Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Hi Ethelyn, My child, , 19 months old, is in his first cast from Dr. Kishan at Loma Medical Center, so you don't need to travel! He is Mehta-trained (he worked with Dr. at Shriner's in Erie, Penn) & we really like him. I live in Lake Elsinore & would be more than happy to talk to you over the phone...just e-mail me & I'll send you my phone number. As far as the casting frame, it's in process. We're checking into the status right now & should know more in the next couple of days. Hello everybody, > > > > I am Ethelyn I learned about this group while I was surfing the net > for my daughters conditon. She is 3 1/2 y.o. and was diagnosed to > have scoliosis. This was last Feb .27. Actually the scoliosis xray > was done last Oct. 2007 and I was told that the angle is 32 degrees. > It was an incidental finding when she had a chest x-ray; that means > she has no other noticeable signs/symptoms. About two days ago though > I already noticed that she is leaning to her left. > > > > The plan is for her to have a body cast which will be done under > general anesthesia and this will be done on April 4. This really > makes me worried considering that she is young and has to undergo > this procedure. The orthopedic surgeon said adjustment will be done > every 2-4 months. On May 5 MRI of the spine will also be done because > she also has neurofibromatosis. This again will be done under IV > sedation. > > > > I am wondering how did your babies " deal " with the cast on their > body 24/7 or should I say how did you make your babies be able to > take the ordeal. Are there anybody who had a good experience with > braces? How's the growthof your children. Will it not be stunted by > the cast. Is there anybody who's child has also neurofibromatosis. > > > > My daughter was only seen by one orthopedic surgeon and when I > expressed a lot of concern for the procedure her casting was moved > from March 18 toApril 4. For fear that further delay might worsen her > case I did not decline the upcoming procedure. However, I have a > schedule with another orthopedic surgeon on March 20. I am not sure > what will the result be for this second consult with another doctor. > > > > Thanks lot everybody. I have read a lot of messages and all of your > messages to everybody are very supportive and informative. > > > > Sincerely, > > Ethelyn > > > > ------------ --------- --------- --- > > Looking for last minute shopping deals? Find them fast with Yahoo! > Search. > > > > Quote Link to comment Share on other sites More sharing options...
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