Re: Cry for help

[Guest guest]

Tell us what your K has been and meds that have failed.What are your renin and aldo numbers exactly. If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?Read my evolution article and tell us what stage you think your are in.CE Grim MDDear Dr Grim and all friends, I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything. Thank you very much for you help. Natasha Kamneva

[Guest guest]

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

Do u have a Fam Hx of HTN? Where are you.How much salt was in the 24 hr urine when renin and Aldo were done? Are you taking any supplements of any kind?Read my part about AME in the article. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

Also what are your normal values for that lab?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

Your renin and Aldo are both very low. An interesting and rare problem. Could also be Liddle's syndrome. Do you chew tobacco or snuff that is flavored with licorice?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

Micardis and lisinopril will not work when renin is low. You and your medical fteM need to reAd my article. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

Hi Natasha,

You say you are on ARB+ACEI combo. In 2009 a memo from health organizations to doctors warned them to stop this combo immediately on their patients due to sudden HF or MI (heart attacks).

Max.

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

[Guest guest]

ARB/ACE-inhibitor combo not recommended in CHF September 8, 2009 | Nainggolan

Download slides

Barcelona, Spain - The combination of angiotensin-receptor blockers (ARBs) and ACE inhibitors should not be used to treat congestive heart failure (CHF), because the benefits do not outweigh the risks, according to the results of a new meta-analysis. Dr Kuenzli (University Hospital, Basel, Switzerland) reported the findings at the European Society of Cardiology 2009 Congress last week. Kuenzli and colleagues found that the combination of ARB and ACE inhibitor reduced hospitalizations for heart failure but did not affect mortality or hospitalizations overall and was associated with adverse events. "Combination therapy is expensive and has the risk of serious side effects, such as hyperkalemia and worsening renal failure," senior author Dr Alain Nordmann (University Hospital) told heartwire. "[This] combination therapy should not be used unless you encounter a problem with treating a patient or the patient is not doing well on therapy with beta blockers and/or ACE inhibitors," he said.

Nordmann said it may be that specific heart-failure patients might benefit from this combination—for example, those with good renal function or younger patients—and that he and his colleagues had hoped to try to identify such candidates by performing an individual patient-data meta-analysis. "But unfortunately, the principal investigators of the trials that were industry sponsored—such as CHARM—were not willing to share their data, so we had to rely on aggregate data to conduct this meta-analysis."

Before anyone goes on to conduct another randomized controlled trial in this patient population, he says it "would be really helpful to do an individual patient-data meta-analysis, so that the patients who would benefit most from combination therapy could be identified."

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

[Guest guest]

1.No, I don't chew tobacco.

2.Supplements that I take are Kyolic Formula 109 and Fish Oil. That's all.

3.My sodium was 25 when I was hospitalized. Now it's about 32 - 33.

4. I live near Pittsburgh, PA.

I am trying to figure out answers to your other questions.

Many thanks.

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Tue, December 28, 2010 7:00:01 PMSubject: Re: Cry for help

Your renin and Aldo are both very low. An interesting and rare problem. Could also be Liddle's syndrome. Do you chew tobacco or snuff that is flavored with licorice?

Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

I will bring your article to my endocrinologist. My next appointment is January, 11th.

What medications should work for me? Should I take spiro or Inspra?

Many thanks,

Natasha

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Tue, December 28, 2010 7:01:27 PMSubject: Re: Cry for help

Micardis and lisinopril will not work when renin is low. You and your medical fteM need to reAd my article. Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

What is Fam Hx? I have hypertension.

That's what they said in lab:

PLASMA RENIN ACTIVITY 0.36

Adult Normal Salt Intake:

Upright 1.31 - 3.95

Supine 0.15 - 2.33

Salt Excretion

Na= 0 - 30 8.82 - 23.86

Na= 30 - 75 4.09 - 7.73

Na= 75 - 150 1.44 - 2.80

Na= >150 0.39 - 1.31

ALDOSTERONE 1.9

reference range: 0.0 to 30.0

CORTISOL, F, 24U 46

reference range: 0 to 50

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Tue, December 28, 2010 6:56:43 PMSubject: Re: Cry for help

Do u have a Fam Hx of HTN? Where are you.How much salt was in the 24 hr urine when renin and Aldo were done? Are you taking any supplements of any kind?

Read my part about AME in the article. Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

Fam HX  is family history.

 

Pam

 

What is Fam Hx? I have hypertension.

 

That's what they said in lab:

 

PLASMA RENIN ACTIVITY        0.36

 

                                                Adult Normal Salt Intake:

                                                Upright    1.31     -   3.95

                                                Supine     0.15    -    2.33

 

                                                Salt Excretion

 

                                                 Na=    0    -    30    8.82    -    23.86

                                                 Na=    30    -    75    4.09    -    7.73

                                                 Na=    75    -    150    1.44    -    2.80

                                                 Na=    >150               0.39    -    1.31

 

 

ALDOSTERONE                    1.9

                                                reference range: 0.0 to 30.0

 

 

CORTISOL, F, 24U                 46

                                                reference range: 0    to    50

To: " hyperaldosteronism " <hyperaldosteronism >

Sent: Tue, December 28, 2010 6:56:43 PMSubject: Re: Cry for help 

Do u have a Fam Hx of HTN? Where are you.How much salt was in the 24 hr urine when renin and Aldo were done?  Are you taking any supplements of any kind?

Read my part about AME in the article. Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

 

Dear Dr. Grim,

 

My K is normal in all tests.

 

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

 

I know that in a hospital they didn't find any aldo in my blood.

 

My 24 hours urine test showed

 

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE                    1.9

 

It seems normal, but I suffer absolutely all symptoms of  hyperaldosteronism.

 

I never ate licorice and didn't hear about it never in my life.

 

I would be happy to read your article. Could you please, give me a title and link to it?

 

I appreciate your help very much.

 

Sincerely,

 

Natasha Kamneva

To: hyperaldosteronism

Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PM

Subject: Re: Cry for help 

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly. 

If there is no renin or aldo  (hormones that can cause high blood pressure)  in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

 

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

 

Thank you very much for you help.

 

Natasha Kamneva

 

 

 

 

 

[Guest guest]

What this means is any family members health history. alive or dead.

> >

> >

> > Dear Dr Grim and all friends,

> >

> > I am newcomer in this yahoogroups and I even was not yet diagnosed with

> > Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood

> > pressure is extremely high, often over 200/100 and is uncontrollable by any

> > medications. I feel all the same symptoms that you described here. For last

> > 3 months I was three times in the hospital for more than three weeks, but

> > they didn't find hormones neither in my blood nor in my 24 urine test.

> > Now I am looking for a good knowledgeable in Coon's syndrome

> > endocrinologist.

> > Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

> > I would appreciate it greatly. I am 66 years old, my English is far from

> > perfect, I am also diabetic, I live alone and I am extremely scared,

> > frustrated and almost paralized in my efforts to do anything.

> >

> > Thank you very much for you help.

> >

> > Natasha Kamneva

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

[Guest guest]

go to this site http://www.ash-us.org/

> > >

> > >

> > >>

> > >>Dear Dr Grim and all friends,

> > >>

> > >>I am newcomer in this yahoogroups and I even was not yet diagnosed with

> >Coon's

> >

> > >>syndrome or pheo, but Cscan found a lump on my adrenal and my blood

pressure

> >is

> >

> > >>extremely high, often over 200/100 and is uncontrollable by any

medications.

> >I

> >

> > >>feel all the same symptoms that you described here. For last 3 months I

was

> > >>three times in the hospital for more than three weeks, but they didn't

find

> > >>hormones neither in my blood nor in my 24 urine test.

> > >>Now I am looking for a good knowledgeable in Coon's syndrome

> endocrinologist.

> > >>Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

> > >>I would appreciate it greatly. I am 66 years old, my English is far from

> > >>perfect, I am also diabetic, I live alone and I am extremely scared,

> >frustrated

> >

> > >>and almost paralized in my efforts to do anything.

> > >>

> > >>Thank you very much for you help.

> > >>

> > >>Natasha Kamneva

> > >>

> > >>

> > >>

> > >> 

> > >>>>

> > >>>> 

> > >>>>

> > >>>>

> > >>>>

> > >>>> 

> > >>>>

> > >>>>

> > >>>>

> > >>>> 

> > >>>>

> > >>>>

> > >>>>>

> > >>>>>

> > >>> 

> > >>>

> > >>>>

> > >>>>

> > >>>>

> > >>>>

> > >>

> > >>

> > >>

> > >>

> > >>

> > >>

> > >>

> > >

> > >

> >

>

[Guest guest]

Not many endocrinologists know how to treat PA.

> > >

> > >

> > >>

> > >>Dear Dr Grim and all friends,

> > >>

> > >>I am newcomer in this yahoogroups and I even was not yet diagnosed with

> >Coon's

> >

> > >>syndrome or pheo, but Cscan found a lump on my adrenal and my blood

pressure

> >is

> >

> > >>extremely high, often over 200/100 and is uncontrollable by any

medications.

> >I

> >

> > >>feel all the same symptoms that you described here. For last 3 months I

was

> > >>three times in the hospital for more than three weeks, but they didn't

find

> > >>hormones neither in my blood nor in my 24 urine test.

> > >>Now I am looking for a good knowledgeable in Coon's syndrome

> endocrinologist.

> > >>Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

> > >>I would appreciate it greatly. I am 66 years old, my English is far from

> > >>perfect, I am also diabetic, I live alone and I am extremely scared,

> >frustrated

> >

> > >>and almost paralized in my efforts to do anything.

> > >>

> > >>Thank you very much for you help.

> > >>

> > >>Natasha Kamneva

> > >>

> > >>

> > >>

> > >> 

> > >>>>

> > >>>> 

> > >>>>

> > >>>>

> > >>>>

> > >>>> 

> > >>>>

> > >>>>

> > >>>>

> > >>>> 

> > >>>>

> > >>>>

> > >>>>>

> > >>>>>

> > >>> 

> > >>>

> > >>>>

> > >>>>

> > >>>>

> > >>>>

> > >>

> > >>

> > >>

> > >>

> > >>

> > >>

> > >>

> > >

> > >

> >

>

[Guest guest]

Have you had any 24 hr urine test done? If so what for.

> > > >

> > > >

> > > >>

> > > >>Dear Dr Grim and all friends,

> > > >>

> > > >>I am newcomer in this yahoogroups and I even was not yet diagnosed with

> > >Coon's

> > >

> > > >>syndrome or pheo, but Cscan found a lump on my adrenal and my blood

> >pressure

> >

> > >is

> > >

> > > >>extremely high, often over 200/100 and is uncontrollable by any

> >medications.

> >

> > >I

> > >

> > > >>feel all the same symptoms that you described here. For last 3 months I

was

> >

> > > >>three times in the hospital for more than three weeks, but they didn't

find

> >

> > > >>hormones neither in my blood nor in my 24 urine test.

> > > >>Now I am looking for a good knowledgeable in Coon's syndrome

> > endocrinologist.

> > > >>Could anybody recommend me such a doctor in Pittsburgh, PA or

vicinities?

> > > >>I would appreciate it greatly. I am 66 years old, my English is far from

> > > >>perfect, I am also diabetic, I live alone and I am extremely scared,

> > >frustrated

> > >

> > > >>and almost paralized in my efforts to do anything.

> > > >>

> > > >>Thank you very much for you help.

> > > >>

> > > >>Natasha Kamneva

> > > >>

> > > >>

> > > >>

> > > >> 

> > > >>>>

> > > >>>> 

> > > >>>>

> > > >>>>

> > > >>>>

> > > >>>> 

> > > >>>>

> > > >>>>

> > > >>>>

> > > >>>> 

> > > >>>>

> > > >>>>

> > > >>>>>

> > > >>>>>

> > > >>> 

> > > >>>

> > > >>>>

> > > >>>>

> > > >>>>

> > > >>>>

> > > >>

> > > >>

> > > >>

> > > >>

> > > >>

> > > >>

> > > >>

> > > >

> > > >

> > >

> >

>

[Guest guest]

Please down load our acrynyms list so you can learn the language. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

What is Fam Hx? I have hypertension.

That's what they said in lab:

PLASMA RENIN ACTIVITY 0.36

Adult Normal Salt Intake:

Upright 1.31 - 3.95

Supine 0.15 - 2.33

Salt Excretion

Na= 0 - 30 8.82 - 23.86

Na= 30 - 75 4.09 - 7.73

Na= 75 - 150 1.44 - 2.80

Na= >150 0.39 - 1.31

ALDOSTERONE 1.9

reference range: 0.0 to 30.0

CORTISOL, F, 24U 46

reference range: 0 to 50

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Tue, December 28, 2010 6:56:43 PMSubject: Re: Cry for help

Do u have a Fam Hx of HTN? Where are you.How much salt was in the 24 hr urine when renin and Aldo were done? Are you taking any supplements of any kind?

Read my part about AME in the article. Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

If your sodium was 25 u would be dead. So you must have given us something else like urine Na. ???Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

1.No, I don't chew tobacco.

2.Supplements that I take are Kyolic Formula 109 and Fish Oil. That's all.

3.My sodium was 25 when I was hospitalized. Now it's about 32 - 33.

4. I live near Pittsburgh, PA.

I am trying to figure out answers to your other questions.

Many thanks.

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Tue, December 28, 2010 7:00:01 PMSubject: Re: Cry for help

Your renin and Aldo are both very low. An interesting and rare problem. Could also be Liddle's syndrome. Do you chew tobacco or snuff that is flavored with licorice?

Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

Heart attack at 33 usually means severe familial hypercholesterolemia. What was his cholesterol numbers bTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

What is Fam Hx? I have hypertension.

That's what they said in lab:

PLASMA RENIN ACTIVITY 0.36

Adult Normal Salt Intake:

Upright 1.31 - 3.95

Supine 0.15 - 2.33

Salt Excretion

Na= 0 - 30 8.82 - 23.86

Na= 30 - 75 4.09 - 7.73

Na= 75 - 150 1.44 - 2.80

Na= >150 0.39 - 1.31

ALDOSTERONE 1.9

reference range: 0.0 to 30.0

CORTISOL, F, 24U 46

reference range: 0 to 50

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Tue, December 28, 2010 6:56:43 PMSubject: Re: Cry for help

Do u have a Fam Hx of HTN? Where are you.How much salt was in the 24 hr urine when renin and Aldo were done? Are you taking any supplements of any kind?

Read my part about AME in the article. Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

I think in one of her postings she said she was of Russian decent.

> >>

> >>>

> >>> Dear Dr Grim and all friends,

> >>>

> >>> I am newcomer in this yahoogroups and I even was not yet diagnosed with

Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood

pressure is extremely high, often over 200/100 and is uncontrollable by any

medications. I feel all the same symptoms that you described here. For last 3

months I was three times in the hospital for more than three weeks, but they

didn't find hormones neither in my blood nor in my 24 urine test.

> >>> Now I am looking for a good knowledgeable in Coon's syndrome

endocrinologist.

> >>> Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

> >>> I would appreciate it greatly. I am 66 years old, my English is far from

perfect, I am also diabetic, I live alone and I am extremely scared, frustrated

and almost paralized in my efforts to do anything.

> >>>

> >>> Thank you very much for you help.

> >>>

> >>> Natasha Kamneva

> >>>

> >>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>>

> >>>>

> >>>>

> >>>

> >>>

> >>>

> >>

> >>

> >

> >

>

[Guest guest]

So start off your note LOW RENIN AND LOW ALDO strong FH HTN SUGGESTS AME OR LIDDLE's tested during low na intake <25 Meq/d. But need to know if urine Na was per 24 hr or mM/L Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

What is Fam Hx? I have hypertension.

That's what they said in lab:

PLASMA RENIN ACTIVITY 0.36

Adult Normal Salt Intake:

Upright 1.31 - 3.95

Supine 0.15 - 2.33

Salt Excretion

Na= 0 - 30 8.82 - 23.86

Na= 30 - 75 4.09 - 7.73

Na= 75 - 150 1.44 - 2.80

Na= >150 0.39 - 1.31

ALDOSTERONE 1.9

reference range: 0.0 to 30.0

CORTISOL, F, 24U 46

reference range: 0 to 50

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Tue, December 28, 2010 6:56:43 PMSubject: Re: Cry for help

Do u have a Fam Hx of HTN? Where are you.How much salt was in the 24 hr urine when renin and Aldo were done? Are you taking any supplements of any kind?

Read my part about AME in the article. Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

What is Kystolic and what is in it?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

1.No, I don't chew tobacco.

2.Supplements that I take are Kyolic Formula 109 and Fish Oil. That's all.

3.My sodium was 25 when I was hospitalized. Now it's about 32 - 33.

4. I live near Pittsburgh, PA.

I am trying to figure out answers to your other questions.

Many thanks.

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Tue, December 28, 2010 7:00:01 PMSubject: Re: Cry for help

Your renin and Aldo are both very low. An interesting and rare problem. Could also be Liddle's syndrome. Do you chew tobacco or snuff that is flavored with licorice?

Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva

[Guest guest]

Either should work. Inspra will cost 10x more but if your insurance will pay start with that never side effects at least fir short term. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertension

I will bring your article to my endocrinologist. My next appointment is January, 11th.

What medications should work for me? Should I take spiro or Inspra?

Many thanks,

Natasha

To: "hyperaldosteronism " <hyperaldosteronism >Sent: Tue, December 28, 2010 7:01:27 PMSubject: Re: Cry for help

Micardis and lisinopril will not work when renin is low. You and your medical fteM need to reAd my article. Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

Dear Dr. Grim,

My K is normal in all tests.

I cannot take betablockers and calcium channel blockers - they increase my blood pressure to 220/120. So, I am now on 80 mg of micardis twice a day, 10 mg of lisinopril once a day and 0.25 mg of clonidine. I still have two-three times a day spikes of BP about 200/100.

I know that in a hospital they didn't find any aldo in my blood.

My 24 hours urine test showed

PLASMA RENIN ACTIVITY 0.36

ALDOSTERONE 1.9

It seems normal, but I suffer absolutely all symptoms of hyperaldosteronism.

I never ate licorice and didn't hear about it never in my life.

I would be happy to read your article. Could you please, give me a title and link to it?

I appreciate your help very much.

Sincerely,

Natasha Kamneva

To: hyperaldosteronism Cc: Clarence Grim Sent: Thu, December 9, 2010 9:43:14 PMSubject: Re: Cry for help

Tell us what your K has been and meds that have failed.

What are your renin and aldo numbers exactly.

If there is no renin or aldo (hormones that can cause high blood pressure) in your blood then are you eating licorice (that really good black candy from Holland esp) every day?

Read my evolution article and tell us what stage you think your are in.

CE Grim MD

Dear Dr Grim and all friends,

I am newcomer in this yahoogroups and I even was not yet diagnosed with Coon's syndrome or pheo, but Cscan found a lump on my adrenal and my blood pressure is extremely high, often over 200/100 and is uncontrollable by any medications. I feel all the same symptoms that you described here. For last 3 months I was three times in the hospital for more than three weeks, but they didn't find hormones neither in my blood nor in my 24 urine test.

Now I am looking for a good knowledgeable in Coon's syndrome endocrinologist.

Could anybody recommend me such a doctor in Pittsburgh, PA or vicinities?

I would appreciate it greatly. I am 66 years old, my English is far from perfect, I am also diabetic, I live alone and I am extremely scared, frustrated and almost paralized in my efforts to do anything.

Thank you very much for you help.

Natasha Kamneva