Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Hi Glenda, Sounds like you've been given the same " anxiety " brush-off diagnosis that many (most??) of us here have endured at one time or other. I'm sorry to hear that. I'm not sure how ACEI's affect the aldo/renin test, but I do know that other HTN meds - ARBs and CCBs for certain - can give a false negative. I was taking Diovan and Cardizem when I first was getting tested, and my specialist ran one set of tests while I was still on them, and then had me discontinue the meds for 2 weeks then re-test. While on the meds, I tested " normal " for aldo and renin. Two weeks later, off the meds, my true levels were revealed and I finally had a diagnosis. Hope that helps! -msmith1928 45, female, 5'3 " , 120 lbs, 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia; no HTN meds; current meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg when needed; low sodium, fructose- and grain-free diet > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Both time of day and ACE change Aldo renin ratio. Ever had low potassium? > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Thanks for your reply. I am going to either call the doctor back and ask for a retest or go for a second opinion and ask for the test to be done right. The university hospital doctor already told me to let him be the doctor when I told him I was having kidney pain. He wanted me to tell him where my pain was and what type. So I am not too excited about telling him that I think my test was done wrong. I am even thinking about going to Mayo Clinic. Just wish it wouldn't be so far away. > > > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 I have never been told that my potassium was low. I just looked at my first ER visit medical records and the lowest potassium level I had was 3.7 (normal 3.4-5.3), but that was after blood pressure meds. When I first knew I had bp issues I would have extreme swelling in my legs & feet. I could lose and gain 5-7 lbs. in a day. Now I am on a better diet and do not have much problems with this. > > > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Were u on meds when they were swelling. ESP Norvasc ?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension I have never been told that my potassium was low. I just looked at my first ER visit medical records and the lowest potassium level I had was 3.7 (normal 3.4-5.3), but that was after blood pressure meds. When I first knew I had bp issues I would have extreme swelling in my legs & feet. I could lose and gain 5-7 lbs. in a day. Now I am on a better diet and do not have much problems with this. > > > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 And what did he think the adenoma was doing?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension Both time of day and ACE change Aldo renin ratio. Ever had low potassium? > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 When I was swelling I was not on any medicines. > > > > > > > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 The endocrinologist told me that it appears to be a non-functioning adenoma. One thing that I would like to add to my story is that my hirsutism is getting worse (chin & upper lip) and a chiropractor said that I have calcification on my thyroid. Several times in the last 2 weeks I have had pain in my kidney area in the middle of the night & early mornings mostly with it occasionally at other times. > > > > > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 When I had the extreme swelling I was on no medicines. > > > > > > > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 The 3.7 potassium may not be normal for you. Also some Labs don't always draw blood as they should for checking it. Can you give us all your lab information? Also all meds you take. > > > > > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 The endocrinologist will be sending me the results in the mail. I don't know the numbers on the endocrine test as of now (he said they are in the normal range). When I get them I can post them. > > > > > > > > I have been dealing with sudden blood pressure spikes, etc. for over 4 years now. Recently I had a sudden spike of blood pressure 195/98 with sudden severe dizziness. I went to the ER and basically told it was anxiety. About 1 week later I picked up my medical records and learned that the CT scan (used to rule our a blot clot in my lungs) showed a 1.32 cm adenoma and that I also had blood in my urine. The ER doctor failed to tell me this. So I went to a university hospital endocrinologist thinking that I would get better care. The doctor suspected that I had a pheochromocytoma. That was ruled out with the plasma metanephrine test. After almost 2 weeks he has told me that all the blood tests that he took are normal. The aldosterone blood test from what I am reading is susposed to be done in a lying down position, done after fasting over night, & no ace inhibitor in your system. Well, I took lisinopril that morning, did not fast, & was sitting up when I took the test about 6 p.m. I am having off and on pain in the adrenal/kidney area & my kidneys seem to empty better at some times more than others. Does the aldosterone test have to be done under the conditions that I stated? The endocrinologist basically told me that I probably have anxiety problems. So I am back to the beginning now in trying to find out what is wrong with me. I am so ill most days that I am in bed a good part of the day & night. I need some advice, please!! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Diet and MCBs.CE Grim MDThe more I hear from all of you the more I want a second opinion (like Mayo Clinic). I don't think I have enough nerve to tell the doctor that had me tested that it was not done properly. And then if I do have to have further treatment, what kind of treatment would I get?> >> > The endocrinologist told me that it appears to be a non-functioning> adenoma. One thing that I would like to add to my story is that my hirsutism> is getting worse (chin & upper lip) and a chiropractor said that I have> calcification on my thyroid. Several times in the last 2 weeks I have had> pain in my kidney area in the middle of the night & early mornings mostly> with it occasionally at other times.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 If Mayo Clinic is an option for you, that's probably a good course of action. Most of us in this group have been given the runaround by inexperienced/ignorant doctors. Many of us have met resistance when bringing articles to our doctors. It's often an uphill battle. My diagnosis took 10 years, a half dozen doctors, and finally one specialist who diagnosed me within five minutes of meeting me (then backed it up with tons of tests). As for further treatment - Dr. Grim here is a strong advocate of dietary modifications (DASH) and meds (MCBs, usually spironolactone, in some cases eplerenone). Another option is adrenalectomy, if the excess aldo is only being produced by one adrenal. AVS, mentioned several times already, can determine this. There are pros and cons to each approach - it comes down to what is the best option for each individual. - msmith1928 45, female, 5'3 " , 120 lbs, 1cm left adrenal nodule, supine aldosterone 28.5/renin 0.2, potassium <2.9 (when not taking supplements); 25mg spiro caused gynecomastia; no HTN meds; current meds are 20MEQ K 2x/day, singulair 10mg, norethindrone .35mg, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg when needed; low sodium, fructose- and grain-free diet > > > > > > The endocrinologist told me that it appears to be a non-functioning > > adenoma. One thing that I would like to add to my story is that my hirsutism > > is getting worse (chin & upper lip) and a chiropractor said that I have > > calcification on my thyroid. Several times in the last 2 weeks I have had > > pain in my kidney area in the middle of the night & early mornings mostly > > with it occasionally at other times. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Dr. Grim, When I was swelling over 4 years ago I wasn't eating right. Now even with a diet of mainly veggies, fruit, & small amounts of meat (no sugar, no soda, no gluten) & losing 40 pounds I still get severe spikes. In the morning it can be 109/65 pulse 61 and then in a few short hours it can be 198/95. One of your articles listing the reasons for high blood pressure listed aorta problems. Two different cardiologists over the last 4 years have run tests (stess tests, carotid artery ultrasound, ECHO, EKG, ultrasound of veins in legs) on me and found my heart okay. But tonight after reading your article I remembered that one of the tests a few years ago showed a tortous aorta. My latest tests show that my heart is of normal size so I suppose that is why they don't think that this is a problem even though I have occasional shortness of breath & almost daily angina. > > > > > > > > The endocrinologist told me that it appears to be a non- > > functioning > > > adenoma. One thing that I would like to add to my story is that my > > hirsutism > > > is getting worse (chin & upper lip) and a chiropractor said that I > > have > > > calcification on my thyroid. Several times in the last 2 weeks I > > have had > > > pain in my kidney area in the middle of the night & early mornings > > mostly > > > with it occasionally at other times. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2011 Report Share Posted May 14, 2011 Glenda, if your symptoms and HTN can be controlled by DASHing and a mineralocorticoid blocker (MCB - spironolactone or Inspra), then Dr. Grim (and others) believe that is best. If DASHing and meds don't work, then surgery is your next step. AVS is critical for localization which side is producing, or if both sides are doing the dirty work. If I had a very, very clear test that showed the involvement of only one side, I would probably go for surgery. What drugs are you on now, and how is your blood pressure maintaining? I believe my over production of aldosterone is a result of endocrine disruption from Lyme disease. I've had other endocrine failures over the years. While spiro and Inspra control my HTN, they did nothing for my other symptoms. Now, on Lyme treatment, I am on just 30% of the MCB I started on and BP this week is averaging 125/66. The Lyme treatment is directly related to my blood pressure. I was taken off one abx in March and within a week, I was back into a bad flare and my BP was climbing up into the 140's. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Glenda The more I hear from all of you the more I want a second opinion (like Mayo Clinic). I don't think I have enough nerve to tell the doctor that had me tested that it was not done properly. And then if I do have to have further treatment, what kind of treatment would I get? > > > > The endocrinologist told me that it appears to be a non-functioning > adenoma. One thing that I would like to add to my story is that my hirsutism > is getting worse (chin & upper lip) and a chiropractor said that I have > calcification on my thyroid. Several times in the last 2 weeks I have had > pain in my kidney area in the middle of the night & early mornings mostly > with it occasionally at other times. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 I have probably tried about 12-15 types of blood pressure medicines. All of them has caused problems of some sort. A diuretic caused my blood pressure to rise sharply within 30-45 minutes. I felt like I was going to have a stroke. Beta blockers slow my heart down to the point that I can barely walk. One endocrinologist put me on a calcium channel blocker & another type of bp med and I was in the ER with very low blood pressure followed by high bp. An alpha blocker caused me extreme stomach pain. At this time I am on 10 mg. lisinopril (ace inhibitor)per day. It too if I take it continuously for more than 1 week seems to cause more shortness of breath, headaches, dizziness, numbness in hands, & strange neurological sensations in my head. I still get wild swings in my bp with the lisinopril. At this time because of my diet, the bp is not a daily issue though. It's the all over ill feeling that I have, the chest pains, kidney pain, dizziness, & yes the anxiety attacks that happen daily even when I am not under stress. I have tried all natural supplements with my meds and without my meds. Nothing has seemed to get me well. Speaking of natural products, I once took an herbal formula that had licorice in it. My blood pressure went very high in no time. Is this an indicator that this is PA or can it just be ordinary hypertension as well? > > > > > > The endocrinologist told me that it appears to be a non-functioning > > adenoma. One thing that I would like to add to my story is that my > hirsutism > > is getting worse (chin & upper lip) and a chiropractor said that I have > > calcification on my thyroid. Several times in the last 2 weeks I have had > > pain in my kidney area in the middle of the night & early mornings mostly > > with it occasionally at other times. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Licorice can sometimes raise BP. It can also interfere with test results for hyperaldosteronism, so you might want to avoid it until you get this sorted out. > > > > > > > > The endocrinologist told me that it appears to be a non-functioning > > > adenoma. One thing that I would like to add to my story is that my > > hirsutism > > > is getting worse (chin & upper lip) and a chiropractor said that I have > > > calcification on my thyroid. Several times in the last 2 weeks I have had > > > pain in my kidney area in the middle of the night & early mornings mostly > > > with it occasionally at other times. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 My mom has had bp most of her life. She is also diabetic the last two years on insuline and on four bp meds including lisinopril, norvasc captopril and spiro. Last week her K shot up to 6.7 and she was in the hospital for 3 days. The doctors took her off Lisinopril and spiro said it was the cause, the two should not be taken together.Since she stopped the two medications her blood sugar has also dropped. She was on five insulin shots a day. She weighs 100 lbs. Is anyone else here taking spiro and lisinopril with similar side effects? Her endo insists she doesn't have PA because her renin test was high and Aldo was low but she was taking lisinopril and captopril when she was tested.Farah I have probably tried about 12-15 types of blood pressure medicines. All of them has caused problems of some sort. A diuretic caused my blood pressure to rise sharply within 30-45 minutes. I felt like I was going to have a stroke. Beta blockers slow my heart down to the point that I can barely walk. One endocrinologist put me on a calcium channel blocker & another type of bp med and I was in the ER with very low blood pressure followed by high bp. An alpha blocker caused me extreme stomach pain. At this time I am on 10 mg. lisinopril (ace inhibitor)per day. It too if I take it continuously for more than 1 week seems to cause more shortness of breath, headaches, dizziness, numbness in hands, & strange neurological sensations in my head. I still get wild swings in my bp with the lisinopril. At this time because of my diet, the bp is not a daily issue though. It's the all over ill feeling that I have, the chest pains, kidney pain, dizziness, & yes the anxiety attacks that happen daily even when I am not under stress. I have tried all natural supplements with my meds and without my meds. Nothing has seemed to get me well. Speaking of natural products, I once took an herbal formula that had licorice in it. My blood pressure went very high in no time. Is this an indicator that this is PA or can it just be ordinary hypertension as well? > > > > > > The endocrinologist told me that it appears to be a non-functioning > > adenoma. One thing that I would like to add to my story is that my > hirsutism > > is getting worse (chin & upper lip) and a chiropractor said that I have > > calcification on my thyroid. Several times in the last 2 weeks I have had > > pain in my kidney area in the middle of the night & early mornings mostly > > with it occasionally at other times. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Could ad to PA BP problem but not well studied. If u will read my Evolution of PA article and send copy to all who have missed u u and they will be better understand why the meds u were on do not work in PA. Get the DASH book and do the 14 day trial. Measure BP EVERY day per our protocol and tell you team as BP will likely plummet and u will need to back off meds. Keep us posted. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension I have probably tried about 12-15 types of blood pressure medicines. All of them has caused problems of some sort. A diuretic caused my blood pressure to rise sharply within 30-45 minutes. I felt like I was going to have a stroke. Beta blockers slow my heart down to the point that I can barely walk. One endocrinologist put me on a calcium channel blocker & another type of bp med and I was in the ER with very low blood pressure followed by high bp. An alpha blocker caused me extreme stomach pain. At this time I am on 10 mg. lisinopril (ace inhibitor)per day. It too if I take it continuously for more than 1 week seems to cause more shortness of breath, headaches, dizziness, numbness in hands, & strange neurological sensations in my head. I still get wild swings in my bp with the lisinopril. At this time because of my diet, the bp is not a daily issue though. It's the all over ill feeling that I have, the chest pains, kidney pain, dizziness, & yes the anxiety attacks that happen daily even when I am not under stress. I have tried all natural supplements with my meds and without my meds. Nothing has seemed to get me well. Speaking of natural products, I once took an herbal formula that had licorice in it. My blood pressure went very high in no time. Is this an indicator that this is PA or can it just be ordinary hypertension as well? > > > > > > The endocrinologist told me that it appears to be a non-functioning > > adenoma. One thing that I would like to add to my story is that my > hirsutism > > is getting worse (chin & upper lip) and a chiropractor said that I have > > calcification on my thyroid. Several times in the last 2 weeks I have had > > pain in my kidney area in the middle of the night & early mornings mostly > > with it occasionally at other times. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Why would A diuretic cause blood pressure to rise sharply within 30-45 minutes? Would this be due to low K? Or if a K sparing diuretic K being to high? > > > > > > > > > > The endocrinologist told me that it appears to be a non-functioning > > > > adenoma. One thing that I would like to add to my story is that my > > > hirsutism > > > > is getting worse (chin & upper lip) and a chiropractor said that I have > > > > calcification on my thyroid. Several times in the last 2 weeks I have had > > > > pain in my kidney area in the middle of the night & early mornings mostly > > > > with it occasionally at other times. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Dr. Grim, I am going to do the DASH Diet. Thanks for all your information. Glenda > > > > > > > > > > The endocrinologist told me that it appears to be a non-functioning > > > > adenoma. One thing that I would like to add to my story is that my > > > hirsutism > > > > is getting worse (chin & upper lip) and a chiropractor said that I have > > > > calcification on my thyroid. Several times in the last 2 weeks I have had > > > > pain in my kidney area in the middle of the night & early mornings mostly > > > > with it occasionally at other times. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Any one do 24 hr urine test on you? What they should have tested for excess corticosteroids, excess androgenic steroids, excess aldosterone, low or high renin, and excess adrenalin and noradrenaline. Excess doesn't always mean above normal. Avs is only done if other test shows Excess aldo and low renin. Read Endocrine_Society_PA_Guidelines.pdf in our files. watch this video. > > > > > > > > > > > > The endocrinologist told me that it appears to be a non-functioning > > > > > adenoma. One thing that I would like to add to my story is that my > > > > hirsutism > > > > > is getting worse (chin & upper lip) and a chiropractor said that I have > > > > > calcification on my thyroid. Several times in the last 2 weeks I have had > > > > > pain in my kidney area in the middle of the night & early mornings mostly > > > > > with it occasionally at other times. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Read through the postings a bit and you'll find your issue with blood pressure meds is common to nearly all of us. speaking for myself i was on 5 at the same time and still sat in the cardiologists office (now i didn't take that am since i wanted the natural bp for my visit) and it was 180/143 . he put me on spironolactone and 2 .....just 2 , doses i was down to 120/80. Then with DASH i even lowered the dose from 50mg to 25 and 12.5mg and if i DASH it is fine. SO......what I am saying is we all needed the RIGHT medicine. throw all you want at PA and it wont help if it is not the appropriate aldosterone blocker, that is spiro or epeleroneH > >Dr. Grim, > >I am going to do the DASH Diet. Thanks for all your information. >Glenda > >> > > > > >> > > > > The endocrinologist told me that it appears to be a non-functioning >> > > > adenoma. One thing that I would like to add to my story is that my >> > > hirsutism >> > > > is getting worse (chin & upper lip) and a chiropractor said that I have >> > > > calcification on my thyroid. Several times in the last 2 weeks I have had >> > > > pain in my kidney area in the middle of the night & early mornings mostly >> > > > with it occasionally at other times. >> > > > >> > > >> > >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Four years ago I had blood tests and urine tests. I had slightly elevated adrenalin levels, high DHEA, high normal testosterone, low normal cortisol. The endocrinologist I had then was not a bit concerned about the findings. Now I look back and realize that since I was on blood pressure medicine it could have gave a false negative on the aldosterone blood test. Just about 2 weeks ago, I had only blood tests for cortisol levels, adrenaline, aldosterone, & renin. I also had a blood test to rule out carcinoid. The doctor says all is normal, but now I am almost certain that the aldosterone test that he took was taken totally wrong. Tomorrow I am going to call to make sure that my results are being sent to me and get the exact name for the aldosterone blood test that he took. Are all blood tests for aldosterone only accurate when the right posture, no meds, & timing are followed? Since I have an adrenal adenoma and severe symptoms I really think he is missing something. > > > > > > > > > > > > > > The endocrinologist told me that it appears to be a non-functioning > > > > > > adenoma. One thing that I would like to add to my story is that my > > > > > hirsutism > > > > > > is getting worse (chin & upper lip) and a chiropractor said that I have > > > > > > calcification on my thyroid. Several times in the last 2 weeks I have had > > > > > > pain in my kidney area in the middle of the night & early mornings mostly > > > > > > with it occasionally at other times. > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2011 Report Share Posted May 15, 2011 Be sure to get renin as well. > > > > > > > > > > > > > > > > The endocrinologist told me that it appears to be a non-functioning > > > > > > > adenoma. One thing that I would like to add to my story is that my > > > > > > hirsutism > > > > > > > is getting worse (chin & upper lip) and a chiropractor said that I have > > > > > > > calcification on my thyroid. Several times in the last 2 weeks I have had > > > > > > > pain in my kidney area in the middle of the night & early mornings mostly > > > > > > > with it occasionally at other times. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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