Guest guest Posted June 3, 2011 Report Share Posted June 3, 2011 Unless someone stops him, Obama will soon have a medical dossier on each of us. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimNeed a good Obama Care data base in the future to look for clusters. My guess is it clusters around medical centers that have done research.I couldn't find anything in online searches, bu t are there any studies on the epidemiology of Conn's Diagnosis. I am wondering about any clusters or it's distribution as to location in the US or worldwide. Just curious. I wouldn't expect a congregation of Conn's unless there are specialists in the places that are familiar with it (REALLY familiar not just forgotten after graduation) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2011 Report Share Posted June 3, 2011 Amen, ! The medical database was already authorized in the stimulus bill - $19.1 billion. The Chicago cronies are already getting paid. States are scrambling for their share of exchange money. The Colorado law specifically provides for private medical data to be shared with other exchanges and the federal database. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Bingham Nah...he'd just reward more Chicago cronies and pay them $200,000 a year to be on the " database committee " and we've already learned they can spend, but not save or nor have they learned to count anything but whats in their own pockets or apparently in the pocket of their underwear. Senators supposedly can't keep hackers from their own computers (uh uh) or even the pentagon and you think a national database would be safe? Not on your life. And nObama care will foster even worse doctors since everyone would be basically insured at arbitrary payments and you think we are treated poorly now? Wait til you take away the incentive. Oh we will get many a foreign doc as they will work for any pay. And the fraud and rewarding is already happening. Read up on who's getting the " exceptions " already and I will tell you if your not sure - alPelosi's district and Reids STATE. Why would the businesses need exceptions to such a wonderful plan that is really THOSE TWO's plan? It's to add more voters and cater to the rest of the " poor " who somehow believe all those dem millionaires are really looking out for them as they pay their own nanny and housekeepers minimum wage. Maybe it's the same reason congress themselves will be exempt from Obama care and will get their concierge medical care when and wherever they wish. I bet the panel never sees them as too old. There's many on here it sounds like might never qualify for another surgery if they needed one under nobama care because the panel that will decide the quality of life indicators (yes there is such a thing under obama care, again read up on it) likely would consider DM, COPD, obesity and other illnesses as overriding any need for some PA related surgery or another that wouldn't extend their life. And for those that say they know they will not watch their sodium so they don't even try or those who are obese - good luck. Big brother will be watching and punishing. Subject: Free PA diagnosisTo: hyperaldosteronism Date: Friday, June 3, 2011, 4:18 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I think the idea behind it is good, but can't really be done safely anyway. These sites like TMZ, perez Hilton, the british tabloid machines, would try and try to get something out of the databases through hackers to have a story about someone's rehab stay or illness, or having children. When hackers can get into the pentagon...ugh.... It's kind of like hybrid cars or ethanol. Ideas are great, in theory good, but the precious metals they have to mine now and tear up whole mountainsides to get the cadmium etc for the cars, or Indonesias fragile ecosystems being torn up and absolutely clearcut to plant corn for ethanol is not worth it. The risk is too high just like the database. But I wonder if a "portable" database, that only the patient (or parents or caregiver) carries with them that is all inclusive that a doc could just "plug in" as opposed to accessing in an online database would be a good thing. Of course all docs would have to be on a system capable of such, but if we subsidized it....maybe?? Subject: Free PA diagnosisTo: hyperaldosteronism Date: Friday, June 3, 2011, 4:18 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 And the Mrs wants to videotape our kids eating lunch at school to monitor what they eat. Sometimes I let my 12 year-old bring a Pepsi to school in her lunch just to piss them off. I am a little ornery sometimes...... I couldn't find anything in online searches, bu t are there any studies on the epidemiology of Conn's Diagnosis. I am wondering about any clusters or it's distribution as to location in the US or worldwide. Just curious. I wouldn't expect a congregation of Conn's unless there are specialists in the places that are familiar with it (REALLY familiar not just forgotten after graduation) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I worked for the VA for 6 months and I agree that their system is pretty awesome. But looking back I could have printed off anything I wanted or just scanned through anyone elses files, not even my patients, and took what I wanted. I guess with any online system the risk of fraud or illegal activity is there. 3 nurses, at least according to the news, got in trouble over s file when they accessed it. Subject: Re: epidemiology of Conn's?To: hyperaldosteronism Date: Saturday, June 4, 2011, 12:07 PM Must health care places all ready have our health records on computer an many can be accessed on line. The VA probably has the biggest and best one there is. As of yet no hacker has got into the VA system. How ever a VA employee did a backup of some records and took the disk home. The VA did put out a warning about the possibility of identity theft in seems it didn't happen. The has made it harder to download records. > > > Subject: Free PA diagnosis> To:Â hyperaldosteronism > Date: Friday, June 3, 2011, 4:18 PM> > Â > > > > Â > > Â > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 My whole thing about the epidemiology - and it is just curiosity - is I wonder if there are any clusters of Conn's in places in the US or worldwide. Clusters could relate to the knowledge of the practitioners in that area, or access to care, etc, or even illnesses, like Lyme, etc, that likely don't but could possibly have a connection. It just seems there are so many who have a co-existing endocrine issue, beyond just Conn's, that curiosity has the better of me. Other diseases, flu cases, Lyme cases, etc have good epidemiology to them. Conn's, as we all know the hard way, is much lesser known and I didn't think the demographics existed but if they do I just wanted to compare them to other geographical areas and illness. Subject: Re: epidemiology of Conn's?To: hyperaldosteronism Date: Saturday, June 4, 2011, 12:07 PM Must health care places all ready have our health records on computer an many can be accessed on line. The VA probably has the biggest and best one there is. As of yet no hacker has got into the VA system. How ever a VA employee did a backup of some records and took the disk home. The VA did put out a warning about the possibility of identity theft in seems it didn't happen. The has made it harder to download records. > > > Subject: Free PA diagnosis> To:Â hyperaldosteronism > Date: Friday, June 3, 2011, 4:18 PM> > Â > > > > Â > > Â > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I disagree that the idea behind it is good. The federal government has virtually no business maintaining a private medical record on each of us. Where in the Constitution is that provided? Every practice is getting $50 - 60,000 to buy equipment so they can feed into the Obamascare database. That is precisely why I go to doctors who do not participate in any insurance or in Medicare. Appointments are private and I don't go into any database. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Bingham I think the idea behind it is good, but can't really be done safely anyway. These sites like TMZ, perez Hilton, the british tabloid machines, would try and try to get something out of the databases through hackers to have a story about someone's rehab stay or illness, or having children. When hackers can get into the pentagon...ugh.... It's kind of like hybrid cars or ethanol. Ideas are great, in theory good, but the precious metals they have to mine now and tear up whole mountainsides to get the cadmium etc for the cars, or Indonesias fragile ecosystems being torn up and absolutely clearcut to plant corn for ethanol is not worth it. The risk is too high just like the database. But I wonder if a " portable " database, that only the patient (or parents or caregiver) carries with them that is all inclusive that a doc could just " plug in " as opposed to accessing in an online database would be a good thing. Of course all docs would have to be on a system capable of such, but if we subsidized it....maybe??Subject: Free PA diagnosisTo: hyperaldosteronism Date: Friday, June 3, 2011, 4:18 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I mean the portability and access to records part. That would help tremendously. I have seen patients that I was their 3rd urgent care in a single day and many examples like that...always pain pills, but that would help. Or the old lady who doesn't remember all of her history...never mind old women ALWAYS remember their history and tell you ALL OF IT! Subject: Free PA diagnosisTo: hyperaldosteronism Date: Friday, June 3, 2011, 4:18 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I suspect he does not have time to look at each one of us.CE Grim MDUnless someone stops him, Obama will soon have a medical dossier on each of us. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimNeed a good Obama Care data base in the future to look for clusters. My guess is it clusters around medical centers that have done research.I couldn't find anything in online searches, bu t are there any studies on the epidemiology of Conn's Diagnosis. I am wondering about any clusters or it's distribution as to location in the US or worldwide. Just curious. I wouldn't expect a congregation of Conn's unless there are specialists in the places that are familiar with it (REALLY familiar not just forgotten after graduation) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 See what you can find out about the guy who comes around and what he does with BP devices.More errors are made in BP than in any other medical testing.CE Grim MD.Nothing wrong with that. I bet most have no idea they need to be checked and calibrated or how just setting them down hard on the table can mess them up. The "guy" comes around it seems pretty randomly at the clinic to check the ecg, the pulse ox, etc, but I never pay too much attention to whether he even picks up the BP cuffSubject: Free PA diagnosisTo: hyperaldosteronism Date: Friday, June 3, 2011, 4:18 PM Free PA diagnosis Free AVS Free Adrenalectomy for USA residents only:....Details:........................ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I can give you countries of the 65 people diagnosed with PA who completed our survey. USA 48 Canada 1 England 2 Australia 6 New Zealand 1 Scotland 1 Norway 4 Switzerland 1 Philippines 1 > With all of us on this list has anyone made a map of where we are from? Could be a minimal start, but still interesting to know and track. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Large number in the USA. Kellie Sent from my Samsung Epicâ„¢ 4G shahall wrote: >I can give you countries of the 65 people diagnosed with PA who completed our survey. > >USA 48 >Canada 1 >England 2 >Australia 6 >New Zealand 1 >Scotland 1 >Norway 4 >Switzerland 1 >Philippines 1 > > >> With all of us on this list has anyone made a map of where we are from? Could be a minimal start, but still interesting to know and track. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Not that surprising given that this is a US site. Or that the vast majority are from English speaking countries. No idea whether it helps but two of the major hospitals in Zürich do about 20 adrenalectomies a year between them. The population of Zürich is about 360,000 people - although I imagine you could double the catchment area since they'd come into the city from around. And not all the adrenalectomies would be related to Conn's and not all Conn's cases would result in adrenalectomies. But that would pro rata up to about 8000 adrenalectomies per annum in the US. Even if you assumed the two Zürich hospitals did all the adrenalectomies in Switzerland (which they don't, there are major hospitals in at least three other cities), it'd still work out as the equivalent of 1000 per annum in the US. Clearly a lot of assumptions but I'm not sure the figures below are significant when looking at that sort of number.... H > > >I can give you countries of the 65 people diagnosed with PA who completed our survey. > > > >USA 48 > >Canada 1 > >England 2 > >Australia 6 > >New Zealand 1 > >Scotland 1 > >Norway 4 > >Switzerland 1 > >Philippines 1 > > > > > >> With all of us on this list has anyone made a map of where we are from? Could be a minimal start, but still interesting to know and track. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Thanks. I bet yahoo can do that for us?CE Grim MDI can give you countries of the 65 people diagnosed with PA who completed our survey.USA 48Canada 1England 2Australia 6New Zealand 1Scotland 1Norway 4Switzerland 1Philippines 1> With all of us on this list has anyone made a map of where we are from? Could be a minimal start, but still interesting to know and track. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I think other countries do better then the US in DX and researching Conn's. > > > > >I can give you countries of the 65 people diagnosed with PA who completed our survey. > > > > > >USA 48 > > >Canada 1 > > >England 2 > > >Australia 6 > > >New Zealand 1 > > >Scotland 1 > > >Norway 4 > > >Switzerland 1 > > >Philippines 1 > > > > > > > > >> With all of us on this list has anyone made a map of where we are from? Could be a minimal start, but still interesting to know and track. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Even if Conn's is involved in 1% of all HTN in the US that would be 1% of 80 million or so. 80,000,000 1% is 800,000 which is not to be sneezed at. As there is not central registry in US we have not idea of how many are having surgery. Can do this on medicare database if you have access to it. But don't know how. For example find out how many were hosp in 2010 for low K and HTN or Conn's. Also how many for Conn's and adrenal surgery?Pharm data bases could be scanned to see Rx for spiro or eplerenone for HTN or low K. But that is not my area of expertise.CE Grim MDNot that surprising given that this is a US site. Or that the vast majority are from English speaking countries. No idea whether it helps but two of the major hospitals in Zürich do about 20 adrenalectomies a year between them. The population of Zürich is about 360,000 people - although I imagine you could double the catchment area since they'd come into the city from around. And not all the adrenalectomies would be related to Conn's and not all Conn's cases would result in adrenalectomies. But that would pro rata up to about 8000 adrenalectomies per annum in the US. Even if you assumed the two Zürich hospitals did all the adrenalectomies in Switzerland (which they don't, there are major hospitals in at least three other cities), it'd still work out as the equivalent of 1000 per annum in the US.Clearly a lot of assumptions but I'm not sure the figures below are significant when looking at that sort of number....H> > >I can give you countries of the 65 people diagnosed with PA who completed our survey.> >> >USA 48> >Canada 1> >England 2> >Australia 6> >New Zealand 1> >Scotland 1> >Norway 4> >Switzerland 1> >Philippines 1> >> >> >> With all of us on this list has anyone made a map of where we are from? Could be a minimal start, but still interesting to know and track. > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Hmm maybe because the have a civilized medical system that permits this sort of thing?I think other countries do better then the US in DX and researching Conn's. > > > > >I can give you countries of the 65 people diagnosed with PA who completed our survey.> > >> > >USA 48> > >Canada 1> > >England 2> > >Australia 6> > >New Zealand 1> > >Scotland 1> > >Norway 4> > >Switzerland 1> > >Philippines 1> > >> > >> > >> With all of us on this list has anyone made a map of where we are from? Could be a minimal start, but still interesting to know and track. > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I have never heard him say he has looked at anyone's medical record and suspect he cannot.We cannot pay for everything for everyone. For example getting an MRI on everyone with back pain in ER etc. But SS has been doing this forever. CEObama has no Constitutional authority to maintain a medical dossier on anybody. This medical database will be used to inform what treatments will be allowed and not allowed. In time, that decision will not be up to a patient/doctor. That means you will not be able to run an aldo/renin test unless certain conditions - like K below 3.0 - are met. It won't matter that professional societies have found that K doesn't have to be low for PA to be a possibility. Government rationing boards will be years and years behind science. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimI suspect he does not have time to look at each one of us.CE Grim MD Unless someone stops him, Obama will soon have a medical dossier on each of us.From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimNeed a good Obama Care data base in the future to look for clusters. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 All insurance Co. limit what they pay for. > > > > Unless someone stops him, Obama will soon have a medical dossier on > > each of us. > > > > From: hyperaldosteronism [mailto:hyperaldosteronism > > ] On Behalf Of Clarence Grim > > > > Need a good Obama Care data base in the future to look for clusters. > > > > . > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Bushed signed the "national database for medical errors" bill for tracking errors anonymously and a baby DNA bill, but not a full on database where all of our info is in one spot. That is Obama's baby Subject: Re: epidemiology of Conn's?To: hyperaldosteronism Date: Saturday, June 4, 2011, 6:41 PM All insurance Co. limit what they pay for.> >> > Unless someone stops him, Obama will soon have a medical dossier on > > each of us.> >> > From: hyperaldosteronism [mailto:hyperaldosteronism > > ] On Behalf Of Clarence Grim> >> > Need a good Obama Care data base in the future to look for clusters.> >> > .> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 He is a socialist and socialists at the top rung have different rules. They are not commoners, we are, and they get mansions, money, cars, European vacations, while telling us we have to "spread the wealth" ....milk and bread for everyone - except for them. They get wine and steak. So he'd be able to likely get, or get to, what he wants Unless someone stops him, Obama will soon have a medical dossier on each of us. From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimNeed a good Obama Care data base in the future to look for clusters. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Wow, imagine the cases being missed in the middle east, Africa, and South America. They don't all have internet access like we do to join a list like this, but I wonder hw much is being seen? We had someone from China on here a few weeks back too. I can give you countries of the 65 people diagnosed with PA who completed our survey.USA 48Canada 1England 2Australia 6New Zealand 1Scotland 1Norway 4Switzerland 1Philippines 1> With all of us on this list has anyone made a map of where we are from? Could be a minimal start, but still interesting to know and track. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Yowee! You are not the first to address the collectivist thought. " AAPS was founded in 1943 to guard against the intrusion of government into the practice of medicine. It is the basic principle of our organization that medicine is a sacred relationship between a physician and a patient—not a relationship between a physician, a government bureaucrat and a patient. We believe in the Hippocratic Oath, and that our duty is to the individual, not the collective, society, or the state. " http://www.aapsonline.org/ A serious question: How many of you trust politicians? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Bingham He is a socialist and socialists at the top rung have different rules. They are not commoners, we are, and they get mansions, money, cars, European vacations, while telling us we have to " spread the wealth " ....milk and bread for everyone - except for them. They get wine and steak. So he'd be able to likely get, or get to, what he wantsUnless someone stops him, Obama will soon have a medical dossier on each of us.From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence GrimNeed a good Obama Care data base in the future to look for clusters. . Quote Link to comment Share on other sites More sharing options...
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