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Re: Fun in the Resort **Nissa**

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Nissa, what an ordeal! How are you feeling now? I'm so glad you had

friends to take care of you in the hospital!

prayers and hugs sent your way,

-Jo

In a message dated 12/23/2008 5:54:25 P.M. Eastern Standard Time,

nissapenland@... writes:

Hello All,

Seems like several of us have decided to bless our closest resorts,with our

presence;) I had been having a hard time for the last 2 months. I thought I

had a respiratory bug 2 weeks ago,with cough,fever,Seems like several of us

have decided to bless our closest resorts,with our presence;) I had been having

a hard time for the last 2 months. I thought I had a respiratory bug 2 weeks

ago,with cough,fever,<WBR>runny nose. Got a bit better,and then the night

sweats came with a vengeance. I had an appointment with my rheumy,we discussed

that the Rituxan wasn't working any more. She wanted to check all the usual

rheumy labs. I didn't get to it unSeems like several of us have decided to

bless our closest resorts,with our presence;) I had been having a hard time for

the last 2 months. I thought I had a respiratory bug 2 weeks ago,with

cough,fever,<WBR>runny nose. Got a bit better,and then the night sweats came

with a

vengeance. I had an appointment with my rheumy,we discussed that the Rituxan

wasn't working any more. She wanted to check all the usual rheumy labs. I

didn't get to it until the next day,because I had to get to work. I got my labs

drawn at 5pm,got a phone call from the on-call MD 2 hrs later,and knew that

something was very wrong. My WBC count wSeems like several of us have decided

to bless our closest resorts,with our presence;) I had been having a hard

time for the Seems like several of us have decided to bless our closest

resorts,with our presence;) I had been having a hard Seems like several of us

have

decided to bless our closest resorts,with our presence;) I had been having a

hard time for the last 2 months. I thought I had a respiratory bug 2 weeks

ago,with cough,fever,<WBR>runny nose. Got a bit better,and then the night

sweats

came with a vengeance. I had an appointment with my rheumy,we discussed that

the Rituxan wasn't working any more. She wanted to check all the usual rheumy

labs. I didn't get to it unt

So I am back on Enbrel,which worked a little bit. My rheumy wants to put me

on Actemra,which the FDA has not approved yet in the USA. I will have to go

on one of the IV osteoporosis meds,because of my thrashed esophagus. I am

thankful for all the family and friends who helped me limp through this whole

scary business. I am thankful that I have this group to help me,inform me,or

just listen to me when I am troubled. I am sending all the positive vibes I

have, to all of you. Merry Christmas,Happy Hannakuh,happy holidays to all of

you,and your families.

Sorry this is so long!

Love,

Nissa

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