New to the group - 2 questions

[Guest guest]

Hello,

I am new to the group and have just been diagnosed with primary aldosteronism.

My aldosterone level was 62 (2.0-20 normal range) from my 24 hour urine test.

And I had low potassium (3.0-3.1) for the last 6 months (I am on potassium so it

is increasing). I am in process of scheduling a CT scan.

My first question to the group is if anyone knows of the link, if there is one,

between hyperthyroidism and primary aldosteronism (or Conn's)? I have two

small nodules on one side of my thyroid that have caused me to go very

hyperthyroid a handful of times in my life. I am seeing a Nephrologist and am

wondering if he is going to catch a link if there could be one.

My second question is if folks have had issues with heart palpitations (skipping

beats) when their aldosterone levels were high. Mine are getting so frequent

(morning/noon/night) that it is driving me crazy....and making me nervous. I

have already checked my thyroid levels and they are normal. The palpitations

haven't improved at all with the increase in potassium in my blood....if

anything that have become more frequent. My Nephrologist doesn't seem concerned

about them, and said that it wouldn't change his plan of action. I feel like a

major symptom is being ignored. Maybe it is common and not a big deal?

Thank you!!!!

Cheers,

[Guest guest]

Hi ,

I get palpitations even when my potassium tests at so-called normal (3.5-5) - if

it dips below 4.2 for me, my symptoms show up. I think it's pretty common.

Hope that helps!

-msmith1928

>

> Hello,

>

> I am new to the group and have just been diagnosed with primary aldosteronism.

My aldosterone level was 62 (2.0-20 normal range) from my 24 hour urine test.

And I had low potassium (3.0-3.1) for the last 6 months (I am on potassium so it

is increasing). I am in process of scheduling a CT scan.

>

> My first question to the group is if anyone knows of the link, if there is

one, between hyperthyroidism and primary aldosteronism (or Conn's)? I have two

small nodules on one side of my thyroid that have caused me to go very

hyperthyroid a handful of times in my life. I am seeing a Nephrologist and am

wondering if he is going to catch a link if there could be one.

>

> My second question is if folks have had issues with heart palpitations

(skipping beats) when their aldosterone levels were high. Mine are getting so

frequent (morning/noon/night) that it is driving me crazy....and making me

nervous. I have already checked my thyroid levels and they are normal. The

palpitations haven't improved at all with the increase in potassium in my

blood....if anything that have become more frequent. My Nephrologist doesn't

seem concerned about them, and said that it wouldn't change his plan of action.

I feel like a major symptom is being ignored. Maybe it is common and not a big

deal?

>

> Thank you!!!!

> Cheers,

>

>

[Guest guest]

Hi ,

I have asked my endo a dozen times if I had hypothyroidism vs hyper.

She states I do not but I have quite a few of the symptoms and my

Mom also had this in her early 40's.

My first hospitalization was a year ago for low potassium . If you

can believe this I just recently (in the last month) quit having

heart palpitations after a full year. I have been seen by two

cardiologists. A regular cardio and a rhythm specialist. I wore a 48

hr halter monitor at Christmas and with the exception of a few fast

beats everything was normal. My potassium just got squared away in

February and I think the palpitations were linked to that mostly. I

also had palpation during my monthly cycles and just had the

endometrial ablasion done last month to see if that would help as

well.

I hope that helps you a little,

Kellie

Female – Age 41 – Height: 5’5” – Weight since HTN and Low K

at all time high of 190.Treated for HTN from age 18-32 when it

suddenly dropped. Started HCTZ for swelling in 04’. Have not

tested positive for PA however the treatment of Spiro is keeping

both HTN and K in check. No tumor on adrenal gland. Insulin

resistant-Hypoglycemic-No testing of AVS. Meds: 100 mg of spiro

in the morning and 50 mg in the evening. Xanax: .5 mg three times

a day.

MRI revealed benign tumor in left eye socket

Hello,

I am new to the group and have just been diagnosed with

primary aldosteronism. My aldosterone level was 62 (2.0-20

normal range) from my 24 hour urine test. And I had low

potassium (3.0-3.1) for the last 6 months (I am on

potassium so it is increasing). I am in process of

scheduling a CT scan.

My first question to the group is if anyone knows of the

link, if there is one, between hyperthyroidism and primary

aldosteronism (or Conn's)? I have two small nodules on one

side of my thyroid that have caused me to go very

hyperthyroid a handful of times in my life. I am seeing a

Nephrologist and am wondering if he is going to catch a

link if there could be one.

My second question is if folks have had issues with heart

palpitations (skipping beats) when their aldosterone

levels were high. Mine are getting so frequent

(morning/noon/night) that it is driving me crazy....and

making me nervous. I have already checked my thyroid

levels and they are normal. The palpitations haven't

improved at all with the increase in potassium in my

blood....if anything that have become more frequent. My

Nephrologist doesn't seem concerned about them, and said

that it wouldn't change his plan of action. I feel like a

major symptom is being ignored. Maybe it is common and not

a big deal?

Thank you!!!!

Cheers,

[Guest guest]

I also had hyperthyroidism that based on my symptoms I know had spiked in the past also, but it got the best of me in late '09 early '10. I

Hello,I am new to the group and have just been diagnosed with primary aldosteronism. My aldosterone level was 62 (2.0-20 normal range) from my 24 hour urine test. And I had low potassium (3.0-3.1) for the last 6 months (I am on potassium so it is increasing). I am in process of scheduling a CT scan.My first question to the group is if anyone knows of the link, if there is one, between hyperthyroidism and primary aldosteronism (or Conn's)? I have two small nodules on one side of my thyroid that have caused me to go very hyperthyroid a handful of times in my life. I am seeing a Nephrologist and am wondering if he is going to catch a link if there could be one. My second question is if folks have had issues with heart palpitations (skipping beats) when their aldosterone levels were high. Mine are getting so frequent (morning/noon/night) that it is driving me crazy....and making me nervous. I have already checked my thyroid

levels and they are normal. The palpitations haven't improved at all with the increase in potassium in my blood....if anything that have become more frequent. My Nephrologist doesn't seem concerned about them, and said that it wouldn't change his plan of action. I feel like a major symptom is being ignored. Maybe it is common and not a big deal?Thank you!!!!Cheers,

[Guest guest]

My beer is on the K problems as the source of the palps.CE Grim MDHi ,I have asked my endo a dozen times if I had hypothyroidism vs hyper. She states I do not but I have quite a few of the symptoms and my Mom also had this in her early 40's. My first hospitalization was a year ago for low potassium . If you can believe this I just recently (in the last month) quit having heart palpitations after a full year. I have been seen by two cardiologists. A regular cardio and a rhythm specialist. I wore a 48 hr halter monitor at Christmas and with the exception of a few fast beats everything was normal. My potassium just got squared away in February and I think the palpitations were linked to that mostly. I also had palpation during my monthly cycles and just had the endometrial ablasion done last month to see if that would help as well.I hope that helps you a little,KellieFemale – Age 41 – Height: 5’5” – Weight since HTN and Low K at all time high of 190.Treated for HTN from age 18-32 when it suddenly dropped. Started HCTZ for swelling in 04’. Have not tested positive for PA however the treatment of Spiro is keeping both HTN and K in check. No tumor on adrenal gland. Insulin resistant-Hypoglycemic-No testing of AVS. Meds: 100 mg of spiro in the morning and 50 mg in the evening. Xanax: .5 mg three times a day. MRI revealed benign tumor in left eye socket Hello,I am new to the group and have just been diagnosed with primary aldosteronism. My aldosterone level was 62 (2.0-20 normal range) from my 24 hour urine test. And I had low potassium (3.0-3.1) for the last 6 months (I am on potassium so it is increasing). I am in process of scheduling a CT scan.My first question to the group is if anyone knows of the link, if there is one, between hyperthyroidism and primary aldosteronism (or Conn's)? I have two small nodules on one side of my thyroid that have caused me to go very hyperthyroid a handful of times in my life. I am seeing a Nephrologist and am wondering if he is going to catch a link if there could be one. My second question is if folks have had issues with heart palpitations (skipping beats) when their aldosterone levels were high. Mine are getting so frequent (morning/noon/night) that it is driving me crazy....and making me nervous. I have already checked my thyroid levels and they are normal. The palpitations haven't improved at all with the increase in potassium in my blood....if anything that have become more frequent. My Nephrologist doesn't seem concerned about them, and said that it wouldn't change his plan of action. I feel like a major symptom is being ignored. Maybe it is common and not a big deal?Thank you!!!!Cheers,

[Guest guest]

Hi MS and Dr. Grim,

I have a question for both of you based on MS's comment below.

Normal is 3.5 and higher but in January I experienced all the usual

symptoms for my potassium dropping so I went to the hospital. A week

earlier my potassium was 4.3 and a week later which was after my

cycle the hospital said it was 3.9 so technically it was still normal.

Is this a common occurrence for PA patients. I said something to my

endo about it and she didn't have much to say.

Thanks

Kellie

Hi ,

I get palpitations even when my potassium tests at

so-called normal (3.5-5) - if it dips below 4.2 for me, my

symptoms show up. I think it's pretty common.

Hope that helps!

-msmith1928

>

> Hello,

>

> I am new to the group and have just been diagnosed

with primary aldosteronism. My aldosterone level was 62

(2.0-20 normal range) from my 24 hour urine test. And I

had low potassium (3.0-3.1) for the last 6 months (I am on

potassium so it is increasing). I am in process of

scheduling a CT scan.

>

> My first question to the group is if anyone knows of

the link, if there is one, between hyperthyroidism and

primary aldosteronism (or Conn's)? I have two small

nodules on one side of my thyroid that have caused me to

go very hyperthyroid a handful of times in my life. I am

seeing a Nephrologist and am wondering if he is going to

catch a link if there could be one.

>

> My second question is if folks have had issues with

heart palpitations (skipping beats) when their aldosterone

levels were high. Mine are getting so frequent

(morning/noon/night) that it is driving me crazy....and

making me nervous. I have already checked my thyroid

levels and they are normal. The palpitations haven't

improved at all with the increase in potassium in my

blood....if anything that have become more frequent. My

Nephrologist doesn't seem concerned about them, and said

that it wouldn't change his plan of action. I feel like a

major symptom is being ignored. Maybe it is common and not

a big deal?

>

> Thank you!!!!

> Cheers,

>

>

[Guest guest]

This was helpful.

Thank you!

 

I also had hyperthyroidism

that based on my symptoms I know had spiked in

the past also, but it got the best of me in late

'09 early '10. I call it the devils disease as

one is so horribly  miserable 24/7 with it. You

typically know hyperthyroid as it has a ferocity

and speed that low thyroid does not.

 

You are hot ALL THE TIME, your heart feels

like it is going to pound through your chest (I

could not lay flat or on my left side as my

heart pounding was as if someone was constabntly

punching you in the chest), I went from 174 to

160lbs in 2 months (not in a good way) though my

appetite was crazy. The insomnia was beyond

description where I lay awake for days and

taking something to sleep did not matter (and I

still had to work).

 

What else? Bowels are messed up with

it, brain fog again beyond description that kept

getting worse. I had some bouts with atrial

fibrillation  and developed a murmur (I am only

43) that likely had something to do with the PA

too since it was not diagnosed for years. Then

my vision got so bad I could hardly read street

signs anymore and I started having

hallucinations - like I can only say there was

this waviness, smokiness to the walls and things

around me, and always had the imrpession of

something running past in the corner of my

eyes. etc. And the sense of impending doom is

always there. Those are just some of the classic

hyperthyroid symptoms and if you combine it PA I

do not know how I didn't stroke. My mother had

hyperthyroidism too and weighed 84 lbs when she

died.

 

But hypothryroid and hyperthyroid are so

different in how they act that usually one knows

which one - if they have it at all. I have found

people lump it into  the same category and when

I tell them that hyperthyroid turned my life

around and upside down, they shrug like, "Oh, I

have hypothyroidism, and  my sister does too"

and I have to tell them that "Hyperthyroid can

kill you ( but not likely though in this day and

age), hypothyroid not" though both can be life

altering depending on the severity.

 

Still it is hard to mistake the two.

 

 

 

Hello,

I am new to the group and have just

been diagnosed with primary

aldosteronism. My aldosterone level

was 62 (2.0-20 normal range) from my

24 hour urine test. And I had low

potassium (3.0-3.1) for the last 6

months (I am on potassium so it is

increasing). I am in process of

scheduling a CT scan.

My first question to the group is if

anyone knows of the link, if there

is one, between hyperthyroidism and

primary aldosteronism (or Conn's)? I

have two small nodules on one side

of my thyroid that have caused me to

go very hyperthyroid a handful of

times in my life. I am seeing a

Nephrologist and am wondering if he

is going to catch a link if there

could be one.

My second question is if folks have

had issues with heart palpitations

(skipping beats) when their

aldosterone levels were high. Mine

are getting so frequent

(morning/noon/night) that it is

driving me crazy....and making me

nervous. I have already checked my

thyroid levels and they are normal.

The palpitations haven't improved at

all with the increase in potassium

in my blood....if anything that have

become more frequent. My

Nephrologist doesn't seem concerned

about them, and said that it

wouldn't change his plan of action.

I feel like a major symptom is being

ignored. Maybe it is common and not

a big deal?

Thank you!!!!

Cheers,

[Guest guest]

Probably - just took one full year to figure it out and get

stabilized with meds.

 

My beer is on the K problems as the source of the palps.

CE Grim MD

Hi ,

I have asked my endo a dozen times if I

had hypothyroidism vs hyper. She states I

do not but I  have quite a few of the

symptoms and my Mom also had this in her

early 40's.  

My first hospitalization was a year ago

for low potassium . If you can believe

this I just recently (in the last month)

quit having heart palpitations after a

full year. I have been seen by two

cardiologists. A regular cardio and a

rhythm specialist. I wore a 48 hr halter

monitor at Christmas and with the

exception of a  few fast beats everything

was normal. My potassium just got squared

away in February and I think the

palpitations were linked to that mostly. 

I also had palpation during my monthly

cycles and just had the endometrial

ablasion done last month to see if that

would help as well.

I hope that helps you a little,

Kellie

Female – Age 41 – Height: 5’5” –

Weight since HTN and Low K at all time

high of 190.Treated for HTN from age

18-32 when it suddenly dropped. Started

HCTZ for swelling in 04’. Have not

tested positive for PA however the

treatment of Spiro is keeping both HTN

and K in check. No tumor on adrenal

gland. Insulin resistant-Hypoglycemic-No

testing of AVS. Meds:  100 mg of spiro

in the morning and 50 mg in the evening.

Xanax: .5 mg three times a day. 

MRI revealed benign tumor in left eye

socket

On 5/11/2011 5:49 PM, andra Bradley

wrote:

 

Hello,

I am new to the group and have just

been diagnosed with primary

aldosteronism. My aldosterone level

was 62 (2.0-20 normal range) from my

24 hour urine test. And I had low

potassium (3.0-3.1) for the last 6

months (I am on potassium so it is

increasing). I am in process of

scheduling a CT scan.

My first question to the group is if

anyone knows of the link, if there is

one, between hyperthyroidism and

primary aldosteronism (or Conn's)? I

have two small nodules on one side of

my thyroid that have caused me to go

very hyperthyroid a handful of times

in my life. I am seeing a Nephrologist

and am wondering if he is going to

catch a link if there could be one. 

My second question is if folks have

had issues with heart palpitations

(skipping beats) when their

aldosterone levels were high. Mine are

getting so frequent

(morning/noon/night) that it is

driving me crazy....and making me

nervous. I have already checked my

thyroid levels and they are normal.

The palpitations haven't improved at

all with the increase in potassium in

my blood....if anything that have

become more frequent. My Nephrologist

doesn't seem concerned about them, and

said that it wouldn't change his plan

of action. I feel like a major symptom

is being ignored. Maybe it is common

and not a big deal?

Thank you!!!!

Cheers,

[Guest guest]

Yes K varies even in normal people.Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Hi MS and Dr. Grim,

I have a question for both of you based on MS's comment below.

Normal is 3.5 and higher but in January I experienced all the usual

symptoms for my potassium dropping so I went to the hospital. A week

earlier my potassium was 4.3 and a week later which was after my

cycle the hospital said it was 3.9 so technically it was still normal.

Is this a common occurrence for PA patients. I said something to my

endo about it and she didn't have much to say.

Thanks

Kellie

Hi ,

I get palpitations even when my potassium tests at

so-called normal (3.5-5) - if it dips below 4.2 for me, my

symptoms show up. I think it's pretty common.

Hope that helps!

-msmith1928

>

> Hello,

>

> I am new to the group and have just been diagnosed

with primary aldosteronism. My aldosterone level was 62

(2.0-20 normal range) from my 24 hour urine test. And I

had low potassium (3.0-3.1) for the last 6 months (I am on

potassium so it is increasing). I am in process of

scheduling a CT scan.

>

> My first question to the group is if anyone knows of

the link, if there is one, between hyperthyroidism and

primary aldosteronism (or Conn's)? I have two small

nodules on one side of my thyroid that have caused me to

go very hyperthyroid a handful of times in my life. I am

seeing a Nephrologist and am wondering if he is going to

catch a link if there could be one.

>

> My second question is if folks have had issues with

heart palpitations (skipping beats) when their aldosterone

levels were high. Mine are getting so frequent

(morning/noon/night) that it is driving me crazy....and

making me nervous. I have already checked my thyroid

levels and they are normal. The palpitations haven't

improved at all with the increase in potassium in my

blood....if anything that have become more frequent. My

Nephrologist doesn't seem concerned about them, and said

that it wouldn't change his plan of action. I feel like a

major symptom is being ignored. Maybe it is common and not

a big deal?

>

> Thank you!!!!

> Cheers,

>

>

[Guest guest]

Hi Kellie,

The way I understand it is that there is a normal range (such as the 3.5 to 5 of

most labs) but that within that normal range, each individual's true " normal "

may vary. In other words, 3.8 could be perfectly fine for one person, yet

another person may need to be over 4.1 to avoid having symptoms. I've had so

much K testing done that I've been able to determine that if my K falls below

4.1, I'll start getting muscle cramps, and if it falls below 3.8, I'll start

getting palps.

- msmith1928

45, female, 5'3 " , 120 lbs, 1cm left adrenal nodule, supine aldosterone

28.5/renin 0.2, potassium <2.9 (when not taking supplements); 25mg spiro caused

gynecomastia; no HTN meds; current meds are 20MEQ K 2x/day, singulair 10mg,

norethindrone .35mg, cyclobenzaprine 5-10mg when needed, fexofenadine 180mg when

needed; low sodium, fructose- and grain-free diet

> > >

> > > Hello,

> > >

> > > I am new to the group and have just been diagnosed with primary

> > aldosteronism. My aldosterone level was 62 (2.0-20 normal range) from

> > my 24 hour urine test. And I had low potassium (3.0-3.1) for the last

> > 6 months (I am on potassium so it is increasing). I am in process of

> > scheduling a CT scan.

> > >

> > > My first question to the group is if anyone knows of the link, if

> > there is one, between hyperthyroidism and primary aldosteronism (or

> > Conn's)? I have two small nodules on one side of my thyroid that have

> > caused me to go very hyperthyroid a handful of times in my life. I am

> > seeing a Nephrologist and am wondering if he is going to catch a link

> > if there could be one.

> > >

> > > My second question is if folks have had issues with heart

> > palpitations (skipping beats) when their aldosterone levels were high.

> > Mine are getting so frequent (morning/noon/night) that it is driving

> > me crazy....and making me nervous. I have already checked my thyroid

> > levels and they are normal. The palpitations haven't improved at all

> > with the increase in potassium in my blood....if anything that have

> > become more frequent. My Nephrologist doesn't seem concerned about

> > them, and said that it wouldn't change his plan of action. I feel like

> > a major symptom is being ignored. Maybe it is common and not a big deal?

> > >

> > > Thank you!!!!

> > > Cheers,

> > >

> > >

> >

> >

>

[Guest guest]

Some labs use 3.7 as low and more are changing to this is being low.

> > > >

> > > > Hello,

> > > >

> > > > I am new to the group and have just been diagnosed with primary

> > > aldosteronism. My aldosterone level was 62 (2.0-20 normal range) from

> > > my 24 hour urine test. And I had low potassium (3.0-3.1) for the last

> > > 6 months (I am on potassium so it is increasing). I am in process of

> > > scheduling a CT scan.

> > > >

> > > > My first question to the group is if anyone knows of the link, if

> > > there is one, between hyperthyroidism and primary aldosteronism (or

> > > Conn's)? I have two small nodules on one side of my thyroid that have

> > > caused me to go very hyperthyroid a handful of times in my life. I am

> > > seeing a Nephrologist and am wondering if he is going to catch a link

> > > if there could be one.

> > > >

> > > > My second question is if folks have had issues with heart

> > > palpitations (skipping beats) when their aldosterone levels were high.

> > > Mine are getting so frequent (morning/noon/night) that it is driving

> > > me crazy....and making me nervous. I have already checked my thyroid

> > > levels and they are normal. The palpitations haven't improved at all

> > > with the increase in potassium in my blood....if anything that have

> > > become more frequent. My Nephrologist doesn't seem concerned about

> > > them, and said that it wouldn't change his plan of action. I feel like

> > > a major symptom is being ignored. Maybe it is common and not a big deal?

> > > >

> > > > Thank you!!!!

> > > > Cheers,

> > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

That's good news!

I have copies of my labs going back to 2003 and back then, one of the labs used

3.1 (!) as the bottom end of normal. I was pretty consistently 3.2 for years,

with all the expected symptoms, but because that lab's standard was so low, it

was never caught.

> > > > >

> > > > > Hello,

> > > > >

> > > > > I am new to the group and have just been diagnosed with primary

> > > > aldosteronism. My aldosterone level was 62 (2.0-20 normal range) from

> > > > my 24 hour urine test. And I had low potassium (3.0-3.1) for the last

> > > > 6 months (I am on potassium so it is increasing). I am in process of

> > > > scheduling a CT scan.

> > > > >

> > > > > My first question to the group is if anyone knows of the link, if

> > > > there is one, between hyperthyroidism and primary aldosteronism (or

> > > > Conn's)? I have two small nodules on one side of my thyroid that have

> > > > caused me to go very hyperthyroid a handful of times in my life. I am

> > > > seeing a Nephrologist and am wondering if he is going to catch a link

> > > > if there could be one.

> > > > >

> > > > > My second question is if folks have had issues with heart

> > > > palpitations (skipping beats) when their aldosterone levels were high.

> > > > Mine are getting so frequent (morning/noon/night) that it is driving

> > > > me crazy....and making me nervous. I have already checked my thyroid

> > > > levels and they are normal. The palpitations haven't improved at all

> > > > with the increase in potassium in my blood....if anything that have

> > > > become more frequent. My Nephrologist doesn't seem concerned about

> > > > them, and said that it wouldn't change his plan of action. I feel like

> > > > a major symptom is being ignored. Maybe it is common and not a big deal?

> > > > >

> > > > > Thank you!!!!

> > > > > Cheers,

> > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Sounds familiar. I think my number is 3.9 then I start having

problems. So as time as worn on I have problems when I used to be

fine!

Hi Kellie,

The way I understand it is that there is a normal range

(such as the 3.5 to 5 of most labs) but that within that

normal range, each individual's true "normal" may vary. In

other words, 3.8 could be perfectly fine for one person,

yet another person may need to be over 4.1 to avoid having

symptoms. I've had so much K testing done that I've been

able to determine that if my K falls below 4.1, I'll start

getting muscle cramps, and if it falls below 3.8, I'll

start getting palps.

- msmith1928

45, female, 5'3", 120 lbs, 1cm left adrenal nodule, supine

aldosterone 28.5/renin 0.2, potassium <2.9 (when not

taking supplements); 25mg spiro caused gynecomastia; no

HTN meds; current meds are 20MEQ K 2x/day, singulair 10mg,

norethindrone .35mg, cyclobenzaprine 5-10mg when needed,

fexofenadine 180mg when needed; low sodium, fructose- and

grain-free diet

> > >

> > > Hello,

> > >

> > > I am new to the group and have just been

diagnosed with primary

> > aldosteronism. My aldosterone level was 62

(2.0-20 normal range) from

> > my 24 hour urine test. And I had low potassium

(3.0-3.1) for the last

> > 6 months (I am on potassium so it is

increasing). I am in process of

> > scheduling a CT scan.

> > >

> > > My first question to the group is if anyone

knows of the link, if

> > there is one, between hyperthyroidism and

primary aldosteronism (or

> > Conn's)? I have two small nodules on one side of

my thyroid that have

> > caused me to go very hyperthyroid a handful of

times in my life. I am

> > seeing a Nephrologist and am wondering if he is

going to catch a link

> > if there could be one.

> > >

> > > My second question is if folks have had

issues with heart

> > palpitations (skipping beats) when their

aldosterone levels were high.

> > Mine are getting so frequent

(morning/noon/night) that it is driving

> > me crazy....and making me nervous. I have

already checked my thyroid

> > levels and they are normal. The palpitations

haven't improved at all

> > with the increase in potassium in my blood....if

anything that have

> > become more frequent. My Nephrologist doesn't

seem concerned about

> > them, and said that it wouldn't change his plan

of action. I feel like

> > a major symptom is being ignored. Maybe it is

common and not a big deal?

> > >

> > > Thank you!!!!

> > > Cheers,

> > >

> > >

> >

> >

>

[Guest guest]

Read my evolution paper again. Try to understand the concept of individual disease and group disease. CEGTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Hi MS and Dr. Grim,

I have a question for both of you based on MS's comment below.

Normal is 3.5 and higher but in January I experienced all the usual

symptoms for my potassium dropping so I went to the hospital. A week

earlier my potassium was 4.3 and a week later which was after my

cycle the hospital said it was 3.9 so technically it was still normal.

Is this a common occurrence for PA patients. I said something to my

endo about it and she didn't have much to say.

Thanks

Kellie

Hi ,

I get palpitations even when my potassium tests at

so-called normal (3.5-5) - if it dips below 4.2 for me, my

symptoms show up. I think it's pretty common.

Hope that helps!

-msmith1928

>

> Hello,

>

> I am new to the group and have just been diagnosed

with primary aldosteronism. My aldosterone level was 62

(2.0-20 normal range) from my 24 hour urine test. And I

had low potassium (3.0-3.1) for the last 6 months (I am on

potassium so it is increasing). I am in process of

scheduling a CT scan.

>

> My first question to the group is if anyone knows of

the link, if there is one, between hyperthyroidism and

primary aldosteronism (or Conn's)? I have two small

nodules on one side of my thyroid that have caused me to

go very hyperthyroid a handful of times in my life. I am

seeing a Nephrologist and am wondering if he is going to

catch a link if there could be one.

>

> My second question is if folks have had issues with

heart palpitations (skipping beats) when their aldosterone

levels were high. Mine are getting so frequent

(morning/noon/night) that it is driving me crazy....and

making me nervous. I have already checked my thyroid

levels and they are normal. The palpitations haven't

improved at all with the increase in potassium in my

blood....if anything that have become more frequent. My

Nephrologist doesn't seem concerned about them, and said

that it wouldn't change his plan of action. I feel like a

major symptom is being ignored. Maybe it is common and not

a big deal?

>

> Thank you!!!!

> Cheers,

>

>

[Guest guest]

I will do that.

Kellie Sent from my Samsung Epicâ„¢ 4G

Clarence Grim wrote:

>Read my evolution paper again. Try to understand the concept of individual

disease and group disease.

>CEG

>Tiped sad Send form mi

>iPhone ;-)

>

>May your pressure be low!

>

>CE Grim MD

>Specializing in Difficult

>Hypertension

>

>On May 12, 2011, at 4:56 PM, Kellie

wrote:

>

>> Hi MS and Dr. Grim,

>>

>> I have a question for both of you based on MS's comment below. Normal is 3.5

and higher but in January I experienced all the usual symptoms for my potassium

dropping so I went to the hospital. A week earlier my potassium was 4.3 and a

week later which was after my cycle the hospital said it was 3.9 so technically

it was still normal. Is this a common occurrence for PA patients. I said

something to my endo about it and she didn't have much to say.

>>

>> Thanks

>> Kellie

>>

>>

>>

>>>

>>> Hi ,

>>>

>>> I get palpitations even when my potassium tests at so-called normal (3.5-5)

- if it dips below 4.2 for me, my symptoms show up. I think it's pretty common.

>>>

>>> Hope that helps!

>>>

>>> -msmith1928

>>>

>>>

>>> >

>>> > Hello,

>>> >

>>> > I am new to the group and have just been diagnosed with primary

aldosteronism. My aldosterone level was 62 (2.0-20 normal range) from my 24 hour

urine test. And I had low potassium (3.0-3.1) for the last 6

months (I am on potassium so it is increasing). I am in process of scheduling a

CT scan.

>>> >

>>> > My first question to the group is if anyone knows of the link, if there is

one, between hyperthyroidism and primary aldosteronism (or Conn's)? I have two

small nodules on one side of my thyroid that have caused me to go very

hyperthyroid a handful of times in my life. I am seeing a Nephrologist and am

wondering if he is going to catch a link if there could be one.

>>> >

>>> > My second question is if folks have had issues with heart palpitations

(skipping beats) when their aldosterone levels were high. Mine are getting so

frequent (morning/noon/night) that it is driving me crazy....and making me

nervous. I have already checked my thyroid levels and they are normal. The

palpitations haven't improved at all with the increase in potassium in my

blood....if anything that have become more frequent. My Nephrologist doesn't

seem concerned about them, and said that it wouldn't change his

plan of action. I feel like a major symptom is being ignored. Maybe it is common

and not a big deal?

>>> >

>>> > Thank you!!!!

>>> > Cheers,

>>> >

>>> >

>>>

>>

>>

[Guest guest]

Review how they draw the blood for us. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Hi MS and Dr. Grim,

I have a question for both of you based on MS's comment below.

Normal is 3.5 and higher but in January I experienced all the usual

symptoms for my potassium dropping so I went to the hospital. A week

earlier my potassium was 4.3 and a week later which was after my

cycle the hospital said it was 3.9 so technically it was still normal.

Is this a common occurrence for PA patients. I said something to my

endo about it and she didn't have much to say.

Thanks

Kellie

Hi ,

I get palpitations even when my potassium tests at

so-called normal (3.5-5) - if it dips below 4.2 for me, my

symptoms show up. I think it's pretty common.

Hope that helps!

-msmith1928

>

> Hello,

>

> I am new to the group and have just been diagnosed

with primary aldosteronism. My aldosterone level was 62

(2.0-20 normal range) from my 24 hour urine test. And I

had low potassium (3.0-3.1) for the last 6 months (I am on

potassium so it is increasing). I am in process of

scheduling a CT scan.

>

> My first question to the group is if anyone knows of

the link, if there is one, between hyperthyroidism and

primary aldosteronism (or Conn's)? I have two small

nodules on one side of my thyroid that have caused me to

go very hyperthyroid a handful of times in my life. I am

seeing a Nephrologist and am wondering if he is going to

catch a link if there could be one.

>

> My second question is if folks have had issues with

heart palpitations (skipping beats) when their aldosterone

levels were high. Mine are getting so frequent

(morning/noon/night) that it is driving me crazy....and

making me nervous. I have already checked my thyroid

levels and they are normal. The palpitations haven't

improved at all with the increase in potassium in my

blood....if anything that have become more frequent. My

Nephrologist doesn't seem concerned about them, and said

that it wouldn't change his plan of action. I feel like a

major symptom is being ignored. Maybe it is common and not

a big deal?

>

> Thank you!!!!

> Cheers,

>

>

[Guest guest]

Thank you to everyone for your responses. It is nice to hear that other people

have palpitations as well.

I talked to my endo doc (who is fantastic) and her response to my question if

there could be a link between my hyperthyroidism from the hot nodules and the PA

and she said " very unlikely. " She also said that they would treat them

separately anyway.

Cheers,

[Guest guest]

Nice....not.

That's good news!

I have copies of my labs going back to 2003 and back then,

one of the labs used 3.1 (!) as the bottom end of normal.

I was pretty consistently 3.2 for years, with all the

expected symptoms, but because that lab's standard was so

low, it was never caught.

> > > > >

> > > > > Hello,

> > > > >

> > > > > I am new to the group and have

just been diagnosed with primary

> > > > aldosteronism. My aldosterone level

was 62 (2.0-20 normal range) from

> > > > my 24 hour urine test. And I had low

potassium (3.0-3.1) for the last

> > > > 6 months (I am on potassium so it is

increasing). I am in process of

> > > > scheduling a CT scan.

> > > > >

> > > > > My first question to the group is

if anyone knows of the link, if

> > > > there is one, between hyperthyroidism

and primary aldosteronism (or

> > > > Conn's)? I have two small nodules on

one side of my thyroid that have

> > > > caused me to go very hyperthyroid a

handful of times in my life. I am

> > > > seeing a Nephrologist and am wondering

if he is going to catch a link

> > > > if there could be one.

> > > > >

> > > > > My second question is if folks

have had issues with heart

> > > > palpitations (skipping beats) when

their aldosterone levels were high.

> > > > Mine are getting so frequent

(morning/noon/night) that it is driving

> > > > me crazy....and making me nervous. I

have already checked my thyroid

> > > > levels and they are normal. The

palpitations haven't improved at all

> > > > with the increase in potassium in my

blood....if anything that have

> > > > become more frequent. My Nephrologist

doesn't seem concerned about

> > > > them, and said that it wouldn't change

his plan of action. I feel like

> > > > a major symptom is being ignored.

Maybe it is common and not a big deal?

> > > > >

> > > > > Thank you!!!!

> > > > > Cheers,

> > > > >

> > > > >

> > > >

> > > >

> > >

> >

>