Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 They are not Mehta trained. Dr. Lenke is one of the best in the world for spinal surgery, but there are no options for early intervention here. We drove to Chicago and now drive to Birmingham (Dr. Khoury) for our care because St. Louis is not up on the latest. Sandi > This hospital is 5 hours from us. I would like to know your experiences > w/ this facility as far as the whole casting process. We haven't applied yet > but I need to hear what everybody thinks of the doctors and if they are > Mehta trained....... > > Thanks in Advance, > > Belinda, mother of Toby, 33 mo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 What about Denver? Are they Mehta trained? Any info on their casting reputation?? Re: St Louis Shriners They are not Mehta trained. Dr. Lenke is one of the best in the world for spinal surgery, but there are no options for early intervention here. We drove to Chicago and now drive to Birmingham (Dr. Khoury) for our care because St. Louis is not up on the latest. Sandi > This hospital is 5 hours from us. I would like to know your experiences > w/ this facility as far as the whole casting process. We haven't applied yet > but I need to hear what everybody thinks of the doctors and if they are > Mehta trained....... > > Thanks in Advance, > > Belinda, mother of Toby, 33 mo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 The doctors are listed in the database - I'll try to link it here, but it may get broken. If that happens, you can click on that link to the right - Visit Your Group - and then click " database " http://health.groups.yahoo.com/group/infantile_scoliosis/database?method=reportR\ ows & tbl=4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Denver Children's Hospital is awesome!!! Dr kson is treating my grandson Devyn and is Mehta trained with the appropriate frame. Devyn started with over 40 degrees. He has been in 3 casts and now in his 3rd brace. I don't remember the exact numbers now but he is below 10 degrees. I haven't personally met him because we live 300 miles away but my daughter says he is absolutely wonderful. If Denver is an option for you we can highly recommend them!!! Shara, grammy to Devyn, age 2-1/2, scolisis and Chiari malformation. > > > This hospital is 5 hours from us. I would like to know your experiences > > w/ this facility as far as the whole casting process. We haven't applied yet > > but I need to hear what everybody thinks of the doctors and if they are > > Mehta trained....... > > > > Thanks in Advance, > > > > Belinda, mother of Toby, 33 mo > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Belinda, If the East or West coast is too far, Dr. Albert at Christus Santa Childrens Hospital is starting an Early Treatment program in San , Tx. This is where we go for Moriah's VEPTR surgeries with Dr and Dr. . The whole Ortho team is supportive of the EArly TReatment program. Dr. Albert is the father or Dr. now in Rochester. Dr. A. is Mehta trained and in the process of getting the correct frame. Just wanted to throw them out as an option. I would love to see Dr Nigel Price start an Early Treatment program at Children's Mercy. He has been invited to ALL of ISOP's trainings, but has not attended any. We really hope to get him to one soon. I think is sending him a DVD, article and brochure this week. Kansas/Missouri really needs a program so people don't have to travel so far!!! Shellie Grant Moundridge Kansas. Near Wichita Murrays wrote: This hospital is 5 hours from us. I would like to know your experiences w/ this facility as far as the whole casting process. We haven't applied yet but I need to hear what everybody thinks of the doctors and if they are Mehta trained....... Thanks in Advance, Belinda, mother of Toby, 33 mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Denver is a great place for early treatment. We see Dr kson at the Denver Childrens Hospital. They are wonderful. You can see my sons pictures of his casts in the photo section under Devyn. They do everything under anesthesia including trimming the cast and petalling. We have never had a problem. Feel free to ask any questions you have. Rochelle mom to Devyn 2 and 1/2yrs Infantile Scoliosis, Chiari 1 > > > This hospital is 5 hours from us. I would like to know your experiences > > w/ this facility as far as the whole casting process. We haven't applied yet > > but I need to hear what everybody thinks of the doctors and if they are > > Mehta trained....... > > > > Thanks in Advance, > > > > Belinda, mother of Toby, 33 mo > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 We see Dr. Price. We are going back for a consult w/ him the 9th of April. I will definetly talk to him about this and maybe (hopefully) that will give him the nudge. Re: St Louis Shriners Belinda, If the East or West coast is too far, Dr. Albert at Christus Santa Childrens Hospital is starting an Early Treatment program in San , Tx. This is where we go for Moriah's VEPTR surgeries with Dr and Dr. . The whole Ortho team is supportive of the EArly TReatment program. Dr. Albert is the father or Dr. now in Rochester. Dr. A. is Mehta trained and in the process of getting the correct frame. Just wanted to throw them out as an option. I would love to see Dr Nigel Price start an Early Treatment program at Children's Mercy. He has been invited to ALL of ISOP's trainings, but has not attended any. We really hope to get him to one soon. I think is sending him a DVD, article and brochure this week. Kansas/Missouri really needs a program so people don't have to travel so far!!! Shellie Grant Moundridge Kansas. Near Wichita Murrays wrote: This hospital is 5 hours from us. I would like to know your experiences w/ this facility as far as the whole casting process. We haven't applied yet but I need to hear what everybody thinks of the doctors and if they are Mehta trained....... Thanks in Advance, Belinda, mother of Toby, 33 mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 That would be awesome! We live too far away for me to bug him very much!!! Let me know how it goes. They do halos and VEPTRs there. All they really need is Early Treatment Mehta casting and they will have it all. Shellie Murrays wrote: We see Dr. Price. We are going back for a consult w/ him the 9th of April. I will definetly talk to him about this and maybe (hopefully) that will give him the nudge. Re: St Louis Shriners Belinda, If the East or West coast is too far, Dr. Albert at Christus Santa Childrens Hospital is starting an Early Treatment program in San , Tx. This is where we go for Moriah's VEPTR surgeries with Dr and Dr. . The whole Ortho team is supportive of the EArly TReatment program. Dr. Albert is the father or Dr. now in Rochester. Dr. A. is Mehta trained and in the process of getting the correct frame. Just wanted to throw them out as an option. I would love to see Dr Nigel Price start an Early Treatment program at Children's Mercy. He has been invited to ALL of ISOP's trainings, but has not attended any. We really hope to get him to one soon. I think is sending him a DVD, article and brochure this week. Kansas/Missouri really needs a program so people don't have to travel so far!!! Shellie Grant Moundridge Kansas. Near Wichita Murrays wrote: This hospital is 5 hours from us. I would like to know your experiences w/ this facility as far as the whole casting process. We haven't applied yet but I need to hear what everybody thinks of the doctors and if they are Mehta trained....... Thanks in Advance, Belinda, mother of Toby, 33 mo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2008 Report Share Posted March 21, 2008 Yes, Moriah has had it twice. There are pictures of her in the photos section of this group. Also, there are pictures of Kylie in halo traction in the informational booklet in the Info section. Shellie ethelyn billones wrote: Shellie I saw a picture of halo traction ( if this what you mean) in the website of infantile scoliosis.com . check it out Ethelyn Murrays wrote: Any one have pictures of the halo or VEPTrs? Also information about these two procedures??? Re: St Louis Shriners Belinda, If the East or West coast is too far, Dr. Albert at Christus Santa Childrens Hospital is starting an Early Treatment program in San , Tx. This is where we go for Moriah's VEPTR surgeries with Dr and Dr. . The whole Ortho team is supportive of the EArly TReatment program. Dr. Albert is the father or Dr. now in Rochester. Dr. A. is Mehta trained and in the process of getting the correct frame. Just wanted to throw them out as an option. I would love to see Dr Nigel Price start an Early Treatment program at Children's Mercy. He has been invited to ALL of ISOP's trainings, but has not attended any. We really hope to get him to one soon. I think is sending him a DVD, article and brochure this week. Kansas/Missouri really needs a program so people don't have to travel so far!!! Shellie Grant Moundridge Kansas. Near Wichita Murrays wrote: This hospital is 5 hours from us. I would like to know your experiences w/ this facility as far as the whole casting process. We haven't applied yet but I need to hear what everybody thinks of the doctors and if they are Mehta trained....... Thanks in Advance, Belinda, mother of Toby, 33 mo Quote Link to comment Share on other sites More sharing options...
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