Re: Weather causing pain?

[Guest guest]

OH, ,

Sorry you've been bad. I don't think 's the weather sounds like a

flare.Does it come around when your hormones change?

Get better!

VIVI

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[Guest guest]

, I am the EXACT opposite! I LOVE the hot, humid weather as this is

the best I'm going to feel all year long. The only downside for me to hot

weather are sudden storms, as if I get caught in one I'm screwed! I'll wind

up on the ground shaking like I'm having a seizure..at which point I will be

damn near totally incapacitated for up to 3 days.

Even for how horribly I've been feeling for the last 3-4 months, today I

was able to spend 5 hours @ the football camp where I coach. Aside from

being damn near totally exhausted I was able to make it through, and teach a

lot of kids various things. I'm looking forward to being there again

tomorrow, but I will admit I'm glad it is over afterwards as I have been in

my bed since 3:30 this afternoon only getting out once or twice to check my

email and eat.

Sorry you're going through this, but Enbrel usually takes several weeks

for you to really notice a difference. Just make sure you pay attention to

any " oddball " symptoms such as slurred speech, balance problems (unless you

already have them) and other " weird " stuff.... You probably won't, most

won't... but it happened to me and they were damn near convinced I had MS!

I'm NOT knocking Enbrel! I just want to warn you for things to look out for

that MAY indicate a problem. Hopefully and with any luck it will be your

solution to feeling " normal " again!

Adios, Kirk. PS...I want to move to Tx or Ga or even southern Tn while

you can probably find cheap property in Canada! LOL...... I hate cold

weather! I start to feel it by mid-October and don't come out of that " funk "

until mid-May (only if it is hot and it certainly wasn't this year!) and

feel as good as I'm going to throughout the summer! Over 90?? YES!!!!! Talk

about opposites!

Kirk.

2008/6/7 Fultz :

>

>

>

--

Everything in life sucks except things that should!

[Guest guest]

Ann,

I do believe it's different for everyone. I read some time ago that barometric

pressure did play a part in arthritis pain because of the pressure on the body

and have found that for myself the dry cold is much easier than anything wet and

damp on my joints but it does not or has ever affected my overall disease course

or flares. That, my body has always taken care of on it's own. So as with

Still's I think it is a very personalised experience and you may get as many

answers as people asked.

Best regards and stay cool in the desert if you can, lol.

Weather causing pain?

Well NY was hit with a freaking heat wave high 90's and soooooo humid. I have

had the worst pain ever in my joints I mean EVER my hands are swallon and I feel

like I can hardly move them. Is this what happens with Hot humid weather with

Stills?

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[Guest guest]

AMEN to that!!!!!

" WE WILL WIN "

Love Ya'll!

Mom & Dad

Carole & Bob

" Never Fight Fair "

Panama City, FL 32404

Please visit the International Stills Disease Foundation Inc. Web Site at

www.stillsdisease.org . Please make Tax Deductible Donations to the all

volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel Ave.

Panama City, FL 32404. Thanks!

[Guest guest]

How did I know that you would pick up on this one Bob????? LOL Kirk.

2008/6/8 Bob Himes :

> AMEN to that!!!!!

>

>

>

> " WE WILL WIN "

> Love Ya'll!

> Mom & Dad

> Carole & Bob

> " Never Fight Fair "

> Panama City, FL 32404

> Please visit the International Stills Disease Foundation Inc. Web Site at

> www.stillsdisease.org . Please make Tax Deductible Donations to the all

> volunteer, International Stills Disease Foundation Inc., 1123 S. Kimbrel

> Ave. Panama City, FL 32404. Thanks!

>

>

[Guest guest]

Kirk

 ya know they say you can talk about me but never about my flag my country or my

momma so I resemble that remark! ops that's right califonakate is not my country

ether just a place i am stuck tell I can escape again . do have to say it is one

wacky place to live that is for sure . I do have to say out of 4 states I have

lived in it is 3 I would never again and one I would think about because of the

extreme cold ( North Dakota) out of the states were I have visited and ether

know people there of have family I would move to with out a thought. 

  I know there are better states with dry and I do mean real dry weather then

calif.

Kirk by the way not from LA south but from about 200 miles north of that and

then do as you said give it away but also add one county from the North make

that two San Fran and Sacramento then you could make a good state LOL. go ahead

flam me I live here I can say it and I live in part that should be given away

;-)

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

[Guest guest]

 do you like cold and fog? that's winter here . humid some times not like back

east but we do get it now and then I know it hurts me to. for dry I would think

New Mexico or Arizona first besides that dam the cost to live here is nuts take

the San fran area they say it takes over 75,000 or more a year  for a family of

four just to make ends met not any extra and that is renting . a one

bedroom apartment can run you over 1,500 a month and that is not in the best

towns or areas. here in crime city, drug infested,free murder land , gang

central, and such Fresno it is over 800 for a one bed room apartment. this is

why we live were we do and will not move tell it is out of state as a 4 bed 2

bath is still only 650 and has never gone up in over 6 years and they have told

us as long as we are here it will not . being we have 5 adults and one baby here

and live on ssdi it is the best deal in town. okay out of town being were almost

30 miles from town

school and shopping out in the middle of an orchard. were it is almost always

humid because of the irrigation they do every day. And now with gas running

about 4.50 gl a bit less some and more in others it kills us to do any thing

heck even our mail   box is over 3 miles away at the post office because they do

not deliver mail out here .United parcel and Fed x can not find us 9 out of ten

times even with directions here and only two turns off the main hwy. okay on of

them is even off the black top for over a mile LOL. see I am really are

a redneck who lives in the sticks with no other hicks around .

 Kirk come here by the way we can give ya 110 plus weather for a normal high. I

have seen it many times get to over 116 in the shade what little there is .

every cook an egg on your car hood or the side walk ya can here believe me I did

it just to see. so if ya wants hot we cans give it to ya's

 

the  rednecks

Marty & G.

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

  and Hancock:

We Recognize No Sovereign but God, and no King but Jesus! [April 18, 1775]

:

" The general principles upon which the Fathers achieved independence were the

general principals of Christianity... I will avow that I believed and now

believe that those general principles of Christianity are as eternal and

immutable as the existence and attributes of God. "

• " [July 4th] ought to be commemorated as the day of deliverance by solemn acts

of devotion to God Almighty. "

– in a letter written to Abigail on the day the Declaration was

approved by Congress

Jefferson

God who gave us life gave us liberty. And can the liberties of a nation be

thought secure when we have removed their only firm basis, a conviction in the

minds of the people that these liberties are a gift from God? That they are not

to be violated but with His wrath? Indeed I tremble for my country when I

reflect that God is just, and that His justice cannot sleep forever. " (excerpts

are inscribed on the walls of the Jefferson Memorial in the nations capital)

 

[Guest guest]

Hi . I live in Las Vegas and can tell you that weather absolutely has an

affect on my

joints and pain.

Since we have low to zero humidity but high heat all the tim I can tell you that

my joint

pain stays at almost consistent levels. My body reacts well to the dry heat of

the desert.

It's when there is a change in the weather that I run into problems.

Accuweather dot com has an arthritis index on it and it's pretty accurate. If I

am having a

pain day I'll check the accuweather website and their index is in pretty close

in relation to

the amount of pain I am in.

These changes in the weather cause my joint pain to increase. I poached this

from

Accuweather:

1. Changes in atmospheric pressure, especially falling pressure

2. Changes in temperature, especially lowering temperature

3. High or increasing relative or absolute humidity

4. Relatively low atmospheric pressure

5. Low temperatures

6. Precipitation

Chris

>

> ok friends I need some answers. I took my first Enbrel shot on Tuesday. I was

exhausted for 3 days after ( think it must be my body getting use to the drug)

and

very weak but thought maybe I was feeling better in my hips by Thursday maybe?

Well NY

was hit with a freaking heat wave high 90's and soooooo humid. I have had the

worst pain

ever in my joints I mean EVER my hands are swallon and I feel like I can hardly

move them.

I have taken lots of Asprin today but to no help just tears up my belly. Is this

what happens

with Hot humid weather with Stills? OMG I can hardly type it hurts so bad I have

no rings

on any more they are way gone. I lost my cain and have been limping all day.

Ugh!  So

please just tell me that you all go through this with very humid hot weather? I

dont want

to go back on pred I want to deal with it till I cant.  Good news is I slept

good last few

nights that is so great! Maybe due to the Enbrel.

>  Please let me know this is what to exspect in humid weather please, so I can

brace

myself when I see the weather channel say hot and Humid.Lord help us!

> Thanks friends

>  

> Ann Fultz

[Guest guest]

Ann,

I hate to tell you, but I swell up during the humid months - which is

most months here in Houston. It is better now that I am on a better

drug treatment but I still swell up. :-(

Houston, Texas