Re: Chelation Update - long & wittery :)

[Guest guest]

Thanks Zahra, meant to say he has had another awesome Monday at school today, he used to have an issue with end of round grumps when we first started but don;t seem to be having them this time which is even better

Mx

Amazing news, Mandi. I'm so happy for you, Sam and the boys .

ZahraSent from my iPhone

Well an everything update really.

As many of you know we have had major issues with aggressive behaviour since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC done with good effect, mostly cognitive improvements.

Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle night dosing and everything else going on, business and 3 teen boys. Kept up by doing occasional rounds of TD DMPS that he also did well on but given his size was this very expensive after pound exchange rate dived as purchasing in Euro's.

End of August we started DMSA/ALA rounds again, hypothesising that as he was growing VERY quickly that Lead (stored in bones) was being released and may be contributing to aggressive behaviours. Started back up at 12.5/12.5 which was probably a little high but he didn't;t seem phased, very little in the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and CP1.

Been looking for patterns in behaviour and now I am very sure that chelation is helping. Grumpy and lairy on returning from school on Friday and a pussycat cutey 2 hours post the first dose

His behaviour had been much better at school but had still been aggressive with me.Chelation is no longer an option, its a necessity so have been doing rounds every weekend, Friday afternoon - Monday morning.

We are up to 25mg/25mg and I'm finding it easier to handle as I get back into the swing of it, First weekend was a complete killer, waaay out of practise and anxious about forgetting a dose and working it around him going out with DP carer.

He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm, 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose before we go out. So excited I was at telling him about Sam being cute as dose kicked in .................so óff they went and was tidying up supps when they had gone and realised too much chatting and not given the dose - arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam, panicking them, where has this young man been taking my son all these Friday nights??? Just about to lose the plot when they turned up so got dose in only 20 mins late - phew - they had just stopped for petrol.

This is the third weekend Jack has reported Sam 'talking' in the car, last week, 3 blind mice, clear as day, this week two lots of 'round and round' heard by both my Tom (DP assistant when going swimming with slides) and Jack. Jack said after he was making sounds with right timing but not so clear. We have had odd occasions when a word dropped out but Sam seemed very scared by it, explained to me before that words can come from two places, I think the clear ones just fall out and the less clear ones are him actually making them come out himself. Very vocal this past weekend, can tell voice has broken now.

I'm very excited. Behaviour improvements I am sure are chelation, the words could be TST or KIB or all of it related, who the hell cares, not me, I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January and I've waited long enough and worked hard enough, it will happen.

He has also make leaps academically already this term, 4 P grades in maths and a few in English but I forget what that was now.

I think a combination of fast growth releasing Lead at same time as quickly increasing need for oxygen may be behind behaviour issues in many teens, positive we are on the right track with chelation and TST.

Oh nearly forgot, he is now eating proper hot food for dinner including VEGETABLES and SALAD!!!, something we've not seen since before GFCF

So all want for Christmas is MUM, at me, for me, on purpose, he does says it already but as part of babble, I'll be able to tell the difference

Mandi x 140 rounds and counting...........

Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder, Severe Cute-ness +

[Guest guest]

Thanks, share an update on your little lady soon!Mandi x

That's put a smile on my face before I go to sleep (and get up at 11pm and 3am for the crucial doses!)

[Guest guest]

I never thought I would see it, he is eating more green stuff than Joe now. I have only been giving one veg at a time, keen not to push my luck but today at school he had peas and carrots with his fish and potatoes and woofed it all down, I am sorta still in shock about it all. Adult portions too, after starting with just 10 peas.

Today was first day for cooked carrots with fork, been raw before with fingers

Mandi x

The eating veg and salad is a huge thing....it's something i want for my Sam and will keel over the day it happens!!

[Guest guest]

Amazing news, Mandi. I'm so happy for you, Sam and the boys .ZahraSent from my iPhone

Well an everything update really.

As many of you know we have had major issues with aggressive behaviour since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC done with good effect, mostly cognitive improvements.

Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle night dosing and everything else going on, business and 3 teen boys. Kept up by doing occasional rounds of TD DMPS that he also did well on but given his size was this very expensive after pound exchange rate dived as purchasing in Euro's.

End of August we started DMSA/ALA rounds again, hypothesising that as he was growing VERY quickly that Lead (stored in bones) was being released and may be contributing to aggressive behaviours. Started back up at 12.5/12.5 which was probably a little high but he didn't;t seem phased, very little in the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and CP1.

Been looking for patterns in behaviour and now I am very sure that chelation is helping. Grumpy and lairy on returning from school on Friday and a pussycat cutey 2 hours post the first dose

His behaviour had been much better at school but had still been aggressive with me.Chelation is no longer an option, its a necessity so have been doing rounds every weekend, Friday afternoon - Monday morning.

We are up to 25mg/25mg and I'm finding it easier to handle as I get back into the swing of it, First weekend was a complete killer, waaay out of practise and anxious about forgetting a dose and working it around him going out with DP carer.

He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm, 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose before we go out. So excited I was at telling him about Sam being cute as dose kicked in .................so óff they went and was tidying up supps when they had gone and realised too much chatting and not given the dose - arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam, panicking them, where has this young man been taking my son all these Friday nights??? Just about to lose the plot when they turned up so got dose in only 20 mins late - phew - they had just stopped for petrol.

This is the third weekend Jack has reported Sam 'talking' in the car, last week, 3 blind mice, clear as day, this week two lots of 'round and round' heard by both my Tom (DP assistant when going swimming with slides) and Jack. Jack said after he was making sounds with right timing but not so clear. We have had odd occasions when a word dropped out but Sam seemed very scared by it, explained to me before that words can come from two places, I think the clear ones just fall out and the less clear ones are him actually making them come out himself. Very vocal this past weekend, can tell voice has broken now.

I'm very excited. Behaviour improvements I am sure are chelation, the words could be TST or KIB or all of it related, who the hell cares, not me, I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January and I've waited long enough and worked hard enough, it will happen.

He has also make leaps academically already this term, 4 P grades in maths and a few in English but I forget what that was now.

I think a combination of fast growth releasing Lead at same time as quickly increasing need for oxygen may be behind behaviour issues in many teens, positive we are on the right track with chelation and TST.

Oh nearly forgot, he is now eating proper hot food for dinner including VEGETABLES and SALAD!!!, something we've not seen since before GFCF

So all want for Christmas is MUM, at me, for me, on purpose, he does says it already but as part of babble, I'll be able to tell the difference

Mandi x 140 rounds and counting...........

Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder, Severe Cute-ness +

[Guest guest]

Wow, that's AWESOME Mandi! Made me cry. Hope Santa does come through for you

and Sam and delivers the big M word - all you want for Christmas. The

understatement of the year is that you deserve it. Hallelujah! Amen.

That's put a smile on my face before I go to sleep (and get up at 11pm and 3am

for the crucial doses!)

Simone x

[Guest guest]

Thats fantastic Mandi.

It goes to show that whatever age you start this stuff, it all makes a huge

difference.

I will also go to sleep with a huge smile on my face (when i get up at 1am and

4am!)

Will update on my Sammy very soon once I get 5 minutes to write it up.

The eating veg and salad is a huge thing....it's something i want for my Sam and

will keel over the day it happens!!

Well done you, and everything you do for Sam and your boys.

Thank you for sharing, it gives people the real hope they need.

I'll post soon

Kirsty

Round 30

Sam 8,

>

> Well an everything update really.

>

> As many of you know we have had major issues with aggressive behaviour

> since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC

> done with good effect, mostly cognitive improvements.

>

> Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle

> night dosing and everything else going on, business and 3 teen boys. Kept

> up by doing occasional rounds of TD DMPS that he also did well on but given

> his size was this very expensive after pound exchange rate dived as

> purchasing in Euro's.

>

> End of August we started DMSA/ALA rounds again, hypothesising that as he

> was growing VERY quickly that Lead (stored in bones) was being released and

> may be contributing to aggressive behaviours. Started back up at 12.5/12.5

> which was probably a little high but he didn't;t seem phased, very little in

> the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and

> CP1.

>

> Been looking for patterns in behaviour and now I am very sure that

> chelation is helping. Grumpy and lairy on returning from school on Friday and

a

> pussycat cutey 2 hours post the first dose

>

> His behaviour had been much better at school but had still been aggressive

> with me.Chelation is no longer an option, its a necessity so have been

> doing rounds every weekend, Friday afternoon - Monday morning.

>

> We are up to 25mg/25mg and I'm finding it easier to handle as I get back

> into the swing of it, First weekend was a complete killer, waaay out of

> practise and anxious about forgetting a dose and working it around him going

out

> with DP carer.

>

> He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm,

> 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose

> before we go out. So excited I was at telling him about Sam being cute as

> dose kicked in .................so óff they went and was tidying up supps

when

> they had gone and realised too much chatting and not given the dose -

> arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam,

> panicking them, where has this young man been taking my son all these Friday

> nights??? Just about to lose the plot when they turned up so got dose in only

> 20 mins late - phew - they had just stopped for petrol.

>

> This is the third weekend Jack has reported Sam 'talking' in the car, last

> week, 3 blind mice, clear as day, this week two lots of 'round and round'

> heard by both my Tom (DP assistant when going swimming with slides) and

> Jack. Jack said after he was making sounds with right timing but not so

clear.

> We have had odd occasions when a word dropped out but Sam seemed very

> scared by it, explained to me before that words can come from

two

> places, I think the clear ones just fall out and the less clear ones are

> him actually making them come out himself. Very vocal this past weekend, can

> tell voice has broken now.

>

> I'm very excited. Behaviour improvements I am sure are chelation, the words

> could be TST or KIB or all of it related, who the hell cares, not me, I

> plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January

> and I've waited long enough and worked hard enough, it will happen.

>

> He has also make leaps academically already this term, 4 P grades in maths

> and a few in English but I forget what that was now.

>

> I think a combination of fast growth releasing Lead at same time as quickly

> increasing need for oxygen may be behind behaviour issues in many teens,

> positive we are on the right track with chelation and TST.

>

> Oh nearly forgot, he is now eating proper hot food for dinner including

> VEGETABLES and SALAD!!!, something we've not seen since before GFCF

>

> So all want for Christmas is MUM, at me, for me, on purpose, he does says

> it already but as part of babble, I'll be able to tell the difference

>

> Mandi x 140 rounds and counting...........

> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder,

> Severe Cute-ness +

>

[Guest guest]

Mandi, i am loving it, seriously that is great news, i have some wonderful stuff going on here too, as you now i have been doing AC chelation since April this year, weekend rounds but odd weekends i have had off if i have been out or just need a break and TST since July. Well this weekend, my daughter was in her bedroom (which is downstairs next to the lounge) Harry (my DS) absolutely loves her boyfriend Sam (who we call ). So anyway here is my son (who has a few words but only uses them when he really wants something or with prompting) knocking my daughters bedroom door saying "Sambol, let me in", i was crying with laughter, hilarious and joyous all at once (plus functional and unprompted) BIG WOW for us! Also Harry has been taking his pull up off at night, as you know he has been toilet trained in the daytime for nearly 3 years, so i have taken the plunge and in 2 weeks he has only had 2 wet nights but they were just dribbles in the bed not really wet and the toilet (camping toilet called Kampa Karzy) i bought to go in his bedroom always has wee in it in the morning, i did lift him for the first few nights at about 3am but he sometimes didn't need to go so i have left him, i have just this minute ordered the Krazy straws online, i couldn't find them in my local Asda. Oh and he has been spotted singing "row row row your boat" by me and the girls several times over last couple of weeks and my daughter even commented that he has been trying to talk loads more lately and it is certainly getting clearer especially his counting, before only people who knew him could understrand him but now anyone would, he has also started saying two syllable words like dolphin. It is amazing how much progress he has made just this year, need to buy a camcorder for the new year because when i start homeschooling i want to document his progress and then i can look back and see just how far he has come.

x

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Mon, 6 Dec 2010 17:26:37 -0500Subject: Re: Chelation Update - long & wittery

Thanks Zahra, meant to say he has had another awesome Monday at school today, he used to have an issue with end of round grumps when we first started but don;t seem to be having them this time which is even better

Mx

Amazing news, Mandi. I'm so happy for you, Sam and the boys .

ZahraSent from my iPhone

Well an everything update really.

As many of you know we have had major issues with aggressive behaviour since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC done with good effect, mostly cognitive improvements.

Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle night dosing and everything else going on, business and 3 teen boys. Kept up by doing occasional rounds of TD DMPS that he also did well on but given his size was this very expensive after pound exchange rate dived as purchasing in Euro's.

End of August we started DMSA/ALA rounds again, hypothesising that as he was growing VERY quickly that Lead (stored in bones) was being released and may be contributing to aggressive behaviours. Started back up at 12.5/12.5 which was probably a little high but he didn't;t seem phased, very little in the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and CP1.

Been looking for patterns in behaviour and now I am very sure that chelation is helping. Grumpy and lairy on returning from school on Friday and a pussycat cutey 2 hours post the first dose

His behaviour had been much better at school but had still been aggressive with me.Chelation is no longer an option, its a necessity so have been doing rounds every weekend, Friday afternoon - Monday morning.

We are up to 25mg/25mg and I'm finding it easier to handle as I get back into the swing of it, First weekend was a complete killer, waaay out of practise and anxious about forgetting a dose and working it around him going out with DP carer.

He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm, 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose before we go out. So excited I was at telling him about Sam being cute as dose kicked in .................so óff they went and was tidying up supps when they had gone and realised too much chatting and not given the dose - arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam, panicking them, where has this young man been taking my son all these Friday nights??? Just about to lose the plot when they turned up so got dose in only 20 mins late - phew - they had just stopped for petrol.

This is the third weekend Jack has reported Sam 'talking' in the car, last week, 3 blind mice, clear as day, this week two lots of 'round and round' heard by both my Tom (DP assistant when going swimming with slides) and Jack. Jack said after he was making sounds with right timing but not so clear. We have had odd occasions when a word dropped out but Sam seemed very scared by it, explained to me before that words can come from two places, I think the clear ones just fall out and the less clear ones are him actually making them come out himself. Very vocal this past weekend, can tell voice has broken now.

I'm very excited. Behaviour improvements I am sure are chelation, the words could be TST or KIB or all of it related, who the hell cares, not me, I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January and I've waited long enough and worked hard enough, it will happen.

He has also make leaps academically already this term, 4 P grades in maths and a few in English but I forget what that was now.

I think a combination of fast growth releasing Lead at same time as quickly increasing need for oxygen may be behind behaviour issues in many teens, positive we are on the right track with chelation and TST.

Oh nearly forgot, he is now eating proper hot food for dinner including VEGETABLES and SALAD!!!, something we've not seen since before GFCF

So all want for Christmas is MUM, at me, for me, on purpose, he does says it already but as part of babble, I'll be able to tell the difference

Mandi x 140 rounds and counting...........

Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder, Severe Cute-ness +

[Guest guest]

Really pleased for you and Sam !!. He'll start eating you out of house and home

next !!

Congratulations !

Sharon x

>

> Well an everything update really.

>

> As many of you know we have had major issues with aggressive behaviour

> since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC

> done with good effect, mostly cognitive improvements.

>

> Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle

> night dosing and everything else going on, business and 3 teen boys. Kept

> up by doing occasional rounds of TD DMPS that he also did well on but given

> his size was this very expensive after pound exchange rate dived as

> purchasing in Euro's.

>

> End of August we started DMSA/ALA rounds again, hypothesising that as he

> was growing VERY quickly that Lead (stored in bones) was being released and

> may be contributing to aggressive behaviours. Started back up at 12.5/12.5

> which was probably a little high but he didn't;t seem phased, very little in

> the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and

> CP1.

>

> Been looking for patterns in behaviour and now I am very sure that

> chelation is helping. Grumpy and lairy on returning from school on Friday and

a

> pussycat cutey 2 hours post the first dose

>

> His behaviour had been much better at school but had still been aggressive

> with me.Chelation is no longer an option, its a necessity so have been

> doing rounds every weekend, Friday afternoon - Monday morning.

>

> We are up to 25mg/25mg and I'm finding it easier to handle as I get back

> into the swing of it, First weekend was a complete killer, waaay out of

> practise and anxious about forgetting a dose and working it around him going

out

> with DP carer.

>

> He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm,

> 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose

> before we go out. So excited I was at telling him about Sam being cute as

> dose kicked in .................so óff they went and was tidying up supps

when

> they had gone and realised too much chatting and not given the dose -

> arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam,

> panicking them, where has this young man been taking my son all these Friday

> nights??? Just about to lose the plot when they turned up so got dose in only

> 20 mins late - phew - they had just stopped for petrol.

>

> This is the third weekend Jack has reported Sam 'talking' in the car, last

> week, 3 blind mice, clear as day, this week two lots of 'round and round'

> heard by both my Tom (DP assistant when going swimming with slides) and

> Jack. Jack said after he was making sounds with right timing but not so

clear.

> We have had odd occasions when a word dropped out but Sam seemed very

> scared by it, explained to me before that words can come from

two

> places, I think the clear ones just fall out and the less clear ones are

> him actually making them come out himself. Very vocal this past weekend, can

> tell voice has broken now.

>

> I'm very excited. Behaviour improvements I am sure are chelation, the words

> could be TST or KIB or all of it related, who the hell cares, not me, I

> plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January

> and I've waited long enough and worked hard enough, it will happen.

>

> He has also make leaps academically already this term, 4 P grades in maths

> and a few in English but I forget what that was now.

>

> I think a combination of fast growth releasing Lead at same time as quickly

> increasing need for oxygen may be behind behaviour issues in many teens,

> positive we are on the right track with chelation and TST.

>

> Oh nearly forgot, he is now eating proper hot food for dinner including

> VEGETABLES and SALAD!!!, something we've not seen since before GFCF

>

> So all want for Christmas is MUM, at me, for me, on purpose, he does says

> it already but as part of babble, I'll be able to tell the difference

>

> Mandi x 140 rounds and counting...........

> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder,

> Severe Cute-ness +

>

[Guest guest]

Also i have just bought a waffle maker and was busy making some yesterday morning, when he went over got his bread off the shelf bought it over to me and said "toast", i explained to him that i was making him some waffles, to which the reply in a very kurt loud voice was "toast NOW!" Well he asked so he got it and guess who ate the waffles....yes me, very nice gluten free ones they were too. He gets the NOW bit from me, as he still keeps disapearing upstairs to his bedroom where he strips his clothes off (thinks it's a great game) so i am having to tell him in my kurt voice to put his clothes back on NOW, well i can tick that word off, def knows what it means.

x

To: autism-biomedical-europe From: michelle0471@...Date: Mon, 6 Dec 2010 23:31:07 +0000Subject: RE: Chelation Update - long & wittery

Mandi, i am loving it, seriously that is great news, i have some wonderful stuff going on here too, as you now i have been doing AC chelation since April this year, weekend rounds but odd weekends i have had off if i have been out or just need a break and TST since July. Well this weekend, my daughter was in her bedroom (which is downstairs next to the lounge) Harry (my DS) absolutely loves her boyfriend Sam (who we call ). So anyway here is my son (who has a few words but only uses them when he really wants something or with prompting) knocking my daughters bedroom door saying "Sambol, let me in", i was crying with laughter, hilarious and joyous all at once (plus functional and unprompted) BIG WOW for us! Also Harry has been taking his pull up off at night, as you know he has been toilet trained in the daytime for nearly 3 years, so i have taken the plunge and in 2 weeks he has only had 2 wet nights but they were just dribbles in the bed not really wet and the toilet (camping toilet called Kampa Karzy) i bought to go in his bedroom always has wee in it in the morning, i did lift him for the first few nights at about 3am but he sometimes didn't need to go so i have left him, i have just this minute ordered the Krazy straws online, i couldn't find them in my local Asda. Oh and he has been spotted singing "row row row your boat" by me and the girls several times over last couple of weeks and my daughter even commented that he has been trying to talk loads more lately and it is certainly getting clearer especially his counting, before only people who knew him could understrand him but now anyone would, he has also started saying two syllable words like dolphin. It is amazing how much progress he has made just this year, need to buy a camcorder for the new year because when i start homeschooling i want to document his progress and then i can look back and see just how far he has come. x

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Mon, 6 Dec 2010 17:26:37 -0500Subject: Re: Chelation Update - long & wittery

Thanks Zahra, meant to say he has had another awesome Monday at school today, he used to have an issue with end of round grumps when we first started but don;t seem to be having them this time which is even better

Mx

Amazing news, Mandi. I'm so happy for you, Sam and the boys .

ZahraSent from my iPhone

Well an everything update really.

As many of you know we have had major issues with aggressive behaviour since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC done with good effect, mostly cognitive improvements.

Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle night dosing and everything else going on, business and 3 teen boys. Kept up by doing occasional rounds of TD DMPS that he also did well on but given his size was this very expensive after pound exchange rate dived as purchasing in Euro's.

End of August we started DMSA/ALA rounds again, hypothesising that as he was growing VERY quickly that Lead (stored in bones) was being released and may be contributing to aggressive behaviours. Started back up at 12.5/12.5 which was probably a little high but he didn't;t seem phased, very little in the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and CP1.

Been looking for patterns in behaviour and now I am very sure that chelation is helping. Grumpy and lairy on returning from school on Friday and a pussycat cutey 2 hours post the first dose

His behaviour had been much better at school but had still been aggressive with me.Chelation is no longer an option, its a necessity so have been doing rounds every weekend, Friday afternoon - Monday morning.

We are up to 25mg/25mg and I'm finding it easier to handle as I get back into the swing of it, First weekend was a complete killer, waaay out of practise and anxious about forgetting a dose and working it around him going out with DP carer.

He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm, 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose before we go out. So excited I was at telling him about Sam being cute as dose kicked in .................so óff they went and was tidying up supps when they had gone and realised too much chatting and not given the dose - arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam, panicking them, where has this young man been taking my son all these Friday nights??? Just about to lose the plot when they turned up so got dose in only 20 mins late - phew - they had just stopped for petrol.

This is the third weekend Jack has reported Sam 'talking' in the car, last week, 3 blind mice, clear as day, this week two lots of 'round and round' heard by both my Tom (DP assistant when going swimming with slides) and Jack. Jack said after he was making sounds with right timing but not so clear. We have had odd occasions when a word dropped out but Sam seemed very scared by it, explained to me before that words can come from two places, I think the clear ones just fall out and the less clear ones are him actually making them come out himself. Very vocal this past weekend, can tell voice has broken now.

I'm very excited. Behaviour improvements I am sure are chelation, the words could be TST or KIB or all of it related, who the hell cares, not me, I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January and I've waited long enough and worked hard enough, it will happen.

He has also make leaps academically already this term, 4 P grades in maths and a few in English but I forget what that was now.

I think a combination of fast growth releasing Lead at same time as quickly increasing need for oxygen may be behind behaviour issues in many teens, positive we are on the right track with chelation and TST.

Oh nearly forgot, he is now eating proper hot food for dinner including VEGETABLES and SALAD!!!, something we've not seen since before GFCF

So all want for Christmas is MUM, at me, for me, on purpose, he does says it already but as part of babble, I'll be able to tell the difference

Mandi x 140 rounds and counting...........

Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder, Severe Cute-ness +

[Guest guest]

WOW and Mandi, what wonderful updates, well done to both of you and your boys.Joanne> > > > > > > > Well an everything update really.> > As many of you know we have had major issues with aggressive behaviour since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC done with good effect, mostly cognitive improvements. > > Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle night dosing and everything else going on, business and 3 teen boys. Kept up by doing occasional rounds of TD DMPS that he also did well on but given his size was this very expensive after pound exchange rate dived as purchasing in Euro's.> > End of August we started DMSA/ALA rounds again, hypothesising that as he was growing VERY quickly that Lead (stored in bones) was being released and may be contributing to aggressive behaviours. Started back up at 12.5/12.5 which was probably a little high but he didn't;t seem phased, very little in the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and CP1.> > Been looking for patterns in behaviour and now I am very sure that chelation is helping. Grumpy and lairy on returning from school on Friday and a pussycat cutey 2 hours post the first dose > > His behaviour had been much better at school but had still been aggressive with me.Chelation is no longer an option, its a necessity so have been doing rounds every weekend, Friday afternoon - Monday morning. > > We are up to 25mg/25mg and I'm finding it easier to handle as I get back into the swing of it, First weekend was a complete killer, waaay out of practise and anxious about forgetting a dose and working it around him going out with DP carer. > > He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm, 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose before we go out. So excited I was at telling him about Sam being cute as dose kicked in .................so óff they went and was tidying up supps when they had gone and realised too much chatting and not given the dose - arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam, panicking them, where has this young man been taking my son all these Friday nights??? Just about to lose the plot when they turned up so got dose in only 20 mins late - phew - they had just stopped for petrol.> > This is the third weekend Jack has reported Sam 'talking' in the car, last week, 3 blind mice, clear as day, this week two lots of 'round and round' heard by both my Tom (DP assistant when going swimming with slides) and Jack. Jack said after he was making sounds with right timing but not so clear. We have had odd occasions when a word dropped out but Sam seemed very scared by it, explained to me before that words can come from two places, I think the clear ones just fall out and the less clear ones are him actually making them come out himself. Very vocal this past weekend, can tell voice has broken now.> > I'm very excited. Behaviour improvements I am sure are chelation, the words could be TST or KIB or all of it related, who the hell cares, not me, I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January and I've waited long enough and worked hard enough, it will happen.> > He has also make leaps academically already this term, 4 P grades in maths and a few in English but I forget what that was now.> > I think a combination of fast growth releasing Lead at same time as quickly increasing need for oxygen may be behind behaviour issues in many teens, positive we are on the right track with chelation and TST.> > Oh nearly forgot, he is now eating proper hot food for dinner including VEGETABLES and SALAD!!!, something we've not seen since before GFCF> > So all want for Christmas is MUM, at me, for me, on purpose, he does says it already but as part of babble, I'll be able to tell the difference > > Mandi x 140 rounds and counting...........> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder, Severe Cute-ness +>

[Guest guest]

This is brilliant, his receptive language must have really soared from before as well.

I am sure you will get a talker Mandi.

We are seeing pretty much the same as you are, cognitively really big jumps, behaviour much improved with doing LDM100 again, but not quite there yet.

can count clearly to 10, to include seven!

He can count backwards from 10 also, and can tell us how many when asked and identify written numbers and figures.

I have "mum" but only on demand, he never asks for anyone by name.

We have lots of clear words and good approximations but still needs prompting, so many years not needing to ask for anything.

I was moaning my face off in the car about his father the other day and he laughed so much at all the appropriate insults, same thing when I was dissing the school, he is definitely so with us, must now start to tone it down when he is around.

is also making huge strides educationally, he reports feeling very tired during chelation but tells us he can understand things now and he didn't start chelating till he was 15!

Vicky

Re: Chelation Update - long & wittery

Thanks Zahra, meant to say he has had another awesome Monday at school today, he used to have an issue with end of round grumps when we first started but don;t seem to be having them this time which is even better

Mx

Amazing news, Mandi. I'm so happy for you, Sam and the boys .

Zahra

Sent from my iPhone

Well an everything update really.

As many of you know we have had major issues with aggressive behaviour since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC done with good effect, mostly cognitive improvements.

Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle night dosing and everything else going on, business and 3 teen boys. Kept up by doing occasional rounds of TD DMPS that he also did well on but given his size was this very expensive after pound exchange rate dived as purchasing in Euro's.

End of August we started DMSA/ALA rounds again, hypothesising that as he was growing VERY quickly that Lead (stored in bones) was being released and may be contributing to aggressive behaviours. Started back up at 12.5/12.5 which was probably a little high but he didn't;t seem phased, very little in the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and CP1.

Been looking for patterns in behaviour and now I am very sure that chelation is helping. Grumpy and lairy on returning from school on Friday and a pussycat cutey 2 hours post the first dose

His behaviour had been much better at school but had still been aggressive with me.Chelation is no longer an option, its a necessity so have been doing rounds every weekend, Friday afternoon - Monday morning.

We are up to 25mg/25mg and I'm finding it easier to handle as I get back into the swing of it, First weekend was a complete killer, waaay out of practise and anxious about forgetting a dose and working it around him going out with DP carer.

He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm, 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose before we go out. So excited I was at telling him about Sam being cute as dose kicked in .................so óff they went and was tidying up supps when they had gone and realised too much chatting and not given the dose - arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam, panicking them, where has this young man been taking my son all these Friday nights??? Just about to lose the plot when they turned up so got dose in only 20 mins late - phew - they had just stopped for petrol.

This is the third weekend Jack has reported Sam 'talking' in the car, last week, 3 blind mice, clear as day, this week two lots of 'round and round' heard by both my Tom (DP assistant when going swimming with slides) and Jack. Jack said after he was making sounds with right timing but not so clear. We have had odd occasions when a word dropped out but Sam seemed very scared by it, explained to me before that words can come from two places, I think the clear ones just fall out and the less clear ones are him actually making them come out himself. Very vocal this past weekend, can tell voice has broken now.

I'm very excited. Behaviour improvements I am sure are chelation, the words could be TST or KIB or all of it related, who the hell cares, not me, I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January and I've waited long enough and worked hard enough, it will happen.

He has also make leaps academically already this term, 4 P grades in maths and a few in English but I forget what that was now.

I think a combination of fast growth releasing Lead at same time as quickly increasing need for oxygen may be behind behaviour issues in many teens, positive we are on the right track with chelation and TST.

Oh nearly forgot, he is now eating proper hot food for dinner including VEGETABLES and SALAD!!!, something we've not seen since before GFCF

So all want for Christmas is MUM, at me, for me, on purpose, he does says it already but as part of babble, I'll be able to tell the difference

Mandi x 140 rounds and counting...........

Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder, Severe Cute-ness +

[Guest guest]

Vicki,

It really is lovely to hear how well and are getting along.

best wishes

Sharon x

>

>

>

>

>

>

>

>

> Well an everything update really.

>

>

>

> As many of you know we have had major issues with aggressive behaviour

since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC

done with good effect, mostly cognitive improvements.

>

>

>

> Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle

night dosing and everything else going on, business and 3 teen boys. Kept up

by doing occasional rounds of TD DMPS that he also did well on but given his

size was this very expensive after pound exchange rate dived as purchasing

in Euro's.

>

>

>

> End of August we started DMSA/ALA rounds again, hypothesising that as he

was growing VERY quickly that Lead (stored in bones) was being released and

may be contributing to aggressive behaviours. Started back up at 12.5/12.5

which was probably a little high but he didn't;t seem phased, very little in

the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and

CP1.

>

>

>

> Been looking for patterns in behaviour and now I am very sure that

chelation is helping. Grumpy and lairy on returning from school on Friday

and a pussycat cutey 2 hours post the first dose

>

>

>

> His behaviour had been much better at school but had still been aggressive

with me.Chelation is no longer an option, its a necessity so have been doing

rounds every weekend, Friday afternoon - Monday morning.

>

>

>

> We are up to 25mg/25mg and I'm finding it easier to handle as I get back

into the swing of it, First weekend was a complete killer, waaay out of

practise and anxious about forgetting a dose and working it around him going

out with DP carer.

>

>

>

> He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm,

7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose

before we go out. So excited I was at telling him about Sam being cute as

dose kicked in .................so óff they went and was tidying up supps

when they had gone and realised too much chatting and not given the dose -

arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam,

panicking them, where has this young man been taking my son all these Friday

nights??? Just about to lose the plot when they turned up so got dose in

only 20 mins late - phew - they had just stopped for petrol.

>

>

>

> This is the third weekend Jack has reported Sam 'talking' in the car, last

week, 3 blind mice, clear as day, this week two lots of 'round and round'

heard by both my Tom (DP assistant when going swimming with slides) and

Jack. Jack said after he was making sounds with right timing but not so

clear. We have had odd occasions when a word dropped out but Sam seemed very

scared by it, explained to me before that words can come from

two places, I think the clear ones just fall out and the less clear ones are

him actually making them come out himself. Very vocal this past weekend, can

tell voice has broken now.

>

>

>

> I'm very excited. Behaviour improvements I am sure are chelation, the

words could be TST or KIB or all of it related, who the hell cares, not me,

I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January

and I've waited long enough and worked hard enough, it will happen.

>

>

>

> He has also make leaps academically already this term, 4 P grades in maths

and a few in English but I forget what that was now.

>

>

>

> I think a combination of fast growth releasing Lead at same time as

quickly increasing need for oxygen may be behind behaviour issues in many

teens, positive we are on the right track with chelation and TST.

>

>

>

> Oh nearly forgot, he is now eating proper hot food for dinner including

VEGETABLES and SALAD!!!, something we've not seen since before GFCF

>

>

>

> So all want for Christmas is MUM, at me, for me, on purpose, he does says

it already but as part of babble, I'll be able to tell the difference

>

>

>

> Mandi x 140 rounds and counting...........

>

> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder,

Severe Cute-ness +

>

[Guest guest]

<<Very vocal this past weekend, can tell voice has broken now.>>I love every part of this..Really makes me cry.....Subject: Re: Chelation Update - long & wittery :)To: Autism-Biomedical-Europe Date: Tuesday, 7 December, 2010, 0:29

Vicki,

It really is lovely to hear how well and are getting along.

best wishes

Sharon x

>

>

>

>

>

>

>

>

> Well an everything update really.

>

>

>

> As many of you know we have had major issues with aggressive behaviour since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC done with good effect, mostly cognitive improvements.

>

>

>

> Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle night dosing and everything else going on, business and 3 teen boys. Kept up by doing occasional rounds of TD DMPS that he also did well on but given his size was this very expensive after pound exchange rate dived as purchasing in Euro's.

>

>

>

> End of August we started DMSA/ALA rounds again, hypothesising that as he was growing VERY quickly that Lead (stored in bones) was being released and may be contributing to aggressive behaviours. Started back up at 12.5/12.5 which was probably a little high but he didn't;t seem phased, very little in the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and CP1.

>

>

>

> Been looking for patterns in behaviour and now I am very sure that chelation is helping. Grumpy and lairy on returning from school on Friday and a pussycat cutey 2 hours post the first dose

>

>

>

> His behaviour had been much better at school but had still been aggressive with me.Chelation is no longer an option, its a necessity so have been doing rounds every weekend, Friday afternoon - Monday morning.

>

>

>

> We are up to 25mg/25mg and I'm finding it easier to handle as I get back into the swing of it, First weekend was a complete killer, waaay out of practise and anxious about forgetting a dose and working it around him going out with DP carer.

>

>

>

> He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm, 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose before we go out. So excited I was at telling him about Sam being cute as dose kicked in .................so óff they went and was tidying up supps when they had gone and realised too much chatting and not given the dose - arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam, panicking them, where has this young man been taking my son all these Friday nights??? Just about to lose the plot when they turned up so got dose in only 20 mins late - phew - they had just stopped for petrol.

>

>

>

> This is the third weekend Jack has reported Sam 'talking' in the car, last week, 3 blind mice, clear as day, this week two lots of 'round and round' heard by both my Tom (DP assistant when going swimming with slides) and Jack. Jack said after he was making sounds with right timing but not so clear. We have had odd occasions when a word dropped out but Sam seemed very scared by it, explained to me before that words can come from two places, I think the clear ones just fall out and the less clear ones are him actually making them come out himself. Very vocal this past weekend, can tell voice has broken now.

>

>

>

> I'm very excited. Behaviour improvements I am sure are chelation, the words could be TST or KIB or all of it related, who the hell cares, not me, I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January and I've waited long enough and worked hard enough, it will happen.

>

>

>

> He has also make leaps academically already this term, 4 P grades in maths and a few in English but I forget what that was now.

>

>

>

> I think a combination of fast growth releasing Lead at same time as quickly increasing need for oxygen may be behind behaviour issues in many teens, positive we are on the right track with chelation and TST.

>

>

>

> Oh nearly forgot, he is now eating proper hot food for dinner including VEGETABLES and SALAD!!!, something we've not seen since before GFCF

>

>

>

> So all want for Christmas is MUM, at me, for me, on purpose, he does says it already but as part of babble, I'll be able to tell the difference

>

>

>

> Mandi x 140 rounds and counting...........

>

> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder, Severe Cute-ness +

>

[Guest guest]

This is brilliant, his receptive language must have really soared from before as well.

>>yes it has, or at least his desire to listen has

I am sure you will get a talker Mandi.We are seeing pretty much the same as you are, cognitively really big jumps, behaviour much improved with doing LDM100 again, but not quite there yet. can count clearly to 10, to include seven!He can count backwards from 10 also, and can tell us how many when asked and identify written numbers and figures.I have "mum" but only on demand, he never asks for anyone by name.We have lots of clear words and good approximations but still needs prompting, so many years not needing to ask for anything.I was moaning my face off in the car about his father the other day and he laughed so much at all the appropriate insults, same thing when I was dissing the school, he is definitely so with us, must now start to tone it down when he is around.

>>Ha ha, this sort of thing will be his first sentances ................followed by laughter, sods law!

is also making huge strides educationally, he reports feeling very tired during chelation but tells us he can understand things now and he didn't start chelating till he was 15!

>>This is totally awesome, one of the ladies on A-M started with a 23 year old and saw great things, he was at Uni last I heard, still using FC but taking work in his stride, must mail her and see how he is dong these days

Do you do ALA with ? Sam looked tired and a bit pale when we did DMSA only so we added ALA on round 5 and he perked up no end, extra minerals helped too

Mandi x

[Guest guest]

Hi Mandi,Was really great to read your post this morning. It was very inspiring and I'm so happy for you and Sam. It just goes to show how much perseverance pays off. With 3 teens, a business and a divorce your doing an incredible job. In Sweden they tuck their thumbs into their fists instead of crossing their fingers for good luck so I'll be holding my thumbs that you hear the M word in time for Xmas. xSubject: Chelation Update - long & wittery :)To: Autism-Biomedical-Europe Date: Tuesday, December 7, 2010, 9:12 AM

Well an everything update really.

As many of you know we have had major issues with aggressive behaviour since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC done with good effect, mostly cognitive improvements.

Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle night dosing and everything else going on, business and 3 teen boys. Kept up by doing occasional rounds of TD DMPS that he also did well on but given his size was this very expensive after pound exchange rate dived as purchasing in Euro's.

End of August we started DMSA/ALA rounds again, hypothesising that as he was growing VERY quickly that Lead (stored in bones) was being released and may be contributing to aggressive behaviours. Started back up at 12.5/12.5 which was probably a little high but he didn't;t seem phased, very little in the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and CP1.

Been looking for patterns in behaviour and now I am very sure that chelation is helping. Grumpy and lairy on returning from school on Friday and a pussycat cutey 2 hours post the first dose

His behaviour had been much better at school but had still been aggressive with me.Chelation is no longer an option, its a necessity so have been doing rounds every weekend, Friday afternoon - Monday morning.

We are up to 25mg/25mg and I'm finding it easier to handle as I get back into the swing of it, First weekend was a complete killer, waaay out of practise and anxious about forgetting a dose and working it around him going out with DP carer.

He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm, 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose before we go out. So excited I was at telling him about Sam being cute as dose kicked in .................so óff they went and was tidying up supps when they had gone and realised too much chatting and not given the dose - arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam, panicking them, where has this young man been taking my son all these Friday nights??? Just about to lose the plot when they turned up so got dose in only 20 mins late - phew - they had just stopped for petrol.

This is the third weekend Jack has reported Sam 'talking' in the car, last week, 3 blind mice, clear as day, this week two lots of 'round and round' heard by both my Tom (DP assistant when going swimming with slides) and Jack. Jack said after he was making sounds with right timing but not so clear. We have had odd occasions when a word dropped out but Sam seemed very scared by it, explained to me before that words can come from two places, I think the clear ones just fall out and the less clear ones are him actually making them come out himself. Very vocal this past weekend, can tell voice has broken now.

I'm very excited. Behaviour improvements I am sure are chelation, the words could be TST or KIB or all of it related, who the hell cares, not me, I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January and I've waited long enough and worked hard enough, it will happen.

He has also make leaps academically already this term, 4 P grades in maths and a few in English but I forget what that was now.

I think a combination of fast growth releasing Lead at same time as quickly increasing need for oxygen may be behind behaviour issues in many teens, positive we are on the right track with chelation and TST.

Oh nearly forgot, he is now eating proper hot food for dinner including VEGETABLES and SALAD!!!, something we've not seen since before GFCF

So all want for Christmas is MUM, at me, for me, on purpose, he does says it already but as part of babble, I'll be able to tell the difference

Mandi x 140 rounds and counting...........

Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder, Severe Cute-ness +

[Guest guest]

This is a good time to give things like citrus pectin so that it picks up the lead in the gut and gets it out for good.....Subject: Re: Chelation Update - long & wittery :)To: Autism-Biomedical-Europe Date: Tuesday, 7 December, 2010, 0:29

Vicki,

It really is lovely to hear how well and are getting along.

best wishes

Sharon x

>

>

>

>

>

>

>

>

> Well an everything update really.

>

>

>

> As many of you know we have had major issues with aggressive behaviour since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC done with good effect, mostly cognitive improvements.

>

>

>

> Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle night dosing and everything else going on, business and 3 teen boys. Kept up by doing occasional rounds of TD DMPS that he also did well on but given his size was this very expensive after pound exchange rate dived as purchasing in Euro's.

>

>

>

> End of August we started DMSA/ALA rounds again, hypothesising that as he was growing VERY quickly that Lead (stored in bones) was being released and may be contributing to aggressive behaviours. Started back up at 12.5/12.5 which was probably a little high but he didn't;t seem phased, very little in the way of yeast - easily dealt with using probiotics, Kirkman Sacc B and CP1.

>

>

>

> Been looking for patterns in behaviour and now I am very sure that chelation is helping. Grumpy and lairy on returning from school on Friday and a pussycat cutey 2 hours post the first dose

>

>

>

> His behaviour had been much better at school but had still been aggressive with me.Chelation is no longer an option, its a necessity so have been doing rounds every weekend, Friday afternoon - Monday morning.

>

>

>

> We are up to 25mg/25mg and I'm finding it easier to handle as I get back into the swing of it, First weekend was a complete killer, waaay out of practise and anxious about forgetting a dose and working it around him going out with DP carer.

>

>

>

> He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm, 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose before we go out. So excited I was at telling him about Sam being cute as dose kicked in .................so óff they went and was tidying up supps when they had gone and realised too much chatting and not given the dose - arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam, panicking them, where has this young man been taking my son all these Friday nights??? Just about to lose the plot when they turned up so got dose in only 20 mins late - phew - they had just stopped for petrol.

>

>

>

> This is the third weekend Jack has reported Sam 'talking' in the car, last week, 3 blind mice, clear as day, this week two lots of 'round and round' heard by both my Tom (DP assistant when going swimming with slides) and Jack. Jack said after he was making sounds with right timing but not so clear. We have had odd occasions when a word dropped out but Sam seemed very scared by it, explained to me before that words can come from two places, I think the clear ones just fall out and the less clear ones are him actually making them come out himself. Very vocal this past weekend, can tell voice has broken now.

>

>

>

> I'm very excited. Behaviour improvements I am sure are chelation, the words could be TST or KIB or all of it related, who the hell cares, not me, I plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January and I've waited long enough and worked hard enough, it will happen.

>

>

>

> He has also make leaps academically already this term, 4 P grades in maths and a few in English but I forget what that was now.

>

>

>

> I think a combination of fast growth releasing Lead at same time as quickly increasing need for oxygen may be behind behaviour issues in many teens, positive we are on the right track with chelation and TST.

>

>

>

> Oh nearly forgot, he is now eating proper hot food for dinner including VEGETABLES and SALAD!!!, something we've not seen since before GFCF

>

>

>

> So all want for Christmas is MUM, at me, for me, on purpose, he does says it already but as part of babble, I'll be able to tell the difference

>

>

>

> Mandi x 140 rounds and counting...........

>

> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder, Severe Cute-ness +

>

[Guest guest]

I've been thinking about trying chelation again - this has given me

the inspiration I need! Can someone point me to a simple list of

supps that I need to have in place?

Well an everything update really.

As many of you know we have had major issues with

aggressive behaviour since Sam hit puberty big time.

He is a high Lead kid with 100+ rounds of AC done with

good effect, mostly cognitive improvements.

Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left

as I could not handle night dosing and everything else

going on, business and 3 teen boys. Kept up by doing

occasional rounds of TD DMPS that he also did well on

but given his size was this very expensive after pound

exchange rate dived as purchasing in Euro's.

End of August we started DMSA/ALA rounds again,

hypothesising that as he was growing VERY quickly that

Lead (stored in bones) was being released and may be

contributing to aggressive behaviours. Started back up

at 12.5/12.5 which was probably a little high but he

didn't;t seem phased, very little in the way of yeast

- easily dealt with using probiotics, Kirkman Sacc B

and CP1.

Been looking for patterns in behaviour and now I am

very sure that chelation is helping. Grumpy and lairy

on returning from school on Friday and a pussycat

cutey 2 hours post the first dose

His behaviour had been much better at school but

had still been aggressive with me.Chelation is no

longer an option, its a necessity so have been doing

rounds every weekend, Friday afternoon - Monday

morning.

We are up to 25mg/25mg and I'm finding it easier to

handle as I get back into the swing of it, First

weekend was a complete killer, waaay out of practise

and anxious about forgetting a dose and working it

around him going out with DP carer.

He goes to Youth Club on Friday night 7-9pm, so

that works for 4.00pm, 7,00pm, 10pm etc I got

everything ready, Jack DP carer knows we have to dose

before we go out. So excited I was at telling him

about Sam being cute as dose kicked in

..................so óff they went and was tidying up

supps when they had gone and realised too much

chatting and not given the dose - arghhhhhhhhh, so had

to drive smartish all the way to YC, no Jack or Sam,

panicking them, where has this young man been taking

my son all these Friday nights??? Just about to lose

the plot when they turned up so got dose in only 20

mins late - phew - they had just stopped for petrol.

This is the third weekend Jack has reported Sam

'talking' in the car, last week, 3 blind mice, clear

as day, this week two lots of 'round and round' heard

by both my Tom (DP assistant when going swimming with

slides) and Jack. Jack said after he was making sounds

with right timing but not so clear. We have had odd

occasions when a word dropped out but Sam seemed very

scared by it, explained to me before that

words can come from two places, I think the clear ones

just fall out and the less clear ones are him actually

making them come out himself. Very vocal this past

weekend, can tell voice has broken now.

I'm very excited. Behaviour improvements I am sure

are chelation, the words could be TST or KIB or all of

it related, who the hell cares, not me, I plan to keep

going with all of it, we WILL HAVE WORDS! He is 14 in

January and I've waited long enough and worked hard

enough, it will happen.

He has also make leaps academically already this

term, 4 P grades in maths and a few in English but I

forget what that was now.

I think a combination of fast growth releasing Lead

at same time as quickly increasing need for oxygen may

be behind behaviour issues in many teens, positive we

are on the right track with chelation and TST.

Oh nearly forgot, he is now eating proper hot food

for dinner including VEGETABLES and SALAD!!!,

something we've not seen since before GFCF

So all want for Christmas is MUM, at me, for me,

on purpose, he does says it already but as part of

babble, I'll be able to tell the difference

Mandi x 140 rounds and counting...........

Sam nearly 14 Dx 47XYY, Regressive autism, possible

Seizure Disorder, Severe Cute-ness +

[Guest guest]

Mandi, DMPS buttar protocol back in the old days under Dr U - cringe!! not good, then oral dmsa under Dr H - ok for a while then peeing got out of control ,really bad so stopped that, then did 16 rounds TD DMSA did see some very good things but again peeing out of control so stopped as had read if you don't see some improvements by then then probably not the issue, wanted to try PR EDTA but felt too intrusive! Any ideas??! Sam bigger and stronger so think we could look at this again, thanks Di x

Subject: Re: Chelation Update - long & wittery :)To: Autism-Biomedical-Europe Date: Tuesday, 7 December, 2010, 11:04

Thanks Di, did you ever try the TD DMPS? Didn't your Sam have issues with DMSA?

Mandi x

Wow thats brilliant Mandi!! Sam the Big Man!! makes me want to look at chelating here again - will have to get the brain working first!

Really fantastic news, you all so deserve it! Di xx

[Guest guest]

Desire to listen improves when he knows what you are saying,

I think he knows.

As for we do have a very clear f***er!!!!! This proves it's chelation as

it isn't a word we are working on with VB, ha, ha but where did he hear it? Now

let me think.

is on ALA but it's really my fault because I keep dropping

intolerant supps which he does tolerate, have to write them all down now as I

give them, it's confusing with 2 of them being chelated.

Vicky

>

>

> This is brilliant, his receptive language must have really soared from

> before as well.

>

>

> >>yes it has, or at least his desire to listen has

>

> I am sure you will get a talker Mandi.

> We are seeing pretty much the same as you are, cognitively really big

> jumps, behaviour much improved with doing LDM100 again, but not quite there

yet.

> can count clearly to 10, to include seven!

> He can count backwards from 10 also, and can tell us how many when asked

> and identify written numbers and figures.

> I have " mum " but only on demand, he never asks for anyone by name.

> We have lots of clear words and good approximations but still needs

> prompting, so many years not needing to ask for anything.

> I was moaning my face off in the car about his father the other day and he

> laughed so much at all the appropriate insults, same thing when I was

> dissing the school, he is definitely so with us, must now start to tone it

down

> when he is around.

>

> >>Ha ha, this sort of thing will be his first sentances

> ................followed by laughter, sods law!

>

> is also making huge strides educationally, he reports feeling very

> tired during chelation but tells us he can understand things now and he

> didn't start chelating till he was 15!

>

> >>This is totally awesome, one of the ladies on A-M started with a 23 year

> old and saw great things, he was at Uni last I heard, still using FC but

> taking work in his stride, must mail her and see how he is dong these days

>

> Do you do ALA with ? Sam looked tired and a bit pale when we did

> DMSA only so we added ALA on round 5 and he perked up no end, extra minerals

> helped too

>

> Mandi x

>

[Guest guest]

Mandi - I would love to be able to trust DH to share the dosing but I just can, have a real problem with delegating lol!!  Think I will have to get used to it myself and then I may feel more comfortable letting him do it but he also works shifts so wont be there late at night, think I would have trusted my dog more!!  What do you guys do if you are away, spending four days in Italy in January Fri - Mon for my sisters 50th do I just miss the round ???  Been worrying about it since she booked it!  Marina xx

[Guest guest]

Mandi,

Such good news!!! I so recall your postings on A-M as things were beginning. Are

you going to update there? Please think about it!! When my daughter's sensory

began to kick in, she would come w bewildered look and point out a tiny scratch.

Up until then she could have been run over by a truck and barely noticed. So let

Sam delight in the snow and all the other tastes and textures he has never

known!

>

>

>

>

>

>

>

> Well an everything update really.

>

> As many of you know we have had major issues with aggressive behaviour

> since Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC

> done with good effect, mostly cognitive improvements.

>

> Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle

> night dosing and everything else going on, business and 3 teen boys. Kept

> up by doing occasional rounds of TD DMPS that he also did well on but given

> his size was this very expensive after pound exchange rate dived as

> purchasing in Euro's.

>

> End of August we started DMSA/ALA rounds again, hypothesising that as he

> was growing VERY quickly that Lead (stored in bones) was being released and

> may be contributing to aggressive behaviours. Started back up at 12.5/12.5

> which was probably a little high but he didn't;t seem phased, very little

> in the way of yeast - easily dealt with using probiotics, Kirkman Sacc B

> and CP1.

>

> Been looking for patterns in behaviour and now I am very sure that

> chelation is helping. Grumpy and lairy on returning from school on Friday and

a

> pussycat cutey 2 hours post the first dose

>

> His behaviour had been much better at school but had still been aggressive

> with me.Chelation is no longer an option, its a necessity so have been

> doing rounds every weekend, Friday afternoon - Monday morning.

>

> We are up to 25mg/25mg and I'm finding it easier to handle as I get back

> into the swing of it, First weekend was a complete killer, waaay out of

> practise and anxious about forgetting a dose and working it around him going

> out with DP carer.

>

> He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm,

> 7,00pm, 10pm etc I got everything ready, Jack DP carer knows we have to dose

> before we go out. So excited I was at telling him about Sam being cute as

> dose kicked in .................so óff they went and was tidying up supps

> when they had gone and realised too much chatting and not given the dose -

> arghhhhhhhhh, so had to drive smartish all the way to YC, no Jack or Sam,

> panicking them, where has this young man been taking my son all these Friday

> nights??? Just about to lose the plot when they turned up so got dose in only

> 20 mins late - phew - they had just stopped for petrol.

>

> This is the third weekend Jack has reported Sam 'talking' in the car, last

> week, 3 blind mice, clear as day, this week two lots of 'round and round'

> heard by both my Tom (DP assistant when going swimming with slides) and

> Jack. Jack said after he was making sounds with right timing but not so

> clear. We have had odd occasions when a word dropped out but Sam seemed very

> scared by it, explained to me before that words can come from

two

> places, I think the clear ones just fall out and the less clear ones are

> him actually making them come out himself. Very vocal this past weekend, can

> tell voice has broken now.

>

> I'm very excited. Behaviour improvements I am sure are chelation, the

> words could be TST or KIB or all of it related, who the hell cares, not me, I

> plan to keep going with all of it, we WILL HAVE WORDS! He is 14 in January

> and I've waited long enough and worked hard enough, it will happen.

>

> He has also make leaps academically already this term, 4 P grades in maths

> and a few in English but I forget what that was now.

>

> I think a combination of fast growth releasing Lead at same time as

> quickly increasing need for oxygen may be behind behaviour issues in many

teens,

> positive we are on the right track with chelation and TST.

>

> Oh nearly forgot, he is now eating proper hot food for dinner including

> VEGETABLES and SALAD!!!, something we've not seen since before GFCF

>

> So all want for Christmas is MUM, at me, for me, on purpose, he does says

> it already but as part of babble, I'll be able to tell the difference

>

> Mandi x 140 rounds and counting...........

> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder,

> Severe Cute-ness +

>

[Guest guest]

Bloody hell.

I'll keep dreaming for that one!!

K

x

>

> I never thought I would see it, he is eating more green stuff than Joe now.

> I have only been giving one veg at a time, keen not to push my luck but

> today at school he had peas and carrots with his fish and potatoes and woofed

> it all down, I am sorta still in shock about it all. Adult portions too,

> after starting with just 10 peas.

>

> Today was first day for cooked carrots with fork, been raw before with

> fingers

>

> Mandi x

>

>

> In a message dated 06/12/2010 23:15:43 GMT Standard Time,

> greenkirsty1@... writes:

>

> The eating veg and salad is a huge thing....it's something i want for my

> Sam and will keel over the day it happens!!

>

[Guest guest]

Thats brilliant . Go Harry!!!

K

xx

>

>

>

>

>

>

>

> Well an everything update really.

>

> As many of you know we have had major issues with aggressive behaviour since

Sam hit puberty big time. He is a high Lead kid with 100+ rounds of AC done with

good effect, mostly cognitive improvements.

>

> Stopped DMSA/ALA (50mg ALA, 25mg DMSA) when DH left as I could not handle

night dosing and everything else going on, business and 3 teen boys. Kept up by

doing occasional rounds of TD DMPS that he also did well on but given his size

was this very expensive after pound exchange rate dived as purchasing in Euro's.

>

> End of August we started DMSA/ALA rounds again, hypothesising that as he was

growing VERY quickly that Lead (stored in bones) was being released and may be

contributing to aggressive behaviours. Started back up at 12.5/12.5 which was

probably a little high but he didn't;t seem phased, very little in the way of

yeast - easily dealt with using probiotics, Kirkman Sacc B and CP1.

>

> Been looking for patterns in behaviour and now I am very sure that chelation

is helping. Grumpy and lairy on returning from school on Friday and a pussycat

cutey 2 hours post the first dose

>

> His behaviour had been much better at school but had still been aggressive

with me.Chelation is no longer an option, its a necessity so have been doing

rounds every weekend, Friday afternoon - Monday morning.

>

> We are up to 25mg/25mg and I'm finding it easier to handle as I get back into

the swing of it, First weekend was a complete killer, waaay out of practise and

anxious about forgetting a dose and working it around him going out with DP

carer.

>

> He goes to Youth Club on Friday night 7-9pm, so that works for 4.00pm, 7,00pm,

10pm etc I got everything ready, Jack DP carer knows we have to dose before we

go out. So excited I was at telling him about Sam being cute as dose kicked in

..................so óff they went and was tidying up supps when they had gone

and realised too much chatting and not given the dose - arghhhhhhhhh, so had to

drive smartish all the way to YC, no Jack or Sam, panicking them, where has this

young man been taking my son all these Friday nights??? Just about to lose the

plot when they turned up so got dose in only 20 mins late - phew - they had just

stopped for petrol.

>

> This is the third weekend Jack has reported Sam 'talking' in the car, last

week, 3 blind mice, clear as day, this week two lots of 'round and round' heard

by both my Tom (DP assistant when going swimming with slides) and Jack. Jack

said after he was making sounds with right timing but not so clear. We have had

odd occasions when a word dropped out but Sam seemed very scared by it,

explained to me before that words can come from two places, I think

the clear ones just fall out and the less clear ones are him actually making

them come out himself. Very vocal this past weekend, can tell voice has broken

now.

>

> I'm very excited. Behaviour improvements I am sure are chelation, the words

could be TST or KIB or all of it related, who the hell cares, not me, I plan to

keep going with all of it, we WILL HAVE WORDS! He is 14 in January and I've

waited long enough and worked hard enough, it will happen.

>

> He has also make leaps academically already this term, 4 P grades in maths and

a few in English but I forget what that was now.

>

> I think a combination of fast growth releasing Lead at same time as quickly

increasing need for oxygen may be behind behaviour issues in many teens,

positive we are on the right track with chelation and TST.

>

> Oh nearly forgot, he is now eating proper hot food for dinner including

VEGETABLES and SALAD!!!, something we've not seen since before GFCF

>

> So all want for Christmas is MUM, at me, for me, on purpose, he does says it

already but as part of babble, I'll be able to tell the difference

>

> Mandi x 140 rounds and counting...........

> Sam nearly 14 Dx 47XYY, Regressive autism, possible Seizure Disorder, Severe

Cute-ness +

>

[Guest guest]

Marina,

We are on Round 30, but Phil only does the dose at 10pm and 7am. I do all the

night ones. Our rounds are Mondays to Thursday mornings and so i do all night

doses as Phil has quite a stressful job in the City and it would be a disaster

if he had to get up....plus i am a control freak when it comes to this!!

The reason why we do ours during the week is becasue Sam is Home Ed and i didn't

want our weekends being controlled by chelation. I want a lie in sometimes!

I take all our stuff abroad and just carry on as normal. I can remember being on

a rollercoaster, about to be launched, shouting at Phil to give Sam his tablet.

It just blends into life after a while.

But you can also miss the odd round too to give everyone a break. When we went

to Devon in the summer for a week, i just wanted a week of no bloody getting out

of bed so we missed it that week.

As Sam swallows capsules, i now buy size 000 capsules and pour the breakfast,

lunch and dinner smaller capsules into them and it makes it so much easier. He

now only has to swallow a couple for each sitting!

Which is going to make it alot easier when i go to the states on Thursday. Less

pots....unless customs pull me!

Kirsty

x

>

> Mandi - I would love to be able to trust DH to share the dosing but I just

> can, have a real problem with delegating lol!! Think I will have to get

> used to it myself and then I may feel more comfortable letting him do it but

> he also works shifts so wont be there late at night, think I would have

> trusted my dog more!! What do you guys do if you are away, spending four

> days in Italy in January Fri - Mon for my sisters 50th do I just miss the

> round ??? Been worrying about it since she booked it! Marina xx

>

[Guest guest]

I don't know how you manage it with TST and ABA as well, folks who do biomed and education full on are my hero'sDitto what Mandi said , and it's so great to hear of Harry's progress. It sounds like he is going ahead in leaps and bounds with his speech and that's fantastic. xSubject: Re: Chelation Update - long & wittery :)To: Autism-Biomedical-Europe Date: Tuesday, December 7, 2010, 9:44 PM

Excellent news

Good you are taking some weekends off too, its a very long process and you have to be able to survive it, I don't know how you manage it with TST and ABA as well, folks who do biomed and education full on are my hero's, I could only ever manage one so lucky Sam is in a good school.

If I didn't have help from school therapist with TST I wouldn't be getting very far with that either though he did let me do the liver massage ones this weekend, acted a bit lairy after a while so I stopped and then asked for more, putting my hands back in just the right place. Usually he giggles too much to do it properly but now seems to know it makes him feel better

Keep up the good work

Mandi x

Mandi, i am loving it, seriously that is great news, i have some wonderful stuff going on here too, as you now i have been doing AC chelation since April this year, weekend rounds but odd weekends i have had off if i have been out or just need a break and TST since July. Well this weekend, my daughter was in her bedroom (which is downstairs next to the lounge) Harry (my DS) absolutely loves her boyfriend Sam (who we call ). So anyway here is my son (who has a few words but only uses them when he really wants something or with prompting) knocking my daughters bedroom door saying "Sambol, let me in", i was crying with laughter, hilarious and joyous all at once (plus functional and unprompted) BIG WOW for us! Also Harry has been taking his pull up off at night, as you know he has been toilet trained in the daytime for nearly 3 years, so i have taken the plunge and in 2 weeks he has only had 2 wet nights but they were just dribbles in the bed not really wet and the toilet (camping toilet called Kampa Karzy) i bought to go in his bedroom always has wee in it in the morning, i did lift him for the first few nights at about 3am but he sometimes didn't need to go so i have left him