Guest guest Posted November 27, 2010 Report Share Posted November 27, 2010 This is an interesting and relevant thread. What actually happens with the 75% or so of autistic children who have mercury problems as they chelate on various different protcols is thus: Truly insane protocols like every other day dosing: Mostly they just get worse. Half or more of them stay worse. Some improve somewhat. Almost none of them get to the point an MD would say they lost their diagnosis, which is far from cured anyway. 3 times a day or every 8 hour protocols: A few children really seem to do fine on this. Not many. A significant number do have substantial progress. Some just get worse. Being reasonable, most parents of the children who are achieving some progress stick with it. After all, they're told by MOST doctors that vaccines don't cause autism, mercury has nothing to do with it, and the kid can't possibly be improving. When the kid is markedly better the doctors insist the kid never had autism anyway. The few doctors who are trying to help mostly don't think the chelation protocol makes a difference. So these reasonable parents are very happy to be seeing some progress and fail to ask a crucial question: what are the ultimate outcomes of different chelation protocols? This is where the rub comes in. The ultimate outcomes (and number of postive responders) to these protocols are far more limited than with proper chelation involving adequately frequent dosing. Long term use of the improper (8 hour or 3 times a day) protocols makes the kids respond much more slowly to proper chelation later than if they'd started with it. So it is time consuming for the parents to really find out by experience how the protocols compare. This is based on some polls on the autism mercury list (which you can all go look at for yourselves), private reports from health care providers and parents, and much experience over the years. Presuming the parents do not have access to reasoned analysis of how chelation works, it then is quite understandable why many go to a DAN! doctor and have the doctor hurt their child even more after having let their pediatrician turn their kid autistic. The medical field and its professional associations have worked diligently for centuries to create a culture where we simply do not reason when it comes to medicine, we just do as we're told. Stuck in that sort of situation most people are just going to continue with the first helpful thing they found( which is why so many parents use the GFCF diet and do little else, and are dumbfounded when the child gets old enough to be rebellious, eat whatever they can get their hands on and regresses unmanageably). They're not going to try to understand its basic principles and figure out the best way to do it. If you want to follow the basic principles and get the best result obtainable, all you have to do is give the chelators the way all standard medical texts that cover the subject say drugs should be given - once every half life. Results with mercury poisoned people support this. Reports by parents themselves support this. It stands to reason. Honestly I don't understand why people have so much trouble and resistance to thinking this through given how much social opprobium and medical disapproval they are already willing to take by using biomedical interventions with their children. If you just don't want to take the responsibility to understand a few basics and check up on your doctor - something I'm sure you all lament not having done when the pediatrician wanted to vaccinate your child - I certainly do hope your child turns out to be one who has a really good outcome from chelation regardless of protocol. However the odds are far better, and the likelihood of a really marvelous result much higher, if you do chelate properly, using appropriate agents every half life or so. Andy PS: I do fully appreciate that doctors SHOULD be responsible and you should not have to check up on them. However this is not the case. Most people accept that in other areas of life the way things should be are seldom the way they are. This is simply human nature. Doctors are just as human as people in any other field. http://www.noamalgam.com/index.html Amalgam Illness: Diagnosis and Treatment http://www.noamalgam.com/hairtestbook.html Hair Test Interpretation: Finding Hidden Toxicities http://www.noamalgam.com/nourishinghope.html Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children http://www.noamalgam.com/biologicaltreatments.html Biological Treatments for Autism and PDD > > Hi za, > > How long have you been doing it and what gains are you seeing ? > > > I did ask for some feedback on either type of chelation on Jean's forum and apart from yourself, only parents doing AC chelation replied and this of course doesn't involve the DAN practitioner. > > Another mum posted here not so long ago that her DAN practitioner had recommended AC chelation as her son was sensitive (!??), am not sure if this meant he was sensitive to different supplements cos I would have thought all our kids are sensitive to something or other...... > Thanks Nina > > > > > > > > , if you are seeing gains why would you stop? > > > > > > This thread was started by someone asking our opinion on whether IV chelation was safe and whether to go with the DAN or Andy Cutler's (AC) chelation protocol. Many people emailed to let her know their positive personal experience with AC chelation, myself included. No one emailed to say how happy they were with DAN chelation and no one has posted any personal negative experience with AC chelation. > > > > > > Every single person who responded in favour of AC chelation is actually doing it with their child. We are speaking from our own experience, and we are all saying how positive it is. AC chelation has changed my family's life to a degree that I would say is miraculous in such a short period. Maybe this is why people are so happy to share their experience with others who ask them and not because they are brainwashed. > > > > > > I would hate it if this thread has put other people off starting AC chelation because except for one person who may or may not have tried it, every other person on this thread who is doing AC chelation has had a great experience with it. I do understand that it feels like we are being told we are wrong, but clearly there are enough of us saying it works that this is not possible. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2010 Report Share Posted December 8, 2010 > > > > Or they see however many hundred patients and not a one has had an issue > with higher less frequent dosing, unaware how many of their patients are > doing AC when they get home. > This is like the scariest ? thing ever........ > And it does sound scarey and if your kid is a poor sleeper then why on > earth would you want to wake him up, not knowing that after a few rounds (or > before) that you don't have to wake up the CHILD 'just' yourself. > > DS is just the most terrible sleeper( and combined with chronic gut problems ) thats exactly what was terrifying me, so thats reassuring! Ta Nina x > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2010 Report Share Posted December 8, 2010 Nina, just opens his mouth more asleep than awake and then turns over again and back to full sleep, who is less used to being disturbed for anything does the same. Vicky Re: Chelation protocols > > > > Or they see however many hundred patients and not a one has had an issue > with higher less frequent dosing, unaware how many of their patients are > doing AC when they get home. > This is like the scariest ? thing ever........ > And it does sound scarey and if your kid is a poor sleeper then why on > earth would you want to wake him up, not knowing that after a few rounds (or > before) that you don't have to wake up the CHILD 'just' yourself. > > DS is just the most terrible sleeper( and combined with chronic gut problems ) thats exactly what was terrifying me, so thats reassuring! Ta Nina x > > > > Quote Link to comment Share on other sites More sharing options...
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