friday, July 8, 2011, 10:12 AM > Kind of funny. I dont really "ask" my endo, I tell him that is what "I" want to have doneI think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors.> The question isnt just what you are eating, but what your body is doing with it.But if there is nothing humanly possibly that can change after seeing the results, what's the point? All I need is a good answer to this question and I'm sure he'll order the test. Trouble is, "I just want to see the results of the science experiment known as my body" isn't a good enough answer.Personally I think he should be running every possible related test known to humankind and documenting everything. I mean, how often will a doctor come across a patient with both PA and fructose intolerance in their practice? I'm certain that there is something to be learned from my conditions that will help others. And maybe something to be learned about me that will help *me*.But it seems as if all the doctors care about is the numbers. Prescribe a pill, lower the BP, raise the K, and to hell with everything else.-msmith1928Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, probable gluten intolerance. Current meds are spiro 25 mg/dday, potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline.1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements), in the past 25mg spiro caused gynecomastia and polymenorrhea. AVS showed right adrenal overproduces aldo; unable to sample left; proceeding as if my hyperaldosteronism is bilateral. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 If the test should show sodium is higher then you think it should be you could look at both sodium in water and chicken. Both can be tested by state labs or independent ones. > > > Kind of funny. I dont really " ask " my endo, I tell him that is what > " I " want to have done > > I think the fact that I'm female, small, and look like I'm barely 25 > years old instead of the 46 that I actually am is working against me > when it comes to this! I'm not afraid to ask for what I want but really, > I probably don't seem like a force to be reckoned with to my doctors. > > > The question isnt just what you are eating, but what your body is > doing with it. > > But if there is nothing humanly possibly that can change after seeing > the results, what's the point? All I need is a good answer to this > question and I'm sure he'll order the test. Trouble is, " I just want to > see the results of the science experiment known as my body " isn't a good > enough answer. > > Personally I think he should be running every possible related test > known to humankind and documenting everything. I mean, how often will a > doctor come across a patient with both PA and fructose intolerance in > their practice? I'm certain that there is something to be learned from > my conditions that will help others. And maybe something to be learned > about me that will help *me*. > > But it seems as if all the doctors care about is the numbers. Prescribe > a pill, lower the BP, raise the K, and to hell with everything else. > > -msmith1928 > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, > hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, > probable gluten intolerance. Current meds are spiro 25 mg/dday, > potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg > as needed. Low sodium, fructose- and grain-free diet. Known drug > allergies include PCN, sulfa, tetracycline. > 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium > <2.9 (when not taking supplements), in the past 25mg spiro caused > gynecomastia and polymenorrhea. AVS showed right adrenal overproduces > aldo; unable to sample left; proceeding as if my hyperaldosteronism is > bilateral. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 I doubt that my insurance would pay for testing chicken and water Limited funds here. The only testing that happens is what my insurance is willing to pay for. > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is what > > " I " want to have done > > > > I think the fact that I'm female, small, and look like I'm barely 25 > > years old instead of the 46 that I actually am is working against me > > when it comes to this! I'm not afraid to ask for what I want but really, > > I probably don't seem like a force to be reckoned with to my doctors. > > > > > The question isnt just what you are eating, but what your body is > > doing with it. > > > > But if there is nothing humanly possibly that can change after seeing > > the results, what's the point? All I need is a good answer to this > > question and I'm sure he'll order the test. Trouble is, " I just want to > > see the results of the science experiment known as my body " isn't a good > > enough answer. > > > > Personally I think he should be running every possible related test > > known to humankind and documenting everything. I mean, how often will a > > doctor come across a patient with both PA and fructose intolerance in > > their practice? I'm certain that there is something to be learned from > > my conditions that will help others. And maybe something to be learned > > about me that will help *me*. > > > > But it seems as if all the doctors care about is the numbers. Prescribe > > a pill, lower the BP, raise the K, and to hell with everything else. > > > > -msmith1928 > > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, > > hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, > > probable gluten intolerance. Current meds are spiro 25 mg/dday, > > potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate > > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg > > as needed. Low sodium, fructose- and grain-free diet. Known drug > > allergies include PCN, sulfa, tetracycline. > > 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium > > <2.9 (when not taking supplements), in the past 25mg spiro caused > > gynecomastia and polymenorrhea. AVS showed right adrenal overproduces > > aldo; unable to sample left; proceeding as if my hyperaldosteronism is > > bilateral. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 Well, what if the problem is some kind of enzyme thingy? You have alot of food intolerances for someone who sounds like they do all the right things, physically. I guess I would be more aggressive about finding out what is going on. I would see more than one doc if that is what it takes. Maybe a university research hospital would be more inclined to dig deeper. I dont know, I am just typing outloud. Maybe a scattergun approach? Attack each issue independently. Who cares if you look like a nut for a few months. I would leave no stone unturned, until you are satisfied with the answers. If you are there now, great.   > Kind of funny. I dont really " ask " my endo, I tell him that is what " I " want to have done I think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors. > The question isnt just what you are eating, but what your body is doing with it.But if there is nothing humanly possibly that can change after seeing the results, what's the point? All I need is a good answer to this question and I'm sure he'll order the test. Trouble is, " I just want to see the results of the science experiment known as my body " isn't a good enough answer. Personally I think he should be running every possible related test known to humankind and documenting everything. I mean, how often will a doctor come across a patient with both PA and fructose intolerance in their practice? I'm certain that there is something to be learned from my conditions that will help others. And maybe something to be learned about me that will help *me*. But it seems as if all the doctors care about is the numbers. Prescribe a pill, lower the BP, raise the K, and to hell with everything else.-msmith1928 Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, probable gluten intolerance. Current meds are spiro 25 mg/dday, potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline.1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements), in the past 25mg spiro caused gynecomastia and polymenorrhea. AVS showed right adrenal overproduces aldo; unable to sample left; proceeding as if my hyperaldosteronism is bilateral. -- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain DASH: Started " sort of " DASHing 5/3/2011 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 Somes states don't charge for tests. > > > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is what > > > " I " want to have done > > > > > > I think the fact that I'm female, small, and look like I'm barely 25 > > > years old instead of the 46 that I actually am is working against me > > > when it comes to this! I'm not afraid to ask for what I want but really, > > > I probably don't seem like a force to be reckoned with to my doctors. > > > > > > > The question isnt just what you are eating, but what your body is > > > doing with it. > > > > > > But if there is nothing humanly possibly that can change after seeing > > > the results, what's the point? All I need is a good answer to this > > > question and I'm sure he'll order the test. Trouble is, " I just want to > > > see the results of the science experiment known as my body " isn't a good > > > enough answer. > > > > > > Personally I think he should be running every possible related test > > > known to humankind and documenting everything. I mean, how often will a > > > doctor come across a patient with both PA and fructose intolerance in > > > their practice? I'm certain that there is something to be learned from > > > my conditions that will help others. And maybe something to be learned > > > about me that will help *me*. > > > > > > But it seems as if all the doctors care about is the numbers. Prescribe > > > a pill, lower the BP, raise the K, and to hell with everything else. > > > > > > -msmith1928 > > > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, > > > hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, > > > probable gluten intolerance. Current meds are spiro 25 mg/dday, > > > potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate > > > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg > > > as needed. Low sodium, fructose- and grain-free diet. Known drug > > > allergies include PCN, sulfa, tetracycline. > > > 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium > > > <2.9 (when not taking supplements), in the past 25mg spiro caused > > > gynecomastia and polymenorrhea. AVS showed right adrenal overproduces > > > aldo; unable to sample left; proceeding as if my hyperaldosteronism is > > > bilateral. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 My state is basically bankrupt. I doubt they do anything for free > > > > > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is what > > > > " I " want to have done > > > > > > > > I think the fact that I'm female, small, and look like I'm barely 25 > > > > years old instead of the 46 that I actually am is working against me > > > > when it comes to this! I'm not afraid to ask for what I want but really, > > > > I probably don't seem like a force to be reckoned with to my doctors. > > > > > > > > > The question isnt just what you are eating, but what your body is > > > > doing with it. > > > > > > > > But if there is nothing humanly possibly that can change after seeing > > > > the results, what's the point? All I need is a good answer to this > > > > question and I'm sure he'll order the test. Trouble is, " I just want to > > > > see the results of the science experiment known as my body " isn't a good > > > > enough answer. > > > > > > > > Personally I think he should be running every possible related test > > > > known to humankind and documenting everything. I mean, how often will a > > > > doctor come across a patient with both PA and fructose intolerance in > > > > their practice? I'm certain that there is something to be learned from > > > > my conditions that will help others. And maybe something to be learned > > > > about me that will help *me*. > > > > > > > > But it seems as if all the doctors care about is the numbers. Prescribe > > > > a pill, lower the BP, raise the K, and to hell with everything else. > > > > > > > > -msmith1928 > > > > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, > > > > hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, > > > > probable gluten intolerance. Current meds are spiro 25 mg/dday, > > > > potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate > > > > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg > > > > as needed. Low sodium, fructose- and grain-free diet. Known drug > > > > allergies include PCN, sulfa, tetracycline. > > > > 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium > > > > <2.9 (when not taking supplements), in the past 25mg spiro caused > > > > gynecomastia and polymenorrhea. AVS showed right adrenal overproduces > > > > aldo; unable to sample left; proceeding as if my hyperaldosteronism is > > > > bilateral. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 My doctors are all affiliated with UCLA, so I think this is as good as it gets right now. That's one of the two major med schools in my area, and I'm told a better choice than USC, which is the other. I don't have the time, money or inclination to get all " Brockovich " about our food and water supply. I *know* it's completely messed up and full of crap and probably killing us, but moving to a farm and raising my own food is not really what I had in mind for my future. Besides, the water would still be messed up and I can't control that I'm just trying to take this a step at a time. If the meds don't work - and it's too soon to tell - then I'll start getting creative. But for now, I've already got a fulltime job, and it's pretty important that I keep it, or else I'd have no insurance at all... > > > > *> Kind of funny. I dont really " ask " my endo, I tell him that is what " I " > > want to have done* > > > > I think the fact that I'm female, small, and look like I'm barely 25 years > > old instead of the 46 that I actually am is working against me when it comes > > to this! I'm not afraid to ask for what I want but really, I probably don't > > seem like a force to be reckoned with to my doctors. > > * > > > The question isnt just what you are eating, but what your body is doing > > with it.* > > > > But if there is nothing humanly possibly that can change after seeing the > > results, what's the point? All I need is a good answer to this question and > > I'm sure he'll order the test. Trouble is, " I just want to see the results > > of the science experiment known as my body " isn't a good enough answer. > > > > Personally I think he should be running every possible related test known > > to humankind and documenting everything. I mean, how often will a doctor > > come across a patient with both PA and fructose intolerance in their > > practice? I'm certain that there is something to be learned from my > > conditions that will help others. And maybe something to be learned about me > > that will help *me*. > > > > But it seems as if all the doctors care about is the numbers. Prescribe a > > pill, lower the BP, raise the K, and to hell with everything else. > > > > -msmith1928 > > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, hyperinsulinemia, > > hereditary fructose intolerance, lactose intolerance, probable gluten > > intolerance. Current meds are spiro 25 mg/dday, potassium 20MEQ/day, > > singulair 10mg, norethindrone .35mg to regulate polymenorrhea, > > cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low > > sodium, fructose- and grain-free diet. Known drug allergies include PCN, > > sulfa, tetracycline. > > 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 > > (when not taking supplements), in the past 25mg spiro caused gynecomastia > > and polymenorrhea. AVS showed right adrenal overproduces aldo; unable to > > sample left; proceeding as if my hyperaldosteronism is bilateral. > > > > > > > > -- > > ============================================================================ > *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected > Hyperplasia-No tumors on CT - No AVS. > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D > (weekly), 20mg Omeprazole > *Side effects: *Gynecomastia, stomach inflammation > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on > Right Kidney Lower Pole, Right Flank Pain > > *DASH: Started " sort of " DASHing 5/3/2011* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 You would first have to get unine NA checked to see if it is high. If not then no need to have water or chicken tested. > > > > > > > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is what > > > > > " I " want to have done > > > > > > > > > > I think the fact that I'm female, small, and look like I'm barely 25 > > > > > years old instead of the 46 that I actually am is working against me > > > > > when it comes to this! I'm not afraid to ask for what I want but really, > > > > > I probably don't seem like a force to be reckoned with to my doctors. > > > > > > > > > > > The question isnt just what you are eating, but what your body is > > > > > doing with it. > > > > > > > > > > But if there is nothing humanly possibly that can change after seeing > > > > > the results, what's the point? All I need is a good answer to this > > > > > question and I'm sure he'll order the test. Trouble is, " I just want to > > > > > see the results of the science experiment known as my body " isn't a good > > > > > enough answer. > > > > > > > > > > Personally I think he should be running every possible related test > > > > > known to humankind and documenting everything. I mean, how often will a > > > > > doctor come across a patient with both PA and fructose intolerance in > > > > > their practice? I'm certain that there is something to be learned from > > > > > my conditions that will help others. And maybe something to be learned > > > > > about me that will help *me*. > > > > > > > > > > But it seems as if all the doctors care about is the numbers. Prescribe > > > > > a pill, lower the BP, raise the K, and to hell with everything else. > > > > > > > > > > -msmith1928 > > > > > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, > > > > > hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, > > > > > probable gluten intolerance. Current meds are spiro 25 mg/dday, > > > > > potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate > > > > > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg > > > > > as needed. Low sodium, fructose- and grain-free diet. Known drug > > > > > allergies include PCN, sulfa, tetracycline. > > > > > 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium > > > > > <2.9 (when not taking supplements), in the past 25mg spiro caused > > > > > gynecomastia and polymenorrhea. AVS showed right adrenal overproduces > > > > > aldo; unable to sample left; proceeding as if my hyperaldosteronism is > > > > > bilateral. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 There is something horribly wrong when we have to take a male with us! I got horrible treatment from Young M.D. at Mayo Clinic. The next day, when my husband went with me, Dr. Young was the nicest guy in the world. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of ***** I think you onto something with the " female " thing. (I wouldn't personally know about the small or young looking thing.) My husband went in with me to see a new endo and he ordered all the right tests and took me very seriously. I wondered if it was because my husband was there agreeing with everything I said. Maybe you could take a male in with you to repeat--She's right about that.--over and over as you talk. Peggy> Kind of funny. I dont really " ask " my endo, I tell him that is what " I " want to have doneI think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 Take Dr. Grim. He needs a vacation to CA to hang out on the beach and soak up some rays.  I think you onto something with the " female " thing. (I wouldn't personally know about the small or young looking thing.) My husband went in with me to see a new endo and he ordered all the right tests and took me very seriously. I wondered if it was because my husband was there agreeing with everything I said. Maybe you could take a male in with you to repeat--She's right about that.--over and over as you talk. Peggy Subject: Re: ordering testsTo: hyperaldosteronism Date: Friday, July 8, 2011, 10:12 AM  > Kind of funny. I dont really " ask " my endo, I tell him that is what " I " want to have done I think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors. > The question isnt just what you are eating, but what your body is doing with it.But if there is nothing humanly possibly that can change after seeing the results, what's the point? All I need is a good answer to this question and I'm sure he'll order the test. Trouble is, " I just want to see the results of the science experiment known as my body " isn't a good enough answer. Personally I think he should be running every possible related test known to humankind and documenting everything. I mean, how often will a doctor come across a patient with both PA and fructose intolerance in their practice? I'm certain that there is something to be learned from my conditions that will help others. And maybe something to be learned about me that will help *me*. But it seems as if all the doctors care about is the numbers. Prescribe a pill, lower the BP, raise the K, and to hell with everything else.-msmith1928 Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, probable gluten intolerance. Current meds are spiro 25 mg/dday, potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline.1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements), in the past 25mg spiro caused gynecomastia and polymenorrhea. AVS showed right adrenal overproduces aldo; unable to sample left; proceeding as if my hyperaldosteronism is bilateral. -- ============================================================================45-Male-Caucasian, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS. Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank Pain DASH: Started " sort of " DASHing 5/3/2011 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 That is what they get paid for today. Thinking gets no extra payment.CE Grim MD> Kind of funny. I dont really "ask" my endo, I tell him that is what "I" want to have doneI think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors.> The question isnt just what you are eating, but what your body is doing with it.But if there is nothing humanly possibly that can change after seeing the results, what's the point? All I need is a good answer to this question and I'm sure he'll order the test. Trouble is, "I just want to see the results of the science experiment known as my body" isn't a good enough answer.Personally I think he should be running every possible related test known to humankind and documenting everything. I mean, how often will a doctor come across a patient with both PA and fructose intolerance in their practice? I'm certain that there is something to be learned from my conditions that will help others. And maybe something to be learned about me that will help *me*.But it seems as if all the doctors care about is the numbers. Prescribe a pill, lower the BP, raise the K, and to hell with everything else.-msmith1928Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, probable gluten intolerance. Current meds are spiro 25 mg/dday, potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline.1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements), in the past 25mg spiro caused gynecomastia and polymenorrhea. AVS showed right adrenal overproduces aldo; unable to sample left; proceeding as if my hyperaldosteronism is bilateral. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 Guess you did not know/recall I was on UCLA faculty from 1964-94 (Professor in Residence). When I went to the Chairman of Medicine to tell him of my interest in HTN there he told me they did not see much HTN there and no reason to have a HTN clinic. CE Grim MDMy doctors are all affiliated with UCLA, so I think this is as good as it gets right now. That's one of the two major med schools in my area, and I'm told a better choice than USC, which is the other.I don't have the time, money or inclination to get all " Brockovich" about our food and water supply. I *know* it's completely messed up and full of crap and probably killing us, but moving to a farm and raising my own food is not really what I had in mind for my future. Besides, the water would still be messed up and I can't control that :)I'm just trying to take this a step at a time. If the meds don't work - and it's too soon to tell - then I'll start getting creative. But for now, I've already got a fulltime job, and it's pretty important that I keep it, or else I'd have no insurance at all...> >> > *> Kind of funny. I dont really "ask" my endo, I tell him that is what "I"> > want to have done*> >> > I think the fact that I'm female, small, and look like I'm barely 25 years> > old instead of the 46 that I actually am is working against me when it comes> > to this! I'm not afraid to ask for what I want but really, I probably don't> > seem like a force to be reckoned with to my doctors.> > *> > > The question isnt just what you are eating, but what your body is doing> > with it.*> >> > But if there is nothing humanly possibly that can change after seeing the> > results, what's the point? All I need is a good answer to this question and> > I'm sure he'll order the test. Trouble is, "I just want to see the results> > of the science experiment known as my body" isn't a good enough answer.> >> > Personally I think he should be running every possible related test known> > to humankind and documenting everything. I mean, how often will a doctor> > come across a patient with both PA and fructose intolerance in their> > practice? I'm certain that there is something to be learned from my> > conditions that will help others. And maybe something to be learned about me> > that will help *me*.> >> > But it seems as if all the doctors care about is the numbers. Prescribe a> > pill, lower the BP, raise the K, and to hell with everything else.> >> > -msmith1928> > Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, hyperinsulinemia,> > hereditary fructose intolerance, lactose intolerance, probable gluten> > intolerance. Current meds are spiro 25 mg/dday, potassium 20MEQ/day,> > singulair 10mg, norethindrone .35mg to regulate polymenorrhea,> > cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low> > sodium, fructose- and grain-free diet. Known drug allergies include PCN,> > sulfa, tetracycline.> > 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9> > (when not taking supplements), in the past 25mg spiro caused gynecomastia> > and polymenorrhea. AVS showed right adrenal overproduces aldo; unable to> > sample left; proceeding as if my hyperaldosteronism is bilateral.> > > >> > > > -- > > ============================================================================> *45-Male-Caucasian*, 5'9"- 234lbs, PA Diagnosed 2007 Suspected> Hyperplasia-No tumors on CT - No AVS.> *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D> (weekly), 20mg Omeprazole> *Side effects: *Gynecomastia, stomach inflammation> Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic,> Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in> left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on> Right Kidney Lower Pole, Right Flank Pain> > *DASH: Started "sort of" DASHing 5/3/2011*> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 Well am in Tahoe now but driving back to WI today.Now there might be a nich job for me. CE Grim MDTake Dr. Grim. He needs a vacation to CA to hang out on the beach and soak up some rays. I think you onto something with the "female" thing. (I wouldn't personally know about the small or young looking thing.) My husband went in with me to see a new endo and he ordered all the right tests and took me very seriously. I wondered if it was because my husband was there agreeing with everything I said. Maybe you could take a male in with you to repeat--She's right about that.--over and over as you talk. PeggySubject: Re: ordering testsTo: hyperaldosteronism Date: Friday, July 8, 2011, 10:12 AM > Kind of funny. I dont really "ask" my endo, I tell him that is what "I" want to have doneI think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors.> The question isnt just what you are eating, but what your body is doing with it.But if there is nothing humanly possibly that can change after seeing the results, what's the point? All I need is a good answer to this question and I'm sure he'll order the test. Trouble is, "I just want to see the results of the science experiment known as my body" isn't a good enough answer.Personally I think he should be running every possible related test known to humankind and documenting everything. I mean, how often will a doctor come across a patient with both PA and fructose intolerance in their practice? I'm certain that there is something to be learned from my conditions that will help others. And maybe something to be learned about me that will help *me*.But it seems as if all the doctors care about is the numbers. Prescribe a pill, lower the BP, raise the K, and to hell with everything else.-msmith1928Nulliparous female, 46, 5'3", 120 lbs, polymenorrhea, hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, probable gluten intolerance. Current meds are spiro 25 mg/dday, potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as needed. Low sodium, fructose- and grain-free diet. Known drug allergies include PCN, sulfa, tetracycline.1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements), in the past 25mg spiro caused gynecomastia and polymenorrhea. AVS showed right adrenal overproduces aldo; unable to sample left; proceeding as if my hyperaldosteronism is bilateral.-- ============================================================================45-Male-Caucasian, 5'9"- 234lbs, PA Diagnosed 2007 Suspected Hyperplasia-No tumors on CT - No AVS.Meds: 100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI Vit D (weekly), 20mg OmeprazoleSide effects: Gynecomastia, stomach inflammationOther Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, Secondary Hyperparathyroidism caused by Renal calcium leak, Bone Cyct in left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, Scarring on Right Kidney Lower Pole, Right Flank PainDASH: Started "sort of" DASHing 5/3/2011 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 I both knew and recalled that If you have a suggestion for a better option in close driving distance to Santa , CA, please let me know. > > > > > > > > *> Kind of funny. I dont really " ask " my endo, I tell him that > > is what " I " > > > > want to have done* > > > > > > > > I think the fact that I'm female, small, and look like I'm > > barely 25 years > > > > old instead of the 46 that I actually am is working against me > > when it comes > > > > to this! I'm not afraid to ask for what I want but really, I > > probably don't > > > > seem like a force to be reckoned with to my doctors. > > > > * > > > > > The question isnt just what you are eating, but what your body > > is doing > > > > with it.* > > > > > > > > But if there is nothing humanly possibly that can change after > > seeing the > > > > results, what's the point? All I need is a good answer to this > > question and > > > > I'm sure he'll order the test. Trouble is, " I just want to see > > the results > > > > of the science experiment known as my body " isn't a good enough > > answer. > > > > > > > > Personally I think he should be running every possible related > > test known > > > > to humankind and documenting everything. I mean, how often will > > a doctor > > > > come across a patient with both PA and fructose intolerance in > > their > > > > practice? I'm certain that there is something to be learned from > > my > > > > conditions that will help others. And maybe something to be > > learned about me > > > > that will help *me*. > > > > > > > > But it seems as if all the doctors care about is the numbers. > > Prescribe a > > > > pill, lower the BP, raise the K, and to hell with everything else. > > > > > > > > -msmith1928 > > > > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, > > hyperinsulinemia, > > > > hereditary fructose intolerance, lactose intolerance, probable > > gluten > > > > intolerance. Current meds are spiro 25 mg/dday, potassium 20MEQ/ > > day, > > > > singulair 10mg, norethindrone .35mg to regulate polymenorrhea, > > > > cyclobenzaprine 5-10mg when needed, fexofenadine 180mg as > > needed. Low > > > > sodium, fructose- and grain-free diet. Known drug allergies > > include PCN, > > > > sulfa, tetracycline. > > > > 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, > > potassium <2.9 > > > > (when not taking supplements), in the past 25mg spiro caused > > gynecomastia > > > > and polymenorrhea. AVS showed right adrenal overproduces aldo; > > unable to > > > > sample left; proceeding as if my hyperaldosteronism is bilateral. > > > > > > > > > > > > > > > > > > > > -- > > > > > > > > = > > = > > = > > = > > = > > = > > ====================================================================== > > > *45-Male-Caucasian*, 5'9 " - 234lbs, PA Diagnosed 2007 Suspected > > > Hyperplasia-No tumors on CT - No AVS. > > > *Meds: *100mg Spiro, 1800mg Calcium, 1000mg Magnesium, 100,000UI > > Vit D > > > (weekly), 20mg Omeprazole > > > *Side effects: *Gynecomastia, stomach inflammation > > > Other Diags: GERD, Hiatal Hernia, Metabolic Syndrome - PreDiabetic, > > > Secondary Hyperparathyroidism caused by Renal calcium leak, Bone > > Cyct in > > > left Femoral Head and Pelvis. Benign Lung Nodules, Fibromyalgia, > > Scarring on > > > Right Kidney Lower Pole, Right Flank Pain > > > > > > *DASH: Started " sort of " DASHing 5/3/2011* > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 Agree you might want to check a little further. In my state I believe that is all done through the UVM (University of Vermont) Extension Service hence a different budget completely. Being a medical teaching college they welcome real projects for the students. Don't know if there is an equivelent where you are but at least worth a try. - 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank & testicle pain. I have decided against an adrenalectomy at this time since Meds. are working so well. Current BP: 130/77 Other Issues/Opportunities: COPD w/ft Oxygen, OSA w Bi-Pap settings 13/19, DM2. and PTSD Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG, Metformin 2000MG, Lisinopril 2.5MG and Spironolactone 75 MG. > > > > > > > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is what > > > > > " I " want to have done > > > > > > > > > > I think the fact that I'm female, small, and look like I'm barely 25 > > > > > years old instead of the 46 that I actually am is working against me > > > > > when it comes to this! I'm not afraid to ask for what I want but really, > > > > > I probably don't seem like a force to be reckoned with to my doctors. > > > > > > > > > > > The question isnt just what you are eating, but what your body is > > > > > doing with it. > > > > > > > > > > But if there is nothing humanly possibly that can change after seeing > > > > > the results, what's the point? All I need is a good answer to this > > > > > question and I'm sure he'll order the test. Trouble is, " I just want to > > > > > see the results of the science experiment known as my body " isn't a good > > > > > enough answer. > > > > > > > > > > Personally I think he should be running every possible related test > > > > > known to humankind and documenting everything. I mean, how often will a > > > > > doctor come across a patient with both PA and fructose intolerance in > > > > > their practice? I'm certain that there is something to be learned from > > > > > my conditions that will help others. And maybe something to be learned > > > > > about me that will help *me*. > > > > > > > > > > But it seems as if all the doctors care about is the numbers. Prescribe > > > > > a pill, lower the BP, raise the K, and to hell with everything else. > > > > > > > > > > -msmith1928 > > > > > Nulliparous female, 46, 5'3 " , 120 lbs, polymenorrhea, > > > > > hyperinsulinemia, hereditary fructose intolerance, lactose intolerance, > > > > > probable gluten intolerance. Current meds are spiro 25 mg/dday, > > > > > potassium 20MEQ/day, singulair 10mg, norethindrone .35mg to regulate > > > > > polymenorrhea, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg > > > > > as needed. Low sodium, fructose- and grain-free diet. Known drug > > > > > allergies include PCN, sulfa, tetracycline. > > > > > 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium > > > > > <2.9 (when not taking supplements), in the past 25mg spiro caused > > > > > gynecomastia and polymenorrhea. AVS showed right adrenal overproduces > > > > > aldo; unable to sample left; proceeding as if my hyperaldosteronism is > > > > > bilateral. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 ms, Val,Peggy, etal been reading your posts and wonder if you took anybody with you if the doctor would be more inclined to listen. The VA system encourages us to bring someone with us to make sure we understand what the doctor wants and also make sure we get what we want! I personnally have only had 2 appts. that I felt were less than successful, Unfortunately both were with Neph. and my wife was at neither one! The other thing is be prepared with what you want written down and make notes (You may be doing this but it is sometimes more effective if they think you are keeping track that closely! Even if you only make a note to pick up eggs on the way home!) I of course have never had a problem with my PCP team, but then - I have the all female team at the local VA! The only thing I have to watch out for is if they tell me to put my feet in some contraption so they can check for Endema - it's " NO WAY HOZAAY, RECONFIGURE THAT TABLE! " Do Not say, " See, women always listen and men never do! " I've heard that one. My son suggested going with a female PCP because they, " Show more compassion and their finger was smaller! " Now he might be on to something but then, that's why I sent him to college. Before I digress further it's something that might be worth a try if you haven't already. If this doesn't help let us know, I have other ideas from my years in management. I had female analysts who were sometimes overwhelmed by male buisness counterparts. We had a few tricks that might help you gain the respect you deserve! - 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank & testicle pain. I have decided against an adrenalectomy at this time since Meds. are working so well. Current BP: 130/77 Other Issues/Opportunities: COPD w/ft Oxygen, OSA w Bi-Pap settings 13/19, DM2. and PTSD Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG, Metformin 2000MG, Lisinopril 2.5MG and Spironolactone 75 MG. > > > Kind of funny. I dont really " ask " my endo, I tell him that is what " I " want to have done > > I think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors. > > > > > <http://geo.yahoo.com/serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId=330\ 06/stime=1310144535/nc1=5191946/nc2=5191951/nc3=3848642> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 , very thoughtful of you to post this. But honestly, those of us who choose to " fly solo " shouldn't be treated any differently than those who bring a spouse. I've thought of bringing one of my friends along on some of my appointments, just to have another person there with a different perspective who may think of questions that didn't occur to me, and I may still do that at some point - but I'd be just as inclined to bring a female friend as a male one. It's important to me that my medical team sees me as who I am - a highly-educated and well-informed person who just happens to be an unmarried-and-childless-by-choice woman. The quality of my medical treatment should not be based on my marital status. And really, I don't think it has been; I feel like overall I'm getting the best care I could get other than going to NIH. I'm just really not very good at this whole telling-doctors-how-to-do-their-job thing. I ask for tests, they say no; I drop it unless I can present them with a compelling reason why they should listen to me. Unfortunately, " because a doctor who runs a Yahoo group on the internet said so " isn't a very good argument. -msmith1928 > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is what " I " want to have done > > > > I think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors. > > > > > > > > > > <http://geo.yahoo.com/serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId=330\ 06/stime=1310144535/nc1=5191946/nc2=5191951/nc3=3848642> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 I being Male have the same problem being not very good telling doctors how to do their job thing. Many Dr don't like it when you try to second guess them. > > > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is what " I " want to have done > > > > > > I think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors. > > > > > > > > > > > > > > > <http://geo.yahoo.com/serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId=330\ 06/stime=1310144535/nc1=5191946/nc2=5191951/nc3=3848642> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 No a Dr who has published over 240 articles and was a Full Professor of Medicine at Indiana, UCLA and MCOW in WI.Did you show him my peer reviewed article?That usually helps them believe I might know more than they do and that I might be able to help get them to goal.CE Grim MD, very thoughtful of you to post this. But honestly, those of us who choose to "fly solo" shouldn't be treated any differently than those who bring a spouse. I've thought of bringing one of my friends along on some of my appointments, just to have another person there with a different perspective who may think of questions that didn't occur to me, and I may still do that at some point - but I'd be just as inclined to bring a female friend as a male one.It's important to me that my medical team sees me as who I am - a highly-educated and well-informed person who just happens to be an unmarried-and-childless-by-choice woman. The quality of my medical treatment should not be based on my marital status. And really, I don't think it has been; I feel like overall I'm getting the best care I could get other than going to NIH. I'm just really not very good at this whole telling-doctors-how-to-do-their-job thing. I ask for tests, they say no; I drop it unless I can present them with a compelling reason why they should listen to me.Unfortunately, "because a doctor who runs a Yahoo group on the internet said so" isn't a very good argument.-msmith1928> > > > > Kind of funny. I dont really "ask" my endo, I tell him that is what "I" want to have done> > > > I think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors.> > > > > > > > > > <http://geo.yahoo.com/serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId=33006/stime=1310144535/nc1=5191946/nc2=5191951/nc3=3848642>> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2011 Report Share Posted July 8, 2011 msmith I certainly didn't mean it had to be a spouse or even suggest a gender although it might make more sense for an unattached person to take someone of the same gender, sorry if that didn't come through. The important thing is to have another set of ears and a mouth if necessary! A female friend would be an excellent choice. As you are well aware, it is a new experience for these doctors when the patient knows more about the disease than s/he does and they get intiminated. You need to invade their comfort zone! Let me throw out some more ideas and they are not gender specific! Don't let him get into a discussion of what you want while you are on the exam table. (I sent my PCP an email tonight asking her to schedule aldo and renin for my appt. on the 22nd.) If email is not available you might call his office and ask his assistant. That reminds me, it is as important how you ask as to what you ask! Don't start with, " Dr. Grim wants " or " I don't see how it can be bad but... " Maybe something like, " It's really bothering me and one thing I need to be absolutly sure is under control is my salt. Let's run a urine test so we can rule that out once and for all! " Here you've let him know you are concerned and let him provide the solution (with " WE can rule out " ). If that fails, jump up on his desk and release that polecat you have caged up! (I know you have it in you, I've seen some of your posts!) The other one I thought of tonight is try not to let him get anything between you and him. By this I'm particularly thinking of a desk. Heaven help them if they try to put the whole desk between us but a lot of times they sit at their desk with their computer and you sit in a side chair with the corner of the desk between you. That keeps him in his comfort zone and you are his " guest " . If I want to even the playing field I simply pull the chair out a foot or so and turn it slightly toward him. I do this to eliminate his barrier, the corner of the desk, and put us on more even turf. If you just do it casually he will probably not even notice but but you will gain some control. (When I was in mgmt. I had a round table exactly for this reason. It wasn't very good to spread listings on but I had happy employees. You should have seen them the day I called a staff meeting and arrived early and took a chair at the middle of the table instead of the head of the table! They didn't know how to behave!) Then there was the time as I entered my doctor's office and he told me to take any seat, he had three " Guest " chairs. You should have seen the look on his face when he turned around from shutting the door and I was sitting on his stool! He took one of the guest chairs and after that he was and I was ! (Yes, I was the one that ended up on the table and he got his stool back!) I have to add that my wife still sees him as her PCP and after she told him I had been dxed with PA he made it a point to call me and appologize for missing it! (I hadn't seen him for over 6 years and he had done the right thing by reffering me to specialists.) It's late and I've rambled on again but hope it helps a little! - 64 yo morb. ob. male - 12mm X 13mm rt. a.adnoma with previous rt. flank & testicle pain. I have decided against an adrenalectomy at this time since Meds. are working so well. Current BP: 130/77 Other Issues/Opportunities: COPD w/ft Oxygen, OSA w Bi-Pap settings 13/19, DM2. and PTSD Meds: Duloxetine hcl 80 MG, Mirtazapine 15 MG, Metoprolol Tartrate 200 MG, Metformin 2000MG, Lisinopril 2.5MG and Spironolactone 75 MG. > > > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is what " I " want to have done > > > > > > I think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors. > > > > > > > > > > > > > > > <http://geo.yahoo.com/serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId=330\ 06/stime=1310144535/nc1=5191946/nc2=5191951/nc3=3848642> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2011 Report Share Posted July 9, 2011 LOL at your story about the doctor and the " guest " chairs None of my current doctors pull any of that behind-the-desk stuff with me, but I've definitely experienced it in the past. I think your suggestion about ordering the test " so we can rule it out " is a good one, and I'm planning to go with that. My problem is that while in writing I can be forceful and articulate, in person I'm a lot more easily intimidated. And this doctor is not of the e-mail generation, unfortunately. Also considering asking my primary care doc, if the nephrologist says no again. > > > > > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is what " I " want to have done > > > > > > > > I think the fact that I'm female, small, and look like I'm barely 25 years old instead of the 46 that I actually am is working against me when it comes to this! I'm not afraid to ask for what I want but really, I probably don't seem like a force to be reckoned with to my doctors. > > > > > > > > > > > > > > > > > > > > <http://geo.yahoo.com/serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId=330\ 06/stime=1310144535/nc1=5191946/nc2=5191951/nc3=3848642> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2011 Report Share Posted July 9, 2011 But any one can be a Internet Dr. Can claim to be wright or be what ever they want to be. I asked my Dr have you heard of Dr Grim? No he hasn't. How then can I get him to read something I downloaded from this group? I would like to know what Bingham would done if someone had tried to show him your peer reviewed article before finding this group? > > > > > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is > > what " I " want to have done > > > > > > > > I think the fact that I'm female, small, and look like I'm > > barely 25 years old instead of the 46 that I actually am is working > > against me when it comes to this! I'm not afraid to ask for what I > > want but really, I probably don't seem like a force to be reckoned > > with to my doctors. > > > > > > > > > > > > > > > > > > > > <http://geo.yahoo.com/serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId=330\ 06/stime=1310144535/nc1=5191946/nc2=5191951/nc3=3848642 > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2011 Report Share Posted July 9, 2011 I showed my endro and my nephorlogist your peer reviewed article. My endro was like wish this guy was closer and I could have worked with him. My nephrologist... any one can get an article written for the right amoutn of money. He still does not believe I have PA. Pam > > > > > > > > > > > > > Kind of funny. I dont really " ask " my endo, I tell him that is > > > what " I " want to have done > > > > > > > > > > I think the fact that I'm female, small, and look like I'm > > > barely 25 years old instead of the 46 that I actually am is working > > > against me when it comes to this! I'm not afraid to ask for what I > > > want but really, I probably don't seem like a force to be reckoned > > > with to my doctors. > > > > > > > > > > > > > > > > > > > > > > > > > <http://geo.yahoo.com/serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId=330\ 06/stime=1310144535/nc1=5191946/nc2=5191951/nc3=3848642 > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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