Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 Welcome! Which doctor are you seeing? The MRI is standard procedure - they have to do that to find out if it's congenital or idiopathic. The casting process does involve being under general anesthesia. They administer a large dose of muscle relaxers and put the upper and lower parts of the body in sort of traction to gently manipulate the spine back into position, then cast it there. They also use a breathing tube to protect the airway. But, as far as treatment for scoliosis goes, it is the most gently, lowest intervention. Braces usually do not correct - and usually do not correct for rotation as well as the curve. Casting is definitely the BEST course of action in a case of progressive infantile scoliosis. If you are seeing a properly trained surgeon, with the proper pediatric frame, you're in good hands. My son has grown tremendously since he was first casted. He is 19 months and wears a 3T. He's gone from 95th percentile in height to way off the charts. He learned to walk in the cast, and now runs and climbs in it. It is far easier for him to move in than it was in his brace. His curve was 70° upon diagnosis and he is now down to 38° out of a cast and 22° in a cast. I have no doubt that this is a cure for us and we are so grateful for the opportunity. If I can answer any other questions, please let me know. Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 HI Ethelyn! Welcome to the group...... It really is helpful to have the support! Did you decide that you are going to cast? Which doctor are you going to? ethelyn billones wrote: Hello everybody, I am Ethelyn I learned about this group while I was surfing the net for my daughters conditon. She is 3 1/2 y.o. and was diagnosed to have scoliosis. This was last Feb .27. Actually the scoliosis xray was done last Oct. 2007 and I was told that the angle is 32 degrees. It was an incidental finding when she had a chest x-ray; that means she has no other noticeable signs/symptoms. About two days ago though I already noticed that she is leaning to her left. The plan is for her to have a body cast which will be done under general anesthesia and this will be done on April 4. This really makes me worried considering that she is young and has to undergo this procedure. The orthopedic surgeon said adjustment will be done every 2-4 months. On May 5 MRI of the spine will also be done because she also has neurofibromatosis. This again will be done under IV sedation. I am wondering how did your babies " deal " with the cast on their body 24/7 or should I say how did you make your babies be able to take the ordeal. Are there anybody who had a good experience with braces? How's the growthof your children. Will it not be stunted by the cast. Is there anybody who's child has also neurofibromatosis. My daughter was only seen by one orthopedic surgeon and when I expressed a lot of concern for the procedure her casting was moved from March 18 toApril 4. For fear that further delay might worsen her case I did not decline the upcoming procedure. However, I have a schedule with another orthopedic surgeon on March 20. I am not sure what will the result be for this second consult with another doctor. Thanks lot everybody. I have read a lot of messages and all of your messages to everybody are very supportive and informative. Sincerely, Ethelyn --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Hello Shar; We have quite a crew of people with Stills and are so willing to be supportive and helpful the best way they know how. As I have said before I do not have Stills but have very close friend that has. So I am not much help in that area. But I have experienced a flue bug myself lately. It just hit me suddenly with no warning. I wasn't sure what happened. But last night I had it confirmed that it is one of those bugs that runs rapid and hits a lot of people when they least expect it. It isn't pleasant - I know. I just thought I would extend my concern for you and do hope you will get over soon. In fact you may be feeling a little better by the time you receive this. I think it lasts about 24-48 hours. Anyway - my prayers are with you and hope you will be able to pick up soon. Sincerely with hugs Lulu > Thanks everyone, > for your info, sometimes when your sick its just nice to get a letter > I'm still very sick with the flu, the ad part is that I have changed > my meds about 10 days ago and there not working very good > that's way I'm thinking it might bring on a flair, right i can't > walk very good > and the pain, I can't talk my meds right now....I can't keep > anything down. > Shar > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2010 Report Share Posted June 23, 2010 If you send another of these u willl be banned. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension http://miqedaza.t35.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 Nice ! thank you, hugs, joey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I was reading a cool study yesterday about Lyme testing on dogs. They would treat the dogs by giving them Lyme Dz then treat them with amoxicillin, doxy, and so on, but the one thing I got from it was exactly what you mention-they seemed in many to get the actual acute illness okay, but couldn't rid the toxins. I will try to find it again and post it.> Had adrenalectomy Oct 2006 after having AVS show adenoma was > definitely producing excess aldosterone and other adrenal gland was > not. Maintaining normal BP and serum K although Lyme disease nearly > killed me.>> Have other issues now with genetic inability to detox Lyme toxins > (HLA testing) and proof of immune supression but my BP is A-OK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 More dogs with lyme than Humans so they say. I actually had a pt with Lyme heart disease. Later he told me his dog had been dxed and rxed for Lyme before he got sick the second time (patient).CE Grim MDI was reading a cool study yesterday about Lyme testing on dogs. They would treat the dogs by giving them Lyme Dz then treat them with amoxicillin, doxy, and so on, but the one thing I got from it was exactly what you mention-they seemed in many to get the actual acute illness okay, but couldn't rid the toxins. I will try to find it again and post it.> Had adrenalectomy Oct 2006 after having AVS show adenoma was > definitely producing excess aldosterone and other adrenal gland was > not. Maintaining normal BP and serum K although Lyme disease nearly > killed me.>> Have other issues now with genetic inability to detox Lyme toxins > (HLA testing) and proof of immune supression but my BP is A-OK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 Best place to go for lyme is Columbia University Medical Center. You must be close to there. > > > > > Had adrenalectomy Oct 2006 after having AVS show adenoma was > > > definitely producing excess aldosterone and other adrenal gland was > > > not. Maintaining normal BP and serum K although Lyme disease nearly > > > killed me. > > > > > > Have other issues now with genetic inability to detox Lyme toxins > > > (HLA testing) and proof of immune supression but my BP is A-OK > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2012 Report Share Posted July 1, 2012 > ** > > > I ran into these today looking for rum CO2 extract. Is anyone familiar > with these. It says that they are from the plants, mostly CO2 extracted. > There are mostly fruit extracts. Are they too good to be true? > http://www.medicineflower.com/flavorextracts.html > __ > I'm curious as well - seems too good to be true to me too. Sounds neat though! Andriot, owner Vetiver Aromatics <http://vetiveraromatics.com/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2012 Report Share Posted July 1, 2012 I've seen this before also , and given their price points, wondering how much of the oils are actually in the products? They may be legit, hope they are, would love to try some Isis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2012 Report Share Posted July 1, 2012 I ran into these today looking for rum CO2 extract. Is anyone familiar with these. It says that they are from the plants, mostly CO2 extracted. There are mostly fruit extracts. Are they too good to be true? http://www.medicineflower.com/flavorextracts.html Hi, :These look good and worth a try.  I would definitely try the ones that I am not able to tincture.Thanks for the linkBest Regards,Margo  www.miraculousbeads.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2012 Report Share Posted July 1, 2012 > I ran into these today looking for rum CO2 extract. Is anyone familiar with these. It says that they are from the plants, mostly CO2 extracted. There are mostly fruit extracts. Are they too good to be true? > http://www.medicineflower.com/flavorextracts.html > > " soluble in water and oil " - which means they're not soluble in alcohol. They are OK for oil-based products. Flavor extracts are nothing new. In fact, I think that side of the industry probably has more sales than the fragrance side. Also, they might not have the diffusive properties we're used to with fragrance materials. Anya McCoy http://AnyasGarden.com http://NaturalPerfumers.com http://PerfumeClasses.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2012 Report Share Posted July 1, 2012 ________________________________ Â I've seen this before also , and given their price points, wondering how much of the oils are actually in the products? They may be legit, hope they are, would love to try some Isis I know, me too. I want to believe, my head is swimming with all of the potential ideas.... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.