Re: Nina story. Thanks but need more detail

[Guest guest]

I did get the welcome packet. thx. Nobody has mentioned a low sodium diet to me.

I will have a look at this diet in detail. I really try to eat mostly fresh food

and don't add much salt, if any, when cooking. The odd thing is that my sodium

is not elevated which baffles the DRs considering my K is low. The node is

stable and has not changed in two years. The endocrinologist is at MSKCC and she

is treating me for hyperaldosteronism. I was obviously concerned about the node

but they have told me it is not large, stable, with a low density. I hope to get

the AVS this Friday.

>

> Your story is unfortunately typical for those who end up here. By that I mean

drug resist HTN and low K. Take my evolution article to all who missed u for so

long. And will recognize the others they R taking care of. If no one has asked u

to DASH TALK TO your team as this my control BP alOng with Inspra. If the nodule

hAs grown much it would be unusual for Conn's. Did you get our detailed Welcome?

>

> Tiped sad Send form mi

> iPhone ;-)

>

> May your pressure be low!

>

> CE Grim MD

> Specializing in Difficult

> Hypertension

>

[Guest guest]

Most with PA have blood sodium within normal range.

> >

> > Your story is unfortunately typical for those who end up here. By that I

mean drug resist HTN and low K. Take my evolution article to all who missed u

for so long. And will recognize the others they R taking care of. If no one has

asked u to DASH TALK TO your team as this my control BP alOng with Inspra. If

the nodule hAs grown much it would be unusual for Conn's. Did you get our

detailed Welcome?

> >

> > Tiped sad Send form mi

> > iPhone ;-)

> >

> > May your pressure be low!

> >

> > CE Grim MD

> > Specializing in Difficult

> > Hypertension

> >

>

[Guest guest]

I am having an AVS this coming Monday. I am hopeful that this will prove that

the nodule is hyper producing the aldosterone. I'm currently 45 years old and

have probably had this syndrome since I was 40. In your experience given my age

are the stats leaning towards the adenoma or hyperplasia?

Also, what is your experience with side effects following the adrenalectomy.

Does the other adrenal adequately kick in to pick up for the missing one?

And I think you may be right with Dash and Inspra working for me. I have on many

an occasion noticed that my BP can stay in range if I haven't had an opportunity

to eat. In fact I often have problems with the clonodine actually dropping my BP

down to where I can't keep my eyes open. Strangely enough this happens to me

when my BP is anywhere lower than 120/80. The Dr. thinks my body is used to

functioning so high that normal range can be too low for me.

How difficult is it to monitor salt intake? I am not a tracker in any way shape

or form.

>

> Your story is unfortunately typical for those who end up here. By that I mean

drug resist HTN and low K. Take my evolution article to all who missed u for so

long. And will recognize the others they R taking care of. If no one has asked u

to DASH TALK TO your team as this my control BP alOng with Inspra. If the nodule

hAs grown much it would be unusual for Conn's. Did you get our detailed Welcome?

>

> Tiped sad Send form mi

> iPhone ;-)

>

> May your pressure be low!

>

> CE Grim MD

> Specializing in Difficult

> Hypertension

>