Medications and supplements

[Guest guest]

Lynn - ,

>> It is my life's ambition to get off of these

> drugs, and in fact I've cut the number of heart meds I take in half.

>Good going! There's so much evidence that CoQ10, L-carnitine and

possibly also hawthorn, can do as much as any ACE inhibitor can. I've

heard of people using doses up to 700 mg of Q10, but under a

physician's supervision, monitoring blood levels. Some people just

don't absorb it well and need lots more.

~~What's an ACE inhibitor?

Janice

[Guest guest]

Hello all ~

Just sharing my experience. In my health journey,

doctors have overmedicated me and caused me

un-necessary health crisis. Just because of " Standards,

or Statistics, inability to listen, or to treat on an individual

basis, or desire to learn, they put me on a whole list of drugs.

Ones that cause other organs to fail when not needed.

Because of those S and S, they never even bothered

to see if it was these drugs causing my organ failure.

They never even checked to see if there were other reasons

for my edema besides heart failure. It has taken 9 months being

off of those 3 different pills for my kidneys to calm down.

My physical symptoms of the kidney disease are calmer

and I hope that when I have another test that it will show

improvement in my GFR. I am hopeing that I have reversed

my kidney disease by stopping these drugs. I no longer

am up every 30 minutes peeing at night. This is huge for me.

I also havent been having the kidney pain as often, which is

huge for me as well. The bladder spasms are also better, and

this is awesome. All this goodness with my kidneys is new...

Just know that sometimes it takes months before you see

an improvement on something. Always trust and follow your

gut.

Getting on meds/supplements, and getting off ofthem

sometimes takes going very slowly so you can see what

kind of longterm reaction you are going to have.

Love you all ~ Dede

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Darling Dede:

Thank you for sharing your experiences, because we have all learned so much from you. It is heartbreaking that you have had to go through all of this pain. Your journey has been one that we will never forget, and you are one lady who will make sure that we never forget you.

Honey, this should be sent to all of the stupid doctors who have destroyed your quality of life. We are so happy that you have taken control of your life, or they could have killed you. The ladies in this group have made us aware of the dangers of many medications.

Please stay strong, and give our love and support to your father.

Sending love and hope....Lea and Superman

Dede, after her implants are removed:

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````

Re: Medications and Supplements

Hello all ~

Just sharing my experience. In my health journey,

doctors have overmedicated me and caused me

un-necessary health crisis. Just because of " Standards,

or Statistics, inability to listen, or to treat on an individual

basis, or desire to learn, they put me on a whole list of drugs.

Ones that cause other organs to fail when not needed.

Because of those S and S, they never even bothered

to see if it was these drugs causing my organ failure.

They never even checked to see if there were other reasons

for my edema besides heart failure. It has taken 9 months being

off of those 3 different pills for my kidneys to calm down.

My physical symptoms of the kidney disease are calmer

and I hope that when I have another test that it will show

improvement in my GFR. I am hopeing that I have reversed

my kidney disease by stopping these drugs. I no longer

am up every 30 minutes peeing at night. This is huge for me.

I also havent been having the kidney pain as often, which is

huge for me as well. The bladder spasms are also better, and

this is awesome. All this goodness with my kidneys is new...

Just know that sometimes it takes months before you see

an improvement on something. Always trust and follow your

gut.

Getting on meds/supplements, and getting off ofthem

sometimes takes going very slowly so you can see what

kind of longterm reaction you are going to have.

Love you all ~ Dede

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Yes, I agree with Lea. Dede, you are one VERY special lady and you

have been such a wonderful support to me and I know so many others.

You make me smile, laugh and cry all at the same time. I don't know

what I would have done without you through all this.

I'm so glad to hear that you are getting your kidneys back in order.

I hate it when I go see the doctor about something and they just want

to give me a prescription and send me on my way. For a LONG time, my

doctor chalked up my symptoms to my blood pressure. I FINALLY had to

get tough with her and tell her that I DO NOT want to talk about my

blood pressure anymore and I want to get to the root cause of my

problems. Luckily, she listened to me, and we together figured out

that it was my implants that were causing my problems. So now we try

and find out the source of my problem, instead of just masking it

with prescriptions that just make me sicker. I wish there were more

doctors like that. We really do have to take our health into our own

hands. Doctors aren't going to do it for us.

We are just so lucky to have each other!

Love, Krista

>

> Darling Dede:

>

> Thank you for sharing your experiences, because we have all

learned so much from you. It is heartbreaking that you have had to go

through all of this pain. Your journey has been one that we will

never forget, and you are one lady who will make sure that we never

forget you.

>

> Honey, this should be sent to all of the stupid doctors who have

destroyed your quality of life. We are so happy that you have taken

control of your life, or they could have killed you. The ladies in

this group have made us aware of the dangers of many medications.

>

> Please stay strong, and give our love and support to your father.

>

> Sending love and hope....Lea and Superman

> Dede, after her implants are removed:

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````

> Re: Medications and Supplements

>

>

>

> Hello all ~

> Just sharing my experience. In my health journey,

> doctors have overmedicated me and caused me

> un-necessary health crisis. Just because of " Standards,

> or Statistics, inability to listen, or to treat on an individual

> basis, or desire to learn, they put me on a whole list of drugs.

> Ones that cause other organs to fail when not needed.

> Because of those S and S, they never even bothered

> to see if it was these drugs causing my organ failure.

> They never even checked to see if there were other reasons

> for my edema besides heart failure. It has taken 9 months being

> off of those 3 different pills for my kidneys to calm down.

> My physical symptoms of the kidney disease are calmer

> and I hope that when I have another test that it will show

> improvement in my GFR. I am hopeing that I have reversed

> my kidney disease by stopping these drugs. I no longer

> am up every 30 minutes peeing at night. This is huge for me.

> I also havent been having the kidney pain as often, which is

> huge for me as well. The bladder spasms are also better, and

> this is awesome. All this goodness with my kidneys is new...

> Just know that sometimes it takes months before you see

> an improvement on something. Always trust and follow your

> gut.

> Getting on meds/supplements, and getting off ofthem

> sometimes takes going very slowly so you can see what

> kind of longterm reaction you are going to have.

> Love you all ~ Dede

>

>

>

>

>

>

> --------------------------------------------------------------------

--------

> See what's new at AOL.com and Make AOL Your Homepage.

>

[Guest guest]

Krista ~

How sweet, thank you ! You are so right. Doctors

no longer take care of us like they used to. We have

to be in charge. Ya know, doctors have forgotten

that we hire them, they are our employees, not the

other way around. If they dont do the job, they

shouldnt get paid, and should be fired. We need to

start some consumer protection laws to protect us

from medical incompetancy and fraud. WE should adopt

some forms for the doctor to fill out requiring SS #, DL number

Cirriculum Vitea, DEA number, and medical license number.

They are taking our lives into their hands, so we deserve to have

the right to this info in case we need to bill them for their dis-service, turn them over to collections, or sick lawyers on them for non-complience.

We should have a copy of a psychiatry interview to be sure they arent

crazy and a suitable candidate for our medical care.

It is time we move to change things........If the doctor doesnt want to comply, then he does not get the business. Means he is not worthy of hire.

Big sign to RUN..........

Ya know we have a very special group of people here, isnt it

wonderful?? !!

Love Dede

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Awe Lea, how sweet, I love butterflies ! A friend of mine has

made several gardens in her yard, and she plants things that attract

butterflies, and birds and it is so kewl.......

You are so sweet...Love you ~ Dede

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

> >

> > Darling Dede:

> >

> > Thank you for sharing your experiences, because we have all

> learned so much from you. It is heartbreaking that you have had to

go

> through all of this pain. Your journey has been one that we will

> never forget, and you are one lady who will make sure that we never

> forget you.

> >

> > Honey, this should be sent to all of the stupid doctors who

have

> destroyed your quality of life. We are so happy that you have taken

> control of your life, or they could have killed you. The ladies in

> this group have made us aware of the dangers of many medications.

> >

> > Please stay strong, and give our love and support to your

father.

> >

> > Sending love and hope....Lea and Superman

> > Dede, after her implants are removed:

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````

> > Re: Medications and Supplements

> >

> >

> >

> > Hello all ~

> > Just sharing my experience. In my health journey,

> > doctors have overmedicated me and caused me

> > un-necessary health crisis. Just because of " Standards,

> > or Statistics, inability to listen, or to treat on an

individual

> > basis, or desire to learn, they put me on a whole list of

drugs.

> > Ones that cause other organs to fail when not needed.

> > Because of those S and S, they never even bothered

> > to see if it was these drugs causing my organ failure.

> > They never even checked to see if there were other reasons

> > for my edema besides heart failure. It has taken 9 months

being

> > off of those 3 different pills for my kidneys to calm down.

> > My physical symptoms of the kidney disease are calmer

> > and I hope that when I have another test that it will show

> > improvement in my GFR. I am hopeing that I have reversed

> > my kidney disease by stopping these drugs. I no longer

> > am up every 30 minutes peeing at night. This is huge for me.

> > I also havent been having the kidney pain as often, which is

> > huge for me as well. The bladder spasms are also better, and

> > this is awesome. All this goodness with my kidneys is new...

> > Just know that sometimes it takes months before you see

> > an improvement on something. Always trust and follow your

> > gut.

> > Getting on meds/supplements, and getting off ofthem

> > sometimes takes going very slowly so you can see what

> > kind of longterm reaction you are going to have.

> > Love you all ~ Dede

> >

> >

> >

> >

> >

> >

> > ------------------------------------------------------------------

--

> --------

> > See what's new at AOL.com and Make AOL Your Homepage.

> >

>

[Guest guest]

Great approach with your doctor Krista . . .

I'm going to use it from now on! . . . No more treating symptoms - let's fix the problem!

Hugs,

Rogene

[Guest guest]

~

That is so true ! Thank you ! I just

hope that my renal doctor tells me that

my next function test is better than the

last one ! My gut is that it will be.

I have been told it wouldnt get better.......

but I think it has ! !

How are you feeling?

Love DedeSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Dede- I agree, it is wonderful that we have such a special group. We

are all so diverse too, which I think is fun!

Oh, and you forgot to add in that before we hire a doctor, we should

have the right to know their stance on certain issues. Like before we

hire our doctor, we need to know their stance on breast implants and

if they feel they are harming women. Also, we need to know their

stance on prescription medications. Do they just freely hand out

medications, or are they more interested to getting to the root cause

BEFORE they give us more medication. These are very important to us.

Dede, please listen to Rogene and get that help. We are just going to

worry about you. As soon as you tell us that you've gotten that help,

then we can stop worrying about you. You need to take care of DEDE!

You do so much for others, but you know what, you can't help others

if you don't help yourself first. We love you and want you all better

so you can continue to be such a bright, positive person for all the

world.

Love, Krista

>

> Krista ~

> How sweet, thank you ! You are so right. Doctors

> no longer take care of us like they used to. We have

> to be in charge. Ya know, doctors have forgotten

> that we hire them, they are our employees, not the

> other way around. If they dont do the job, they

> shouldnt get paid, and should be fired. We need to

> start some consumer protection laws to protect us

> from medical incompetancy and fraud. WE should adopt

> some forms for the doctor to fill out requiring SS #, DL number

> Cirriculum Vitea, DEA number, and medical license number.

> They are taking our lives into their hands, so we deserve to have

> the right to this info in case we need to bill them for their dis-

service,

> turn them over to collections, or sick lawyers on them for non-

complience.

> We should have a copy of a psychiatry interview to be sure they

arent

> crazy and a suitable candidate for our medical care.

> It is time we move to change things........If the doctor doesnt

want to

> comply, then he does not get the business. Means he is not worthy

of hire.

> Big sign to RUN..........

> Ya know we have a very special group of people here, isnt it

> wonderful?? !!

> Love Dede

>

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

[Guest guest]

Dede,

It goes to show that we need to be our own advocates for our health. I

question everything now.

I'm glad your kidneys are better.

>

> Hello all ~

> Just sharing my experience. In my health journey,

> doctors have overmedicated me and caused me

> un-necessary health crisis. Just because of " Standards,

> or Statistics, inability to listen, or to treat on an individual

> basis, or desire to learn, they put me on a whole list of drugs.

> Ones that cause other organs to fail when not needed.

> Because of those S and S, they never even bothered

> to see if it was these drugs causing my organ failure.

> They never even checked to see if there were other reasons

> for my edema besides heart failure. It has taken 9 months being

> off of those 3 different pills for my kidneys to calm down.

> My physical symptoms of the kidney disease are calmer

> and I hope that when I have another test that it will show

> improvement in my GFR. I am hopeing that I have reversed

> my kidney disease by stopping these drugs. I no longer

> am up every 30 minutes peeing at night. This is huge for me.

> I also havent been having the kidney pain as often, which is

> huge for me as well. The bladder spasms are also better, and

> this is awesome. All this goodness with my kidneys is new...

> Just know that sometimes it takes months before you see

> an improvement on something. Always trust and follow your

> gut.

> Getting on meds/supplements, and getting off ofthem

> sometimes takes going very slowly so you can see what

> kind of longterm reaction you are going to have.

> Love you all ~ Dede

>

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

[Guest guest]

Hi Dede,

I'm feeling OK. That surgery was easy. I'm disappointed that I am on

more antibiotics. My surgeon insisted that I take them for five days

following surgery because my white blood count is pretty low. It

continues to drop... not sure why.

>

> ~

> That is so true ! Thank you ! I just

> hope that my renal doctor tells me that

> my next function test is better than the

> last one ! My gut is that it will be.

> I have been told it wouldnt get better.......

> but I think it has ! !

> How are you feeling?

> Love Dede

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

[Guest guest]

, please stay on the antibiotics, but make sure that you are taking an anti-fungal medication. Probiotics are very important too. I went off of my antibiotics because we are not sure what kind of infection we are dealing with. My white blood count is low too, it could be the abscesses in my breasts.

Good luck honey....love you...Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```

Re: Medications and Supplements

Hi Dede,I'm feeling OK. That surgery was easy. I'm disappointed that I am onmore antibiotics. My surgeon insisted that I take them for five daysfollowing surgery because my white blood count is pretty low. Itcontinues to drop... not sure why.>> ~> That is so true ! Thank you ! I just> hope that my renal doctor tells me that> my next function test is better than the > last one ! My gut is that it will be.> I have been told it wouldnt get better.......> but I think it has ! ! > How are you feeling? > Love Dede> > > > ************************************** See what's new athttp://www.aol.com>