Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Sometimes casting can be used on a congenital child to buy them precious growing time before surgery. There are several parents on here with kids that have congenital scoliosis that will be able to give you some good advice. Welcome to the group! > >Date: 2008/03/16 Sun AM 09:47:16 CDT >To: infantile_scoliosis >Subject: new to the group > >hello~ > >I am new to the group as of today. This past week my son, luke who is >seven months old, was diagnosed with congenital scoliosis. We are >scheduled for an MRI on the 31st. Does anyone have a child with >congenital scoliosis? I was not sure if the casting would work for a >child with congenital scoliosis? if anyone has any information, I >would greatly appreciate it. thanks, natalie > > Noelle (12-2-01) Ian (8-15-04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Thanks ~ I am still in a state of fogginess as it has been less than one week since we found out. I am hoping to hear from some parents of children with congenital scoliosis. Are there certain facilities around the US that are better to go to. We live in Nj and I was thinking about the children's hospital of philly or shriners (philly). but of course would go anywhere I need to. thanks, natalie > > Sometimes casting can be used on a congenital child to buy them precious growing time before surgery. There are several parents on here with kids that have congenital scoliosis that will be able to give you some good advice. Welcome to the group! > > > > >Date: 2008/03/16 Sun AM 09:47:16 CDT > >To: infantile_scoliosis > >Subject: new to the group > > > > >hello~ > > > >I am new to the group as of today. This past week my son, luke who is > >seven months old, was diagnosed with congenital scoliosis. We are > >scheduled for an MRI on the 31st. Does anyone have a child with > >congenital scoliosis? I was not sure if the casting would work for a > >child with congenital scoliosis? if anyone has any information, I > >would greatly appreciate it. thanks, natalie > > > > > > > > > Noelle (12-2-01) > Ian (8-15-04) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Dr. Betz at the Philly Shriners is supposed to be really good for congenital and also Dr. Shrantz, who is also at the Philly Shriners, does the casting. The parents of kids with congenital scoli can give you better advice than me though! > >Date: 2008/03/16 Sun AM 10:26:16 CDT >To: infantile_scoliosis >Subject: Re: new to the group > > >Thanks ~ I am still in a state of fogginess as it has been >less than one week since we found out. I am hoping to hear from some >parents of children with congenital scoliosis. Are there certain >facilities around the US that are better to go to. We live in Nj and >I was thinking about the children's hospital of philly or shriners >(philly). but of course would go anywhere I need to. thanks, natalie > > >> >> Sometimes casting can be used on a congenital child to buy them >precious growing time before surgery. There are several parents on >here with kids that have congenital scoliosis that will be able to >give you some good advice. Welcome to the group! >> >> > >> >Date: 2008/03/16 Sun AM 09:47:16 CDT >> >To: infantile_scoliosis >> >Subject: new to the group >> >> > >> >hello~ >> > >> >I am new to the group as of today. This past week my son, luke >who is >> >seven months old, was diagnosed with congenital scoliosis. We are >> >scheduled for an MRI on the 31st. Does anyone have a child with >> >congenital scoliosis? I was not sure if the casting would work >for a >> >child with congenital scoliosis? if anyone has any information, I >> >would greatly appreciate it. thanks, natalie >> > >> > > >> >> >> >> >> Noelle (12-2-01) >> Ian (8-15-04) >> > > Noelle (12-2-01) Ian (8-15-04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 I have heard great things about Shriners in Philly. If you are close to NYC and would like a second opinion - Dr. Vitale at Columbia Children's Hospital is great. He's the head of scoliosis. From what I've read on this board, Shriners is the way to go, but just thought I'd give you a second name. How did your son get diagnosed? How do they know its congenital? I thought you need an MRI to make that determination. > > hello~ > > I am new to the group as of today. This past week my son, luke who is > seven months old, was diagnosed with congenital scoliosis. We are > scheduled for an MRI on the 31st. Does anyone have a child with > congenital scoliosis? I was not sure if the casting would work for a > child with congenital scoliosis? if anyone has any information, I > would greatly appreciate it. thanks, natalie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 My son was diagnosed at 14months with Infantile scoliosis and a month later diagnosed with Chiari Malformation which is a brain malformation. They did not classify him with having congenital scoliosis at the time they do not think the two issues were linked. he had decompression surgery last March and started casting in May. His curve was over 40degrees before we casted and now it is 8degrees out of brace and 42degrees in brace. He had three casts and two brace's. He is doing wonderful and so far has not had any set backs. I believe the two were related and that he has congenital not idiopathic. So in our case casting did work. I do know that for most kids depending on the congenital issues casting helps hold the curve from progressing any more and to buy them the precious growing time they need. Hope this answers a few of your questions. Rochelle mom to Devyn 2 and 1/yrs Infantile Scoliosis, Chiari 1 > > > > hello~ > > > > I am new to the group as of today. This past week my son, luke who > is > > seven months old, was diagnosed with congenital scoliosis. We are > > scheduled for an MRI on the 31st. Does anyone have a child with > > congenital scoliosis? I was not sure if the casting would work for a > > child with congenital scoliosis? if anyone has any information, I > > would greatly appreciate it. thanks, natalie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 hello~ thanks for the name~ we do live very close to NYC so I will look up Dr. Vitale. We found out by :my son has some reflux and we went in last monday for an upper gi series just to check things out and make sure everything was alright. The radiologist spotted the scoliosis. She told my ped.that it was congenital. The next day I went to a local pediatric orthopedic (who had come with high praise) who took another xray and said it was a 37 degree curve and that it looked like all of his vertebrae were formed correctly but there was a fuzzy area so he felt it was probably congenital (perhaps a fusion). He was the first one to say he was not an expert in congenital scoliosis ~ so he ordered the MRI ~ this week we see the cardiologist to rule out an heart issues. as soon as the MRI comes, I would like to start getting opinions from other places such as shriners in philly , or children's hospital of philly. I am so thankful to have this outlet and information~ I am an occupational therapist and work with kids of varying degrees of needs and it is so different being on the other side. how old is your child and what has been his/her course of treatment? > > > > hello~ > > > > I am new to the group as of today. This past week my son, luke who > is > > seven months old, was diagnosed with congenital scoliosis. We are > > scheduled for an MRI on the 31st. Does anyone have a child with > > congenital scoliosis? I was not sure if the casting would work for a > > child with congenital scoliosis? if anyone has any information, I > > would greatly appreciate it. thanks, natalie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Definitely get that MRI to be sure, as quickly as possible. Seeing one of the trained Mehta early intervention doctors will give you the best, most informed, decision - since this condition is fairly uncommon and there are a small number of surgeons who have the latest/best information. If you check the database section, you'll see the names of the doctors who are, for sure, trained and have the proper frames. Even when addressing the potential of it being congenital, I'd go with one of these doctors. They're going to have the most up to date info. Sandi > > > -- Mom to Madison, Skylar, on, Piper, & - diagnosed with infantile scoliosis at 10 months with a 70° right thoracic curve. Currently undergoing serial casting. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 hi rochelle~ thanks for the invaluable information. How was your son diagnosed with chiari malformation~ any symptoms? just wondering as I did some reading about it, all the vomitting, gagging, etc., sounds like my son. thanks > > > > > > hello~ > > > > > > I am new to the group as of today. This past week my son, luke > who > > is > > > seven months old, was diagnosed with congenital scoliosis. We > are > > > scheduled for an MRI on the 31st. Does anyone have a child with > > > congenital scoliosis? I was not sure if the casting would work > for a > > > child with congenital scoliosis? if anyone has any information, > I > > > would greatly appreciate it. thanks, natalie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 thanks sandi! > > Definitely get that MRI to be sure, as quickly as possible. Seeing one of > the trained Mehta early intervention doctors will give you the best, most > informed, decision - since this condition is fairly uncommon and there are a > small number of surgeons who have the latest/best information. > If you check the database section, you'll see the names of the doctors who > are, for sure, trained and have the proper frames. Even when addressing the > potential of it being congenital, I'd go with one of these doctors. They're > going to have the most up to date info. > > Sandi > > > > > > > > > > -- > Mom to Madison, Skylar, on, Piper, & - diagnosed with infantile > scoliosis at 10 months with a 70° right thoracic curve. Currently undergoing > serial casting. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 I live in NJ, too.... Where are you from? We go to Rochester NY for Noelle now, but used to go to Erie. Steph natsmithot wrote: Thanks ~ I am still in a state of fogginess as it has been less than one week since we found out. I am hoping to hear from some parents of children with congenital scoliosis. Are there certain facilities around the US that are better to go to. We live in Nj and I was thinking about the children's hospital of philly or shriners (philly). but of course would go anywhere I need to. thanks, natalie > > Sometimes casting can be used on a congenital child to buy them precious growing time before surgery. There are several parents on here with kids that have congenital scoliosis that will be able to give you some good advice. Welcome to the group! > > > > >Date: 2008/03/16 Sun AM 09:47:16 CDT > >To: infantile_scoliosis > >Subject: new to the group > > > > >hello~ > > > >I am new to the group as of today. This past week my son, luke who is > >seven months old, was diagnosed with congenital scoliosis. We are > >scheduled for an MRI on the 31st. Does anyone have a child with > >congenital scoliosis? I was not sure if the casting would work for a > >child with congenital scoliosis? if anyone has any information, I > >would greatly appreciate it. thanks, natalie > > > > > > > > > Noelle (12-2-01) > Ian (8-15-04) > --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 There are so many similarities in our stories! My daughter, Noelle, was diagnosed with infantile scoli at 11 months with a 39 degree curve. Her first x-ray also showed a fuzzy vertebra, but the MRI ruled out hemivertebrae.... It was just a shadow on the film. I live in Bergen County NJ STeph P.S. Noelle has reflux too. natsmithot wrote: hello~ thanks for the name~ we do live very close to NYC so I will look up Dr. Vitale. We found out by :my son has some reflux and we went in last monday for an upper gi series just to check things out and make sure everything was alright. The radiologist spotted the scoliosis. She told my ped.that it was congenital. The next day I went to a local pediatric orthopedic (who had come with high praise) who took another xray and said it was a 37 degree curve and that it looked like all of his vertebrae were formed correctly but there was a fuzzy area so he felt it was probably congenital (perhaps a fusion). He was the first one to say he was not an expert in congenital scoliosis ~ so he ordered the MRI ~ this week we see the cardiologist to rule out an heart issues. as soon as the MRI comes, I would like to start getting opinions from other places such as shriners in philly , or children's hospital of philly. I am so thankful to have this outlet and information~ I am an occupational therapist and work with kids of varying degrees of needs and it is so different being on the other side. how old is your child and what has been his/her course of treatment? > > > > hello~ > > > > I am new to the group as of today. This past week my son, luke who > is > > seven months old, was diagnosed with congenital scoliosis. We are > > scheduled for an MRI on the 31st. Does anyone have a child with > > congenital scoliosis? I was not sure if the casting would work for a > > child with congenital scoliosis? if anyone has any information, I > > would greatly appreciate it. thanks, natalie > > > --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2011 Report Share Posted December 25, 2011 hi group, I am very happy to join. I have been practicing aromatherapy for about 15 years. I have written and teach an online course on beginning aromatherapy at Coursebridge college. I have been teaching the course for almost 8 years. I enjoy making herbal tinctures and herbal oils. I have created a small line of essential oil based skin care products. I live on 5 acres on the Oregon coast with my husband and several pets. Though my twins are 22 years old, they still come to mom for their favorite blends. I look forward to being in the group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2011 Report Share Posted December 29, 2011 Hi Welcome to the group. you are lucky, you already have many scents to play with. it took me a while to build up my scent library, the fact that the oils are so expenssive helped with that. good luck and i would recommend reading Mandy Aftel's Essence and Alchemy Hemla > hi group, > I am very happy to join. I have been practicing aromatherapy for about 15 years. I have written and teach an online course on beginning aromatherapy at Coursebridge college. I have been teaching the course for almost 8 years. I enjoy making herbal tinctures and herbal oils. I have created a small line of essential oil based skin care products. I live on 5 acres on the Oregon coast with my husband and several pets. Though my twins are 22 years old, they still come to mom for their favorite blends. I look forward to being in the group. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.