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Hi Tahira - quality is v. important (since its made from meat) +Acetyl L-carnitine. I use Metabolics which is £22.02 for 60 (450mg per small cap) all the good ones are horribly expensive.This one barely has fillers. I've also used NutriCology 500mg per large cap but can't remember how much Nutricentre charges. To:

autism-biomedical-europe Sent: Fri, 28 January, 2011 11:23:39Subject: (unknown)

hi , I was wondering if anyone could advise where to get the DMG at best price,aswell as co Q10, acetyl carnatine and carnosine would really appreciate if s-one having bought this recently could guide, thanks tahira

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hi catherine, thanks for getting back yes i was told the carnosine was pricy , what about the dmg or l carnitine do you get them from somewhere? tahira

To: Autism-Biomedical-Europe Sent: Fri, 28 January, 2011 11:55:00Subject: Re: (unknown)

Hi Tahira - quality is v. important (since its made from meat) +Acetyl L-carnitine. I use Metabolics which is £22.02 for 60 (450mg per small cap) all the good ones are horribly expensive.This one barely has fillers. I've also used NutriCology 500mg per large cap but can't remember how much Nutricentre charges.

To: autism-biomedical-europe Sent: Fri, 28 January, 2011 11:23:39Subject: (unknown)

hi , I was wondering if anyone could advise where to get the DMG at best price,aswell as co Q10, acetyl carnatine and carnosine would really appreciate if s-one having bought this recently could guide, thanks tahira

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  • 2 weeks later...

thanks for that.

To: autism-biomedical-europe Sent: Mon, 7 February, 2011 11:57:14Subject: RE: (unknown)

Hi Tahira I buy mine online from Goodness direct but dietry needs direct also sell it. x

To: Autism-Biomedical-Europe From: tahirasufi@...Date: Mon, 7 Feb 2011 11:52:00 +0000Subject: (unknown)

hi, can anybody suggest where to buy the almond flour as i have tried sainsbury and on eother place with no luck. thanks tahira

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You will find it in independent health food shops - suggest looking in yellow pages or on internet for local ones to u

To: Autism-Biomedical-Europe From: tahirasufi@...Date: Mon, 7 Feb 2011 11:52:00 +0000Subject: (unknown)

hi, can anybody suggest where to buy the almond flour as i have tried sainsbury and on eother place with no luck. thanks tahira

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Sainsbury's do sell it... so does Asda. It is where all the cooking and baking stuff is.

Hope you can find some. I use mine with chicken pieces or turkey strips and coat it with a little egg wash, and then dip it in the almond flour and they come out tasting like KFC.... you can add salt pepper and any spices you can eat to the flour to jazz it up a little too.

Take care

(unknown)

hi, can anybody suggest where to buy the almond flour as i have tried sainsbury and on eother place with no luck. thanks tahira

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What oil do you use ?

x

To: Autism-Biomedical-Europe From: sandrabarrett@...Date: Mon, 7 Feb 2011 14:46:27 +0000Subject: Re: (unknown)

I fry it in a non-stick fry pan... comes out sooo good, especially all the bits!! It is very more'ish

enjoy

x

(unknown)

hi, can anybody suggest where to buy the almond flour as i have tried sainsbury and on eother place with no luck. thanks tahira

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just a little bit of olive oil... with the pan being so slippy you only need a little bit... and just turn them around so they get all nice and crispy on the outside...

(unknown)

hi, can anybody suggest where to buy the almond flour as i have tried sainsbury and on eother place with no luck. thanks tahira

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wonderful, thank you

x

To: Autism-Biomedical-Europe From: sandrabarrett@...Date: Mon, 7 Feb 2011 14:58:03 +0000Subject: Re: (unknown)

just a little bit of olive oil... with the pan being so slippy you only need a little bit... and just turn them around so they get all nice and crispy on the outside...

(unknown)

hi, can anybody suggest where to buy the almond flour as i have tried sainsbury and on eother place with no luck. thanks tahira

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  • 2 weeks later...

Have you taken him to see a cranial osteopath.. We found in all three of our NT boys that when they were teething or later on in puberty the changes in their facial shape and features was also accompanied by pressure on the ears.. and poor drainage within the ears. We found that treatment by a good cranial osteopath releasing the pressures on the ears through cranial manipulation relieved this problem really quickly...

I am not keen on grommets - both my neice and nephew had them and left scars on their ear drums.. Best WishesTracey

 

hi,  i  am  wondering if  anyone   could  give  me  advice. i  have  just   had my  six yr  son  checked  by the  ENT  consultant due to the  frequent  discomfort he was  showing. Hr has  found that he has  fluid in  both  ears and  advises that grommet insertion  be  repeated on him.  does  anyone  have  ideas with  anything that  works  in cases like this. is  there anything  u can do  to get  rid  of that  fluid  and  wax in ears or is  surgery the only option?  would  really  appreciate  your  ideas  on this  one. thanks

tahira

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yes he has no dairy , only rice milk. i just cant get why he has had this problem recur within a year . that is he had a grommet insertion before and he was great for six months but slowly the problem has crept back.

To: Autism-Biomedical-Europe Sent: Tue, 15 February, 2011 18:41:26Subject: Re: (unknown)

Is he CF? had over a year of ear infections and was supposed to have grommets fitted, removal of milk cured the ear infections. Milk can cause fluid build up in the ears.Vicky

(unknown)

hi, i am wondering if anyone could give me advice. i have just had my six yr son checked by the ENT consultant due to the frequent discomfort he was showing. Hr has found that he has fluid in both ears and advises that grommet insertion be repeated on him. does anyone have ideas with anything that works in cases like this. is there anything u can do to get rid of that fluid and wax in ears or is surgery the only option? would really appreciate your ideas on this one. thanks tahira

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Ear infections/glue ear are more common in the winter, grommets don't stop infections, they are to stop the ear drum perforating, has he caught a cold prior to the fluid build up?

Have you had allergy testing done? Milk is the main culprit but it's possible that something else could be causing this if you are already CF.

Vicky

(unknown)

hi, i am wondering if anyone could give me advice. i have just had my six yr son checked by the ENT consultant due to the frequent discomfort he was showing. Hr has found that he has fluid in both ears and advises that grommet insertion be repeated on him. does anyone have ideas with anything that works in cases like this. is there anything u can do to get rid of that fluid and wax in ears or is surgery the only option? would really appreciate your ideas on this one. thanks tahira

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Ear infections/glue ear are more common in the winter, grommets don't stop infections, they are to stop the ear drum perforating, has he caught a cold prior to the fluid build up?

Have you had allergy testing done? Milk is the main culprit but it's possible that something else could be causing this if you are already CF.

Vicky

(unknown)

hi, i am wondering if anyone could give me advice. i have just had my six yr son checked by the ENT consultant due to the frequent discomfort he was showing. Hr has found that he has fluid in both ears and advises that grommet insertion be repeated on him. does anyone have ideas with anything that works in cases like this. is there anything u can do to get rid of that fluid and wax in ears or is surgery the only option? would really appreciate your ideas on this one. thanks tahira

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try opening up his probiotics capsules before giving them to him (this

is advice from Jean) the mouth is near the ears - in a capsule we are

hoping that they'll make it through the stomach acid to the gut. The

probiotic bacteria will hopefully fight the infection - I don't know if

it will be enough.

Sara x

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  • 1 month later...
Guest guest

Hi TahiraI have heard that the circulation device , costs about £200 is very good, as is TST... Also electro magnetic resonance systems are good too, though the system is much more expensive... mine cost £3k..

Best WishesTracey

 

hi,

   Could  anyone  that has  been through a  family member having stroke or  symptoms  associated with  suggest  techniques  at home  that  can be helpful for the person. i have  heard of  circulation  boosting  devices  on the  market. The person concerned has  artherosclerosis  on both carotids and feels   very weak, unable to move a lot. any ideas welcome. thanks tahira

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Hi Tahira,have a look at Vinpocetine (periwinkle flower extract):Acute and Chronic effects of Vinpocetine on Cerebral Hemodynamics and Neuropsychological Performance in Multi-infarct Patients.J Clin Pharmacol. 2005 September.Twenty-six patients (17 men, 9 women) with multiple cerebral infarctions, aged between 50 and 83 years were examined, 14 of whom received vinpocetine and 12 placebo. Three months later, the vinpocetine patients did not show any significant worsening in digit span backward test, while the placebo group did. No other significant differences in the neuropsychological test could be detected between the treatment and the placebo groups. Longer lasting and higher dosage of therapy is suggested to prove its potential

effect.Asymptomatic ischemic cerebrovascular disorders and neuroprotection with vinpocetine.Ideggyogy Sz. 2003 May 20.Vinpocetine has been found to interfere with various stages of the ischemic cascade: ATP depletion, activation of voltage-sensitive Na(+)- and Ca(++)-channels, glutamate and free radicals release. The inhibition of the voltage-sensitive Na(+)-channels appears to be especially relevant to its neuroprotective effect. Pronounced antioxidant activity of the drug could also contribute to the neuroprotection. PET studies in primates and man showed that 11C labelled vinpocetine passes the blood-brain barrier rapidly. Heterogeneous brain distribution of the compound was observed mainly in the thalamus, basal ganglia, occipital, parietal and temporal cortex, regions which are closely related to the cognitive functions. PET studies in chronic ischemic stroke patients

revealed favourable effects of vinpocetine on rCBF and glucose metabolism in the thalamus, basal ganglia and primary visual cortex. It seems, vinpocetine could be of benefit for the treatment in this early stage of cerebrovascular disease and may also become a new therapeutic approach to prophylactic neuroprotection in patients at high risk of ischemic stroke.and Siberian Ginseng (see: http://www.umm.edu/altmed/articles/siberian-ginseng-000250.htm).Both affect cerebral blood flow, but Siberian Ginseng also affects clotting so could also increase the possibility of further bleeds.I am not making any strong claims for either, but they may be worth exploring further.Ken Subject: (unknown)To: Autism-Biomedical-Europe Date: Monday, 4 April, 2011, 11:56

hi,

Could anyone that has been through a family member having stroke or symptoms associated with suggest techniques at home that can be helpful for the person. i have heard of circulation boosting devices on the market. The person concerned has artherosclerosis on both carotids and feels very weak, unable to move a lot. any ideas welcome. thanks tahira

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Hi, do you have any names to both these devices , i just dont want to buy any brands that may not be effective?

To: Autism-Biomedical-Europe Sent: Mon, 4 April, 2011 12:11:46Subject: Re: (unknown)

Hi Tahira

I have heard that the circulation device , costs about £200 is very good, as is TST... Also electro magnetic resonance systems are good too, though the system is much more expensive... mine cost £3k..

Best Wishes

Tracey

hi,

Could anyone that has been through a family member having stroke or symptoms associated with suggest techniques at home that can be helpful for the person. i have heard of circulation boosting devices on the market. The person concerned has artherosclerosis on both carotids and feels very weak, unable to move a lot. any ideas welcome. thanks tahira

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thanks for that, sounds very good. do you know where i can get this from aswell as advice about it perhaps? thks tahira

To: Autism-Biomedical-Europe Sent: Mon, 4 April, 2011 12:17:31Subject: Re: (unknown)

Hi Tahira,

have a look at Vinpocetine (periwinkle flower extract):

Acute and Chronic effects of Vinpocetine on Cerebral Hemodynamics and Neuropsychological Performance in Multi-infarct Patients.

J Clin Pharmacol. 2005 September.

Twenty-six patients (17 men, 9 women) with multiple cerebral infarctions, aged between 50 and 83 years were examined, 14 of whom received vinpocetine and 12 placebo. Three months later, the vinpocetine patients did not show any significant worsening in digit span backward test, while the placebo group did. No other significant differences in the neuropsychological test could be detected between the treatment and the placebo groups. Longer lasting and higher dosage of therapy is suggested to prove its potential effect.

Asymptomatic ischemic cerebrovascular disorders and neuroprotection with vinpocetine.

Ideggyogy Sz. 2003 May 20.

Vinpocetine has been found to interfere with various stages of the ischemic cascade: ATP depletion, activation of voltage-sensitive Na(+)- and Ca(++)-channels, glutamate and free radicals release. The inhibition of the voltage-sensitive Na(+)-channels appears to be especially relevant to its neuroprotective effect. Pronounced antioxidant activity of the drug could also contribute to the neuroprotection. PET studies in primates and man showed that 11C labelled vinpocetine passes the blood-brain barrier rapidly. Heterogeneous brain distribution of the compound was observed mainly in the thalamus, basal ganglia, occipital, parietal and temporal cortex, regions which are closely related to the cognitive functions. PET studies in chronic ischemic stroke patients revealed favourable effects of vinpocetine on rCBF and glucose metabolism in the thalamus, basal ganglia and primary visual cortex. It seems, vinpocetine could be of benefit for the treatment in

this early stage of cerebrovascular disease and may also become a new therapeutic approach to prophylactic neuroprotection in patients at high risk of ischemic stroke.

and Siberian Ginseng

(see: http://www.umm.edu/altmed/articles/siberian-ginseng-000250.htm).

Both affect cerebral blood flow, but Siberian Ginseng also affects clotting so could also increase the possibility of further bleeds.

I am not making any strong claims for either, but they may be worth exploring further.

Ken

Subject: (unknown)To: Autism-Biomedical-Europe Date: Monday, 4 April, 2011, 11:56

hi,

Could anyone that has been through a family member having stroke or symptoms associated with suggest techniques at home that can be helpful for the person. i have heard of circulation boosting devices on the market. The person concerned has artherosclerosis on both carotids and feels very weak, unable to move a lot. any ideas welcome. thanks tahira

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There is a 'Higher Nature' Periwinkle Extract (10mg tabs) and a liquid extract (Herba Naturelle) available in the UK, various other available from the US. Lots of different Siberian ginseng preparations available.There is a fair bit of information in he Alternative Meds material on ADHD.Ken

Subject: (unknown)To: Autism-Biomedical-Europe Date: Monday, 4 April, 2011, 11:56

hi,

Could anyone that has been through a family member having stroke or symptoms associated with suggest techniques at home that can be helpful for the person. i have heard of circulation boosting devices on the market. The person concerned has artherosclerosis on both carotids and feels very weak, unable to move a lot. any ideas welcome. thanks tahira

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If you want vinpocetine Tahira, i get mine from Swansons on Amazon.

http://www.amazon.co.uk/Swanson-Herb-Vinpocetine-10mg-Cap/dp/B0026C587A/ref=sr_1\

_1?ie=UTF8 & qid=1301919900 & sr=8-1

Kirsty

x

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> Subject: (unknown)

> To: Autism-Biomedical-Europe

> Date: Monday, 4 April, 2011, 11:56

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> hi,

>    Could  anyone  that has  been through a  family member having stroke

or  symptoms  associated with  suggest  techniques  at home  that  can be

helpful for the person. i have  heard of  circulation  boosting  devices 

on the  market. The person concerned has  artherosclerosis  on both carotids

and feels   very weak, unable to move a lot. any ideas welcome. thanks tahira

>

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Guest guest

Health Monthly sell the Swansons one for the same price as Amazon, but you get 10% discount as a TA member, also postage is free if you spend over £40.http://www.healthmonthly.co.uk/swanson_herb_vinpocetine?category_id=0 & search_string=vinpocetineThey also do a very strong 30 mg one, which is a bit more expensive.http://www.healthmonthly.co.uk/swanson_herbs_tri-str_vinpocetine?category_id=0 & search_string=vinpocetineJoanne--- In Autism-Biomedical-Europe , "greenkirsty1" wrote:>> If you want vinpocetine Tahira, i get mine from Swansons on Amazon.> http://www.amazon.co.uk/Swanson-Herb-Vinpocetine-10mg-Cap/dp/B0026C587A/ref=sr_1_1?ie=UTF8 & qid=1301919900 & sr=8-1> > Kirsty> x> > > > > > From: tahira sufi tahirasufi@> > Subject: (unknown)> > To: Autism-Biomedical-Europe > > Date: Monday, 4 April, 2011, 11:56> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > hi,> >   Could anyone that has been through a family member having stroke or symptoms associated with suggest techniques  at home that can be helpful for the person. i have heard of circulation boosting devices on the market. The person concerned has artherosclerosis on both carotids and feels  very weak, unable to move a lot. any ideas welcome. thanks tahira> >>

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Guest guest

hi tahira i get my vimpocetine [ periwinkle extract 10mg higher nature] from

nutri centre 20% off for TA members at the nutri centre, i give half a cap am

and pm Isobel

> > >

> > > From: tahira sufi tahirasufi@

> > > Subject: (unknown)

> > > To: Autism-Biomedical-Europe

> > > Date: Monday, 4 April, 2011, 11:56

> > >

> > >

> > >

> > >

> > >

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> > >

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> > > hi,

> > >   Could anyone that has been through aÂ

> family member having stroke or symptoms associated withÂ

> suggest techniques  at home that can be helpful for

> the person. i have heard of circulation boostingÂ

> devices on the market. The person concerned hasÂ

> artherosclerosis on both carotids and feels  very weak,

> unable to move a lot. any ideas welcome. thanks tahira

> > >

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Guest guest

thanks i will keep this in mind although he has not had a significant stroke but rather is feeling symptoms due to the high level of blockage in the carotids maybe?

To: Autism-Biomedical-Europe Sent: Mon, 4 April, 2011 18:19:13Subject: (unknown)

I recommend reading A Diary of A Stroke by - he recovered because his mother in law helped him massively by making him practice lost skills. It's important to start as soon as possible after the stroke.Margaret>> hi,> Could anyone that has been through a family member having stroke or > symptoms associated with suggest techniques at home that can be helpful > for the person. i have heard of circulation boosting devices on the > market. The person concerned has artherosclerosis on both carotids and feels

> very weak, unable to move a lot. any ideas welcome. thanks tahira>

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Guest guest

do you feel the vinpocetine has brought good effects, is it eay to give with the other supps or need it be given separately? you mentioned mayyonaise scd legal , can you name one mayonnaise and where i can get it from . thks a lot tahira

To: Autism-Biomedical-Europe Sent: Mon, 4 April, 2011 13:25:20Subject: Re: (unknown)

If you want vinpocetine Tahira, i get mine from Swansons on Amazon.http://www.amazon.co.uk/Swanson-Herb-Vinpocetine-10mg-Cap/dp/B0026C587A/ref=sr_1_1?ie=UTF8 & qid=1301919900 & sr=8-1Kirstyx--- In Autism-Biomedical-Europe , KEN AITKEN wrote:>> Hi Tahira,> have a look at Vinpocetine (periwinkle flower extract):> Acute and Chronic effects of Vinpocetine on Cerebral Hemodynamics and Neuropsychological Performance in Multi-infarct Patients.J Clin Pharmacol. 2005 September.> Twenty-six patients (17 men, 9 women) with multiple cerebral infarctions,

aged between 50 and 83 years were examined, 14 of whom received vinpocetine and 12 placebo. Three months later, the vinpocetine patients did not show any significant worsening in digit span backward test, while the placebo group did. No other significant differences in the neuropsychological test could be detected between the treatment and the placebo groups. Longer lasting and higher dosage of therapy is suggested to prove its potential effect.> Asymptomatic ischemic cerebrovascular disorders and neuroprotection with vinpocetine.> Ideggyogy Sz. 2003 May 20.> Vinpocetine has been found to interfere with various stages of the ischemic cascade: ATP depletion, activation of voltage-sensitive Na(+)- and Ca(++)-channels, glutamate and free radicals release. The inhibition of the voltage-sensitive Na(+)-channels appears to be especially relevant to its neuroprotective effect. Pronounced antioxidant activity of the drug could also

contribute to the neuroprotection. PET studies in primates and man showed that 11C labelled vinpocetine passes the blood-brain barrier rapidly. Heterogeneous brain distribution of the compound was observed mainly in the thalamus, basal ganglia, occipital, parietal and temporal cortex, regions which are closely related to the cognitive functions. PET studies in chronic ischemic stroke patients revealed favourable effects of vinpocetine on rCBF and glucose metabolism in the thalamus, basal ganglia and primary visual cortex. It seems, vinpocetine could be of benefit for the treatment in this> early stage of cerebrovascular disease and may also become a new therapeutic approach to prophylactic neuroprotection in patients at high risk of ischemic stroke.> and Siberian Ginseng > (see: http://www.umm.edu/altmed/articles/siberian-ginseng-000250.htm).> Both affect cerebral blood flow, but Siberian Ginseng also affects clotting so could also increase the possibility of further bleeds.> I am not making any strong claims for either, but they may be worth exploring further.> Ken > > > > Subject: (unknown)> To: Autism-Biomedical-Europe > Date: Monday, 4 April, 2011, 11:56> > > > > > > > > > > > > > > > >  > > > >

> > > > > > hi,>   Could anyone that has been through a family member having stroke or symptoms associated with suggest techniques  at home that can be helpful for the person. i have heard of circulation boosting devices on the market. The person concerned has artherosclerosis on both carotids and feels  very weak, unable to move a lot. any ideas welcome. thanks tahira>

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Guest guest

hello, do you know who supplies the liquid extract of periwinkle you mentioned in the uk? do you feel an elderly person with stroke like symptoms who is on an anticoagulant should s tart taking this at the lower dose and it shoul be done under supervision of what kind of practitioner? thks tahira

To: Autism-Biomedical-Europe Sent: Mon, 4 April, 2011 13:18:05Subject: Re: (unknown)

There is a 'Higher Nature' Periwinkle Extract (10mg tabs) and a liquid extract (Herba Naturelle) available in the UK, various other available from the US.

Lots of different Siberian ginseng preparations available.

There is a fair bit of information in he Alternative Meds material on ADHD.

Ken

Subject: (unknown)To: Autism-Biomedical-Europe Date: Monday, 4 April, 2011, 11:56

hi,

Could anyone that has been through a family member having stroke or symptoms associated with suggest techniques at home that can be helpful for the person. i have heard of circulation boosting devices on the market. The person concerned has artherosclerosis on both carotids and feels very weak, unable to move a lot. any ideas welcome. thanks tahira

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