Guest guest Posted June 1, 2004 Report Share Posted June 1, 2004 Carey, Welcome to the group...... You are not alone so please speak up and connect with all of us. I have found a great support in the few short weeks I have been on Stilligan's Island.. Welcome :) :) HUGS and SNUGGLES Tracilyn Tracilyn -Brown Southern land Nanabugg inching my way through Family History Always searching for the missing link in my family -----Original Message-----From: mncnotenuftime@... Sent: Tuesday, June 01, 2004 10:23 PMTo: Stillsdisease Subject: (unknown)Hi everyone... I was recently diagnosed with Stills in March 2004. I've been hesitating on writing in. Looking for some mental support with this. I'm currently taking celebrex 200mgs twice a day, prednisone 20 mgs, lexapro 10mgs and I am on my third week of enbrel injections. -- CareyVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hello there Carey welcome to The Island EH!! Heh its fine to roam,but glad you posted(maybe you could also tell us little more about your exsperience too cause were all so different with Stills).I havent tried Celebrex but im on a similar drug Vioxx and i know without it i have more pain,also im back on low-dose pred 5mgs but have been up to 60 mgs,im also on methotextrate 15 mgs per week(this the drug that has been most successful for me although doesnt work overnite took me 4 weeks see results).Nice to see you have started with Enbrel hope it works know it does wonders for others here .Im sure you will find alot of understanding & support here. Take care. d.Canada (unknown) Hi everyone... I was recently diagnosed with Stills in March 2004. I've been hesitating on writing in. Looking for some mental support with this. I'm currently taking celebrex 200mgs twice a day, prednisone 20 mgs, lexapro 10mgs and I am on my third week of enbrel injections. -- CareyVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Carey, Welcome to this support group. I am glad you decided to join us! We can give you what you are looking for..*some* mental support. There are times though when a person needs more "mental support" that we can give., although I do think that you will feel much better in "talking" with others who share the same disease label as yourself. That being "Stills Disease." I take Celebrex also and it truly helps relieve daily aching all over from Fibromyalgia in my case. I have had Stills for so many years that it has sort of burned itself out. I also take Medrol ( a steroid) 8 mgs. The Lexipro is a wonderful med in my opinion. I was taking it for several months but had to quit due to severe sweating at night. Am hoping to try it again real soon. Well Carey, I know you will be happy you are with this suppport group. This group is wonderful! They have become my second family, and will become yours too if you'd like. Hope the Enbrel helps you feel better soon! How about telling us where you live and maybe a little about your family and hobbies etc. We care! From Wisconsin, Tricia (unknown) Hi everyone... I was recently diagnosed with Stills in March 2004. I've been hesitating on writing in. Looking for some mental support with this. I'm currently taking celebrex 200mgs twice a day, prednisone 20 mgs, lexapro 10mgs and I am on my third week of enbrel injections. -- Carey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Carey, Welcome, and you need all the mental support you can get. This is the best place to get it. This is hard to deal with but it does get easier. Feel free to ask any questions. Lynn (unknown) > > Hi everyone... I was recently diagnosed with Stills in March 2004. I've been hesitating on writing in. Looking for some mental support with this. I'm currently taking celebrex 200mgs twice a day, prednisone 20 mgs, lexapro 10mgs and I am on my third week of enbrel injections. > -- > Carey > > > > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. > > ion by any person following the information offered or provided within this support form. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Greetings, Carey! Welcome! We're glad you're here! This group is very supportive with a wide range of experiences to share. And always remember, you're not alone! I was fairly lucky as far as my Onset, Diagnosis, Treatment time frame is concerned. I was hospitalized at the beginning of February, 2004 after nearly every joint in my body became inflamed, followed by pleuracy and pericarditis. By the 3rd week of Feb. I had undergone Thoracic surgery to retrieve biopsy material. It was during this surgery that the extent of my internal inflamation was discovered (primarily heart and lung tissue). I received my Still's diagnosis within a day or 2 of the surgery. I am currently on the follwing medications: Prednisone - 20mg daily, Prilosac, Folic Acid, Methotrexate (MTX) - 20mg weekly, Naprosyn - 1500mg daily, Atenolol - 50mg daily, and Benadryl. I also take the following vitamins/minerals: Calcium - 1800mg daily, Magnesium - 1000mg daily, Vitamin B12 - 6000mcg daily, Vitamin C - 3000mg daily, Flax Oil - 3000mg daily, I, too, have experienced all of the symptoms you've mentioned. The mistake I made was not educating myself regarding the complexity of this illness, and it's potential duration. As far as I know, Still's is here to stay, but whether it's active or not is another question. It is possible to enter a remission stage that could last for years. Conversly, the active afflictions of Still's can persist as long, if not longer. It's a "here today, gone tomorrow (maybe)" kind of disease. As I mentioned, I was diagnosed earlier this year, so I am light on experiences to share. The other mistake I made was expecting that I could be "healed" within a few months. This didn't happen, and I set myself up for a big let-down. The best advice I can give - make a big list of questions for your Rheumatologist to ask, and hopefully have answered, at your next appt. Also, get a second opinion. I had the good fortune to get examined by the Chief Of Rheumatology at the S. Middleton Hospital in Madison, WI. Since I began seeing him, my condition has improved. I had been plagued for a long time with depression, before and after my diagnosis. I was considering the visit to Jesus thing, but through patience, praying, support groups, and the Grace of God, I'm still here, and I'm beginning to understand why. It's amazing how easy it is to SEE God when we look for him, and the more I listen, the more I understand that my experiences are necessary to aid me in my support of others. God isn't picking on any one of us - He sees in us strength and fortitude that is difficult (but not impossible) for us to see in ourselves. I believe that we all have a purpose, but suffering is not on that list. Though we may have difficulties to overcome, somewhere someone has it worse, and it's important for me to remember that. It's also important to remember that God puts obstacles in front of us to make us stronger, not to knock us down or out. I'm a member of several different support groups, and I've learned that the only way I can keep what I have is by giving it away - meaning, the only way I can keep faith, for example, is by convincing others that there is a reason to have it. I'm living proof that there is a reason to have faith, and so are you! Another thing that has been tremendously beneficial for me is writing, journaling my daily thoughts, feelings, sadness, happiness, frustrations, etc. I have a terrible memory and an overactive imagination - bad combination - so writing helps me sort things out so I can see things (literally) in black and white, and keep eveything real. Writing also is a good stress reliever, which may help in stablizing your menstrual cycle. I firmly believe that God intended us to rely on each other to survive, and also to make the world a better place to be. It's up to us to make that happen. God Bless, and keep smiling (people will wonder what you're up to <grins>)! Best of Luck to you! Randal ----Original Message Follows---- From: mncnotenuftime@... Reply-To: Stillsdisease To: Stillsdisease Subject: (unknown) Date: Tue, 01 Jun 2004 22:22:48 -0400 Hi everyone... I was recently diagnosed with Stills in March 2004. I've been hesitating on writing in. Looking for some mental support with this. I'm currently taking celebrex 200mgs twice a day, prednisone 20 mgs, lexapro 10mgs and I am on my third week of enbrel injections. Carey FREE pop-up blocking with the new MSN Toolbar – get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Greetings, Carey! Welcome! We're glad you're here! This group is very supportive with a wide range of experiences to share. And always remember, you're not alone! I was fairly lucky as far as my Onset, Diagnosis, Treatment time frame is concerned. I was hospitalized at the beginning of February, 2004 after nearly every joint in my body became inflamed, followed by pleuracy and pericarditis. By the 3rd week of Feb. I had undergone Thoracic surgery to retrieve biopsy material. It was during this surgery that the extent of my internal inflamation was discovered (primarily heart and lung tissue). I received my Still's diagnosis within a day or 2 of the surgery. I am currently on the follwing medications: Prednisone - 20mg daily, Prilosac, Folic Acid, Methotrexate (MTX) - 20mg weekly, Naprosyn - 1500mg daily, Atenolol - 50mg daily, and Benadryl. I also take the following vitamins/minerals: Calcium - 1800mg daily, Magnesium - 1000mg daily, Vitamin B12 - 6000mcg daily, Vitamin C - 3000mg daily, Flax Oil - 3000mg daily, I, too, have experienced all of the symptoms you've mentioned. The mistake I made was not educating myself regarding the complexity of this illness, and it's potential duration. As far as I know, Still's is here to stay, but whether it's active or not is another question. It is possible to enter a remission stage that could last for years. Conversly, the active afflictions of Still's can persist as long, if not longer. It's a "here today, gone tomorrow (maybe)" kind of disease. As I mentioned, I was diagnosed earlier this year, so I am light on experiences to share. The other mistake I made was expecting that I could be "healed" within a few months. This didn't happen, and I set myself up for a big let-down. The best advice I can give - make a big list of questions for your Rheumatologist to ask, and hopefully have answered, at your next appt. Also, get a second opinion. I had the good fortune to get examined by the Chief Of Rheumatology at the S. Middleton Hospital in Madison, WI. Since I began seeing him, my condition has improved. I had been plagued for a long time with depression, before and after my diagnosis. I was considering the visit to Jesus thing, but through patience, praying, support groups, and the Grace of God, I'm still here, and I'm beginning to understand why. It's amazing how easy it is to SEE God when we look for him, and the more I listen, the more I understand that my experiences are necessary to aid me in my support of others. God isn't picking on any one of us - He sees in us strength and fortitude that is difficult (but not impossible) for us to see in ourselves. I believe that we all have a purpose, but suffering is not on that list. Though we may have difficulties to overcome, somewhere someone has it worse, and it's important for me to remember that. It's also important to remember that God puts obstacles in front of us to make us stronger, not to knock us down or out. I'm a member of several different support groups, and I've learned that the only way I can keep what I have is by giving it away - meaning, the only way I can keep faith, for example, is by convincing others that there is a reason to have it. I'm living proof that there is a reason to have faith, and so are you! Another thing that has been tremendously beneficial for me is writing, journaling my daily thoughts, feelings, sadness, happiness, frustrations, etc. I have a terrible memory and an overactive imagination - bad combination - so writing helps me sort things out so I can see things (literally) in black and white, and keep eveything real. Writing also is a good stress reliever, which may help in stablizing your menstrual cycle. I firmly believe that God intended us to rely on each other to survive, and also to make the world a better place to be. It's up to us to make that happen. God Bless, and keep smiling (people will wonder what you're up to <grins>)! Best of Luck to you! Randal ----Original Message Follows---- From: mncnotenuftime@... Reply-To: Stillsdisease To: Stillsdisease Subject: (unknown) Date: Tue, 01 Jun 2004 22:22:48 -0400 Hi everyone... I was recently diagnosed with Stills in March 2004. I've been hesitating on writing in. Looking for some mental support with this. I'm currently taking celebrex 200mgs twice a day, prednisone 20 mgs, lexapro 10mgs and I am on my third week of enbrel injections. Carey FREE pop-up blocking with the new MSN Toolbar – get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Welcome Carey; My nickname is Pattymelt and several forms thereof. I know it is so difficult to adjust to the idea of a chronic illness. My suggestion would be to tell your doctors how you are feeling emotionally as well as physically because it all plays a part with this disease. Good luck dear and know we are here for you anytime. Smiles, Melt ----- Original Message ----- > > Hi everyone... I was recently diagnosed with Stills in March 2004. I've been hesitating on writing in. Looking for some mental support with this. I'm currently taking celebrex 200mgs twice a day, prednisone 20 mgs, lexapro 10mgs and I am on my third week of enbrel injections. > -- > Carey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Carey, Welcome - this is truly a wonderful group of people. I, too, am new to the group (about 4 weeks), but I'm not new to Stills. I was diagnosed in Aug 1997 and have been living with good and bad times since. You will find a great deal of information as well as support here. Tell us a little about yourself - where are you from, age, married, kids, interests? I'm from Quakertown, PA (about an hour northwest of Philadelphia). I'm newly 40 (just turned 40 about 10 days ago - what a bummer on top of feeling like my body is falling apart!) - I'm married and have one son who is 11. When I was feeling good my favorite thing to do was play ice hockey (I played on a womens team and no, we didn't check eachother into the boards!). Right now the body is not cooperating and I've resigned myself to the idea that hockey is out of the question for quite awhile. I like to scrapbook and I'm still working part time at an elementary school in learning support. I'm looking forward to vacation (only 9 1/2 more days) I need to get some rest - each day it is more difficult to get going. I've been on lots of medications currently Prednisone, Naproxen, Plaquinel, and two weeks ago I began Methotrexate. I know it is supposed to take time for the effects of the Methotrexate to kick in, but I'm not a patient person and I'm hoping everyday for some relief from the fever and pain. Know that you are not alone. I'm glad you found this group so soon - I wish I had found this support sooner. For a long time I felt very alone. Take care. Peggy (unknown) > > Hi everyone... I was recently diagnosed with Stills in March 2004. I've been hesitating on writing in. Looking for some mental support with this. I'm currently taking celebrex 200mgs twice a day, prednisone 20 mgs, lexapro 10mgs and I am on my third week of enbrel injections. > -- > Carey > > > > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. > > ion by any person following the information offered or provided within this support form. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Carey, Welcome - this is truly a wonderful group of people. I, too, am new to the group (about 4 weeks), but I'm not new to Stills. I was diagnosed in Aug 1997 and have been living with good and bad times since. You will find a great deal of information as well as support here. Tell us a little about yourself - where are you from, age, married, kids, interests? I'm from Quakertown, PA (about an hour northwest of Philadelphia). I'm newly 40 (just turned 40 about 10 days ago - what a bummer on top of feeling like my body is falling apart!) - I'm married and have one son who is 11. When I was feeling good my favorite thing to do was play ice hockey (I played on a womens team and no, we didn't check eachother into the boards!). Right now the body is not cooperating and I've resigned myself to the idea that hockey is out of the question for quite awhile. I like to scrapbook and I'm still working part time at an elementary school in learning support. I'm looking forward to vacation (only 9 1/2 more days) I need to get some rest - each day it is more difficult to get going. I've been on lots of medications currently Prednisone, Naproxen, Plaquinel, and two weeks ago I began Methotrexate. I know it is supposed to take time for the effects of the Methotrexate to kick in, but I'm not a patient person and I'm hoping everyday for some relief from the fever and pain. Know that you are not alone. I'm glad you found this group so soon - I wish I had found this support sooner. For a long time I felt very alone. Take care. Peggy (unknown) > > Hi everyone... I was recently diagnosed with Stills in March 2004. I've been hesitating on writing in. Looking for some mental support with this. I'm currently taking celebrex 200mgs twice a day, prednisone 20 mgs, lexapro 10mgs and I am on my third week of enbrel injections. > -- > Carey > > > > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. > > ion by any person following the information offered or provided within this support form. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Randal, Goes to show how much things have changed over the years, and how far the doctor's have come with diagnosing AOSD. I was a patient at Madison University Hospital in Madison....way back in the 70's, and they had no clue (even after a zillion "wonky" tests and weeks of it too. Mixed tissue disease was the best they could come up with. Sooooo happy the diagnoses are being made so soon, as that gives the patient a better chance of knocking the "dragon" for a loop before a lot of damage is done. Do you live in Wisconsin then Randal?? Wisconsin, Tricia p.s. For , Marilyn & Carmen...will e-mail later today.. -- RE: (unknown) Greetings, Carey! The best advice I can give - make a big list of questions for your Rheumatologist to ask, and hopefully have answered, at your next appt. Also, get a second opinion. I had the good fortune to get examined by the Chief Of Rheumatology at the S. Middleton Hospital in Madison, WI. Since I began seeing him, my condition has improved. God Bless, and keep smiling (people will wonder what you're up to <grins>)! Best of Luck to you! Randal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Randal, Goes to show how much things have changed over the years, and how far the doctor's have come with diagnosing AOSD. I was a patient at Madison University Hospital in Madison....way back in the 70's, and they had no clue (even after a zillion "wonky" tests and weeks of it too. Mixed tissue disease was the best they could come up with. Sooooo happy the diagnoses are being made so soon, as that gives the patient a better chance of knocking the "dragon" for a loop before a lot of damage is done. Do you live in Wisconsin then Randal?? Wisconsin, Tricia p.s. For , Marilyn & Carmen...will e-mail later today.. -- RE: (unknown) Greetings, Carey! The best advice I can give - make a big list of questions for your Rheumatologist to ask, and hopefully have answered, at your next appt. Also, get a second opinion. I had the good fortune to get examined by the Chief Of Rheumatology at the S. Middleton Hospital in Madison, WI. Since I began seeing him, my condition has improved. God Bless, and keep smiling (people will wonder what you're up to <grins>)! Best of Luck to you! Randal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Tricia! I live almost DIRECTLY on top of the Wisconsin/Illinois stateline, about 45 minutes south of Madison, in the bustling Metroplis (HA) of Beloit. Quiet little town - I like quiet Where are you located? Near the Dakota's? See ya! Randal Reply-To: Stillsdisease To: <Stillsdisease > Subject: RE: (unknown) Date: Wed, 2 Jun 2004 13:53:30 -0500 (Central Standard Time) Hi Randal, Goes to show how much things have changed over the years, and how far the doctor's have come with diagnosing AOSD. I was a patient at Madison University Hospital in Madison....way back in the 70's, and they had no clue (even after a zillion "wonky" tests and weeks of it too. Mixed tissue disease was the best they could come up with. Sooooo happy the diagnoses are being made so soon, as that gives the patient a better chance of knocking the "dragon" for a loop before a lot of damage is done. Do you live in Wisconsin then Randal?? Wisconsin, Tricia p.s. For , Marilyn & Carmen...will e-mail later today.. -- RE: (unknown) Greetings, Carey! The best advice I can give - make a big list of questions for your Rheumatologist to ask, and hopefully have answered, at your next appt. Also, get a second opinion. I had the good fortune to get examined by the Chief Of Rheumatology at the S. Middleton Hospital in Madison, WI. Since I began seeing him, my condition has improved. God Bless, and keep smiling (people will wonder what you're up to <grins>)! Best of Luck to you! Randal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Tricia! I live almost DIRECTLY on top of the Wisconsin/Illinois stateline, about 45 minutes south of Madison, in the bustling Metroplis (HA) of Beloit. Quiet little town - I like quiet Where are you located? Near the Dakota's? See ya! Randal Reply-To: Stillsdisease To: <Stillsdisease > Subject: RE: (unknown) Date: Wed, 2 Jun 2004 13:53:30 -0500 (Central Standard Time) Hi Randal, Goes to show how much things have changed over the years, and how far the doctor's have come with diagnosing AOSD. I was a patient at Madison University Hospital in Madison....way back in the 70's, and they had no clue (even after a zillion "wonky" tests and weeks of it too. Mixed tissue disease was the best they could come up with. Sooooo happy the diagnoses are being made so soon, as that gives the patient a better chance of knocking the "dragon" for a loop before a lot of damage is done. Do you live in Wisconsin then Randal?? Wisconsin, Tricia p.s. For , Marilyn & Carmen...will e-mail later today.. -- RE: (unknown) Greetings, Carey! The best advice I can give - make a big list of questions for your Rheumatologist to ask, and hopefully have answered, at your next appt. Also, get a second opinion. I had the good fortune to get examined by the Chief Of Rheumatology at the S. Middleton Hospital in Madison, WI. Since I began seeing him, my condition has improved. God Bless, and keep smiling (people will wonder what you're up to <grins>)! Best of Luck to you! Randal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Randal, Sounds like a good place to live! We (hubby & myself) live not far from the Waupaca Chain of Lakes. We live about 5 miles out of town in the country. Two acres of our own little paradise. Do you have any pets? We have two dogs. They will be 3 July 6th. Someone dumped their mom off when she was pregnant. It's quite a long story, but we (with the help of a rescue group) did find good homes for the mom and the other pups. The one dog is ours, his name is Harley P. Hogg (named after the Harley Hogg no less) The other dog belongs to our 28 year old son, his name is Jupiter. We have two cats. Both were dumped off. One about 3 years ago. Her name is Kes. The other one was dumped off a few weeks ago. Her name is Puddy Tat KiKi. She looks like a little Sylvester cat. She had surgery this morning. We had her spayed , as we did Kes. I can't wait to pick her up tomorrow monring and bring her home! We got the dogs "fixed" also. I have a big gripe about people who don't get their animals spayed or neutered, and then when they are pregnant or have babies they "throw them away." Hoping you are having a good evening Randal! From Wisconsin also... Tricia -- RE: (unknown) Hi Tricia! I live almost DIRECTLY on top of the Wisconsin/Illinois stateline, about 45 minutes south of Madison, in the bustling Metroplis (HA) of Beloit. Quiet little town - I like quiet Where are you located? Near the Dakota's? See ya! Randal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 Hi Randal, Sounds like a good place to live! We (hubby & myself) live not far from the Waupaca Chain of Lakes. We live about 5 miles out of town in the country. Two acres of our own little paradise. Do you have any pets? We have two dogs. They will be 3 July 6th. Someone dumped their mom off when she was pregnant. It's quite a long story, but we (with the help of a rescue group) did find good homes for the mom and the other pups. The one dog is ours, his name is Harley P. Hogg (named after the Harley Hogg no less) The other dog belongs to our 28 year old son, his name is Jupiter. We have two cats. Both were dumped off. One about 3 years ago. Her name is Kes. The other one was dumped off a few weeks ago. Her name is Puddy Tat KiKi. She looks like a little Sylvester cat. She had surgery this morning. We had her spayed , as we did Kes. I can't wait to pick her up tomorrow monring and bring her home! We got the dogs "fixed" also. I have a big gripe about people who don't get their animals spayed or neutered, and then when they are pregnant or have babies they "throw them away." Hoping you are having a good evening Randal! From Wisconsin also... Tricia -- RE: (unknown) Hi Tricia! I live almost DIRECTLY on top of the Wisconsin/Illinois stateline, about 45 minutes south of Madison, in the bustling Metroplis (HA) of Beloit. Quiet little town - I like quiet Where are you located? Near the Dakota's? See ya! Randal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 HI Randal, I am Lynn and I live in Chippewa Falls,Wisconsin, about 2 hours East on Minneapolis, about 3 hours north of Madison on 94. Lynn RE: (unknown) Hi Tricia! I live almost DIRECTLY on top of the Wisconsin/Illinois stateline, about 45 minutes south of Madison, in the bustling Metroplis (HA) of Beloit. Quiet little town - I like quiet Where are you located? Near the Dakota's? See ya! Randal Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 HI Randal, I am Lynn and I live in Chippewa Falls,Wisconsin, about 2 hours East on Minneapolis, about 3 hours north of Madison on 94. Lynn RE: (unknown) Hi Tricia! I live almost DIRECTLY on top of the Wisconsin/Illinois stateline, about 45 minutes south of Madison, in the bustling Metroplis (HA) of Beloit. Quiet little town - I like quiet Where are you located? Near the Dakota's? See ya! Randal Visit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Hey there, Lynn! We're not too far away from each other then, speaking in national terms Minneapolis is about 5 hours north of here. I'm thinking that since it's JUNE it should really start getting WARM outside. I'm a summer person totally! Randal Reply-To: Stillsdisease To: <Stillsdisease > Subject: Re: (unknown) Date: Thu, 3 Jun 2004 07:09:38 -0500 HI Randal, I am Lynn and I live in Chippewa Falls,Wisconsin, about 2 hours East on Minneapolis, about 3 hours north of Madison on 94. Lynn RE: (unknown) Hi Tricia! I live almost DIRECTLY on top of the Wisconsin/Illinois stateline, about 45 minutes south of Madison, in the bustling Metroplis (HA) of Beloit. Quiet little town - I like quiet Where are you located? Near the Dakota's? See ya! Randal Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Hey there, ! I heard they only have 2 things in Oregon (or is it Nebraska?) - I bet you've heard that joke plenty of times. Actually, I hear it's beautiful country in Oregon. What's your opinion, being a resident Oregonian and all Randal From: EVELYN COVERT Reply-To: Stillsdisease To: Stillsdisease Subject: RE: (unknown) Date: Wed, 2 Jun 2004 19:17:47 -0700 (PDT) Hi Randal! I am located in dear ol oregon, lincoln city to be exact.unfortunately it's anything but quiet. _________________________________________________________________ MSN 9 Dial-up Internet Access fights spam and pop-ups – now 3 months FREE! http://join.msn.click-url.com/go/onm00200361ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Thank you for your positive story...jchepc wrote: I appoligize for taking so long to respond, lately I only check my email 1 or 2 times a week, too tired. I do not feel bad immediately. About 2 to 3 hours after the injection, I feel like I have the flu. I am exhausted all the time.Last night was injection #41 HOOO WHOOOO!!! Only 7 more to go. I am almost there. I rarely leave the house on Sat. & Sun. I just don't feel like it. I usually lay around and sleep off and on all day. It is hard to go back to work every Monday, but by Wednesday I usually feel better. You can do it. The virus is negative in my body at this point. I have also lost 36 pounds. I needed to loose the wieght.JudyHello Everyone,My name is Judy. I have been on treatment for 40 weeks. I didn't think that I would get this far. If I can do it you can too. I have had ALL of the side effects listed and some that are not. The last 3 weeks or so, the side effects have increased. I have 8 more injections, Thank GOD!!! I am almost done.Judy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2010 Report Share Posted October 7, 2010 Wow, that is great Jen. Please post some before/after pics, I'll be there is a big difference! So, what exactly got everything moving in the right direction? Was it the steroids? I know that inflammation in the body can do all sorts of bad things and maybe getting rid of the inflammation put your body back on track?Anyway - glad to hear of the good results!Donna To: BeWellandFit-YAHOO-Group <BeWellandFit >; Biggest Losers - Losing Weight Together <Biggest-Losers-Losing-Weight-Together >; Exercise-Accountability <exercise_accountability >; Exercise-Videos <exercisevideos >; FightingFatFeelingFit-Yahoo-Group <Fighting-Fat-Feeling-Fit >; Get-Fit-Stay-Fit-YAHOO-Group <GetFitStayFitTheChallenge >; GetHealthyFollowBobGreenesTIPS <GetHealthyFollowBobGreenesTIPS >; On-the-Lighter-Side-YahooGroup <On_the_Lighter_Side >; selfchallenge02 ; The 20 60 Challenge group on Yahoo <The2060Challenge >; TotalBodyMakeoverYourWay ; volleyjenwlc2004@...; WalkingForExerciseAndWeightLoss ; wlcmichigan Sent: Thu, October 7, 2010 11:55:11 AMSubject: (unknown) Since July 12th, I figured out that I've lost on average 3.8 lbs a week! WOW, it's fun losing weight and TONS of inches. I should have my mom take a couple of pictures of me and show you guys. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2010 Report Share Posted October 7, 2010 yes, if you post before and after pics perhaps I can put them on the home page?  Wow, that is great Jen. Please post some before/after pics, I'll be there is a big difference! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2010 Report Share Posted November 7, 2010 Hi I've been to the nutricentre website and couldn't find xylitol there. uzma > > > > > > > > > > > hi, just wondering if anyone can recommend where to get xylitol > > > and s tevia sweetners at good price online. Also what the best > > > company online thru which can get discount on special food stuff like > > > gluten free , like it is possible with nutricentre. thanks tahira > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Nutri Centre and Cenaverde do Kirkman DMG, you can get discounts at both places if you are a member of Treating Autism Mx hi catherine, thanks for getting back yes i was told the carnosine was pricy , what about the dmg or l carnitine do you get them from somewhere? tahira To: Autism-Biomedical-Europe Sent: Fri, 28 January, 2011 11:55:00Subject: Re: (unknown) Hi Tahira - quality is v. important (since its made from meat) +Acetyl L-carnitine. I use Metabolics which is £22.02 for 60 (450mg per small cap) all the good ones are horribly expensive.This one barely has fillers. I've also used NutriCology 500mg per large cap but can't remember how much Nutricentre charges. To: autism-biomedical-europe Sent: Fri, 28 January, 2011 11:23:39Subject: (unknown) hi , I was wondering if anyone could advise where to get the DMG at best price,aswell as co Q10, acetyl carnatine and carnosine would really appreciate if s-one having bought this recently could guide, thanks tahira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 http://www.1stvitality.co.uk/az/carnosine/index.html found it here but never used these people Mx Tahira - Both of the Acetyl L-Carnitine brands come from Nutricentre. I have never used Carnosine so can't help you there. C Quote Link to comment Share on other sites More sharing options...
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