Happy Holidays

[Guest guest]

Hi everyone

the holiday season is almost apon..or is that upon..in any event it's damned

near here!

I hope that you all have wonderful times making memories to keep you smiling

all through the New Year.

To the new members a big HOLLA..sorry you had to seek us out, but glad that we

can be here for you. Please feel free to engage in and participate in our

e-mails and perhaps chat. We have all been where you are, and so know what

you're going through.

Share your his/herstories and get as involved as you want or need. This is a

great group of people. As our Founder Tom used to say..

Come...sit...talk....

Again, Happy Holidays

Cat

---------------------------------

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[Guest guest]

Hi Cat:

Thanks for the holiday wishes. Right back at you! I'm taking a break from

cleaning the kitchen right now. It seems I can barely do one stinking chore

for more than a few minutes and then I have to take a break. I break more than

I do anything else. I have many more ailments than Stills, but Stills seems

to be the killer!

My biggest problem and stresser however is that I cannot get my husband or 21

year old son to believe I'm sick. They think I should perform homemaker

duties without resting, without any pain, and be a speedy-me-greedy. I'm, get

this one, you'll love it, not suppose to talk to anyone, be on the phone, ema

il/pc, go anywhere, or complain. I'm to take orders and cook and clean and

according to my son, get back to working outside the house because I'm being

selfish

since I was always the one to provide health/medical insurance for the

family.

I'm gettting off the pc for an hour. I need to go put my feet up. Last week

I got an injection of synovisc in each knee for the arthritis and I'm only

45. About 1 1/2 years ago I lost my health insurance. Just got medicare this

September and just got back around to going to the doctors. Just as my

insurance ran out, I went through this 3 injections of synovisc in each knee

each a

week apart and I swear it worked for the better part of 6 months, but I

couldn't afford to go back before now.

What bothered my son and husband most (I also have a 14 year old daughter who

at times can be a pain in the butt, but overall she helps me out and is my

leaning board, but that's a big responsibility for a 14 year old. I didn't have

much of a childhood and I know what it feels like and she's not going to be

little(yeah right, little she's taller than I am )but you can never regain back

your childhood and I don't want her to be sorry, that's another one of my

problems, my husband in my mind's eye right now is a mail

schovanist(spelling)pig! He feels my daughter should do all the house cleaning

lifting and all and

that's another area I think he's wrong.

Back to my point, 1 1/2 years ago I went cold turkey off all my meds and so I

was awake all hours of the night and would steal, literally steal hours of

sleep here and there during the day and then sleep my weekends away. Now that

I'm back on my most important meds, I sleep almost regularly nights, am still

very exhausted but get up every morning monday through friday at 7 and take my

daughter to school for 8:30. I come back home, my son commutes back and forth

to med school daily, and my husband works. So I do what I can, but the most

important thing is to have dinner done and ready so that my husband can eat

asap, maybe take a nap and then he goes out on the average 5-6 nights a week

with

the guys to a men's tea house. I have a hard time getting my meal done no

matter wht time of the day I start because I also suffer from A.D.D. but also

him going out bothers the crap out of me.

What's your advice? I would appreciate it.

I'll be back on line at noon

[Guest guest]

Hi Anita

I can't believe how hard your family are on not understanding that you are

ill. Especially your son who is in medical college I hope his bedside

manner gets better with his studies as he doesn't seem very understanding at

the moment. I am glad your daughter is more helpful. As for getting meals

on time etc. I am afraid I would just let them get on with it. As you don't

seem to be able to do what they want and can't please them let them fend for

themselves and look after yourself

I hope you do not think I am being rude to your family but it makes me so

cross when you are not getting much help.

Best wishes

Joan U.K.

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of Anita0923@...

Sent: 17 December 2007 16:08

To: Stillsdisease

Subject: Re: Happy Holidays

Hi Cat:

Thanks for the holiday wishes. Right back at you! I'm taking a break from

cleaning the kitchen right now. It seems I can barely do one stinking chore

for more than a few minutes and then I have to take a break. I break more

than

I do anything else. I have many more ailments than Stills, but Stills seems

to be the killer!

My biggest problem and stresser however is that I cannot get my husband or

21

year old son to believe I'm sick. They think I should perform homemaker

duties without resting, without any pain, and be a speedy-me-greedy. I'm,

get

this one, you'll love it, not suppose to talk to anyone, be on the phone,

ema

il/pc, go anywhere, or complain. I'm to take orders and cook and clean and

according to my son, get back to working outside the house because I'm being

selfish

since I was always the one to provide health/medical insurance for the

family.

I'm gettting off the pc for an hour. I need to go put my feet up. Last week

I got an injection of synovisc in each knee for the arthritis and I'm only

45. About 1 1/2 years ago I lost my health insurance. Just got medicare this

September and just got back around to going to the doctors. Just as my

insurance ran out, I went through this 3 injections of synovisc in each knee

each a

week apart and I swear it worked for the better part of 6 months, but I

couldn't afford to go back before now.

What bothered my son and husband most (I also have a 14 year old daughter

who

at times can be a pain in the butt, but overall she helps me out and is my

leaning board, but that's a big responsibility for a 14 year old. I didn't

have

much of a childhood and I know what it feels like and she's not going to be

little(yeah right, little she's taller than I am )but you can never regain

back

your childhood and I don't want her to be sorry, that's another one of my

problems, my husband in my mind's eye right now is a mail

schovanist(spelling)pig! He feels my daughter should do all the house

cleaning lifting and all and

that's another area I think he's wrong.

Back to my point, 1 1/2 years ago I went cold turkey off all my meds and so

I

was awake all hours of the night and would steal, literally steal hours of

sleep here and there during the day and then sleep my weekends away. Now

that

I'm back on my most important meds, I sleep almost regularly nights, am

still

very exhausted but get up every morning monday through friday at 7 and take

my

daughter to school for 8:30. I come back home, my son commutes back and

forth

to med school daily, and my husband works. So I do what I can, but the most

important thing is to have dinner done and ready so that my husband can eat

asap, maybe take a nap and then he goes out on the average 5-6 nights a week

with

the guys to a men's tea house. I have a hard time getting my meal done no

matter wht time of the day I start because I also suffer from A.D.D. but

also

him going out bothers the crap out of me.

What's your advice? I would appreciate it.

I'll be back on line at noon