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Hi ,

Where did you read info about Probotics? It sounds interesting, I love yogurt,

would like to find out more about it.

Take Care,

________________________________

To: Stillsdisease

Sent: Friday, January 9, 2009 7:11:58 PM

Subject: Probiotics Question

Hey gang,

Has anyone tried probiotics for Still's? I've been reading some

interesting stuff on their effect on autoimmune disorders,

particularly lowering CRP and lessening cytokine response.

Probiotics are the " good " bacteria found in yoghurt, miso, fermented

drinks, etc.; you can also buy probiotic supplements, although they

aren't regulated like a med.

in Maine

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Hi ,

I have access to a quite a few research databases and try to keep up

on the latest studies. I'm sort of twiddling my thumbs here waiting

for the FDA to approve Tocilizumab (I'm on prednisone, MTX, and

Kineret right now but still flaring). I'll cut and paste below

something worth reading.

in Maine

This was in World Journal of Gastroenterology, April 2008:

>>>>Probiotic bacteria, defined as living microorganisms that have

beneficial effects on human health, have mostly been studied in the

prevention and treatment of different gastrointestinal diseases and

allergies. Probiotic products, however, are usually consumed by the

general, healthy population but not much is known what kind of effects

they have on the immune system in healthy adults. It is not clear how

probiotics exert their health effects, but one of the most probable

action mechanisms is the modulation of immune responses via the gut's

mucosal immune system.

This study investigated the immunomodulatory effects of probiotics

bacteria in healthy adults. It was found that probiotics have an

anti-inflammatory potential seen as a decrease in serum CRP levels and

as a reduction in bacteria-induced production of proinflammatory

cytokines in peripheral blood mononuclear cells.

Understanding of the specific immunomodulatory effects of probiotics

may help in designing future probiotics for targeted purposes. As the

effects in the present study were investigated in healthy adults, the

real impact of probiotics on inflammatory variables warrants further

evaluation during inflammatory processes and in individuals suffering

from various types of inflammatory or autoimmune diseases.<<<<<

###

This research was carried out in collaboration with University of

Helsinki (Finland), Valio Research Centre (Finland), and the National

Public Health Institute (Finland). Part of the study was funded by the

Academy of Finland.

Reference: Kekkonen RA, Lummela N, Karjalainen H, Latvala S, Tynkkynen

S, Järvenpää S, Kautiainen H, Julkunen I, Vapaatalo H, Korpela R.

Probiotic intervention has strain-specific anti-inflammatory effects

in healthy adults. World J Gastroenterol 2008; 14(13): 2029-2036

http://www.wjgnet.com/1007-9327/14/2029.aspCorrespondence to: Riitta

Korpela PhD, Assistant Professor, University of Helsinki, Institute of

Biomedicine, Pharmacology, PO Box 63, 00014 University of Helsinki,

Finland. riitta.korpela@... Telephone: +358-10-3813026 Fax:

+358-10-3813019

>

> Hi ,

>

> Where did you read info about Probotics? It sounds interesting, I

love yogurt, would like to find out more about it.

>

> Take Care,

>

>

>

>

>

> ________________________________

>

> To: Stillsdisease

> Sent: Friday, January 9, 2009 7:11:58 PM

> Subject: Probiotics Question

>

>

> Hey gang,

> Has anyone tried probiotics for Still's? I've been reading some

> interesting stuff on their effect on autoimmune disorders,

> particularly lowering CRP and lessening cytokine response.

>

> Probiotics are the " good " bacteria found in yoghurt, miso, fermented

> drinks, etc.; you can also buy probiotic supplements, although they

> aren't regulated like a med.

> in Maine

>

>

>

>

>

>

>

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Share on other sites

Hi ,

Thanks for the info, Last night my Rheumy stopped my Kineret, due to a severe

allergic reaction. So now I am in the same boat as you are waiting on the

approval of the Tocilizumab. I was on the same combo you are, except they had

added Plaquenil. My medication resources are dewindling quickly, I -have

multiple organ involvement also. Got B-Cell Lymphoma induced by Enbrel, they

told me that was very rare. My docs are thinking of trying Cytoxan, it is a

chemotherapy drug that will treat my Lymphoma, but also there have been a few

studies of treating Still's with it, so I might get to kill 2 birds with one

stone. Thanks again for the info, if you find anything else interesting send it

my way. I have alot of access to medical journals, I will send any interesting

material I find your way also.

Take care,

________________________________

To: Stillsdisease

Sent: Saturday, January 10, 2009 2:07:32 AM

Subject: Re: Probiotics Question

Hi ,

I have access to a quite a few research databases and try to keep up

on the latest studies. I'm sort of twiddling my thumbs here waiting

for the FDA to approve Tocilizumab (I'm on prednisone, MTX, and

Kineret right now but still flaring). I'll cut and paste below

something worth reading.

in Maine

This was in World Journal of Gastroenterology, April 2008:

>>>>Probiotic bacteria, defined as living microorganisms that have

beneficial effects on human health, have mostly been studied in the

prevention and treatment of different gastrointestinal diseases and

allergies. Probiotic products, however, are usually consumed by the

general, healthy population but not much is known what kind of effects

they have on the immune system in healthy adults. It is not clear how

probiotics exert their health effects, but one of the most probable

action mechanisms is the modulation of immune responses via the gut's

mucosal immune system.

This study investigated the immunomodulatory effects of probiotics

bacteria in healthy adults. It was found that probiotics have an

anti-inflammatory potential seen as a decrease in serum CRP levels and

as a reduction in bacteria-induced production of proinflammatory

cytokines in peripheral blood mononuclear cells.

Understanding of the specific immunomodulatory effects of probiotics

may help in designing future probiotics for targeted purposes. As the

effects in the present study were investigated in healthy adults, the

real impact of probiotics on inflammatory variables warrants further

evaluation during inflammatory processes and in individuals suffering

from various types of inflammatory or autoimmune diseases.<<< <<

###

This research was carried out in collaboration with University of

Helsinki (Finland), Valio Research Centre (Finland), and the National

Public Health Institute (Finland). Part of the study was funded by the

Academy of Finland.

Reference: Kekkonen RA, Lummela N, Karjalainen H, Latvala S, Tynkkynen

S, Järvenpää S, Kautiainen H, Julkunen I, Vapaatalo H, Korpela R.

Probiotic intervention has strain-specific anti-inflammatory effects

in healthy adults. World J Gastroenterol 2008; 14(13): 2029-2036

http://www.wjgnet. com/1007- 9327/14/2029. aspCorrespondenc e to: Riitta

Korpela PhD, Assistant Professor, University of Helsinki, Institute of

Biomedicine, Pharmacology, PO Box 63, 00014 University of Helsinki,

Finland. riitta.korpela@ valio.fi Telephone: +358-10-3813026 Fax:

+358-10-3813019

>

> Hi ,

>

> Where did you read info about Probotics? It sounds interesting, I

love yogurt, would like to find out more about it.

>

> Take Care,

>

>

>

>

>

> ____________ _________ _________ __

>

> To: Stillsdisease@ yahoogroups. com

> Sent: Friday, January 9, 2009 7:11:58 PM

> Subject: Probiotics Question

>

>

> Hey gang,

> Has anyone tried probiotics for Still's? I've been reading some

> interesting stuff on their effect on autoimmune disorders,

> particularly lowering CRP and lessening cytokine response.

>

> Probiotics are the " good " bacteria found in yoghurt, miso, fermented

> drinks, etc.; you can also buy probiotic supplements, although they

> aren't regulated like a med.

> in Maine

>

>

>

>

>

>

>

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Share on other sites

I have been eating the Activia yogurt every morning for several weeks...I was

looking into that too, before my flare up in December..

Diane..42

Hey gang,

Has anyone tried probiotics for Still's? I've been reading some

interesting stuff on their effect on autoimmune disorders,

particularly lowering CRP and lessening cytokine response.

Probiotics are the " good " bacteria found in yoghurt, miso, fermented

drinks, etc.; you can also buy probiotic supplements, although they

aren't regulated like a med.

in Maine

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Share on other sites

Hi

I did have probiotics in a drink form, they were very pleasant to take, but

must admit I didn't find they helped at all, but that doesn't mean that it

won't benefit anyone else, as we know we all react differently.

Best wishes

Joan U.K.

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