Re: Chelation Update - long & wittery :)

[Guest guest]

He's doing great thanks Mandi. I am so pleased with his progress and we've only done 11 rounds and that's with a break too. We are so lucky to have seen so many positive things and the three main area's of improvement are speech, level of understanding and toilet training. With the toilet training and understanding it has been like flipping a switch, it was a completely different senario before the summer. Chelation has also been a huge learning curve for me. Yeast and bacteria have been a real problem for us and sometimes they mask the improvement in speech but it's like a roller coaster and I'm working hard to keep them in check. He also needed far more adrenal support then I realised but getting that right has made a big difference too.I must saying I am really enjoying this thread. There are so many here on this list chelating and it's so fantastic to

hear of all of the progress. I think the parents on this list are really amazing. xSubject: Re: Chelation Update - long & wittery :)To: Autism-Biomedical-Europe Date: Tuesday, December 7, 2010, 9:59 PM

Thanks , tucking thumbs sounds easier to me lol. How is it going with your little man?

Mx

In Sweden they tuck their thumbs into their fists instead of crossing their fingers for good luck so I'll be holding my thumbs that you hear the M word in time for Xmas.

[Guest guest]

,

I find yeast hides alot of gains with my Sam. It was only once we did KIB500 i

have noticed a difference.

Yeast is a right git!

But getting it under control, as much as i can at the moment!

I was also the same with adrenal cortex...took me a while until i realised Sam

needed more than he was getting

Kirsty

x

>

>

> Subject: Re: Chelation Update - long & wittery

> To: Autism-Biomedical-Europe

> Date: Tuesday, December 7, 2010, 9:59 PM

>

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> Thanks , tucking thumbs sounds easier to me lol. How is it going with

> your little man?

>  

> Mx

>  

>

> In a message dated 07/12/2010 07:36:53 GMT Standard Time,

> lisastubner@... writes:

>

> In Sweden they tuck their

> thumbs into their fists instead of crossing their fingers for good luck so

> I'll be holding my thumbs that you hear the M word in time for

> Xmas.

>

[Guest guest]

Kirsty,I remember you posting about KIB 500 before. Some times I feel a bit over loaded with information and don't get around to checking some things out. But this time I think I'm going to take a look at it when I can and if it's OK with you I might get back to you with a few questions?Thanks, xSubject: Re: Chelation Update - long & wittery :)To: Autism-Biomedical-Europe Date: Wednesday, December 8, 2010, 3:36 AM

,

I find yeast hides alot of gains with my Sam. It was only once we did KIB500 i have noticed a difference.

Yeast is a right git!

But getting it under control, as much as i can at the moment!

I was also the same with adrenal cortex...took me a while until i realised Sam needed more than he was getting

Kirsty

x

>

>

> Subject: Re: Chelation Update - long & wittery

> To: Autism-Biomedical-Europe

> Date: Tuesday, December 7, 2010, 9:59 PM

>

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> Thanks , tucking thumbs sounds easier to me lol. How is it going with

> your little man?

> Â

> Mx

> Â

>

> In a message dated 07/12/2010 07:36:53 GMT Standard Time,

> lisastubner@... writes:

>

> In Sweden they tuck their

> thumbs into their fists instead of crossing their fingers for good luck so

> I'll be holding my thumbs that you hear the M word in time for

> Xmas.

>

[Guest guest]

we had the peeing and huge sound sensitivity issues!

 

Mandi, DMPS

buttar protocol back in the old days under Dr U -

cringe!!  not good, then oral dmsa under Dr H - ok

for a while then peeing got out of control ,really

bad so stopped that, then did 16 rounds TD DMSA

did see some very good things but again peeing out

of control so stopped as had read if you don't see

some improvements by then then probably not the

issue, wanted to try PR EDTA but felt too

intrusive!  Any ideas??!  Sam bigger and stronger

so think we could look at this again, thanks Di x

From: Mum231ASD@...

Subject: Re:

Chelation Update - long & wittery

To: Autism-Biomedical-Europe

Date: Tuesday, 7 December, 2010, 11:04

 

Thanks Di, did you ever try the TD

DMPS? Didn't your Sam have issues with

DMSA?

Mandi x

 

In a message dated 07/12/2010

09:07:36 GMT Standard Time,

harebigears@... writes:

Wow thats brilliant Mandi!! 

Sam the Big Man!!  makes me want

to look at chelating here again

- will have to get the brain

working first!

Really fantastic news, you

all so deserve it!  Di xx

[Guest guest]

fab news Mandi about Sam, in fact i'm loving everyone's posts on this thread.

is 4 1/2 and we have done 21 rounds ALA/DMSA and 4 DMPS...were at 8mg of

both right now, just upped the dose..

We have had fabulous progress, I really thought that my son was a non responder

as we got improvement but no real wows with biomed, with chelation we have had

loads and most importantly finally he is healthy, no more allergies,

diarrohea......

I'm almost fanatical, have not missed many weekends and when i do, i used

DMPS.....he's young and I have to make the most of every opportunity to get him

better.....

Yeast has been tough, but he's a happy yeast monster, so i've never had cause to

miss rounds for that, he doesn't tolerate some of the big yeast killers (GSE,

OoO), KIB500 and boatloads of probiotis have worked great here.

Other good things we have done this year are LDN (marvellous stuff) and TLP....

So all in all 2010 has been a great year for and I guess for me too, i'm

emerging from my 2 year depression, have gained a few grey hairs and some

wrinkles but I feel more positive about the future......when he's good, i'm

good!!!!!!!

My hopes for 2011 are speech, were seeing good progress. He treats us to a few

bits and bobs, you know, just to send my hopes sky high and then nothing for

days....but our highlights are 'shit' and 'get real', totally appropriately

timed!!

God bless him, he is my star man!!!

x

>

> >>Ha ha indeed, Stephs Tom is good at coming out with this sort of stuff

> as I recall, looking forward to having the same problem myself

>

> Mx

>

>

> In a message dated 07/12/2010 12:43:21 GMT Standard Time, MaddiganV@...

> writes:

>

> Desire to listen improves when he knows what you are saying,

> I think he knows.

> As for we do have a very clear f***er!!!!! This proves it's chelation

> as it isn't a word we are working on with VB, ha, ha but where did he hear

> it? Now let me think.

>

[Guest guest]

Wow, this is all very exciting to hear all your boys are doing well

(Mandi, and Vicky). I'm so happy for you and it gives us all

much hope.

Well done and keep it up all.

emily :-)

>

>

>

>

>

>

>

>

> Well an everything update really.

>

>

>

> As many of you know we have had major issues with aggressive behaviour

since Sam hit puberty big time. He is a high Lead kid with 100+ rounds

of AC done with good effect, mostly cognitive improvements.

>

>

>

> Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not

handle night dosing and everything else going on, business and 3 teen

boys. Kept up by doing occasional rounds of TD DMPS that he also did

well on but given his size was this very expensive after pound exchange

rate dived as purchasing in Euro's.

>

>

>

> End of August we started DMSA/ALA rounds again, hypothesising that as

he was growing VERY quickly that Lead (stored in bones) was being

released and may be contributing to aggressive behaviours. Started back

up at 12.5/12.5 which was probably a little high but he didn't;t seem

phased, very little in the way of yeast - easily dealt with using

probiotics, Kirkman Sacc B and CP1.

>

>

>

> Been looking for patterns in behaviour and now I am very sure that

chelation is helping. Grumpy and lairy on returning from school on

Friday and a pussycat cutey 2 hours post the first dose

>

>

>

> His behaviour had been much better at school but had still been

aggressive with me.Chelation is no longer an option, its a necessity so

have been doing rounds every weekend, Friday afternoon - Monday morning.

>

>

>

> We are up to 25mg/25mg and I'm finding it easier to handle as I get

back into the swing of it, First weekend was a complete killer, waaay

out of practise and anxious about forgetting a dose and working it

around him going out with DP carer.

>

>

>

> He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm,

7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to

dose before we go out. So excited I was at telling him about Sam being

cute as dose kicked in .................so óff they went and was

tidying up supps when they had gone and realised too much chatting and

not given the dose - arghhhhhhhhh, so had to drive smartish all the way

to YC, no Jack or Sam, panicking them, where has this young man been

taking my son all these Friday nights??? Just about to lose the plot

when they turned up so got dose in only 20 mins late - phew - they had

just stopped for petrol.

>

>

>

> This is the third weekend Jack has reported Sam 'talking' in the car,

last week, 3 blind mice, clear as day, this week two lots of 'round and

round' heard by both my Tom (DP assistant when going swimming with

slides) and Jack. Jack said after he was making sounds with right timing

but not so clear. We have had odd occasions when a word dropped out but

Sam seemed very scared by it, explained to me before that

words can come from two places, I think the clear ones just fall out and

the less clear ones are him actually making them come out himself. Very

vocal this past weekend, can tell voice has broken now.

>

>

>

> I'm very excited. Behaviour improvements I am sure are chelation, the

words could be TST or KIB or all of it related, who the hell cares, not

me, I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in

January and I've waited long enough and worked hard enough, it will

happen.

>

>

>

> He has also make leaps academically already this term, 4 P grades in

maths and a few in English but I forget what that was now.

>

>

>

> I think a combination of fast growth releasing Lead at same time as

quickly increasing need for oxygen may be behind behaviour issues in

many teens, positive we are on the right track with chelation and TST.

>

>

>

> Oh nearly forgot, he is now eating proper hot food for dinner

including VEGETABLES and SALAD!!!, something we've not seen since before

GFCF

>

>

>

> So all want for Christmas is MUM, at me, for me, on purpose, he does

says it already but as part of babble, I'll be able to tell the

difference

>

>

>

> Mandi x 140 rounds and counting...........

>

> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder,

Severe Cute-ness +

>

[Guest guest]

Hi Mandi

Really pleased to hear how well Sam is doing and fingers crossed and thumbs in

hands you hear 'mom' by Christmas!

Feeling a bit guilty about reading all of these great updates and not posting

one of my own...

Sebastien turned 6 in August and we just finished 34 rounds of AC chelation,

doing long rounds in the summer (5 days). As soon as we started, it was like a

switch went on, school describes it as " the fog lifted " . He developed an

interest in learning, definite cognitive improvements – he went from not knowing

what to do with a puzzle one week to literally taking it off them shelf himself

and sitting down and doing them! He started to pedal his bike during the second

round, after having his bike inside for the previous 4 months and just not

getting it, despite me doing everything to help including taping his feet to the

pedals and moving them around myself! Just looking over his interim review with

the LEA last week, the school wrote he's made a lot of progress in the last 6

months speaking (though still technically non-verbal he has about 100 words now

and is starting to put two words together), developed an interest in literacy

and books, how much improved his interaction with others is. About 6 weeks ago

we hit the `stall period' where we stopped seeing gains. I was told to keep

chelating through this, it's normal and it will eventually pass and we will

start seeing gains again, so we kept going. Last weekend I raised the ALA a bit

and we definitely started seeing some improvement again!

My 4 year old, never diagnosed (because after going there once I knew what I

needed to do and tend to avoid doctors and `experts' as much as possible now!)

His nursery told me they thought he might have Asperger's (their own son does)

but he was non-verbal, seriously extreme mood swings to the point adults in

public looked a bit frightened of him!, probably bipolar, the most stubborn

child the nursery had ever seen, refused to interact with anyone – adults or

children, gross motor and fine motor delays, severe anxiety, severe constipation

which was being treated by the hospital. After about 4 months of chelation, he

started talking – within another month he was talking in sentences. He's still

delayed but catching up quickly and people can understand most things he says

now. He rarely has mood swings now (though that might be due to adrenal cortex

extract as well as chelation), he interacts beautifully with adults and children

and will happily talk to an adult on their own which he never would have done

six months ago. His bowels are good now, he's really becoming quite `normal'.

The LEA said they have never seen such a big difference in a child in such a

short period – chalked it up to maturing over the summer holiday!

My husband and I also chelate ourselves. had severe

uncontrolled asthma, after being very fit and healthy for most of his life. It

started when we moved back to Canada briefly (I blame the 2 flu shots we had

there). Then back in England he had his amalgams taken out without any proper

protocol and within two weeks he completely tanked. It was scary, he couldn't

work (very scary when you're self employed as we are) and he became extremely

depressed so things at home were pretty unpleasant. He was seeing several

specialists around the country and no one could figure out why his asthma just

kept getting worse. I would say after about 6 weeks of chelation he improved to

such an extent that he started to reduce his steroids, which he's been taking in

vast quantities for several years now. After 4 months he was able to stop

taking oral steroids completely and is now reducing his inhaled steroids. He

has energy and he's happy, so I'm happy! He is probably the biggest supporter

of AC chelation now. Unfortunately he was diagnosed with cataracts recently

from all of the steroids he took, so I wish we had started sooner.

I haven't seen any miracles for myself yet but a definite improvement in health.

My Multiple Chemical Sensitivity has actually gotten worse, but again Andy says

that's normal, so I'm sticking to it and hoping it improves in the long term. I

definitely have more energy and I'm feeling a lot happier, like I'm coming out

of a dark cave.

Sorry for such a long update! After first dreading weekends because I would

feel so tired from getting up in the night, now I look forward to them and the

possibilities!

Best wishes

>

> Well an everything update really.

>

> As many of you know we have had major issues with aggressive behaviour

> since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC

> done with good effect, mostly cognitive improvements.

>

> Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle

> night dosing and everything else going on, business and 3 teen boys. Kept

> up by doing occasional rounds of TD DMPS that he also did well on but given

> his size was this very expensive after pound exchange rate dived as

> purchasing in Euro's.

>

> End of August we started DMSA/ALA rounds again, hypothesising that as he

> was growing VERY quickly that Lead (stored in bones) was being released and

> may be contributing to aggressive behaviours. Started back up at 12.5/12.5

> which was probably a little high but he didn't;t seem phased, very little in

> the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and

> CP1.

>

> Been looking for patterns in behaviour and now I am very sure that

> chelation is helping. Grumpy and lairy on returning from school on Friday and

a

> pussycat cutey 2 hours post the first dose

>

> His behaviour had been much better at school but had still been aggressive

> with me.Chelation is no longer an option, its a necessity so have been

> doing rounds every weekend, Friday afternoon - Monday morning.

>

> We are up to 25mg/25mg and I'm finding it easier to handle as I get back

> into the swing of it, First weekend was a complete killer, waaay out of

> practise and anxious about forgetting a dose and working it around him going

out

> with DP carer.

>

> He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm,

> 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose

> before we go out. So excited I was at telling him about Sam being cute as

> dose kicked in .................so óff they went and was tidying up supps

when

> they had gone and realised too much chatting and not given the dose -

> arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam,

> panicking them, where has this young man been taking my son all these Friday

> nights??? Just about to lose the plot when they turned up so got dose in only

> 20 mins late - phew - they had just stopped for petrol.

>

> This is the third weekend Jack has reported Sam 'talking' in the car, last

> week, 3 blind mice, clear as day, this week two lots of 'round and round'

> heard by both my Tom (DP assistant when going swimming with slides) and

> Jack. Jack said after he was making sounds with right timing but not so

clear.

> We have had odd occasions when a word dropped out but Sam seemed very

> scared by it, explained to me before that words can come from

two

> places, I think the clear ones just fall out and the less clear ones are

> him actually making them come out himself. Very vocal this past weekend, can

> tell voice has broken now.

>

> I'm very excited. Behaviour improvements I am sure are chelation, the words

> could be TST or KIB or all of it related, who the hell cares, not me, I

> plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January

> and I've waited long enough and worked hard enough, it will happen.

>

> He has also make leaps academically already this term, 4 P grades in maths

> and a few in English but I forget what that was now.

>

> I think a combination of fast growth releasing Lead at same time as quickly

> increasing need for oxygen may be behind behaviour issues in many teens,

> positive we are on the right track with chelation and TST.

>

> Oh nearly forgot, he is now eating proper hot food for dinner including

> VEGETABLES and SALAD!!!, something we've not seen since before GFCF

>

> So all want for Christmas is MUM, at me, for me, on purpose, he does says

> it already but as part of babble, I'll be able to tell the difference

>

> Mandi x 140 rounds and counting...........

> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder,

> Severe Cute-ness +

>

[Guest guest]

<<Unfortunately he was diagnosed with cataracts recently from all of the steroids he took, so I wish we had started sooner.>>I have opened up a file on eye problems ever since my mum was dxed with macular degeneration. Cataracts are very much associated with oxidative stress, not surprising for your husband with all the detoxing he has gone through. Subject: Re: Chelation Update - long & wittery :)To: Autism-Biomedical-Europe Date: Tuesday, 7 December, 2010, 23:45

Hi Mandi

Really pleased to hear how well Sam is doing and fingers crossed and thumbs in hands you hear 'mom' by Christmas!

Feeling a bit guilty about reading all of these great updates and not posting one of my own...

Sebastien turned 6 in August and we just finished 34 rounds of AC chelation, doing long rounds in the summer (5 days). As soon as we started, it was like a switch went on, school describes it as "the fog lifted". He developed an interest in learning, definite cognitive improvements – he went from not knowing what to do with a puzzle one week to literally taking it off them shelf himself and sitting down and doing them! He started to pedal his bike during the second round, after having his bike inside for the previous 4 months and just not getting it, despite me doing everything to help including taping his feet to the pedals and moving them around myself! Just looking over his interim review with the LEA last week, the school wrote he's made a lot of progress in the last 6 months speaking (though still technically non-verbal he has about 100 words now and is starting to put two words together), developed an interest in literacy and books, how much

improved his interaction with others is. About 6 weeks ago we hit the `stall period' where we stopped seeing gains. I was told to keep chelating through this, it's normal and it will eventually pass and we will start seeing gains again, so we kept going. Last weekend I raised the ALA a bit and we definitely started seeing some improvement again!

My 4 year old, never diagnosed (because after going there once I knew what I needed to do and tend to avoid doctors and `experts' as much as possible now!) His nursery told me they thought he might have Asperger's (their own son does) but he was non-verbal, seriously extreme mood swings to the point adults in public looked a bit frightened of him!, probably bipolar, the most stubborn child the nursery had ever seen, refused to interact with anyone – adults or children, gross motor and fine motor delays, severe anxiety, severe constipation which was being treated by the hospital. After about 4 months of chelation, he started talking – within another month he was talking in sentences. He's still delayed but catching up quickly and people can understand most things he says now. He rarely has mood swings now (though that might be due to adrenal cortex extract as well as chelation), he interacts beautifully with adults and children and will happily

talk to an adult on their own which he never would have done six months ago. His bowels are good now, he's really becoming quite `normal'. The LEA said they have never seen such a big difference in a child in such a short period – chalked it up to maturing over the summer holiday!

My husband and I also chelate ourselves. had severe uncontrolled asthma, after being very fit and healthy for most of his life. It started when we moved back to Canada briefly (I blame the 2 flu shots we had there). Then back in England he had his amalgams taken out without any proper protocol and within two weeks he completely tanked. It was scary, he couldn't work (very scary when you're self employed as we are) and he became extremely depressed so things at home were pretty unpleasant. He was seeing several specialists around the country and no one could figure out why his asthma just kept getting worse. I would say after about 6 weeks of chelation he improved to such an extent that he started to reduce his steroids, which he's been taking in vast quantities for several years now. After 4 months he was able to stop taking oral steroids completely and is now reducing his inhaled steroids. He has energy and he's happy, so I'm

happy! He is probably the biggest supporter of AC chelation now. Unfortunately he was diagnosed with cataracts recently from all of the steroids he took, so I wish we had started sooner.

I haven't seen any miracles for myself yet but a definite improvement in health. My Multiple Chemical Sensitivity has actually gotten worse, but again Andy says that's normal, so I'm sticking to it and hoping it improves in the long term. I definitely have more energy and I'm feeling a lot happier, like I'm coming out of a dark cave.

Sorry for such a long update! After first dreading weekends because I would feel so tired from getting up in the night, now I look forward to them and the possibilities!

Best wishes

>

> Well an everything update really.

>

> As many of you know we have had major issues with aggressive behaviour

> since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC

> done with good effect, mostly cognitive improvements.

>

> Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle

> night dosing and everything else going on, business and 3 teen boys. Kept

> up by doing occasional rounds of TD DMPS that he also did well on but given

> his size was this very expensive after pound exchange rate dived as

> purchasing in Euro's.

>

> End of August we started DMSA/ALA rounds again, hypothesising that as he

> was growing VERY quickly that Lead (stored in bones) was being released and

> may be contributing to aggressive behaviours. Started back up at 12.5/12.5

> which was probably a little high but he didn't;t seem phased, very little in

> the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and

> CP1.

>

> Been looking for patterns in behaviour and now I am very sure that

> chelation is helping. Grumpy and lairy on returning from school on Friday and a

> pussycat cutey 2 hours post the first dose

>

> His behaviour had been much better at school but had still been aggressive

> with me.Chelation is no longer an option, its a necessity so have been

> doing rounds every weekend, Friday afternoon - Monday morning.

>

> We are up to 25mg/25mg and I'm finding it easier to handle as I get back

> into the swing of it, First weekend was a complete killer, waaay out of

> practise and anxious about forgetting a dose and working it around him going out

> with DP carer.

>

> He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm,

> 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose

> before we go out. So excited I was at telling him about Sam being cute as

> dose kicked in .................so óff they went and was tidying up supps when

> they had gone and realised too much chatting and not given the dose -

> arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam,

> panicking them, where has this young man been taking my son all these Friday

> nights??? Just about to lose the plot when they turned up so got dose in only

> 20 mins late - phew - they had just stopped for petrol.

>

> This is the third weekend Jack has reported Sam 'talking' in the car, last

> week, 3 blind mice, clear as day, this week two lots of 'round and round'

> heard by both my Tom (DP assistant when going swimming with slides) and

> Jack. Jack said after he was making sounds with right timing but not so clear.

> We have had odd occasions when a word dropped out but Sam seemed very

> scared by it, explained to me before that words can come from two

> places, I think the clear ones just fall out and the less clear ones are

> him actually making them come out himself. Very vocal this past weekend, can

> tell voice has broken now.

>

> I'm very excited. Behaviour improvements I am sure are chelation, the words

> could be TST or KIB or all of it related, who the hell cares, not me, I

> plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January

> and I've waited long enough and worked hard enough, it will happen.

>

> He has also make leaps academically already this term, 4 P grades in maths

> and a few in English but I forget what that was now.

>

> I think a combination of fast growth releasing Lead at same time as quickly

> increasing need for oxygen may be behind behaviour issues in many teens,

> positive we are on the right track with chelation and TST.

>

> Oh nearly forgot, he is now eating proper hot food for dinner including

> VEGETABLES and SALAD!!!, something we've not seen since before GFCF

>

> So all want for Christmas is MUM, at me, for me, on purpose, he does says

> it already but as part of babble, I'll be able to tell the difference

>

> Mandi x 140 rounds and counting...........

> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder,

> Severe Cute-ness +

>

[Guest guest]

Thats great Cath. To see all of you improving in different ways. I cannot wait

to start on myself after i get back from America

K

xx

> >

> > Well an everything update really.

> >

> > As many of you know we have had major issues with aggressive behaviour

> > since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC

> > done with good effect, mostly cognitive improvements.

> >

> > Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle

> > night dosing and everything else going on, business and 3 teen boys. Kept

> > up by doing occasional rounds of TD DMPS that he also did well on but given

> > his size was this very expensive after pound exchange rate dived as

> > purchasing in Euro's.

> >

> > End of August we started DMSA/ALA rounds again, hypothesising that as he

> > was growing VERY quickly that Lead (stored in bones) was being released and

> > may be contributing to aggressive behaviours. Started back up at 12.5/12.5

> > which was probably a little high but he didn't;t seem phased, very little

in

> > the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and

> > CP1.

> >

> > Been looking for patterns in behaviour and now I am very sure that

> > chelation is helping. Grumpy and lairy on returning from school on Friday

and a

> > pussycat cutey 2 hours post the first dose

> >

> > His behaviour had been much better at school but had still been aggressive

> > with me.Chelation is no longer an option, its a necessity so have been

> > doing rounds every weekend, Friday afternoon - Monday morning.

> >

> > We are up to 25mg/25mg and I'm finding it easier to handle as I get back

> > into the swing of it, First weekend was a complete killer, waaay out of

> > practise and anxious about forgetting a dose and working it around him

going out

> > with DP carer.

> >

> > He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm,

> > 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose

> > before we go out. So excited I was at telling him about Sam being cute as

> > dose kicked in .................so óff they went and was tidying up supps

when

> > they had gone and realised too much chatting and not given the dose -

> > arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam,

> > panicking them, where has this young man been taking my son all these

Friday

> > nights??? Just about to lose the plot when they turned up so got dose in

only

> > 20 mins late - phew - they had just stopped for petrol.

> >

> > This is the third weekend Jack has reported Sam 'talking' in the car, last

> > week, 3 blind mice, clear as day, this week two lots of 'round and round'

> > heard by both my Tom (DP assistant when going swimming with slides) and

> > Jack. Jack said after he was making sounds with right timing but not so

clear.

> > We have had odd occasions when a word dropped out but Sam seemed very

> > scared by it, explained to me before that words can come from

two

> > places, I think the clear ones just fall out and the less clear ones are

> > him actually making them come out himself. Very vocal this past weekend,

can

> > tell voice has broken now.

> >

> > I'm very excited. Behaviour improvements I am sure are chelation, the words

> > could be TST or KIB or all of it related, who the hell cares, not me, I

> > plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January

> > and I've waited long enough and worked hard enough, it will happen.

> >

> > He has also make leaps academically already this term, 4 P grades in maths

> > and a few in English but I forget what that was now.

> >

> > I think a combination of fast growth releasing Lead at same time as quickly

> > increasing need for oxygen may be behind behaviour issues in many teens,

> > positive we are on the right track with chelation and TST.

> >

> > Oh nearly forgot, he is now eating proper hot food for dinner including

> > VEGETABLES and SALAD!!!, something we've not seen since before GFCF

> >

> > So all want for Christmas is MUM, at me, for me, on purpose, he does says

> > it already but as part of babble, I'll be able to tell the difference

> >

> > Mandi x 140 rounds and counting...........

> > Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder,

> > Severe Cute-ness +

> >

>

[Guest guest]

I can send you the info off here and feel free to email me back with how Sam

responded etc. It's better to contact me to my email address as i'll be away

tomorrow for 3 weeks and won't be checking the forum regularly

greenkirsty1@...

Kirsty

x

>

> >

>

> > From: Mum231ASD@ <Mum231ASD@>

>

> > Subject: Re: Chelation Update - long & wittery

>

> > To: Autism-Biomedical-Europe

>

> > Date: Tuesday, December 7, 2010, 9:59 PM

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >  

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> > Thanks , tucking thumbs sounds easier to me lol. How is it going with

>

> > your little man?

>

> >  

>

> > Mx

>

> >  

>

> >

>

> > In a message dated 07/12/2010 07:36:53 GMT Standard Time,

>

> > lisastubner@ writes:

>

> >

>

> > In Sweden they tuck their

>

> > thumbs into their fists instead of crossing their fingers for good luck so

>

> > I'll be holding my thumbs that you hear the M word in time for

>

> > Xmas.

>

> >

>

[Guest guest]

It was severe whilst we chelated for abour a year. Once we stopped

it subsided a little. Now it comes and goes. We can usually gauge

his mood by his sound sensitivity. Sometimes even a cough, sneeze

is distressing. The other problem I had was opening capsules! The

skin peeled off my fingers - I must have an allergy to them. Once

started to swallow capsules my fingers recovered. We're

going to chelate again soon - AC, just getting all the supp's

together. He's 16 now - so not sure what improvements we will see.

Jane,

How long did the sound sensitivity last?

We got them about 3 months ago and it is slightly better,

but still very much there.

When he first got them we couldn't go out, he could not

handle any outdoor noise at all. We are now at the stage

where the tv still has to be low, cannot handle girls

screams, his brother shouting etc

Kirsty

x

> >

> >

> >

> > Subject: Re:

Chelation Update - long &

> > wittery

> > To: Autism-Biomedical-Europe

> > Date: Tuesday, 7 December, 2010, 11:04

> >

> > Thanks Di, did you ever try the TD DMPS? Didn't

your Sam have

> > issues with DMSA?

> >

> > Mandi x

> > In a message dated 07/12/2010 09:07:36 GMT

Standard Time,

> > harebigears@... writes:

> >

> > Wow thats brilliant Mandi!! Sam the Big Man!!

makes me want

> > to look at chelating here again - will have to

get the brain

> > working first!

> > Really fantastic news, you all so deserve it! Di

xx

> >

> >

> >

>

[Guest guest]

You will still see gains.

I know a 34 year old who has been chelating approx 9 months and his mother see's

gains with him constantly.

Shows it's never to late.

Thank god swallows capsules now!!

Kirsty

x

> > > >

> > > >

> > > > From: Mum231ASD@ <Mum231ASD@>

> > > > Subject: Re: Chelation Update - long &

> > > > wittery

> > > > To: Autism-Biomedical-Europe

> > <mailto:Autism-Biomedical-Europe%40yahoogroups.com>

> > > > Date: Tuesday, 7 December, 2010, 11:04

> > > >

> > > > Thanks Di, did you ever try the TD DMPS? Didn't your Sam have

> > > > issues with DMSA?

> > > >

> > > > Mandi x

> > > > In a message dated 07/12/2010 09:07:36 GMT Standard Time,

> > > > harebigears@ writes:

> > > >

> > > > Wow thats brilliant Mandi!! Sam the Big Man!! makes me want

> > > > to look at chelating here again - will have to get the brain

> > > > working first!

> > > > Really fantastic news, you all so deserve it! Di xx

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Hi Mandi -so great to hear how things are progressing with Sam and Good on you

for keeping at it so long .You are one of my hero's -have bought the ALA and

its sitting looking at me everytime i open the supps cupboard !..after xmas

I had an amazing wow with Joe yesterday .Joe had words but no communication he

repeats words like helicopter, christmas over and over all day .im really going

hard after yeast with diflucan and nats now and started mHBOT - we've done just

over 30 hours -.He is now babbling alot more amidst all his drunken yeastiness .

well yesterday we were looking at Buzz lightyear on the disney shop online .he

noticed the toy soldiers . I thought he wouldnt have a clue what they were as we

dont have any toys like that here but as he was so focused on it I asked what

is was .after 3 or 4 attempts he said " shoulders and parachutes " it was one of

those moments of utter disbelief looking around behind me to see if someone else

said it .Of course he wouldnt say it again for me but i know it is all in there

for Joe and all of our kids.

Im hoping that everyone on the list gets their own WOW moment and more - a

reward for all the hard slog in 2010

>

> >>Ha ha indeed, Stephs Tom is good at coming out with this sort of stuff

> as I recall, looking forward to having the same problem myself

>

> Mx

>

>

> In a message dated 07/12/2010 12:43:21 GMT Standard Time, MaddiganV@...

> writes:

>

> Desire to listen improves when he knows what you are saying,

> I think he knows.

> As for we do have a very clear f***er!!!!! This proves it's chelation

> as it isn't a word we are working on with VB, ha, ha but where did he hear

> it? Now let me think.

>

[Guest guest]

Really Kirsty ? That made me cry again , its been wonderful to read everyone's

updates.

I hope so too...ds nearly 15.

I hope to start soon too Jane .

N x

> > > > >

> > > > >

> > > > > From: Mum231ASD@ <Mum231ASD@>

> > > > > Subject: Re: Chelation Update - long &

> > > > > wittery

> > > > > To: Autism-Biomedical-Europe

> > > <mailto:Autism-Biomedical-Europe%40yahoogroups.com>

> > > > > Date: Tuesday, 7 December, 2010, 11:04

> > > > >

> > > > > Thanks Di, did you ever try the TD DMPS? Didn't your Sam have

> > > > > issues with DMSA?

> > > > >

> > > > > Mandi x

> > > > > In a message dated 07/12/2010 09:07:36 GMT Standard Time,

> > > > > harebigears@ writes:

> > > > >

> > > > > Wow thats brilliant Mandi!! Sam the Big Man!! makes me want

> > > > > to look at chelating here again - will have to get the brain

> > > > > working first!

> > > > > Really fantastic news, you all so deserve it! Di xx

> > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

Keep posting the improvements everyone - it's so encouraging !

BTW - which vit c and vit e would you recommend for gfcf diet?

Thanks,

Really Kirsty ? That made me cry again , its been

wonderful to read everyone's updates.

I hope so too...ds nearly 15.

I hope to start soon too Jane .

N x

> > > > >

> > > > >

> > > > > From: Mum231ASD@

<Mum231ASD@>

> > > > > Subject: Re:

Chelation Update - long &

> > > > > wittery

> > > > > To: Autism-Biomedical-Europe

> > >

<mailto:Autism-Biomedical-Europe%40yahoogroups.com>

> > > > > Date: Tuesday, 7 December, 2010,

11:04

> > > > >

> > > > > Thanks Di, did you ever try the

TD DMPS? Didn't your Sam have

> > > > > issues with DMSA?

> > > > >

> > > > > Mandi x

> > > > > In a message dated 07/12/2010

09:07:36 GMT Standard Time,

> > > > > harebigears@ writes:

> > > > >

> > > > > Wow thats brilliant Mandi!! Sam

the Big Man!! makes me want

> > > > > to look at chelating here again -

will have to get the brain

> > > > > working first!

> > > > > Really fantastic news, you all so

deserve it! Di xx

> > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

I speak to his mum every other day so when i get back from hols, I'll get her to

tell me an update on how he is, and i'll post it on here for everyone

Kirsty

x

> > > > > >

> > > > > >

> > > > > > From: Mum231ASD@ <Mum231ASD@>

> > > > > > Subject: Re: Chelation Update - long &

> > > > > > wittery

> > > > > > To: Autism-Biomedical-Europe

> > > > <mailto:Autism-Biomedical-Europe%40yahoogroups.com>

> > > > > > Date: Tuesday, 7 December, 2010, 11:04

> > > > > >

> > > > > > Thanks Di, did you ever try the TD DMPS? Didn't your Sam have

> > > > > > issues with DMSA?

> > > > > >

> > > > > > Mandi x

> > > > > > In a message dated 07/12/2010 09:07:36 GMT Standard Time,

> > > > > > harebigears@ writes:

> > > > > >

> > > > > > Wow thats brilliant Mandi!! Sam the Big Man!! makes me want

> > > > > > to look at chelating here again - will have to get the brain

> > > > > > working first!

> > > > > > Really fantastic news, you all so deserve it! Di xx

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

TST The Scotson Technique

KIB is KIB500

http://www.benchmarkhealth.co.uk/productinfo.html

Kirsty

x

> >

> > Well an everything update really.

> >

> > As many of you know we have had major issues with aggressive behaviour

> > since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC

> > done with good effect, mostly cognitive improvements.

> >

> > Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle

> > night dosing and everything else going on, business and 3 teen boys. Kept

> > up by doing occasional rounds of TD DMPS that he also did well on but given

> > his size was this very expensive after pound exchange rate dived as

> > purchasing in Euro's.

> >

> > End of August we started DMSA/ALA rounds again, hypothesising that as he

> > was growing VERY quickly that Lead (stored in bones) was being released and

> > may be contributing to aggressive behaviours. Started back up at 12.5/12.5

> > which was probably a little high but he didn't;t seem phased, very little

in

> > the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and

> > CP1.

> >

> > Been looking for patterns in behaviour and now I am very sure that

> > chelation is helping. Grumpy and lairy on returning from school on Friday

and a

> > pussycat cutey 2 hours post the first dose

> >

> > His behaviour had been much better at school but had still been aggressive

> > with me.Chelation is no longer an option, its a necessity so have been

> > doing rounds every weekend, Friday afternoon - Monday morning.

> >

> > We are up to 25mg/25mg and I'm finding it easier to handle as I get back

> > into the swing of it, First weekend was a complete killer, waaay out of

> > practise and anxious about forgetting a dose and working it around him

going out

> > with DP carer.

> >

> > He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm,

> > 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose

> > before we go out. So excited I was at telling him about Sam being cute as

> > dose kicked in .................so óff they went and was tidying up supps

when

> > they had gone and realised too much chatting and not given the dose -

> > arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam,

> > panicking them, where has this young man been taking my son all these

Friday

> > nights??? Just about to lose the plot when they turned up so got dose in

only

> > 20 mins late - phew - they had just stopped for petrol.

> >

> > This is the third weekend Jack has reported Sam 'talking' in the car, last

> > week, 3 blind mice, clear as day, this week two lots of 'round and round'

> > heard by both my Tom (DP assistant when going swimming with slides) and

> > Jack. Jack said after he was making sounds with right timing but not so

clear.

> > We have had odd occasions when a word dropped out but Sam seemed very

> > scared by it, explained to me before that words can come from

two

> > places, I think the clear ones just fall out and the less clear ones are

> > him actually making them come out himself. Very vocal this past weekend,

can

> > tell voice has broken now.

> >

> > I'm very excited. Behaviour improvements I am sure are chelation, the words

> > could be TST or KIB or all of it related, who the hell cares, not me, I

> > plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January

> > and I've waited long enough and worked hard enough, it will happen.

> >

> > He has also make leaps academically already this term, 4 P grades in maths

> > and a few in English but I forget what that was now.

> >

> > I think a combination of fast growth releasing Lead at same time as quickly

> > increasing need for oxygen may be behind behaviour issues in many teens,

> > positive we are on the right track with chelation and TST.

> >

> > Oh nearly forgot, he is now eating proper hot food for dinner including

> > VEGETABLES and SALAD!!!, something we've not seen since before GFCF

> >

> > So all want for Christmas is MUM, at me, for me, on purpose, he does says

> > it already but as part of babble, I'll be able to tell the difference

> >

> > Mandi x 140 rounds and counting...........

> > Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder,

> > Severe Cute-ness +

> >

>

[Guest guest]

Dear Mandi,

That's wonderful.You see,we've got every right to hope for.I am sure Sam will

give you more nice surprises soon.

I will go to see next week ,what is in the third package, any clues??

Nevin

> > >

> > > Well an everything update really.

> > >

> > > As many of you know we have had major issues with aggressive behaviour

> > > since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of

AC

> > > done with good effect, mostly cognitive improvements.

> > >

> > > Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle

> > > night dosing and everything else going on, business and 3 teen boys. Kept

> > > up by doing occasional rounds of TD DMPS that he also did well on but

given

> > > his size was this very expensive after pound exchange rate dived as

> > > purchasing in Euro's.

> > >

> > > End of August we started DMSA/ALA rounds again, hypothesising that as he

> > > was growing VERY quickly that Lead (stored in bones) was being released

and

> > > may be contributing to aggressive behaviours. Started back up at

12.5/12.5

> > > which was probably a little high but he didn't;t seem phased, very little

in

> > > the way of yeast - easily dealt with using probiotics, Kirkman Sacc B

and

> > > CP1.

> > >

> > > Been looking for patterns in behaviour and now I am very sure that

> > > chelation is helping. Grumpy and lairy on returning from school on Friday

and a

> > > pussycat cutey 2 hours post the first dose

> > >

> > > His behaviour had been much better at school but had still been

aggressive

> > > with me.Chelation is no longer an option, its a necessity so have been

> > > doing rounds every weekend, Friday afternoon - Monday morning.

> > >

> > > We are up to 25mg/25mg and I'm finding it easier to handle as I get back

> > > into the swing of it, First weekend was a complete killer, waaay out of

> > > practise and anxious about forgetting a dose and working it around him

going out

> > > with DP carer.

> > >

> > > He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm,

> > > 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to

dose

> > > before we go out. So excited I was at telling him about Sam being cute as

> > > dose kicked in .................so óff they went and was tidying up supps

when

> > > they had gone and realised too much chatting and not given the dose -

> > > arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam,

> > > panicking them, where has this young man been taking my son all these

Friday

> > > nights??? Just about to lose the plot when they turned up so got dose in

only

> > > 20 mins late - phew - they had just stopped for petrol.

> > >

> > > This is the third weekend Jack has reported Sam 'talking' in the car, last

> > > week, 3 blind mice, clear as day, this week two lots of 'round and round'

> > > heard by both my Tom (DP assistant when going swimming with slides) and

> > > Jack. Jack said after he was making sounds with right timing but not so

clear.

> > > We have had odd occasions when a word dropped out but Sam seemed very

> > > scared by it, explained to me before that words can come

from two

> > > places, I think the clear ones just fall out and the less clear ones are

> > > him actually making them come out himself. Very vocal this past weekend,

can

> > > tell voice has broken now.

> > >

> > > I'm very excited. Behaviour improvements I am sure are chelation, the

words

> > > could be TST or KIB or all of it related, who the hell cares, not me, I

> > > plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in

January

> > > and I've waited long enough and worked hard enough, it will happen.

> > >

> > > He has also make leaps academically already this term, 4 P grades in maths

> > > and a few in English but I forget what that was now.

> > >

> > > I think a combination of fast growth releasing Lead at same time as

quickly

> > > increasing need for oxygen may be behind behaviour issues in many teens,

> > > positive we are on the right track with chelation and TST.

> > >

> > > Oh nearly forgot, he is now eating proper hot food for dinner including

> > > VEGETABLES and SALAD!!!, something we've not seen since before GFCF

> > >

> > > So all want for Christmas is MUM, at me, for me, on purpose, he does

says

> > > it already but as part of babble, I'll be able to tell the difference

> > >

> > > Mandi x 140 rounds and counting...........

> > > Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder,

> > > Severe Cute-ness +

> > >

> >

>