Re: 's 2nd cast scheduled

[Guest guest]

HI ,

I hope is feeling better.

We had the same issues with high chairs when going out to eat after was

first casted. We did the pillows too. Our solution was........don't go out to

eat. We didn't until was more comfortable. 's first 3 casts were over

the shoulder, very high. The other 3 were under the arm......those made a HUGE

difference in everything. I would say after that first cast it got much easier

for him. When we did go I would just hold him. Not too much fun for me, but at

least we got out of the house. Oh Daddy sometimes took turns with me. LOL.

Shopping carts were another big one for us. He was just not comfortable so one

of us usually carried him around. All that said to let you know he eventually

was fine sitting in high chairs out in public and shopping carts.

Sorry I was not much help........I just never found anything that worked.

Take care,

Tasha

McDowell wrote:

Hello everyone -

Have I mentioned how much we LOVE Dr. Kishan?! Our appointment on

Thursday went so well; afterwards, I felt like I'd been to therapy.

Yes, has a runny nose, but we went ahead and scheduled the 2nd

cast for April 29th (it would have been sooner if was well).

If he gets better, then we're fine...if he's still sick, then we'll

postpone or cut of the cast off and wait, etc. We do what we need to

do in 's best interest and play it by ear. Loma Med Ctr

should have the AMIL frame to use with on the 29th thanks to

our anonymous donor!

As other parents have mentioned about their children, has

completely adjusted to cast #1. I'm so thankful for ET, casting,

ISOP, , and our C.A.S.T group. I'm 100% sure (and that's rare

for me) that we are doing the right thing, even if it only buys

some time before a future surgery. I think I feel this way because of

the research I did in the beginning...reading all the articles, seeing

the results and stories, and getting recommendations from several

doctors (I think I sent medical info & x-rays/MRIs to 5 Mehta-trained

doctors and 1 non-Mehta trained doctors for their opinions). I trust

Mehta and have so much respect for her!

I do have a minor question for the group: What do you use for your

child to sit in when you go out to a restuarant? Our booter seats and

the restuarant's seats just don't work and ends up almost

slipping out. No pillow placement works either. Maybe 's cast

is different (higher) and others don't have this issue, but if you do,

please let me know what works. At home, I feed him in his walker or

standing.

Thanks!

* Lake Elsinore, CA, mom to , 19 m.o. diagnosed with

neuroblastoma (cancer) at age 2.5 months, status/post 8 cycles

chemotherapy and chest mass excision at San Diego Children's, in

remission, dx with thoracic scoliosis, T4-T5, kyphosis, in first cast

(Jan. 8, cobb 55+ to 38, kyphosis 53 to 25), second cast scheduled

April 29 with Dr. Kishan at Loma .

Tasha

Mommy of twin boys- and 35 months

Fort Worth, Texas

is currently in a brace-8 degrees out of brace!!!

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