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Re: NT-3 study ->to

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Hi ,

The NT-3 study was done several years ago. NT-3 is a type of nerve

growth factor. The first human trials proved that NT-3 can help

persons with CMT 1A. Look in our Files for info on it.

I'm so happy to hear you're still riding :) Good exercise and

nothing like a horse for a friend :) Good horse book for you, (you

too Liz,) " Chosen By A Horse " by s. About how an adopted

horse helps a woman with her illness.

No, CMT isn't " progressive " in the same sense ALS is at all. Hey,

these days I am grateful for just having CMT, because one of my

neighbor soccer Mom's, age 45, was diagnosed with ALS in Feb of this

year and watching her wickedly fast " progression " has been quite a

shocking, learning experience. Now she cannot be left alone because

of falling, has also stopped driving, has gone from use of a cane to

wheelchair to powerchair in 2 months.

OK, so 'clumsy' me dropped a bunch of apple slices on the kitchen

floor tonight - hey, that's CMT. But it doesn't bother me, that's

just a CMT 'thing' - lol, and my dog was real happy too :)

~ Gretchen

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